Hot Flashes after TX is finished

[Myown]

Hi Everyone,

I am going thru menopause, but before tx and during tx, I NEVER had these BB King sweaty, hot disgusting flashes. I think it started soon after I stopped but not sure how soon because my memory is shot at this point. Also let me throw in the numb/tingly tongue which feels like it burns or something. This is NOT a constant. Right now I am fine. I went thru tx without physical sx to speak of.

Did anyone experience this after tx? I'm trying to think positive and tell myself that the virus is gone and  NOW I am getting NORMAL menopause symptoms,,,but its just strange that it STARTED right after tx. My PCR was about 3 weeks ago and haven't heard anything yet. I emailed NP today but she hasn't gotten back yet.

[geterdone]

“G” thought I was keeping with the spirit of the threads and the last post was referring to that of a Unisex audience, not knowing for sure. Yes, it does get better with age and not be is such a rush but it cost more. Hehehe



Unisex refers to things that are suitable for both sexes. The term was coined in the 1960s and was used fairly informally. Though the combining form 'uni-' is from the Latin 'unus' meaning 'one', the term seems to have been influenced by words such as 'united' and 'universal', meaning that the 'uni-' prefix takes on the definition of 'shared'. In this sense, it can be seen as meaning 'shared by both sexes.


*G* sorry my bad

jasper

[meki]

*G*

[geterdone]

40’s, If I knew then, what I know now, I would have put more pennies in the jar for the water bill and lotion cuz, when we do get out, we looks like a couple of prunes… hehehe.  

Yeah, 3 second rule applies on the hotties, I still remember the flying frying pan.
and with that... gone fishing.

Jasper

[meki]

"O’ I’ve learned the hard way, been kicked out of bed a couple of times in the middle of the night and I mean literally kicked out, banging head and knocking over lamp, not good. Men can say the darndest things and not even know it. But, after being on tx am very attentive, now, I just get up and turn on the shower and if she is slow I get in first.
LOL!

jasper "


*Giggles*

What a good man you are... I'm in my 40s... LOL! I'm not quite ready to trade mine in yet --- LOL - but if I ever do --- any man who can start a shower for me and drop his pants casually at work --- well... He'd be worth lookin' up...

Dontcha think ladies?

LOL!

Meki
Ps. Lonestar and Forsee are knockouts - total awesome babes. Or is it Hotties? I can never remember which vernacular to use. *G*

[Myown]

Glad to hear you are feeling well, but sorry to hear that you WBC hasn't risen. I would definitely look into that more. You don't want to get an infection.

Here are a few sites on Cryo - I wouldn't know if Cryo would have anything to do with what you are experiencing, but IMO everyone should get the test even after tx because sometimes cryo doesn't have symptoms and sometimes it does and some of what we think are post tx sx might be Cryo who knows? It bothers me to no end that these doctors don't check us all for it KNOWING that 50% of us are carrying it and tx doesn't always get rid of it. But anyhow here's a few sites:

http://www.hepatitis-central.com/hcv/cryo/connection.html  
http://www.hepatitis-central.com/hcv/cryo/connection.html

I hope you find out why your white count is so low. Maybe you should open a thread and ask the forum if anyone had this problem continue post tx. Take care Michelle


Ladybug, so hot flashes for you too? I guess your husband,like mine, dreams he is chained to a radiator and wakes up and finds you. I feel sorry for my husband with me throwing off so much body heat and sweating so much at night. He never says anything but he 'probably' thinks its gross. He'll slip one day and introduce me as his sweaty gross wife if he doesn't let it out in private and tell me how gross I am. LOL But seriously I hate this  "drench your pajama's syndrome." I think its more than menopause tho, I think it's because of the hormones being thrown off from the virus then the tx. I feel this way because some men on forum have experienced hot flashes also. If I find out any solution, I will let you know. Good talking to ya!

[mauilady]

Rats... I hit the wrong key...

