Geno1 Possibly ReTreat?

Good morning everyone and aloha from Hawaii!  I'm ba-a-a-ack!

I went for my annual physical yesterday and my doctor said I was very healthy (maybe she was even jealous?).  But when I got home, I received a call from the GI/Hepa department----believe me, it was very strange hearing from the nurse after 4 years... I thought it was because I am overdue for a sigmoidoscopy so I said (jokingly) "So, what, Jo, you want to stick something up my butt???" (ummmmm, nooooooo...)  They want me to have a talk with one of the Drs about re-treating, with the new drug...

For those who are new, and those that forgot, I joined the Forum in Sept. '06, when I was diagnosed with HCV.  I began TX (inter/riba) in Jan. '07.  Was undetectable at 4 wks, and went on to finish the rest of the 24, during which time my WBCs dropped dangerously low so I was on regular doses of Neupogen as well.  My 6-month post-tx labs showed the virus alive and well, which was a HUGE disappointment, because I felt so good, and was sure TX worked.

Re-TXing wasn't an option, as my WBCs are still below normal, although everything else is normal, including AST/ALT.  But now, they want me to consider the new drug (the third one, added to Int/riba).  I need input!  I am going to call the Dr today to set up an appointment.  All along, I've figured that since I don't drink anymore, my dietary habits are excellent (except for a few digressions now and then), and my liver enzymes are fine, I'll remain status quo and go about my business and not think about the fact that I am living with HCV.

I'd love hearing from other Geno1s who are in the same boat!

[jsf52]

Hi, I would post this on the main Hep C forum as this one is the social forum.  You will get a lot more response.  I am also a Genotype 1 and treated with SOC last year for 14 weeks.  Tx was discontinued as I did not get a 2 log drop.  I have Stage 3 fibrosis and my blood pressure is a little high otherwise all else is great.  I am currently in a clinical trial for non responders using SOC + 2 anti viral meds.  There has been incredible progress in the last few years - getting over to the Hep C forum will get you some amazing responses.  Best of luck and God bless.

[mauilady]

Thanks for that; but where's the other forum??  I couldn't find it.  This new format is CONFUSING.

[Bill1954]

Welcome back; here's the link to the main HCV forum:

http://www.medhelp.org/forums/Hepatitis-C/show/75?controller=forums&action=show&id=75&camp=msc

[Mary4now]

Just go to the upper right corner, put your cursor over my shortcuts and a drop down menu will show you choices, select Hepatitis C,,, should work, works for me,

[mauilady]

Thanks!  I'm slowly getting the gist.  Kinda cool all the things we can do on this website now.

[mauilady]

But connect to FB on it?  I don't think so.  I thought we were supposed to be anonymous.  

[Dee1956]

I agree with you, been on here since 2007 and there have been many changes.  Some have lost us members which  we needed  A few things have  changed in the last month alone.  I guess people either get used to it because they find the information helpful or have found other sites.
Good luck
Dee