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299628 tn?1208382598

I've had it.....

Seems like I'm always ruining things....I've even become condescending to people I've worked with for years...I'm tired of all the times I feel like total ****.

I'm thinking of calling my doctor and canceling treatments. I'm starting my forth month, but the doc said he might want to add a few more months on as my virus count should be better then what they expected.

I try so hard to be positive...but I've found the littlest of things to bark about both at home and at work that I'm going to ruin my relationships with my co workers and family...especially my 12 year old daughter.

My question is this, how long do I have before a geno2 becomes something worse? Can I start treatments again in a few years?
15 Responses
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320078 tn?1278344720
I'm just learning about the results, so I can't help you what to post.  I don't know what any of them mean!  I'm glad that you started Paxil, hopefully that will take  care  some of the riba rage.   I have an apt, with a new doc, (my current doc wanted to stop tx on monday) he says the sides are too much!  i will get a second opinion.  meanwhile i have been out of work since Monday.

I guess this will be a roller coaster for us!  But hang in there,
We are all in this together.

Peace Rita
Helpful - 0
299628 tn?1208382598
MB, Meki, Rita,
  I am doing fine and have started to use Paxil. I also got some results from my doc right now and he's thinking of adding a couple more months to my TX. He said the labs are better then last and that adding more of the Riba has taken the virus out of my blood, but theres more being made in the liver.

What are the ones I need to post up from the labs, there are so many abbreviations and numbers. It would take me a long time to type this all out :)
Helpful - 0
320078 tn?1278344720
Hey Manny

how are you, is your week getting better?  

Peace Rita
Helpful - 0
217229 tn?1192762404
Lorazepam and Xanax worked for me --- for short term grumpiness and anxiety issues.

Some folks do the long term stuff - I just don't have the stomach for that.

Good luck.

Meki
Helpful - 0
233616 tn?1312787196
month 5 is the worst as build up of tx drugs is at its highest...
I'm with the xanax/Ativan crowd...get something to take the edge off...
I felt like meltdown was imminent and tears  were at every turn..

get through this, BECAUSE you have kids...all the more reason to stick it out, so you can be better...and not worry about them catching it, etc etc/

kids are very forgivng...just be vunerable and admit you aren't yourself...
and get your doc to help with the neds...

everybody wants to quit and about 30% do...because of mental issues...many are those who don't realize the right anti anxiety drug, or sleep aide or antidepressant could take the edge off and make it all managable.
You have to get past the shame of agmitting you are rung out...which for men is hard...to another man (your doc) you think it makes you look like a weeny...but the DRUGS have stripped your brain of seretonin...so it is NOT your weakness...it is THE NUMBER ONE side effect of these drugs....I wish docs would prepare or pretreat people so they didn't get so sick and/or desparate to quit. It really does the patient such disservice/
MB
Helpful - 0
299628 tn?1208382598
OK....now thats the second time today I'm laughing my a$$ of in front of this computer..Thanks NYgirl, and thank you to Lorraine for your reply. your description of your 13 yr old is exactly whats happening here...speaking of, shes a calling me right now..

Thank you again :)
Helpful - 0
179856 tn?1333547362
Manny,

Ask your doc to put you on a good antidepressant for a little while.......it helps "even you out" even though yes...that riba rage sure wants to come back in!

I'm glad you decided to stick with it..........I treated for 72 weeks and was a real witch the whole time - I had to tell people it was a reaction to my "chemo" at work but that helped me a lot...people feel bad for you when they think you have cancer and give you more leeway.  Of course, I never SAID i had cancer.....    ;)  but it helped me out a lot.

Good luck!
Helpful - 0
410850 tn?1229178711
Glad to hear that you are sticking with it!
I am geno 3, and also in the midst of the 24 week plan.  I am on day 1, week 11, and have had a very rough time since week 5.  On the days that I am at my worst, I just thank the universe that I do not have to do 72 weeks and I pray for those that do!

I can relate to feeling like my kids are suffering and I am ruining everyone else's life!  (also because of a stupid tatoo!!!!  Ironically- it is a PEGASUS!  get it???  The universe is just TOO funny sometimes!!!)  My daughter is 13 and going through all the "normal" 13 year old GIRL stuff.  She is self-obsessed and self-centered, difficult on her good days, hormonal most days, and social all days!  The early teens are so hard for girls (and their parents!) even during the best of times and the most stable of families.  Just know that all you can do is what you can do.  I have really been trying to count to 10 before responding to anything or anyone.  It helps reduce my immediate "SNAP!".  I also found the xanax to be infinitely helpful.  I just take 25mg when I feel that "build up" beginning.  It really takes the edge off.
Good luck and hang in there!
I have just made a promise to stay more connected here and work through some of my tx woes, and I think it makes a big difference.
WE ARE NOT ALONE!
~lorraine
Helpful - 0
299628 tn?1208382598
I've made up my mind to stick with it...I had a little alone time on the side of the freeway this morning that had me thinking hard about this decision and other things I'm dealing with.

I appreciate the replies tremendously and will be checking in more often as I thought I could swing this on my own...It does help to read about others questions and trying times and just to know that I am not alone.

