worried abt mom

my mom is really is really sick with hep c and cirrosis (cirrhosis) she was hospitalized for hepatic encephalopathy and bloating Iam scared and dont quite no what to expect doctors dont give strait answeres has any one been through this ? and what are the stages of liver desease? how sick is she?

[cuteus]

how sick is she can only be answered by her physician, hopefully a hepatologist.  if you go to janis7hepc.com you find tons of hep c information to help you understand what your mom is going through.  What state is she in? has she been evaluated by a transplant team?  does she have access to a research hospital where you can possibly get a consult with a specialist?  A few members here have treated the hep c with the current available meds and some have been cured and some have averted progression of the damage.  what is her genotype?

[plb]

she has a great liver dr in london they say her liver is failing she also has kidney problems and fliud in her stomach that is infected with spb can she get better?

[plb]

she also was in london and had to have a tranfusion and the dr said her platlets were low and she had bleeding in the abdomen she is now at home but is very swollen and is on water pills but she needs them increased but dr say her kidneys arent funtioning good enough to increase them right now Iam very scared that she wont make it and would like to no what to expect?

[cuteus]

here is a resource for you in the UK
http://www.britishlivertrust.org.uk/content/links/support_groups.asp

her condition seems very serious, and as mentioned by coldfeet, hospice could be a possible contact to assist you and guide you down the proper path.  If she was evaluated by a team of specialists and they can't come up with a treatment plan, you either have to accept this, or research online for aggressive providers that are willing to try anything possible for your mom. It is a very sad to see that things have progressed this far.  How old is she? She might have a good dr, but it does not hurt to try and get a second opinion, even if it is by email.  try Dr. Dieterich, in NYC and hepatitisdoctor.com  
good luck in your search

[mycoldfeet]

The stages of liver disease is posted further down on this page, but without a transplant I don't see a positive prognosis, If she is not a candidate for transplant, I would contact my closest Hospice center, they have rules but they take care of her and her meds, and supply a nurse and support agencies to help the family through times like this, I'm very sorry she's so ill.

[fordad]

My dad had the same thing in 2003.He was very swollen and dilusional.The only thing the hospital could tell us is that he was having alcohol withdrawls meanwhile he hadn't drank in 2 years.Anyway,he got better about a week later and they let him go home he started taking lactulose to control his amonia (ammonia) levels(which did not help).He rapidly became worse within 4 months it got to where he could not talk,eat by himself,had to put diapers on him.We kept him home as long as we could but eventually had to be put in the hospital and passed away 1 week later.Please if there is anything you want to say to your mother that you may have not had a chance to say in awhile you should say it now.My father was well enough in that 4 month period to where I took him out to dinner,movies,etc.. and just spent as much time as I could with him.He was my best friend and I miss him dearly.My mother found out she had Hep C one year after he passed she is not doing well either.This is a very sad situatuion for all of us and I wish you and your mother the best of luck.She needs you now more than ever.

[plb]

thankyou so much for sharing your experience with me. my mother was home when I posted my Question and was brought to the hospital thursday the 19th she was dilusional and weak they put her in icu and told us she had 24 to 48 hours to live she passed away 4 hrs later. I am distraughtand angry but wantted to let you no that your dads situation was exactly what happened to my mom and I really wish I would have known about this site a month ago so I could have been prepared for the mess Im in now. thankyou again sooo much
                                  plb...

[plb]

thankyou for your advice I sad to let you no my mom passed away on the 19th she was only 52yrs old I wish I could have asked you these questions months ago so that I could have been more prepared I honestly thought she would get better. I couldent have been more wrong! I think I m still in disbelief. the day I found out about this forum was the day I posted my question and 2 days later she was gone. thanks again for your help.
                                    plb