Aa
Bug (&Birds) and other geno 2 post tx
Hope this note finds everyone is well.
I check in and mostly read only occasionally (haven't read a word for months), I am working a lot of hours. I have been without insurance since 8-1-07, so was unable to get my 6 mth post. 3 mth (taken around 4th mth) was clear. I will be insured in 30 days if all goes as planned. I am anxious and hopeful to see what my one year post test will be like.
As rotten as I felt a year ago (could hardly get out of bed) I want to share I feel really great. I share this because I hope that others who might be in a rather deep interferon funk could feel hopeful about their future. I am curious how other geno 2's have fared post treatment.
Bug I know you are still out there, hope you are well big hello to you (special because we went in and out of tx about same time) and others to many to name. Hey bug my hair is coming in so thick now (about 4" it really is an annoyance the time and attention to get it too straighten out and fly right. looks like an edward scissorhands haircut (hair that hung on is longer than the new growth)
I will spend more time reading and catching up this weekend. I am off to join a gym I honestly don't know what that will be like i have a free 30 day pass..
Rose
I check in and mostly read only occasionally (haven't read a word for months), I am working a lot of hours. I have been without insurance since 8-1-07, so was unable to get my 6 mth post. 3 mth (taken around 4th mth) was clear. I will be insured in 30 days if all goes as planned. I am anxious and hopeful to see what my one year post test will be like.
As rotten as I felt a year ago (could hardly get out of bed) I want to share I feel really great. I share this because I hope that others who might be in a rather deep interferon funk could feel hopeful about their future. I am curious how other geno 2's have fared post treatment.
Bug I know you are still out there, hope you are well big hello to you (special because we went in and out of tx about same time) and others to many to name. Hey bug my hair is coming in so thick now (about 4" it really is an annoyance the time and attention to get it too straighten out and fly right. looks like an edward scissorhands haircut (hair that hung on is longer than the new growth)
I will spend more time reading and catching up this weekend. I am off to join a gym I honestly don't know what that will be like i have a free 30 day pass..
Rose
Thanks so much, it's 10:30 here and I'm ready to run out and get a bottle or two for tonight:)
I prefer white wine, but I know that the red wine is better for the body and I do enjoy red wine with certain meals more. I just can't figure out which red wine I like. I think the less heavy ones or the ones with less of the tannin, does that make sense? Although Malbecs are good, I like Shiraz more I think....help me here...
Chilled white wine is just pleasure drinking to me, doesn't have to have food involved.
That's interesting that you say that the screw top is better for the wine than a cork....always thought the cork gave it class and distinguished it from MD 20/20, or Boones Farm Strawberry Hill.
Guess I need to take a class to find out more of these kind of facts out about wine.
Thanks for your prompt reply, up at 2:30 am?
Hugs to you, and votre sante right back at you!
Bug
I prefer white wine, but I know that the red wine is better for the body and I do enjoy red wine with certain meals more. I just can't figure out which red wine I like. I think the less heavy ones or the ones with less of the tannin, does that make sense? Although Malbecs are good, I like Shiraz more I think....help me here...
Chilled white wine is just pleasure drinking to me, doesn't have to have food involved.
That's interesting that you say that the screw top is better for the wine than a cork....always thought the cork gave it class and distinguished it from MD 20/20, or Boones Farm Strawberry Hill.
Guess I need to take a class to find out more of these kind of facts out about wine.
Thanks for your prompt reply, up at 2:30 am?
Hugs to you, and votre sante right back at you!
Bug
If you like white wine, I adore Brander sauvignon blanc. About 12 bucks a bottle.
For red, La Crema pinot noir - try to get the Russian River, but the Alexander Valley or Sonoma are almost as good and easier to find, and they cost around 20 bucks. In general I try to stay under 20, except for birthdays and such - otherwise it gets pricey.
Lately I've been investigating New Zealand wines. Those Kiwis are smart and use screw-tops instead of corks - keeps the wine better, and they can be opened without an implement.
I think most of the above can be found in any larger liquor or grocery store. If you really want to get into wine, I'd recommend taking a class. Many community colleges offer them, as well as better wine merchants. If you have a BevMo in your neighborhood, they offer tastings on weekends for about $5, but I prefer wine with food, and most tastings do not give you anything to eat.
Wine can be a fun hobby, and better yet - a 5 oz. glass has only 100 calories but - IMHO - is fully as satisfying as a good piece of cake, which was my previous vice - with 500 calories.