Anyway, I went to the website that you posted for cryo (was it you?  on this thread? because now I can't find it) and there was nothing about cryo, or cryoglobulin.  I'm now 2 months post Tx and feel pretty darned good, all in all.  The only problem is that my WBCs are still very low (1.7), but then they've always been low, but not _that_ low.  Last month they had me giving myself neupogen every day for 5 days, which of course raised my WBCs wayyyy high, but now they're back down again.  I don't think neupogen is the answer. And I'm NOT taking any more of the stuff!!!  I want to find out WHY my WBCs are and always have been so low.

If you can put the URL to another website, I'd really appreciate it.

Thanks, Michelle

[ladybug52]

My own hot flashes have been horrible lately. They were bad on tx, I broke a sweat all winter long, running the air, instead of the heater at work when I could get away with it. Just lately I've been experiencing the wake up drenching wet from mid-waist up. I thought I was through with the night sweats, but I guess not. When you figure this out, let me know. I don't know if most women my age go through this or if it's made worse by tx. Believe me, I've had my pre-menopause, peri-menopause, and now going through post meno-pause.....when does it pause for good??
Bug

[Myown]

Sorry I just saw your post. Yes the meno thing adds to it all. I hope that the things that we are not sure about is from female issues and not CRYO, but maybe you might discuss with your doctor the subject of Cryo. Hopefully none of us have it though or at least if we did hopefully the tx got rid of it and the things we feel now are just a sx to tx that will pass.

Maui Ha!.. don't stick your head in the sand, if you have any symptoms get it checked out. Cryo is VERY serious and that's what makes me nuts with these doctors that they don't tell people about it, but then again MOST of the doctors think hep c is LOCKED UP IN THE LIVER LIKE A PRISONER. I wish it was.

Bye

[Myown]

Thankya Foresee.  
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I was just reading posts and read the conversation between you and Lonestar about the pictures - didn't realize you posted one. Nice picture Foresee, good looking chick that you are. Yes very much the movie star look, cutie pie.

Okay I spent too much time on this forum. Time to go.
see ya later probably.

[Forseegood]

a profound observation from you my dear! again!

[Myown]

Forsee said:  

I think it's great that you posted on this thread, you must be a very nice guy...
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I agree with you Foresee. Isn't it funny that at this point of our lives as women we like the guys who are sensitive, gentle, attentive and who don't care what others think if he's not following the pack.. To break it down Jasper,,,,Women who are menopausal like Foresee and myself, like guys like you. So now you have 2 girls that dig ya who are in early 50's. If you are not nice, insensitive, macho and uncaring, you'll attract the cute 20 year old girls wearing the string bikini's -cause at 20 thats the kind of guy we all somehow wound up with. I know you'll continue to stay a nice guy tho. *wink*

We looooooove you Jasper.

[geterdone]

O’ I’ve learned the hard way, been kicked out of bed a couple of times in the middle of the night and I mean literally kicked out, banging head and knocking over lamp, not good. Men can say the darndest things and not even know it. But, after being on tx am very attentive, now, I just get up and turn on the shower and if she is slow I get in first.
LOL!

jasper

[Forseegood]

I think it's great that you posted on this thread, you must be a very nice guy...

[Myown]

I agree 100% with you that the flashes are not for woman only and I realized after I posted that the men might think that becasue I mentioned menopause- this was a female thread, but I meant it more for sx not menopause or females only. I really don't believe these flashes are from menopause but are 'liver related.' either from the tx messing the hormones up or from having the hep- they both mess with hormones.

And yes the thyroid gets messed up also and what I am feeling might be my thyroid acting up so thats a good point you brought up. Jasper, the riba rage that we all usually experience during tx is similar to what woman experience from PMS and all of that,,,,so I guess all you hepper guys will all make good husbands/boyfriends because you will be more understanding and compassionate towards the woman in your life when she is getting PMS rage. Why did I say all of this?? I don't know but I do believe it and now I am going to sleep. Have a good night and thanks for your input. I appreciate it.

