Aa
Just checking in...still UND!!!!
Letting everyone know that I am still UND after 10 months off Incivek triple therapy... I only lasted 10 weeks till the doc had me stop ALL medications because of the side effects.
I am SOOOOOOO grateful for this kick *** triple therapy and along with the blessing I was spared from doing the whole round, although I urge everyone to hang in there as long as they can because it Really does work!
With that said, I wish you fellow slayers the best of luck on your journey to kill that dragon!
~Carolyn
I am SOOOOOOO grateful for this kick *** triple therapy and along with the blessing I was spared from doing the whole round, although I urge everyone to hang in there as long as they can because it Really does work!
With that said, I wish you fellow slayers the best of luck on your journey to kill that dragon!
~Carolyn
I hope no one minds but I would like to bump this up for people who were unable to do the entire tx
There have been several people who have only been able to do 12 weeks or so and they are SVR
To me it gives hope, much like WorkingDog, I think he did 19 weeks?
Due to horrible sx Michael also did a shorter time than was advised and I believe he is also SVR
Hope is a powerful thing
There have been several people who have only been able to do 12 weeks or so and they are SVR
To me it gives hope, much like WorkingDog, I think he did 19 weeks?
Due to horrible sx Michael also did a shorter time than was advised and I believe he is also SVR
Hope is a powerful thing
Congratulations!! Wanted to second OH's advice.
I did some self lymphatic massage post tx (see YouTube). When I was up to it, I also did the deep tissue massage and it helped a lot.
I was struggling with stress, energy, and flexibility and started the yoga too. Again, really helped. I started with YouTube and gentle detox yoga. I am going weekly now and trying to improve. It helps.
I also started including some vitamins that help with joint, stress, and memory type nuisances.
Best wishes and so happy to hear your good news!
I did some self lymphatic massage post tx (see YouTube). When I was up to it, I also did the deep tissue massage and it helped a lot.
I was struggling with stress, energy, and flexibility and started the yoga too. Again, really helped. I started with YouTube and gentle detox yoga. I am going weekly now and trying to improve. It helps.
I also started including some vitamins that help with joint, stress, and memory type nuisances.
Best wishes and so happy to hear your good news!
Ah, preparing for a show can bring pressure.
When I began painting after tx, I told myself to just do lots of sh!tty little paintings. I sketched, I did watercolors on cheap painting~ things that don't matter with the idea of simply having fun.
Let go of the need to do well, and it flows.
It's so important to remember to listen to the advice we give to others. We are also talking to ourselves.
Peace,y'all.
OH
When I began painting after tx, I told myself to just do lots of sh!tty little paintings. I sketched, I did watercolors on cheap painting~ things that don't matter with the idea of simply having fun.
Let go of the need to do well, and it flows.
It's so important to remember to listen to the advice we give to others. We are also talking to ourselves.
Peace,y'all.
OH
Your right on with this. I tell so many to do the same. I have always been the giver and rarely the receiver, I will do some tree huggin tomorrow and get back to meditating like you say. It's funny how I recommend this to so many when I rarely take out time for myself. I am getting ready for an art show Sept.22 so I'm really trying for that creative outlet. The doc is having me do some stretching techniques, so I will try to incorporate some yoga in to that.
You know you're totally awesome don't you?
Peace and blessings to ya!!
~Carolyn
You know you're totally awesome don't you?
Peace and blessings to ya!!
~Carolyn
After tx, I had a deep tissue massage and broke down sobbing. My masseuse told me I needed to get my center back, both physically and spiritually.
She was right.
I began meditating, doing some yoga and painting.
Being in nature was very important for me. I'd go to the garden to paint but for some reason, I found myself drawn towards the old large trees. