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446474 tn?1446351282
HECTOR Update - prognosis becomes dire
Hi everyone. :-)

I just want you to know I appreciate all of your support. For me it has never meant so much to me.

I rather not go into the details... but I can say that my last live cancer treatment did not help my situation and my circumstances unfortunately have worsened considerably and become dire now. I am still remain hopeful that somehow, someway, this is not the end of the road for me. I have told my doctor I want to continue to fight until all my options run out even if it entails high risky experimental procedures since I have nothing to lose. I have made clear I rather die fighting then be told "there is nothing else we can do for you, better get your affairs in order and prepare for the inevitable".

In the next few weeks I will repeat the liver cancer (TACE) procedure in hopes of eliminating what remains of the tumor that the last procedure was unable to kill.
I will also have a PET scan to search for tumors that may have spread to other parts of my body.

So I have been preoccupied with this recent turn of events and need to make end of life contingency plans. Therefore I have had to prioritize my time differently. So that is why I have not been around. I hope you can understand that this is the most difficult situation I have ever dealt with in my life and need to do everything I can to keep my inner hope alive despite the great statistical odds against me.

In no way is my absence online a disregard for all the prayers, well wishes, good vibes and support that I have received from so many of you. My appreciation of my good fortune of meeting so many caring and thoughtful will never diminish no matter what happens. That is something I am sure of and I want you to be sure of too.

I wish the best to all of you wherever you are on this hep C/liver disease journey. I feel fortune to be a member of such a great community of caring people.

Hector
4/23/2013
UCSF liver cancer patient, undetectable HCV for 32 weeks, cirrhosis and HCC
In liver transplantation, the Milan criteria are applied as a basis for selecting patients with cirrhosis and hepatocellular carcinoma (HCC) for liver transplantation. I am currently unable to be transplanted due to my liver cancer being outside the Milan criteria for transplant. This is because even if I had a transplant, I still would die from recurrence of HCC soon after transplant and it would be a poor use of a donor liver. My outcome wouldn't change and someone else might die because I received the donor liver that could have saved them and allowed them to live 10-20 years.

"It ain't over 'til it's over"
"Always go to other people's funerals, otherwise they won't go to yours."
Yogi Berra - Philosopher and baseball great

Hector
4/23/2013
UCSF liver cancer patient, undetectable HCV for 32 weeks, cirrhosis and HCC
San Francisco, CA
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91 Answers
Page 5 of 5
1856494 tn?1340546214
Dear Hector,  I love you.

Elizabeth
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1644356 tn?1349786811
I echo the well written sentiments of all our friends here. Best wishes in your fight. I was however shocked to read your "end of road " comment. I just cant accept that the road ever really ends. You may be on a different road but a spirit so broad cannot cease to exsist. you have helped me more than you could ever know . Thanks!
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1840891 tn?1431551393
Where is Clarence when you need him? Here we have so many people all fervently praying for you at once. Be sure to let us know if you meet any odd characters talking about earning their wings. Maybe it will be someone at the hospital?

Wishing and hoping for the best for you!
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96938 tn?1189803458
There are several of us who have been around here for a very long time.  Very few have exemplified the spirt of the fourms like you have with sincere, uplifting and knowledgeable information and guidance.  Notably, you and that motorcycle riding lawyer.  I looked at your profile and see you have 3,866 posts and I think I've read them all along the way.  The most obvious observation is that the number is not nearly enough.  So get yourself better and come back and finish the job
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Sending you prayers and positive thoughts.  You are the warrior king that has helped us all.  We are all here to give you the giant group prayer that will move mountains.
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1689583 tn?1387755994
There are no words that can express how all of us feel. Deep in our hearts there is a special place for you and all our prayers are sent to you that you will overcome this  just as you have overcome all obstacles that comes your way. This forum has never seen such an unselfish, caring, warm loving man as you. The help you have given so many getting through tx, and to those waiting is truly an inspiration. We are all here for you .
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2111792 tn?1342708227
...no words... just tears...

Don't make me come to SF and kick some HCC booty!!!  I'll be bringing a band of warriors with me!!!  Who's on board?!?!?
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2059648 tn?1439770265
Count me in!!!!!
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89592 tn?1391278022
ME!  ME!  ME!!!  

