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Are there ANY SATISFIED, people CURED from HEPATITIS 'C' Stor...
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Are there ANY SATISFIED, people CURED from HEPATITIS 'C' Stories out there WHO COMPLETED the PEGATRON / INTERFURON, 1-YR TREATMENT PROGRAM?

                                                      SEPTEMBER 10. 2008

I am a young 54 year old, this October. In 1995, I was diagnosed with Hepatitis 'C', Geno 'B', Type '1'. I am not exactly certain of that but does that make sense?


DID YOU COMPLETE, or know someone well enough who has completed the 1 year treatment program that cures hepatitis C with PEGATRON / INTERFURON?
Do you or they feel alot better?
How many YEARS, MONTHS have you or the person you know been CURED?
Are you the SAME AGE, Hep C TYPE and GENO Type as ME?


Do you know what the success rate for the cure of hepatitis C PEGATRON / INTERFURON 1-year treatment program is exactly in percentage? Please reply which? If Yes,___%. No. Thank you.

     "I AM AFRAID TO START TREATMENT IN A MONTH OR SO OF 2008.  
SHOULD I? "

     "IS IT WORTH IT?"

   " I AM QUITE CONCERNED AND NEED TO HEAR SOME, IF NOT,
ALOT OF SUCCESS STORIES FROM SOME PEOPLE WHO ARE CARING ENOUGH TO RESPOND. THANK YOU.
    
    "AND/OR

PLEASE HELP ME???
Bottomline, should I have treatment?
What is your vote?  Yes?  or  No?

Thanks Very Much.
Related Discussions
23 Comments Post a Comment
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Avatar_f_tn
Satisfaction guaranteed or your money back!
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Avatar_n_tn
YES< YES<YESYES.  I am a 54 this month type 1b.  I have a little more info on a post I just posted with other info but a part about my tx.  I am now 1 1/2 yrs post and UND.

Good Luck,
Cajun
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96938_tn?1189803458
Many people with hcv geno type 1B have been cured after a year of treatment.  For many, the treatment is not easy and may require sopme adjustments to your usual routine and activities.  The cure rate is about 50% for geno type 1.  The decision to treat or not is based on many factors and expereinced medical advice. It's probably a good idea to consult with a specialist and determine what condition your liver is in and also your general health.  To read more about the meds, from the manufacturer's point of view go to pegasys.com
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Avatar_f_tn
First don't be afraid,  it is a tough decsion. many here have achieved SVR,
Flguy well said, read the  manufacturers  literature and find a good medical professional to help you find your answers.

Some smart people on here, but we all have different medical considerations.

Take care and best wishes, remember to breath!

Deb
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100019_tn?1335923317
I treated for one year was UND at 12 weeks thru end of treatment.  At 6 months was relapsed.

Though I was very sick from treatment and did not achieve SVR I do not regret treating and would do it again if I was able.

Doesn't really help you make your decision, but in the end you have to make your own, no one can do it for you.  But many people will be here to help you along your journey.
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179856_tn?1333550962
I had two strains of the disease (geno1A and also geno1B) needed to treat for 72 weeks instead of 48 (my Undetectible did not come until after week 12 so the studies said extending another six months would improve my chances greatly so I did).

I had some very drastic side effects but with the help of these folks on the forum they kept me going and I made it through. I only missed 3 days of work somehow and am a single mom (gosh I missed more than that this year and I wasn't nearly as ill - I guess it was the point of not missing or something)!

I have been 'cured' for over 18 months.  

I do not regret it one bit.  It was not always easy but as I had stage 3 liver damage I needed to make sure I got rid of this now.  I did.

It is not always an easy experience but it is a DOABLE one - with the helpful support of people as in this forum you can learn a lot of secrets and tricks to make it almost tolerable.

Good luck.

PS Have you had a biopsy yet to determine your stage of liver damage? It is NOT a painful experience (although we all really think it will be) - a biopsy is crucial to determine if you really NEED to treat right now or if you have time to "watch and wait".
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475300_tn?1312426726
All I can say is that I wanted this virus OUT of me.  I am / was 2B but as of today 6months I am negative.  Even if I did not clear my feelings were that at least I gave my liver a much needed boost or break.  TX was hard for me but I am glad I did it.  6 months later I still have the muscle aches and spasms, some brain fog (if that is possible) and some tiredness but not like before TX.  Good luck in what you decide!!

