Well, I am not saying I have and not saying I haven't
Actually, my innards were pretty torn up at times on tX and there were a couple of time when I was still walking in the morning (first 6 months of tx I was still walking 3 miles a day - before dawn) that I had to duck into an alley and you-know-what- (and if you don't , well, I have just turned this into a poop thread). Sure was glad no cars came down those alleys! Got to the point I had to carry my cell phone with me, just in case, so hubby could rescue me
frjiole
That's cool that Kay Bailey wanted your participation. I went ahead and emailed her today. I want her to know we are not all out and out drug addicts lingering in dark alleys.
frijole
I'll have you know I never lingered in a dark alley.
I was in S. Cal. then and remember it very well. Majic Johnson played a huge part in public awareness and it not being a "gay disease".
I was living in San Francisco when the AIDS epidemic began. AIDS was far from accepted. Many called it the Gay disease and thought the people who had it deserved it. The community became organized and with money and intelligence got the word out there with the help of Hollywood. If AIDS is no longer seen as the gay disease then HCV can lose the stigma of being seen as the druggie disease.
Thanks illo for all the great information you provide us with.
Heck, we can all take the time to be here, I figure we can all take the time to write. Here's a good link to get involved & write legislators on HCV action:
http://www.hepatitisactivist.org/
Yeah Kay came thru! I am happily surprised. I always e-mail her and I got a recorded message inviting me to participate in a conference call disussion one evening. I got the message about a week too late, but I always wondered if it was random selection, everyone was invited, or she knows I have hep c and wanted to know what I thought about her legislation! Maybe surveillance paid off:)
Bug
sounds like we need to email our congress people on this one. Good old Kay Baily Hutchinson comes thru. Makes me proud to be a Texan! I wish I could think it is more than window dressing.
Thanks, illo, ofr bringing this to my attention.
frijole
Well at least they are trying to get the word out that HCV is, in fact, an epidemic. It seems people are less likely to be open about it than they are HIV, due to the nasty stigmatism we all know is attached to the disease. What we need is public awareness. Maybe this will help.
I can't help but wonder what they mean by 'surveillance.'
Thanks for sharing this information and keeping us informed. Have a great day.