Hector....thinking and praying every day  I didnt know I could pray so much.  

You're in my heart....Paula
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Dear Hector,

to what others already so eloquently have said, let me add my heartfelt wishes and prayers for turnaround in your HCC treatment. I am not visiting this site frequently, but thinking of you constantly. I hope and pray that the day will come when we all celebrate your new liver and you will be HCV and HCC free!
Keep fighting and let all the luck be on your side dear friend. Jeff
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4384361 tn?1400001830
Hector,

Wishing you lots of love, comfort and laughter during this trying time.  Thank you for being there for us when we needed it. You are in my prayers and I think about you several times a day.

Rebecca
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446474 tn?1446351282
I had my PET/CT full-body scan today. All went smoothly. I am drink water like crazy to clear the radioactive tracer out of my system. I think I am still glowing. :-(

Monday clinical trial check-in. 34 weeks of Sofosbuvir + Ribavirin treatment. Still UND.

Wednesday we will repeat TACE (TranscAtheter ChemoEmbolization) again to kill remain part of tumor treated 6 weeks ago. Back into my liver through artery in my groin with catheters up into my liver until end of catheter is next to tumor then chemo beads are injected into tumor blood supply. Should be feeling better 3-4 days after treatment.

AFP 1048 2 weeks ago and still rising.

Have a good weekend everyone!
It is good to be alive!
Hector
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766573 tn?1365170066
Thank you so much for keeping us informed. I know it must be incredibly intense and draining. I can't say enough how much I admire your strength, wisdom and willingness to share and help others. I have learned so much from you. Keepa goin'!
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hi Hector thank-you so much for keeping us informed like Idyllic i so admire your strength and the wat you always manage to find time to help those who are scared and need reassurance. Keep on fighting Hector we are all behind you. Much love Jules x
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2136167 tn?1374732251
Thinking  and  praying for  you Hector,Pls.keep fighting!!  I believe  incredible person like you can achieve anything ! I wish you  only the Best  outcome!!Love Always,Naya
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Hector, Hector, Hector...my friend, my hero, my inspiration, my guru.   When I first came to this website you were the first to reach out to me and have always, and I mean always, been there for me to get me through fears and qualms and questions.  I read your posts and have been following you on this thread waiting for good news.

As I sat here today with tears streaming down my face again I thought how selfish of me.  But then I realized, no it's not.  I would truly, truly miss you.  You have become a friend.  Think about you daily.  Hector you are a warrior...you are the most positive person I know.  I can't imagine not having you in my life.  

There are miracles.  I read that one book where it says God is just waiting to give you a miracle, you just have to ask.  I have been doing that for the last two months and am driving my Doctor nuts...have gone from Meld 13-15 to 8.  He is frazzled trying to figure it out along with other things getting better.  

If anyone deserves a miracle it is you because so many depend upon you BUT also you deserve it....YOU Hector mi amigo...deserve to be illness free and enjoy the later years of your life.  A road trip for FUN and laughs...you deserve it.

Hector....You know my plan is to get better, come to SF and pick you up and go on a coastal highway journey to visit some of our fellow posters....so I'll join your revolution Hector....remember I was at Woodstock and followed the Greatful Dead so I have been there....I told Advocate and OrphanedHawk that if I get through this I am going to be heard.  I need someone like you who is already an advocate and medically intelligent to help.  It's hard to say no to me in person...so Washington DC watch out...it is stupid that we are all having to go through this crap.

Keep Fighting Hector....Everyone is praying and believing for you.  Our lives would be less with out YOU and we all know you wouldn't want that.  Liked your song, Gene's poem and Cree said it well and so did everyone else.  We are all sending you hoorah's...come on Hector....if anyone can beat the odds....it is YOU.  

Love, Prayers, and Good Vibes coming to YOU.  / Summer - (p.s. Let me know the meeting point for the revolution!)
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223152 tn?1346981971
There  is nothing I could say that would not sound trite.  You have touched my life, my friend, and as ceanathus says, I will carry that as long as I live.  I don't know if this is the end or the beginning - that is beyond my knowledge.  But of what I know, you are one of the greatest.  Glow with pride, Hector
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Hector I hope I am reading your last post correct, meaning that the scans didn't show up any new cancer so it's believed to still be contained in the liver......... Which would mean your still up to bat and have not recieved the 3 strikes yet......... Guy I don't care how you get on base, even a walk would be good at this point, just get there....... Best to you.
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Praying for a miracle to come your way.  If anyone deserves one, it is you!

