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137539 tn?1344379928

Just checking in

Hi all, Haven't been in here in a while and wanted to check in.  Nice to see some of the regulars are still here.  I should be visiting here more but I did try to break the daily check in and try to forget the last 2 years of dealing with hep-c.  

NYG hope you are doing a lil better I saw you broke your foot. Jim, Goof, Frijoli, meki, Child, and many more Hi I miss talking to ya.

Still having a few residual sides from TX but all in all much much better.

I went for my 3 month post pcr and the stupid Hospital here did the wrong test.  It asked for a quantative HCV count to be done and here they just tested for the anti-body.  I waited the normal 2 weeks and it wasn't in then thursday it was now almost 3 weeks and my doc in Pittsburg informed me of the mistake.  I went back yesterday to get yet another blood test GRRRRR  By the time it comes back I will be back home in Sac for a 10 day visit over the thanksgiving holiday.  
Maybe I can call once I am there.  I did raise heck with the manager of the lab I used.  He said that he would refund my ins for the botched test.  
13 Responses
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223152 tn?1346978371
Oh how I can relate, Nicky.  I have fallen twice walking pre-dawn on pinecones (post tx).  Once I sprained the top of my foot, and the other gashed my knee pretty good.  I think it was a balance issue.  I have walked predawn for about 20 years and never done that.

You know, Hepatitis Researcher always tells us to order our labs by the number.  That is a good idea.  LabCorp (which is the lab I use) has too many tests with similar names.  QuantaSure is the one I always wanted (<2) but once they did a QuantaSure Plus or something which was not as sensitive.  The Quanta Sure is only <40.  You can go online and find out the number of the test you want.  I got the wrong one a couple of times because I said the wrong name!

frijole
Helpful - 0
137539 tn?1344379928
Thanks for your warm wishes.  I'll post when I do get a result.  I just cannot believe the syupidity of the lab - not being able to understand the word quantative means vl count  and it also said HCV count how does that translate to an antibody test.  That word was not even in the bloodwork order.

Kathy - I am for the most part up to speed with the energy thing.  Although I do get my bad days still.  we have had some fairly nice weather here until this last weekend. Yesterday and last night it snowed for the first time here Brrrrrr  not much  but still.  I'll be glad to go back home for a short time, mom has said that the weather there has been pretty good in Sac.

Deb - Thanks I will be totally enjoying turkey day no matter the results but an UND would make it especially enjoyable.  I hope your foot is getting better  how long do they expect you to have the extra weight on there? Are you managing the stairs any better?  I couldn't even imagine trying to deal with that.

Although 2 months ago I had my own lil mishap -- I went to get out of the computer chair to run to the oven and fell flat on my face (not really sure how) and put my front top teeth right thru my lower lip it cut all the way thru.  sure looked funny for about a week.  rug rash from the top of my nose to my chin.  asked my mom if she remembered that her daughter was a clutz...  

Take care all
Helpful - 0
223152 tn?1346978371
Hey - I am just an email away.  I may not post routinely but my relapse leaves me  still in the game for a long while..  Sometimes tho, life gives you a little kick and then hep C takes the back seat.  But I look at my little Hep C stuffed buddy every day and am reminded.

It is only in the 50s today but back to the 70s tomorrow!
bean
Helpful - 0
179856 tn?1333547362
I almost didn't see your post and get to say hello!!!!!!!!!

I'm so aggravated at this PCR situation and it's not even me!  URGH!!!!!  Well just think of it this way...when it comes back UND it will be Thanksgiving and you will have SO MUCH to be thankful for you can have an extra helping of stuffing, mashed potatoes and then pie with ice cream to celebrate!!!   :)

You KNOW we are all here rooting for you.  Please = don't forget to tell us when you get the good news!

