Aa
tx or not?
Hello All, Have had the c for about 30 years, diagnosed 2 years ago, ignored it for a year then came diabettis, vl-was 14,000,000, alt-ast were a little high, quit drinking, started eating healthy for 7 months then did my biopsy, it came back grade 2 stage 2 portal expansion by fibrosis with periportal
fibrosis present, ductopenia with several portal tracts where no distinct bile duct visualized, (whatever all that means?) while mulling all that over, went to the doc with a sore foot I have had for several months, and it is apperently peripheral neuropathy, I read that tx, and this neurothapy do not go well together well, some good new's though vl had dropped to 5 mil. and ast-alt were normal, I guess my question is what in your opinion's should I do? I didn't get much info from my doc, would appreciate any interpetaions on this biopsy, and the diabetic neurotpathy, and how many more surprises can I expect? Thanks
fibrosis present, ductopenia with several portal tracts where no distinct bile duct visualized, (whatever all that means?) while mulling all that over, went to the doc with a sore foot I have had for several months, and it is apperently peripheral neuropathy, I read that tx, and this neurothapy do not go well together well, some good new's though vl had dropped to 5 mil. and ast-alt were normal, I guess my question is what in your opinion's should I do? I didn't get much info from my doc, would appreciate any interpetaions on this biopsy, and the diabetic neurotpathy, and how many more surprises can I expect? Thanks
thanks for the info, will try the gabapentin, I am not a vietnam vet but I am sure I got it from partying with a vet that had just came got back from nam, there was a whole group of us friend's that did a lot of partying back then, (young and dumb) and several of us have came up with the hep c. back then we thought we were invincable, now most of us like playing with the grand-kids, and this bites us in the butt, anyway thanks again for the info, and advice..
I was dx with hepC in 1989. Treatment then was early stage and not as effective as today. Besides it made you very sick. Have had cirrhosis for 13 years.
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
I was dx with hepC in 1989. Treatment then was early stage and not as effective as today. Besides it made you very sick. Have had cirrhosis for 13 years.
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
I was dx with hepC in 1989. Treatment then was early stage and not as effective as today. Besides it made you very sick. Have had cirrhosis for 13 years.
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
I was dx with hepC in 1989. Treatment then was early stage and not as effective as today. Besides it made you very sick. Have had cirrhosis for 13 years.
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
I was dx with hepC in 1989. Treatment then was early stage and not as effective as today. Besides it made you very sick. Have had cirrhosis for 13 years.
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
I was dx with hepC in 1989. Treatment then was early stage and not as effective as today. Besides it made you very sick. Have had cirrhosis for 13 years.
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
I was dx with hepC in 1989. Treatment then was early stage and not as effective as today. Besides it made you very sick. Have had cirrhosis for 13 years.
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
Peripheral Neuropathy is also a symptom of HepC and I have it. Gabapentin is the only effective treatment. It works pretty well for me. But if I let it get out of my system the Neuropathy gets bad. I have numbness is hands and feet. Pain in feet is unbearable at times. I use to put wet rags in the freezer and then put the rags on my feet. It helped. My hands are clumbsy because lack of feeling. I'm unsteady on my feet due to the same. Sometimes I feel the sensation of standing in water. But the throbing and burning is very bad.
Treatment today is much more tolerable and effective.
They thought I had diabetes also, thus the Neuropathy, But a neurologist dx. it was result of HepC
The best thing you did was to stop drinking. If you start again all the tx. in the world won't help. Healthy eating also was a good step.
Are you a Vietnam Vet? HepC is automatically concluded to be a result of Vietnam combat. If your not already signed up with the VA, do so now.
Portal Hypertension is something you should research. There are many medical sites that are very good. Webmd.com, Mayoclinic,com, HepatitisNeighborhood.com is good.
If I was recently dx with HepC, I believe that I would try the treatment since it has been received well. The earlier the better. But don't tell them if your are depressed. Any Psychological problems will eliminate you as a tx. candidate, which was my problem getting treatment.
get well,
Jim
I am sorry to hear you have this disease like the rest of us. I do have a question though as you mentioned Peripheral Neuropathy. What exactly are your symptoms. The reason I ask is I have had foot pain/ numbness for a few years I went to a podiatrist and he said I had Morton's Neuroma. I tried orthodics and anti- inflammatories and all the other stuff they recommend and mostly just lived with it until a few , months ago it became very intense. It would wake me up out of a dead sleep and keep me up half the night with intense burning sensation radiating down into my toes. Keep in mind this are all symptoms of Morton's Neuroma. I have had 2 cortisone injections and a freaking $400 orthodic made. it is still bothering me. The next step they say is surgery or injections to kill the nerve in my foot (which I have absolutely no desire to do). Anyway back to the point I had read about Peripheral Neuropathy as a symptom of HCV and wondered is it possible that is what I have? Do not get me wrong I am not a hypochondriac and do not look for things to be wrong with me but can not help but wonder if there is any link when I read this. I have been getting more and more symptomatic in the last year or so and am beginning to wonder about all of my aches and pains. I too have been wrestling with whether to treat or not. My stance has always been to wait since I was only Stage 2 grade 2 but I have been second guessing myself lately.