A votre sante,
For red, La Crema pinot noir - try to get the Russian River, but the Alexander Valley or Sonoma are almost as good and easier to find, and they cost around 20 bucks. In general I try to stay under 20, except for birthdays and such - otherwise it gets pricey.
Lately I've been investigating New Zealand wines. Those Kiwis are smart and use screw-tops instead of corks - keeps the wine better, and they can be opened without an implement.
I think most of the above can be found in any larger liquor or grocery store. If you really want to get into wine, I'd recommend taking a class. Many community colleges offer them, as well as better wine merchants. If you have a BevMo in your neighborhood, they offer tastings on weekends for about $5, but I prefer wine with food, and most tastings do not give you anything to eat.
Wine can be a fun hobby, and better yet - a 5 oz. glass has only 100 calories but - IMHO - is fully as satisfying as a good piece of cake, which was my previous vice - with 500 calories.
A votre sante,
Isn't it a great feeling having this behind us? Sometimes I take life for granted and forget the lost helpless feeling I had when I was treating and didn't know what the future would bring...coming to the forum reminds me how lucky we are to be free of tx and hepc.
I feel badly for all those who treated with us, fought just as hard if not harder and still have the uncertainty of wondering what to do...knowing they are still carrying this disease with them makes it hard for me to celebrate our luck....it makes me cry sometimes that we aren't all hepc free....
Well, I guess I'm a little down tonight, I'm truly happy to hear from both of you and treasure the friendship we forged when we were on the same journey....
Pigeon, keep on tasting the fine wines and recommend one to me!
Rosebud, you will find the special niche that is waiting for you, you worked hard to get that degree.
Hugs and love,
Bug
I feel badly for all those who treated with us, fought just as hard if not harder and still have the uncertainty of wondering what to do...knowing they are still carrying this disease with them makes it hard for me to celebrate our luck....it makes me cry sometimes that we aren't all hepc free....
Well, I guess I'm a little down tonight, I'm truly happy to hear from both of you and treasure the friendship we forged when we were on the same journey....
Pigeon, keep on tasting the fine wines and recommend one to me!
Rosebud, you will find the special niche that is waiting for you, you worked hard to get that degree.
Hugs and love,
Bug
Great to hear from you all. Sorry about your relapse, OH, but I'm sure the next time will be the charm, what with the new meds and protocols.
Rosebud, with the gym, I'd advise starting slowly - and doing it at home is probably the easiest. If you came out of tx feeling as listless as I did, I'd advise 5 to 10 minute walks to start, and add a minute each day or two. Before you know it you'll be walking half an hour. Go slow, and gradually ramp up the speed. As for exercise, again start slow, but if you're using weights (which I think do wonders), do try to slowly progress to heavier weights. Women rarely bulk up unless they have a glandular problem, so i'm a big proponent of heavy weights once you can get there.
I never heard of liver problems impeding ab work. I supposedly had hcv, undiagnosed, for over 20 years, and I've always done crunches etc. with no harmful effects.
Rosebud, with the gym, I'd advise starting slowly - and doing it at home is probably the easiest. If you came out of tx feeling as listless as I did, I'd advise 5 to 10 minute walks to start, and add a minute each day or two. Before you know it you'll be walking half an hour. Go slow, and gradually ramp up the speed. As for exercise, again start slow, but if you're using weights (which I think do wonders), do try to slowly progress to heavier weights. Women rarely bulk up unless they have a glandular problem, so i'm a big proponent of heavy weights once you can get there.
I never heard of liver problems impeding ab work. I supposedly had hcv, undiagnosed, for over 20 years, and I've always done crunches etc. with no harmful effects.
I didn't get online like i thought i would this past weekend. so sad to hear you relapsed, it must have been a huge disappointment. how many weeks did you tx? i am sorry i did not follow up on the well being of my forum friends once i returned to work. what are your plans now? are you feeling okay?
burrrr!!! so nice of you to ask, the weather is so cold here. seems whenever i am not working seems i am huddled under the heating blanket. heat bill is huge this year. i am wondering when this artic blast will end. enough already.
not specific reply to you OH. but wanted to add about the gym as i talked about it earlier. i really want to go. paid dues and all, went 2x, but seems so hard to get back in that kind of routine too busy and tired after work. i will try to rein it in over the next few weeks or give up all together. but i did learn some exercises with a ball, and foam roller (look online cool exercises). would rather try at home.
anyone know if it is bad to work out your stomach when you have liver problem?
burrrr!!! so nice of you to ask, the weather is so cold here. seems whenever i am not working seems i am huddled under the heating blanket. heat bill is huge this year. i am wondering when this artic blast will end. enough already.
not specific reply to you OH. but wanted to add about the gym as i talked about it earlier. i really want to go. paid dues and all, went 2x, but seems so hard to get back in that kind of routine too busy and tired after work. i will try to rein it in over the next few weeks or give up all together. but i did learn some exercises with a ball, and foam roller (look online cool exercises). would rather try at home.
anyone know if it is bad to work out your stomach when you have liver problem?