[geterdone]

I have come to realize that after 6 months of tx that some of the sx’s are not just for women only. I had and still do to some extent have the hot flashes for which I have figured out it was a combination of the interferon and daily doses of riba which at 1200mg was too hard on my system and as a consequence unknown to me at the time my thyroid was acting up at different times and contributing to the hot flashes and even more so in the heat or I should say the humidity. I am still tx’ing and understanding how my body reacts to the meds over time has made it somewhat easier at least from a mental stand point. Maybe for you it may just be a delayed reaction, or a withdraw symptoms that has not shown up in a study somewhere but the mind records everything even when the body does not react. Just my 2 cents for what its worth.

jasper

[Forseegood]

"like many of us here at this forum, I was one of those patients who blindly followed whatever *one* doctor told me, to my disadvantage"... what I meant was...only a few of us, not many, I'm operating on 1 and half hours sleep, sorry...

[Forseegood]

I was going to suggest to you to please look into all the alternatives to major surgery like this as well, there are more now, then when I had mine done in 95...

in fact, there were a few at that time too, but I wasn't like I am now, questioning and researching for my own benefit......like many of us here at this forum, I was one of those patients who blindly followed whatever *one* doctor told me, to my disadvantage...

the thought of having *Aunt Mary* gone forever was so tempting to me after going what I had gone through, I kinda jumped at it, wish I wouldn't have...to me, even if they have to do a procedure every 4 or 5 years (which I think is the case with some women, maybe it's changed now with other alternatives as well) I would have preferred that to what I have gone through...and remember, if they take care of the fibroids, youre Aunt Mary's won't be so bad after all....I just look at many surgeries as the "only alternative" in most cases...

looking back, I wish I would of gotten much more info and researched it on my own, on top of that, I wish I would of gotten a second opinion, at least...this guy talked me into hysterectomy, and to me...really presented it as routine and no big deal....well, it was a big deal, any major surgery is, for me, it did have consequences...(course, not all docs are thinking of this, many are thinking about our own best interests...but the medical professions make a lot of money on hysterectomies! and I'm sorry, if we were males, would they be so quick to cut some of our gonads out?)

Maybe so, but it's worth thinking about.... if you're talking about fibroids, there are other alternatives to deal with them now....course on the other hand, like Mauilady, my Mom had one relatively problem free, but she was still layed up for some time, as with any major surgery....this is just my own experience of this of course, to give you different views to look at...best of luck with all of this!

[mauilady]

Myown, congratulations on SVR!!  I'm not sure what this Cryo stuff is that you've all been talking about, but it sounds bad.  I think I'll go stick my head in the sand again... ;-)

Meki, I had a hysterectomy in '78, but my ovaries are still intact.  I have no problems with the hysterectomy aspect, but just wanted to pass an alternative on to you: a friend of mine was having major menstrual problems so a few years ago she got "sterilized"... basically, the lining of her uterus was scalded with hot water.  Sounds gruesome to me, but she's really happy she had the procedure done, just in case you don't want to have major surgery.

Aloha, Michelle

[meki]

There is an end to SX  - I know it. I know it - I know it.

Meki (the engine that could)

[meki]

Just an FYI - if anyone wanted to know.

About mid way through 24 weeks of TX I started bleeding heavy - went 10 days, stopped 5 days, started again... kept doing that cycle for the last 8 months.

Methinks they were hoping 6 months post tx would straighten it out - but nada.

So as soon as I have 1 month of vacation built up - if I can stand this any longer --- I'm due for a complete hysterectomy... Fine by me... LOL!

The red aunt visits way too much for my comfort... I am not so sure I can wait 6 more months for it to naturally resolve. I'll own stock in Pearls and Always....

LOL!

Meki

[Forseegood]

going through menopause twice!!!! OMG...you deserve a medal! hope you feel better soon!!!

