Aa
A
A
Close
Avatar universal
Alcoholic Hepatitus-- bilirubin level
My 48 year old wife is currently in the hospital with a diagnosis of Alcoholic Hepatitus.  She was sober for over 4-1/2 years, but fell hard off the wagon.  She finally quit drinking again about two weeks before the hospitalization, but had already developed jaundice.  All the classic symptoms-- fatigue, bleeding, sleep disruptions, etc.  Know the normal bilirubin level is about one;  her tests came in at 20+.  Current treatment (among others) is Lactulose Oral.  Questions--  other treatments suggestions?  Do people come back from this high toxin level?  If so, time frame?  Should I begin exploring hospice care?  At what bilirubin level do hospitals normally discharde their patients?
Cancel
1 Answers
Page 1 of 1
446474 tn?1446351282
Please try posting you question on the Alcoholism Community.  They can probably help you.
http://www.medhelp.org/forums/Alcoholism/show/158

Or try the Liver Disease community.

This forum is for Hepatitis patients and friends to have "open social conversations about any topic they choose, with the exception of religion and politics".

I see you live the in Bay Area like myself.

*First and foremost, she has to stop drinking forever. Period. She is destroying her liver and killing herself.
* She could be eligible for a life saving liver transplant but only if she shows and proves that she will never drink again. They will not make her eligible for a transplant if they feel she might drink again because there are too many people waiting for a transplant that want to live and there is a very limited supply of organs available. A liver is a gift. Someone died to donate it. It is a life-long commitment for any recipient to care for that gift for the rest of their lives.
* Lactulose is for hepatic encephalopathy. A complication of advanced liver disease. It stops the buildup of toxins in the digestive track that a healthy liver can filter out. These toxins then go through the blood to the brain and cause many cognitive issues (memory loss, confusion, day/night reversal, etc.) including coma. This is a temporary condition and normally takes a few days to get it under control.
* Only the doctors know the true status of your wife's liver disease. Talk to the hepatologist who is in charge of her case. Tell them you want the truth. You can handle it and you need to know. Here in the Bay Area doctors are pretty enlightened about patients rights and your need to know.
* Bilirubin is not the only reason she is hospitalized. Ask the docs when she will be allow to go home. They should have an estimate at least.

Good luck.
If you want to contact me for more information about Bay Area resources for advanced liver disease send me a message.

There are 2 Liver Transplant Centers here in Northern Cal. UCSF and CPMC. Both programs are good. Kaiser patients with advanced liver disease are referred to UCSF. I have cirrhosis of the liver caused by hepatitis C and liver cancer, and am under treatment at UCSF. They have one of the best liver clinics anywhere  in the world.

Good luck to your both.
Hector
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Recent Activity
317787 tn?1473362051
Blank
Dee1956 110 days for....guess who?! Comment
Sep 30
317787 tn?1473362051
Blank
Dee1956 commented on Jade59's status
Sep 28
317787 tn?1473362051
Blank
Dee1956 commented on dominosarah's status
Sep 28
Blank
Weight Tracker
Track your weight over time
Start Tracking Now
Top Hepatitis Answerers
Avatar universal
Blank
163305 tn?1333672171
Blank
Rural Mural, CA
446474 tn?1446351282
Blank
San Francisco, CA
317787 tn?1473362051
Blank
DC
1747881 tn?1358189534
Blank
Greeley, CO
2059648 tn?1439770265
Blank
Hepatitis Social Community Resources