Hi, sorry you're dealing with this. I'm the same age as you (54 tomorrow though), same genotype and my VL has fluctuated from 17 million to 8 million over a few months for no apparent reason. It's not an indication that the virus is abating.
We have lots of archives here containing the "treat or wait" debates. It's a personal decision based on your liver damage, health, financial resources and family support. You said you developed diabetes. I was just dx with diabetes out of the blue --I'm not overweight, drinker or a smoker and it doesn't run in my family. As Hepatitis Researcher said in another thread:
"HCV and the bodywide enhanced inflammatory condition, particularly also in the pancreas, generates an additional risk factor for type II diabetes. Inflammation fosters insulin resistance. The basic propensity is genetically determined. HCV and obesity and bad eating habits will bring it to a clinical stage earlier, sometimes much earlier."
I was dx with HCV in 2004 and was adamantly opposed to tx. I'm ready now to go gently into the dark. The more I read the more I believe this virus wrecks havoc on the TOTAL body and as soon as I stabilize my blood sugar (maybe you can give me tips in another forum) I'm going to tx.
By the way, RA is rheumatoid arthritis which can be triggered by treatment if you have the genetic propensity for it.
All the Best,
Kittyface
We have lots of archives here containing the "treat or wait" debates. It's a personal decision based on your liver damage, health, financial resources and family support. You said you developed diabetes. I was just dx with diabetes out of the blue --I'm not overweight, drinker or a smoker and it doesn't run in my family. As Hepatitis Researcher said in another thread:
"HCV and the bodywide enhanced inflammatory condition, particularly also in the pancreas, generates an additional risk factor for type II diabetes. Inflammation fosters insulin resistance. The basic propensity is genetically determined. HCV and obesity and bad eating habits will bring it to a clinical stage earlier, sometimes much earlier."
I was dx with HCV in 2004 and was adamantly opposed to tx. I'm ready now to go gently into the dark. The more I read the more I believe this virus wrecks havoc on the TOTAL body and as soon as I stabilize my blood sugar (maybe you can give me tips in another forum) I'm going to tx.
By the way, RA is rheumatoid arthritis which can be triggered by treatment if you have the genetic propensity for it.
All the Best,
Kittyface
I'm 54,Geno1a, stage 1, grade 0. VL 470,000. Diagnosed 2003 and opted for the treatment 2006. During the 48 week course I was diagnosed with Hypothyroid (meds screw with your thyroid). My treatment ended June 8th but relapsed Sept. Because of my low VL and stage I probably could've waited for better drugs to come along but decided to treat instead. Like desrt said, eventually you're going to have to deal with it. When is up to you. Find out as much as you can before you commit yourself. I'm not sure how much being a diabetic will play into it though. If your doc can't provide you with some good information your best bet is to find a specialist who deals with Hep C. Good luck!
I am 53, with geno type 1a, I appreciate your suggestion on thyroid, will get it checked, but what is RA? and was wondering if you or anyone out there knows the affect of tx, on the neuropathy? and does the large drop in vl means my c is getting any better? (from 14ml-to 5ml? Thanks..
What is your age and your genotype?
While you don't want to aggravate any existing problems, grade 2 stage 2 is something you're probably going to have to deal with eventually. In your position, I'd get my thyroid checked, get checked out for RA factors, and do as much reading as possible in order to make an informed decision. This is a slow moving disease and if you take 6 months to a year to decide, other options may present themselves that will allow you to do treatment with less exposure to IFN.
Good luck. Knowledge=Power.
While you don't want to aggravate any existing problems, grade 2 stage 2 is something you're probably going to have to deal with eventually. In your position, I'd get my thyroid checked, get checked out for RA factors, and do as much reading as possible in order to make an informed decision. This is a slow moving disease and if you take 6 months to a year to decide, other options may present themselves that will allow you to do treatment with less exposure to IFN.
Good luck. Knowledge=Power.
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