Denise
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493068_tn?1224768915
Even with my problems after 48 weeks I would do it again.. Far better than cirrhosis or liver cancer. I am SVR at 2 years. FlGuy gave you good advise and the people on the forum are just super & will give you great support! Many Blessings,
proud48
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179856_tn?1333550962
Ditto to Proud48 - worth every bit not to have to ever go through ESLD and the serious complications that arise when you DONT take care of your liver.

After watching two people die (while I was already on treatment) of the same disease I had I knew I had made the right decision.
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232778_tn?1217450711
I'm a 1A so not quite the same (although the odds of success are). There is some indication that the odds of success are up around 66% now if the treatment is well managed (i.e. extending treatment for slow responders, etc).). You will have a very good idea at 4 weeks anyway, how you are reacting, if it's slow, and sides are really bad, you have the option of pulling out then. Whats 4 weeks to give it a go and find out?

For me, about 7 months post, I feel fantastic. Aside from some minor nerve damage that effects my fingers (and seems to be declining with time), no problems now. Treat and be cured (hopefully). I have even gained back half of the 50 pounds of weight I lost (I was a skeleton near the end of treatment - but lots of people react in other ways). Good luck whatever you decide to do though!
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388154_tn?1306365291
Hi LOL welcome to the forum I am the same age as you have geno 3 been infected 35years. Did a 24 week treatment 06 but relapsed.

By coming here and hear about others experience I understod that a lot of the healthproblems I´ve had for years was HCV related.

Such problems as abnormal fatigue, insomnia,coughing for years ( thought that was a nervous thing) also pain in bones, arms, lowerback in every part of the body sometimes, general stiffnes and joint pain, headach,very often also for years.

I thought all this was age and or stress related, but after reading several posts here from people describing exact the same sympthoms i started to put two an two together,
and guess what did came up, yes you right HCV.

My first treatment was litterary hell and in the end I thought not one week more and never again i will do this, that was a 24week treatment.

After 3-4 month, though I relapsed almust every sicknes I´ve mentioned before was gone.
So now I´m on my sec treatment with stronger doses and on double time, done 36 shots of 48, only have 12 shots left and its not at all the same hell as at first tx,only sometimes.

Try to educate your self about the diseas and the condition of your liver as much as possible because its not an easy decision to make ( treat or not or wait for better meds).

What  motivates me the most to do tx once again already after 10months is that I haven´t felt better in 25 years then what I did 3-4 months post first treatment.

ca
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Avatar_m_tn
DID YOU COMPLETE, or know someone well enough who has completed the 1 year treatment program that cures hepatitis C with PEGATRON / INTERFURON?
=================
Yes, I did about a year of treatment and was cured. Same with many here. Some cured by treatment.  Some not cured.

Do you or they feel alot better?
------------------------------------------
No. I don't feel any better, but hopefully my liver damage will stop progressing and be reversed. That was why I treated. We debate here often what per cent of people feel better versus worse after treating. My take is most feel about the same but many appear to feel worse from the drugs. Some report feeling better after treatment. Read the archives and you will get more input.

How many YEARS, MONTHS have you or the person you know been CURED?
Are you the SAME AGE, Hep C TYPE and GENO Type as ME?
---------------------------------------------
If you have no virus after six months, you're considered cured. The cure is durable, meaning it should continue for life.


Do you know what the success rate for the cure of hepatitis C PEGATRON / INTERFURON 1-year treatment program is exactly in percentage? Please reply which? If Yes,___%. No. Thank you.
----------------------------
Around 40-50% for genotype 1, which you have.

     "I AM AFRAID TO START TREATMENT IN A MONTH OR SO OF 2008.  
SHOULD I? "

    --------------------------------------
How much liver damage do you have? It should be in your biopsy report. If you haven't had a biopsy, as a genotype 1 you should.

If you have significant liver damage, then you should probably treat. If you don't have significant liver damage, waiting for better drugs is a reasonable option. Whatever you do, take some time to learn more about hepatitis c and its treatments. Sounds like you're very new to all this.

All the best,

-- Jim
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148987_tn?1287809526
cured but not satisfied category.

note: I was not satisfied before
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Avatar_m_tn
I'm SVR and I'm thrilled. I have never been satisfied either so that's not really a relevant question in my case.
Mike
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320078_tn?1278348320
i am treating and have had my share of sides...i was und at 12 weeks, i have 11 more weeks to go...if i achieve SVR yes i will be thrilled...when this sides are gone, yes i will be thrilled...if i never have to treat again...yes i will be thrilled.