Thanks again,
Manny
Helpful - 0
335297 tn?1210597884
I can relate to the side-effects. I am Genotype 1 and on my second treatment. On my first treatment, I had severe side-effects and my doctor shortened treatment. I had responded to treatment but I did not achieve svr and so I am treating again. We each have to deal with our own unique sx's but I know I want to stay the full course this time and achieve svr.

Someone on the forum recently told me the key is stubborness!
Helpful - 0
250084 tn?1303307435
Hi, sorry about the rage, mood swings your getting. It's a part of tx along with many other lovely things to deal with. Try to get away from people when stressing, walk away, take a break. If they know (at work) that your treating, perhaps tell them it's a part of the sides of these drugs, try not to take your moods personal.
  A question on your tx.....your Geno 2, in 4th month (16 weeks now?) and Dr. is saying he might extend tx? Do you have the week when you did reach UND? Geno 2's usually respond well to tx. What meds and dose's are you on? IF you were RVR, you only have 8 weeks left, it would be terrible to waste 16 weeks of this rough tx and start over later. I was Geno 2b, finished tx Feb 28-wanted to quit a few times. Sooooooo happy I didn't.
Xanax does help also, just watch you don't like them to much.

LL
Helpful - 0
276730 tn?1327962946
Just remember you have sacrified  an amount of time to hopefully improve your liver. This is important. This cant be compared to attending a party. This is your time to attempt to try and get better. Everything should be on the back burner until you get well.
Perhaps you and your wife should sit down and really have a serious talk. This is  serious stuff and all you should be focusing on are things you should be doing for your health. I undesrtand how hard it is on your family. I have no family, no children and no brothers or sisters. I am alone and yet I am yelling and getting upset and no one but the neigbors mowing their lawn at 9:00 at night at not being able to hear tht TV, loud noises drive me crazy, and my neighbors that slam their front door 60 times a nite!!!
It not easy for any of us. But this is your time and you should be a priority right now.
We all hav to die of something, however I would like to avoid liver disease its pretty horrible.
Im sorry your going thru all these changes, most of us do at some point of out tx, PLEASE BE PATIENT WITH YOURSELF THIS IS FOR A GOOD CAUSE>> YOUR HEALTH!!!!!!
Helpful - 0
299628 tn?1208382598
Thanks Charm and TV for the replies, I will have some new stats on the 17th of this month. Just had some blood work done last Thursday to see if upping my riba has done something to help my count.  I'd post my last count but my labs are in some box from our move.

I just recently got a promotion at work and have so much more on my plate now that it seems that I don't even have time to do MY job and feel like I'm more or less babysitting people I've worked with for 10 years or so.  

My wife and I have always been hosts to partys and have always gone to friends houses and out on the town. Although we still do these things...pretty limited though, I feel so bad for my wife cause I know she so wants to go. She won't go without me and I even asked her to go without me and she just wont do it.

And then theres my 12 year old daughter going through her changes....I have blown up a few times, and I have 2 older daughters and I haven't got on them like that, I don't want her to feel like shes being treated differently or unfairly. She knows as does the rest of the family what I'm going through...but she's 12 and the love of my life and I don't want her to hear or feel anything different then if I wasn't on these *&^&% meds.

My 5 year old boy....he's a trooper ...even at 5. He's always asking me if I'm alright, or "Dad, do you feel like?" going to the park, or to the store....he has always kept a smile on my face through this...but I feel that I'm letting him down as he should be in T-ball right now or soccer. I have had all my kids in sports and i feel like I'm keeping everyone back from their lives right now...

This is pretty much where I'm at with myself right now. I feel that everyone is on hold for a damn tattoo I just had to get..........
Helpful - 0
276730 tn?1327962946
Sounds like you have a case of "Riba Rage". I am doing better however that symptom just remains.. I go off at the drop of a hat, and have lost my temper with everyone.
Its tough....Some people dont experience that sx at all. Looks like we do.I didnt even know I had it in me to be such a *****!

It all depends on what your liver biopsy showed and the extent of your liver disease, that will determine how long you can wait to tx again if you feel like you cant see it thru this round.

I wouldnt stop for all the tea in china, I dont want to go thru this again unless I absolutely have too.
Perhaps your hepatologist can give you something to chill you out. It will help.
What is you viral count and your stats?
Helpful - 0
Avatar universal
I am sorry I don't have an answer for you about the Geno2 tx but I do believe you only have to do 24 wks?  

Ask your doctor for Xanax.  I was just like you with my daughter and coworkers but have been working on it in therapy.  I am learning not to react to everything everyone says and to just walk away or don't even respond.  I made a co-worker cry when I went off on her in front of another co-worker.  I apologized to her and thank God it didn't ruin our friendship but I have to be careful because I am always over thinking and have obsessive thoughts that plague me.  The Xanax takes the edge off, I take it before any staff meetings and am just in the backround at the meetings and not the center of the meeting.  My boss told me along time ago that in her position it was expected to have a certain amount of drama and that I could always be counted on for 'bringin it'.

I haven't seen you post in a long time; this is the place to vent without any repercussions (usually) so let it out here and see about something to calm you down!

TV
Helpful - 0
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