[seabean]

I had already (I thought) gone through menopause...it had been 15 months since my last period when I started tx.  Three weeks after my last shot (34) I started having periods again.  (Boy was I p.sss.  to see that....had to stop tx a few weeks early because I'm so weak and good ole Mother Nature plays a trick on me like that!  Well it was not funny!!!)  They began light, but still.... then returned to nornal....the entire time, I am suffering terrible menopause symptoms.  All of my doctors agreed that it was from the interferon.  It's been 17 months since I stopped tx and my cycle has started to get lighter and will HOPEFULLY be gone again by 2008.  My legs and ankles swell, and I also developed neuropathy at the end of last year.  I don't know anything about cryo but thought I'd inform you of my menopause issues.  I thought once was enough but now......twice......oh well, once you've gone through HCV tx you can do anything :)

Take Care.

[Cindy10]

Your UND?!!!! Thats fantastic, I am so happy for you!!!!! Doing the slaying the dragon dance!!!!

[Myown]

Hey Yvonne, Yes, you're right, I heard that about tx and menopause. I was already just startng with the skipping every other month and then it stopped dead in its tracks after my dx. How are you doing? Are you feeling okay? I haven't been keeping up with the forum as much these days and lost track of where people are as far as tx and stuff. I hope things are going well. Let me know if you get the time. Good to see you, take care.

SJL,
Hi, I agree the immune system and everything relating to it is interesting. So sorry to hear what you are going thru. 104 weeks of tx my God, I don't remember you ever complaining about anything. If you did it must not have been often because I just don't recall. Well IMO most of the medical world is taking this cryo stuff way too lightly. EVERYONE that has the hep should be tested for cryo as far as I am concerned and ESPECIALLY those who fail tx. I believe some of the post sx that people experience may be due to cryo in some cases and not from tx sx itself, but just my opinion. Ya know what, before I was dx, a holistic doctor took a zillion tests and one of them was ANA (antinuclear antibodies) it showed I had speckled 1:40. I asked what is that? She said, "Well if it was higher I would say Lupus or something like that." So she said we will just have to watch it and see what happens. Keep in mind I wasn't dx yet. But think about this ,,- She mentioned an "autoimmune disease."  Fast forward.....now I am dx with hep and start going for consultations and NO ONE can really tell me anything about this ANA,(they just say that sometimes those with hepc it shows up) no one again ever mentions autoimmune in relation to ANA. So fast forward again and now I am on forum and hearing about cryo and so I start researching and I wonder if I have cryo. Winds up I had 2 cryo tests done wrong and so I still dont know if I have it...but I start googling "cryo ana hepc small vessel disease" and I start to see a connection. , it comes from stimulation of the immune system from virus's or foreign invaders, etc- so for any doctor to say that it was the tx alone that caused the cryo, I would have to disagree. Overstimulation of the immune system trying to rid the body of the virus  is what seems to do it and that can happen from our own interferon that is in our body if the interferon is continually being released (I am guessing but it seems logical to me.).  Another thing is that if a doctor thinks cryo comes only from interferon we inject, what about other diseases that aren't treated with interferon and cryoglobulins still show up?

I do get puffy ankles, but not like they were last year but aren't always what they should be, so who knows, but thyroid can do that too..My thyroid did get wacked out before tx and I took meds but I came off the meds completely becasue my thyroid became normal before I started tx, thank God. I can write a ton more of what I feel/think but I ramble on too much all the time. I'm hoping that the treatment got rid of the cryo if in fact that's what I had/have. People with HIV get cryo alot of times and  they aren't on interferon. I believe there are 3 types and I would guess that they have the type we get, but I am too lazy to look it up right now.  I wish you the very best and will pray for you everytime I see your name on forum. Please continue to let us know how you are. I finally got my 4 week post today and it is UND, thank God.
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Jim, finally got my PCR faxed .... Niagra falls slowly I turn step by step... I don't even feel like going over that story, but the outcome was I am UND! Thanks for the encouragement you gave me yesterday. It was one of the things that helped me feel better.