Big hugs and kisses to you!
Jilly
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683664 tn?1330969924
I've been away, and now swooping in to read your post and the 60 or so replies, with your updates on your situation.

There's not much I can say that hasn't already been said.  Your generous spirit will certainly live forever, and I pray that medicine, our prayers and the great spirit will bring you through this so that you can continue with your mission to teach, to support, to be a role model for us all.  Whatever the outcome, you are surely an eternal being, and your love and light will always be present.

Joining with the others as we pray and hold the space for your healing.  You are loved by so many, and I am one of those.  Thank you for keeping us informed in the midst of these challenges, thinking of others, as always.

Warmly, with faith and hope,
Lapis
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Lapis, beautifully said.  Hector, we will be praying for you tonight, and every night until we get an update.  You are surrounded by tremendous love and admiration.  Amidst what is surely a painful time, there must be some comfort there.  - H
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You are a brave and generous person Hector.
I wish you all the best healing vibes and continued strength and stamina.
You truly are an inspiration and have so many people here that care very much for you.
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789911 tn?1368640383
Hi Hector, i havnt been on the forum in awhile also.  I was drawn here to check up on you!  You have all the support from the greatest people in the world right here!  Im just one of many, to many to number, that you helped get through treatment, celebrated treatment successes and comforted treatment failures,   YES! YOU Keep fighting!  We all love you dearly!   Dear Heavenly Father, you know all, you know Hector's situation, Please be with the doctors as they make decisions for and with Hector.  Please be with Hector now more than ever, and bestow upon him your healing and peace that passes all understanding.  Amen  
Love you brother
Lydia
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446474 tn?1446351282
Thank you Lydia.

After my last cancer treatment on March 13th and follow-up it was found that the last tumor wasn't  completely killed. So I will had another treatment yesterday at UCSF in hopes of ridding myself of this darn tumor once and for all.  

All went well.

I will stayed overnight at UCSF in the recovery room and will return home this afternoon.

Things are looking more hopeful.

H
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1494170 tn?1361754460
I just checked in to see if you had an update Hector and that is sounding better and better. A wise man once told me there was ALWAYS HOPE, oh ya that was you!!!

Viva La Revolution!!!!

Thanks for the update Hector, and can't wait to hear about your successful liver tp
Take Care!!!
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I am so happy you updated us. This is hopeful news.

Prayers and love to you guy. I just know you are going to get through this.
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4670047 tn?1375734001
What a fighter. Your such an inspiration!!! Good luck Hector!!!
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Crossing fingers that this will do it.

That would be some wonderful news.

willy
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2004810 tn?1365157211
Wish you good luck, Hector. Since I came around here while I treated I very soon understood that you were "the man whos answers were worth gold". When you answered my posts I felt privileged and that someone saw me, my struggle.

You stand out in here, even if I've never met you, I feel you have a strong spirit - good karma ;)

Lots of love from Norway to you!
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190885 tn?1333029491
good luck with everything hector..hope all goes well....thanks so much for all your help here........billy
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Hector, I think of you every day - and petition our Heavenly Father in your behalf.  Remember that he knitted us together perfectly in our mothers' wombs, and knows each hair on our head by number, and loves us beyond our human comprehension.  None of us is here by accident....our times and purposes are foreordained in the portals of Heaven.  It's the great mysterious procession of life, generation unto generation.  None of us can understand why the just so often suffer so greatly...and yet that is where faith enters the equation.  Surely your own is being tested and tried beyond imagination...and hopefully strengthened in the process.  Miracles still happen every day, Hector - and I still firmly believe that we're going to see one in your case.  Meanwhile you're one hell of a warrior!!...so just stay strong!!
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163305 tn?1333672171
I haven't been online in a while~ too busy gardening, relearning to ride a bike and living life BUT, my thoughts have been with you.

Know that I think of you often and like everyone else here wish you only the very best.
You are one strong guy.
You inspire us all to try harder and give more.