---------
Friole - I'm going to come and smack you hard in the head...how DARE you rub in to us that you have gorgeous warm summer weather while some of us are in the birthing pangs of WINTER!!!!!  BLAH!  Oh how I HATE the cold!  When the wind chill gets to be like thirty degrees below zero.....I'm going to be thinking of you probably sitting in your nice 60 degree sunshine!   ;)

Just kidding cause I wanted to say hello I never see you anymore *sniff sniff* (wipes tear).
Helpful - 0
223152 tn?1346978371
Hey, girl, what a dud that hospital is.  Doesn't that just kill ya?  Doing the wrong test!  Well, I will just keep crossing my fingers on this latest test.  Are you up to speed at work - anemia going away?

MY last VL test (about a month ago) was about 800,000 IU'mL.  ALT and AST were just fine -- in the 20s.  I am going to talk to a doctor on Wednesday about bumping my biopsy up to December.  I was supposed to have one in May '08, but my deductible will be met this year, so I want to step it up.

Has the winter chill set in yet?  Here in W Texas we are having a pretty warm November -- it got up to 90 yesterday but a cold front hits today.  Still haven't had to put my plants in.

frijole
Helpful - 0
137539 tn?1344379928
I'm sorry you did not respond as quickly to TX. Keep thinking positive though. Your shot is not for naught.  Even if it is still there the IFN does keep the virus from progressing and damaging the liver more.  When will you get the results back?  heres wishing you and UND result.
Take care, nicki
Helpful - 0
137539 tn?1344379928
ohhh wow I wish I could go but I live in Pennsylvania now. I haven't been home in almost 6 years, I will be there 11 days over thanksgiving week, but \vacations like that are rare  for me.  It will be nice for you guys.  If I still lived in Sac I would be there in a heartbeat.  Maybe next time I get to go home  it can be around a time you all plan one again.  This board has been my only support while I was on treatment and I really don't know what I would have done without you all.  everyone here helped me get thru all the rough times of treatment.

I'm so glad you finished TX.  How are you doing since you stopped?  Do you have any residual sides? I still have trouble with energy.  My legs get tired just as easily as they did on TX just not as often.
Hope your test comes out great.
Nicki
Helpful - 0
86075 tn?1238115091
wishing you the best, nice to see you here!
Helpful - 0
Avatar universal
Nice to hear from you.  So sorry to hear the lab messed up your test. I finished tx 7 weeks ago, so far so good. I will get my 3 mos. test just before Xmas.

We are planning a luncheon for bay area and Sacramento Valley and foothill people on the forum on Jan. at the Nut Tree in Vacaville. I hope you can come. We would love you to join us.

I'm having company at Thanksgiving. I just helped my son clean his condo and I'm pooped. I had a trunk load of stuff to drop off at the Salvation Army. It was a labor of love. Happy Thanksgiving.

Helpful - 0
Avatar universal
I have just had the same thing happen. I had not reached UND  at 18 weeks and I am now at 24 weeks, After waiting for a week the lab test came back POS. without any numerical value. Soooo now I sit and wait again. So taking my meds and shot could be for naught. AHHHHHH!

Helpful - 0
173975 tn?1216257775
I'm betting you are SVR, PL.

wyntre
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137539 tn?1344379928
Thanks Elaine and Ladybug,

LOL Lady  yes I did get 1 result from that lab report "It showed that I have the HCV antibody"  
"NO S*** Sherlock"  I cracked up with that one,  I will always show that.  I think I will be clear too But ya still worry about it no matter what.  And I will be asking my doc here for the labs to be printed out so I can see them for myself.  Lab manager also said that it should take only 10 days so maybe it will be back before I leave for my holiday.
Helpful - 0
146021 tn?1237204887
How frustrating! Did you get any lab report at all? It seems like even if they performed the wrong test you'd have heard something....
You were clear at 6 weeks, I'm sure you're still virus free! I called my dr's office nearly everyday after my 6 month pcr. I also requested a copy of the lab so I could see it in writing. Have a full of thanks holiday this year, sure you will be getting the good news soon.
Bug
Helpful - 0
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