when hep c is no longer a threat to others i will be satisfied
when others have the medications available to them i will be satisfied
when we are no longer pushed to the back of the bus i will be satisfied
when you dont have hide the fact that you have hep i will be satisifed
when the american people wake up and realize this can and does effect 1 in 25 people i will be satisfied

there i am off my soapbox

oh yea and when i hit the lotto then i will thrilled and satisfied

peace
rita
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Avatar_m_tn
I am happy with the way things have turned out. Although a couple of thing that has happened during treatment, meaning being accelerated before their time, was a plus for me in that I’m dealing with them now rather than 5 or 10 years down the road. The treatment drugs were horrendous while treating and worst than any bad trip of my youth but all in all it was an experience that will stay for a long time and am just glad that the preexisting were minimal to this point. The things that kept my focus on getting through this was the need for knowledge on how to get out of this mess and joke and play along the way, make the best out of a bad thing and to believe in oneself and have a strong spirit to pull you through during the rough times because there are going to be some. So, yes in hind sight, it was well worth it and have no regrets, or at least not as many as in the beginning. We all survive maybe not in full tact but we do. If you’re ready to get it over with by all means do, if not keep reading and decide for your self, good luck in what ever you do.

Am I satisfied? Absolutely!

jasper      
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Avatar_m_tn
Oops, I’m 54, worked through tx, 1b, treated 53, UND and on the way to 1 year SVR.
Another Oops, thing "s"

jasper
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142354_tn?1228250348
I was geno 1b. I did the 48 weeks of treatment. I cleared the virus. I have been SVR over a year now. It was overwhelming when i found out i had hep c. I think everyone feels that way at first. Treatment wasn't always easy but like many here i completed it. Looking back i feel good that i did it.  
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372366_tn?1284407473
I was just informed of my six month statis, it was still clear and that is called a cure here in Canada.
Here are the answers to your questions,
yes
yes
6 months
close 1 a
60% in Canada for 1a
yes
yes

I hope this helps
Harry
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443974_tn?1224592928
Well said Rita!!    And good luck with the lotto!!  

I hope your days are being gentle to you all!  
Rita you're in my thoughts even if I still can't send you a pm!! :(    
We are getting closer to freedom girl!!!  

LOL - I will let the pro's tell you about success rates ect...I just want to say...You are  in the best place you could be with these wise ones...who have been there and beat the dragon, are there and will beat it and those who will be here and also will beat it!  This support group has been my rock through this. Our situation is diffierent... I am still treating Was UND at 4 weeks and hopefully will be done in 3 months with a big SVR to carry on my life forever. If this happens I would have cleared in 6months. But my geno type is different than yours. 2b.  But as you can see it can be done!! Nothing is impossible!

The sides are  no piece of cake, but different for everyone. For me I hate the fact I feel I have  lost "myself" for  while, but it is worth every groggy morning and every achy bone...and  forgetful moment. ( Last week I could think of the word bovine but for the life of me could not think of the word cow!!!! LOL go figure!)  

Support is crucial as we all are very different and have different needs and reactions....to have a safe place like this to come to discuss those differences is truly a life saver for many.
To save my liver and the future problems it could have cause me, I was willing to put up with any side effects. and so far they have not been unbearable.

Stick with this group, and have faith in yourself thin positive and you will do just fine!!!
Dragon Tamer
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408795_tn?1324939275
Treat if you want, don't if you don't.  Of course there are ppl who have been successful with tx and feel better than they did prior to tx.  Do you think I would seek out education and tx on HepC just to mentally masturbate myself? lol  This is real, the people are real, but the names have been changed to protect the innocent. lol  Only you can decide whether or not you are going to tx.  I am the same age as you are, look at my profile if you want. I'm going to tx.  Most of all, I suggest you get educated.  Read, think, read somemore and when you're done, keep doing it until you know HepC inside out.  Then you can decide. Whether you tx or not is a personal decision you will have to make on your own.  Nobody here will force you or try to talk you into txing.  There are some really good ppl here who will support you no matter what.  God Bless    
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Avatar_f_tn
tx'd 96wks, 2yrs SVR, and feeling a whole ot better and very happy with results.
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Avatar_m_tn
"I have never been satisfied either so that's not really a relevant question in my case."
Never satisfied, that's ashame? 72 weeks of treatment and svr, I'm damn satisfied! (lol)..
It's beautiful Fall days like today that really make me appreciate it to...Took a few hours off after lunch and went for a quick leaf peeping spin around happy holler, it's early yet but the colors are beginning to show. and.....nothing runs finer than an air cooled engine on a cool Fall day....Posted a couple of pics on my profile....I'm satisfied....
Prrrrrrrrrrrrrrrrrrrrrrrrrr....(g) pro
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