Huge soft bear hugs,
OH
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131114 tn?1380086790
howdy from Texas!
Hector, I had to chime in with everyone!
group hug- group prayer- group gratitude. you have been a mainstay here for as long as i can recall and i been on here a long time. even tho i been off for a while (taking a breath in between tx)- i think of you often and keep you in my GIANT prayer-that-never-stops.
HEAL US- Oh heavenly Abba.

surely you can feel the lift of all the hands holding you up and the holy angel wings silently wrapped about your life- soft, loving, strong.
Get well soon! Keep the faith! We love you!!! Keep the music going...
jerialice
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317787 tn?1473362051
Dear H, came in to check on you. Thank you so much for your update.  I think about you often and come in to check to see how you are
You are such an inspiration to me and to everyone else on here.
I pray for you every day.  You have been a miracle in my life.  I know you will receive one as well.
Take care, rest...drink water :)
Cheers!
Dee
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   Thru tears, and scrolling down thru this thread, my prayer is to read
of success in eradicating your tumor completely, and you successfully getting a brand new liver.
   You helped me get thru my treatment Hector:  anything I can do to help, just let me know xoxo
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2059648 tn?1439770265
Glad to hear that things are looking more hopeful.  Looks like the fat lady
forgot she was up next :).  I think about you everyday and sending you
you the best.    
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Will keep sending out prayers and good thoughts.  Thanks for updating us.  Get some rest this weekend - praying for good news on the results.
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408795 tn?1324939275
Hopefully things will start getting better for you!  I'll pray for you as I know the power of praying has helped many, just like you have.  God Bless.  
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Hector,  just putting it out there for you!!!!!!!!!!' Thinking nothing but positive thoughts and sending peaceful energy for you!!! You are a very kind and giving person. I want you to know how much I appreciate what you have done ( so unselfishly) for so many!!!!!!
Thank you!
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230202 tn?1370797179
Hector
You sound like you are a fighter.......never give up.
We just do not know what is around the corner for us...
All the best and take care.....
Linda x
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683664 tn?1330969924
Thinking of you, hope you are doing well post-TACE.  Sending prayers and positive thoughts....
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1986676 tn?1329866071
You're in my thoughts and prayers.
I'm still asking for a miracle.

Reva
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3242988 tn?1359310116
Hector- You have been a great inspiration to so many people. I have visions of that tumor dissolving & floating out of your body. You are an amazing warrior! Praying for you.
God Bless
Rhonda
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I have not been on in a long time. I don't have much to ask about now that I am post tx 9 months, and I don't have much to offer as we have so many far more informed members (like you) who have usually posted the best advice; no point in me posting anything.

I do think of you often, and as others have said, I pop in exclusively from time to time for the sole purpose of checking on you. I don't know what to say other than "ditto" on what has already been said in the previous 80+ comments (i.e., sending my prayers, best wishes, good thoughts, positive visualizations and whatever else we can possibly send your way). But I also want to reiterate my huge thanks for all that you do for everyone who comes to this site scared, worried and confused upon their dx.  

With so many of us so fully vested in your success, I don't know how it can't happen! It has to happen! Keep us posted and know you have us all standing with you.

As always, Faith for healing. :)
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1654058 tn?1407162666
What a group hug! We love you H. Your poem was killer. And thanks Gene for your tribute.
Nothing to add but xoxoxo. You're da bomb. You've got this. K
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God bless you hector. You've been so much help to so many people. I am hopeful that you will have a miracle. What will all the new people treating do without your knowledge?. I don't think I could have ever been as strong as you have been. If there is a way to beat this, you are the one who will find the way. Thought and prayer are with you.
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1118724 tn?1357014191
Whatever future awaits I hope to meet it with the same dignity and class as you. God Bless.
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Rest assured that when my journey begs to take its cue, always know that when I go, this journey takes you too. Thoughts and prayers are with you my friend.

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1986676 tn?1329866071
Still expecting a miracle...Reva
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3211536 tn?1359389169
Can we PLEASE have an update from you.Just a few simple statements like how are you feeling?How are you passing time?What you enjoy eating these days...
With so much positive energy how can any negatives  survive.It just can't.

          
Snowbank Woman
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