Hepatitis Social Community
Did anyone feel better as the treatment wore on?
About This Community:

This forum is for hepatitis patients, family members, loved ones, friends or anyone with an interest in hepatitis, to have open social conversations about any topic they choose, with the exception of religion and politics. Please note that our standard “Rules for Posting in Public Areas”, which are found in our Terms of Use , also apply in this community. If you are newly diagnosed with Hepatitis or you have questions or information to share about current treatments, research studies, clinical trials, or other medical issues pertaining to Hepatitis, please post it in one of our Hepatitis Communities ( Hep A , Hep B , Hep C or Hep-autoimmune ).

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Did anyone feel better as the treatment wore on?

I feel kind of odd about this.  After I take my shot Saturday evening, I feel pretty good on Sunday.  Slowed down just a touch but calm and mentally good.  Toward the end of week certainly I feel more edge coming back but I can't say I feel a lot better.

Thing is treatment is supposed to end in May after 52 weeks (had a month lead in).  Have been UND since about the 6th week of Incivek.  Frankly my condition now is much better than before treatment.  My liver was going downhill pretty fast per biopsies in the year before treatment.  I don't feel "great" now, but if I'm doing something, I don't think about treatment sides any.    My numbers have gotten steadily better for the past months to the point the the liver panel everything was normal first time in a long time.  RBC is still low but over 10, plates still low but otherwise normal.  Even my WBC went into the normal range this week.

My doctor said he just had an prior non-responder African-American that did 72 weeks achieve SVR.  I'm white but  I think I'm gonna stay on this stuff for 72 weeks rather than risk going back to what I had.  I don't like the idea, of course, I want to stop and see that it worked but every week on this not-too-bad-now treatment, is one week closer to the new drugs' approval if current treatment fails.  It's a real quandary.  My doctor said we still had plenty of time to decide but I'm kind of trying to prepare myself mentally now.  I had expected to stop in May, when May seemed a long time away.  And then have an uncertain but drug-free summer, and end up with the outcome whatever that is.  Now all of the sudden May is just around the corner.

I have an appt end of the month with my doctor, guess I'll see what's up then.

No need to bring up the HALT-C trial business, I know good and well I'm better right now in all ways as UND than not on the treatment and with VL.

-David
3 Comments Post a Comment
Blank
1815939_tn?1377995399
"Did anyone feel better as the treatment wore on?"
------------------------------------

It is great that you are feeling better. Makes treatment more tolerable.

You asked if anyone felt better as Tx wore on. Yes, I did. As Tx wore on, many of the side effects lessened, but I still had side effects, and I had some of them for the entire Tx. Many of the side effects eased up after about 9 months. I had the rash and skin issues throughout Tx, also had weakness, was easily fatigued, had waves of nausea, episodes of feeling faint. In addition, as the Tx progressed I got some worrisome side effects ... restless leg syndrome and loss of balance with my eyes closed, also gum recession. However, around month 9 if Tx I noticed that I was really feeling quite a bit better over all, even with those symptoms I just mentioned. I had some energy back and some motivation. My back no longer hurt like it did before Tx. I was able to stand for long periods of time, something I could not do before Tx. I realized that, in some ways, I felt much better than I had felt before Tx, even though I was still having side effects from the meds. It is difficult to explain, but I was feeling really quite good despite the side effects. I think it was my energy level and my pep and stamina. I guess I noticed it because I had been so tired before Tx and I had a lot of joint  aches and pains and back pain before Tx. So when most of that left, I really noticed it. I remember I kept thinking that the virus must be gone because I feel so much better than before Tx.

So, yes, as Tx wore on, I felt a lot better, better than I had before Tx.

BTW, I finished 48 weeks of Tx on Aug. 25, 2012 and I attained SVR (had my 24 week post EOT labs done on Feb. 18th). So, while I have no proof of this, maybe I did feel good because the virus was, in fact, gone.

Here's wishing you SVR.
Blank
Avatar_m_tn
When I first finished I thought I would never feel really good again. It took
about three months to really start to forget about what you just went through.
This triple treatment is trying but I will never regret doing it.  I'm starting to
feel better than I have in years.  FYI.. I had no symptoms before starting
treatment.  At least I didn't think I had any. I guess I didn't know how good
I should have felt.   Getting rid of this virus is well worth the effort.  I think
I feel younger too : )
Blank
Avatar_f_tn
really glad that tx got easier my hubby on wk18 and he to is finding it alot easier not long now hang in there and good luck
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Hepatitis Social Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Hepatitis Answerers
446474_tn?1404424777
Blank
HectorSF
CA
1815939_tn?1377995399
Blank
pooh55811
1747881_tn?1358189534
Blank
hrsepwrguy
Greeley, CO
Avatar_m_tn
Blank
can-do-man
IN
163305_tn?1333672171
Blank
orphanedhawk
Rural Mural, CA
Avatar_f_tn
Blank
dontworry_behappy1