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220090 tn?1379167187

Insomnia and TX

I've had severe insomnia every time I treated.  This time is persisted long after I stopped treatment.  I have no problem falling asleep, but I wake up a few hours afterward and can't easily go back to sleep.

One week ago, we had company for the weekend and I wanted to be energetic during the day.  I decided to have some coffee with caffeine, since I read the study suggesting it not only didn't damage the liver, but might actually prevent damage.

I was more alert during the day, and to my great surprise, I slept better that night.  I have continued having coffee every morning and I am sleeping better and better.  Has anyone else had this experience?

Eric
14 Responses
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476246 tn?1418870914
Good to see you out playing bro'.

I think you have gotten that one right, without the cigarette, it is called the perfect sleeping pill.

marcia
Helpful - 0
388154 tn?1306361691
Wid monkey exercise together with your partner and a ciggaret afterwards can be helpful.

Maybe Meki will chime in and explain in detaljs how it works since shes the inventor.

ca
Helpful - 0
439539 tn?1233465815
Very good theory for you but I just st tx Nov.07, but have had problems with sleep all year...I meant to copy what you said about disruptions of the circadian rhythm caused by interferon.What about the idea that the sleepCentral sleep apnea
Drowsiness
Insomnia concerns
Irregular sleep
Irregular sleep-wake syndrome
Isolated sleep paralysis
Narcolepsy
Night terror
Obstructive sleep apnea
Polysomnography
Sleep problem is caused by disruptions of the circadian rhythm caused by InterferonInterferon alfa-2a
Interferon alfa-2b
Interferon alfa-2b-ribavirin
Interferon alfa-n3
Interferon alfacon-1
Interferon beta-1a
Interferon beta-1b
Interferon gamma-1b?

I sure hope you find out what causes your sleep disorder and end result, ZZZZZZZZZZZZ
Good Luck,
Tammy
Helpful - 0
Avatar universal
Hey Eric, I've always said that if coffee had been discovered back in the day (hippie day that is) it would be revered as the greatest herb ever found. Starbucks organic is a good everyday drink. jerry PS At the gro. < $10
Helpful - 0
476246 tn?1418870914
I used to drink coffee every day, many years ago. It never caused me problems sleeping, even when I drank it right before going to sleep. I still haven't figured out why people react differently.

Strong green tea will keep me awake.
Helpful - 0
412873 tn?1329174455
I think that is a good guess. It's like the opposite of taking a sleeping aid short term to establish a sleeping pattern.

I, for one, cannot imagine starting the day without my cup o' joe.

Izzy
Helpful - 0
220090 tn?1379167187
What about the idea that the sleep problem is caused by disruptions of the circadian rhythm caused by Interferon?  Perhaps the coffee stimulated me early in the morning and somehow that is helping to reestablish the correct rhythm.  Just a guess.

Eric
Helpful - 0
439539 tn?1233465815
My rhuemy gave me sleep aid for insomnia.I don't like it cause you sleep 3-4 hrs., up again.I drink 2 cups before work and my 1:00 C. I don't usually get till late but also st drinking before I go to sleep.It takes a little while to wind down but have also been sleeping better for the past week.Hope that continues.Couldn't be stress related, not sleeping.Hope your good sleep continues and I'm sure you know when you stop the java you've started, do it slowly.Caffeine withdrawals and headache.
Tammy
Helpful - 0
475300 tn?1312423126
I also had insomnia during TX and about every 2 months or so I still can't sleep for 2 days in a row then I am literally down for the count for 2 - 3 days, I am about 8 months post TX.  I am a coffeeaholic.  I am afraid to take anything addicting to sleep, wonderful addictive personality that I have.  My insomnia doesn't seem to have anything to do with the coffee as I drink it all day, every day.  Even with the coffee it still takes me an hour at least to get moving in the morning.  I don't really know the answer but if you find one let me know :-)

Denise
Helpful - 0
Avatar universal
As I said my husband has been on treatment for 76 weeks no svr,do you know of anything else that is close to coming to the market. he is also a transplant patient so they are being more conservative with him.And yes he sleeps 3hrs at a time naps all day. Ruth
Helpful - 0
220090 tn?1379167187
I tried everything -LOL.  Nothing worked for me.  Ativan helped, but became addictive after a short time.

Eric
Helpful - 0
524608 tn?1244418161
I haven't had much trouble sleeping during my TX...middle of wk 23. I have always had coffee in the morning since it seems to help lift the fog and give me a little motovation. Have you ever tried Melatonin to sleep? I have been using it for years when I am under stress as it helps to shut my brain off. (since being on tx, I can't seem to turn my brain on).
Gator
Helpful - 0
Avatar universal
LOL; I always have had to drink coffee to go to sleep.  ; )

I have always been a caffine addict and therefore have also been prone to posting pro-coffee type studies.  When you do that though you also see the *other* type studies as well.

The first was that coffee was supposed to help prevent HCC.  One study suggested that it seemed to help people with alcoholic damage; not from HCV.  I don't know if they know that yet for sure.

Co-Writer has been posting information which I THINK may be correct about the role of coffee and IR.  Long story short I think it is felt that any positives may be small compared to the negatives; especially pre TX or during TX.  When I was in the Vertex trial (for all of 10 days) my NP also said that I should back off on the coffee.  For a better explanation of the mechanics of this I'd visit a few of her posts/ threads.

I still love my coffee....   Eric, in your case since you are SVR I doubt that it would make much difference unless you were diabetic or pre-diabetic.  Uninterupted sleep is always great and important.  As you know....excercise is always helpful as well.

best,
Willy

Helpful - 0
220090 tn?1379167187
New keyboard and I can't get used to it.  I meant to say "it" not is.
Helpful - 0
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