It is so good to catch up with you. and here about the others. i just don't have time to follow here. work a lot of hours. lately sleep a lot on weekends. feeling really down sometimes, don't know what it is (the constant cold). i am in a really ambiguous place right now, i mentioned a possible move. i have good job (however underpaid) insurance is $40 month 5/copay. same i had under tx. anyway I have told my daughter i am moving out that way... but then some days i think i ought to just stick it out here and well have an extra letter after my name. I work with a transitional age group MHT. yikes!! i don't know if inability to make up ones mind qualifies as an after tx side effect. child protective services?? i think i would go geriatric before that. you know one of those independent living programs that monitor seniors in their home.. they have stuff like that out there? seems like every 2 days i am changing my mind.
now where would you get the idea that i would harm my neighbors??? lol.. actually when i call the police in desperation (still at least several times a month) i have to filter what i say least i incriminate myself (threats of bodily harm) in my desperate search for peace and quiet. i guess that could qualify for a post tx side effect - hypersensitive to sound, i don't think i am unreasonable person. this is not your ordinary noise you know those cars with big bass.. annoying when sitting at a stop light? i just down to sleep or totally woken up from a dead sleep (precious after tx) to the furniture and bed vibrating (and not the magic fingers sort) i have taken to calling the new property owner at 1 and 2 am when it happens. not that they answer.
have you done your 1 yr post? are you feeling well.
I think of you sometimes coming to and from work, I remember your naps at the side of the road. hope that is a thing of the past.
I am really wondering about the long long term efficacy of txg geno 2 and maintaining SVR.. do you(or anyone) know of any links with data. last i remember someone quoting 95% if you make the 1 yr SVR. but how far back could data go, isn't this a relatively new tx?
hugs back to you bug
now where would you get the idea that i would harm my neighbors??? lol.. actually when i call the police in desperation (still at least several times a month) i have to filter what i say least i incriminate myself (threats of bodily harm) in my desperate search for peace and quiet. i guess that could qualify for a post tx side effect - hypersensitive to sound, i don't think i am unreasonable person. this is not your ordinary noise you know those cars with big bass.. annoying when sitting at a stop light? i just down to sleep or totally woken up from a dead sleep (precious after tx) to the furniture and bed vibrating (and not the magic fingers sort) i have taken to calling the new property owner at 1 and 2 am when it happens. not that they answer.
have you done your 1 yr post? are you feeling well.
I think of you sometimes coming to and from work, I remember your naps at the side of the road. hope that is a thing of the past.
I am really wondering about the long long term efficacy of txg geno 2 and maintaining SVR.. do you(or anyone) know of any links with data. last i remember someone quoting 95% if you make the 1 yr SVR. but how far back could data go, isn't this a relatively new tx?
hugs back to you bug
You sound great!!! I think of you all the time and have meant to keep in touch, but.........,
I wish good intentions were worth something!
I even talked to a social worker long ago for you and found out that your best bet in Texas is child protective services.....I'm a lot of help, right?
So glad to hear the hair has come back, and I have wondered whether those pesky neighbors were still bothering you. I read something in the newspaper about someone killing their noisy neighbors and I checked the city to make sure it wasn't you!!!!
I am feeling good, have some aging problems that have nothing to do with tx, just wear and tear from my job.
Pigeonca used to get on but I haven't seen her post in awhile. She was still clear last I heard. Of course Snobird is a mystery since she left when she quit treating. I hope she is having a great time on some island that she stayed on after tx.
I'm so glad to hear from you, you really made history treating while pusrsuing a Masters degree and having kids at home!
Take care and keep in touch..
Hugs,
Bug
I wish good intentions were worth something!
I even talked to a social worker long ago for you and found out that your best bet in Texas is child protective services.....I'm a lot of help, right?
So glad to hear the hair has come back, and I have wondered whether those pesky neighbors were still bothering you. I read something in the newspaper about someone killing their noisy neighbors and I checked the city to make sure it wasn't you!!!!
I am feeling good, have some aging problems that have nothing to do with tx, just wear and tear from my job.
Pigeonca used to get on but I haven't seen her post in awhile. She was still clear last I heard. Of course Snobird is a mystery since she left when she quit treating. I hope she is having a great time on some island that she stayed on after tx.
I'm so glad to hear from you, you really made history treating while pusrsuing a Masters degree and having kids at home!
Take care and keep in touch..
Hugs,
Bug
Hey there rosebud, are you sledding down the hills? What a cold winter here in sunny California!
Ladybug does show up here now and then, always funny. I miss her.
Although I relapsed and look like cr@p on paper, I feel tons better.
hugs, OH
Ladybug does show up here now and then, always funny. I miss her.
Although I relapsed and look like cr@p on paper, I feel tons better.
hugs, OH
In week 19, only 5 to go :}, a lucky one.Not doing my 2 physical jobs since week 4, both were 12-15 hr. days, tried, couldn't do it and lucky both are waiting when I am done. Have done some of my own biz work, which is what's pd. the bill's (along with the kindess of one employer paying me some, and the other job had a 'party' for me and sent a get well card full of money!) My shot nights Wed.'s. Did that as usually worked more on weekends, now doesn't matter when I do it.Think the site has slowed down since the big change also.
Can not wait to be my hyper self again! Haven't lost weight, didn't need to but it has gone from muscle to....not so much muscle :} I want to pump some iron too,lol!
Glad your doing so well. Be joining that 'club' soon!
Again, wishing SVR for you on your next test.
LL
Can not wait to be my hyper self again! Haven't lost weight, didn't need to but it has gone from muscle to....not so much muscle :} I want to pump some iron too,lol!
Glad your doing so well. Be joining that 'club' soon!
Again, wishing SVR for you on your next test.
LL
I am glad you are doing well and feeling better. I am done now too, ( as of thanksgving) and feeling much better, waiting for the 3 month post test to come back , to see if I cleared it or not.
Need to follow your steps and go to the gym.. but haven't yet.. Keep in touch, and glad you are feeling so much better. Its great to feel back to normal isn't it ?
Dana
Need to follow your steps and go to the gym.. but haven't yet.. Keep in touch, and glad you are feeling so much better. Its great to feel back to normal isn't it ?
Dana
Thank you for your comments Lady Lauri - how many more weeks do you have to go? std 24? well hang in there, you are almost done. Be kind and get all the rest you can. Are you having to work? This being Friday I am guessing that this is "shot" night. things usually get a little slower on the forum.
I am really grateful for this place. I don't think I could have survived this ordeal without being able to talk to others who have the same experience. It is very isolating to feel so weak and sick, and in my case, not fit for human consumption.
Elaine you have always been so positive and uplifting. I know sometimes I felt like such a dog, the treatment made me so irritable. some things did hang on after tx. my sleep is weird, and I am still sensitive to loud noise (still havin trouble with the neighbors noise!!!). How is nick doing? I think I remember last year he had stopped tx early also???
my gym experience several days ago was enjoyable. precor xtrainer 15 minutes. but was crazy for working out shoulders stomach a little all over 1.5 hr total; had a pleasant burn in the muscles the 2nd day. i like that feeling.
i remember how strange my brain felt when on interferon/riba. i don't know what exactly was the cause (anemia drugs or ?) but i was real aware of how much energy it took to think..
I am really grateful for this place. I don't think I could have survived this ordeal without being able to talk to others who have the same experience. It is very isolating to feel so weak and sick, and in my case, not fit for human consumption.
Elaine you have always been so positive and uplifting. I know sometimes I felt like such a dog, the treatment made me so irritable. some things did hang on after tx. my sleep is weird, and I am still sensitive to loud noise (still havin trouble with the neighbors noise!!!). How is nick doing? I think I remember last year he had stopped tx early also???
my gym experience several days ago was enjoyable. precor xtrainer 15 minutes. but was crazy for working out shoulders stomach a little all over 1.5 hr total; had a pleasant burn in the muscles the 2nd day. i like that feeling.
i remember how strange my brain felt when on interferon/riba. i don't know what exactly was the cause (anemia drugs or ?) but i was real aware of how much energy it took to think..
From a fellow 2b-er that is currently 'feeling rotten' :}, week 19 tx.......
Thank you! Looking forward to feeling great later.
Glad you are and that your ordeal is over. BEST wishes on you next test. You'll be fine there!
Thanks for the boost post!
LL
Thank you! Looking forward to feeling great later.
Glad you are and that your ordeal is over. BEST wishes on you next test. You'll be fine there!
Thanks for the boost post!
LL
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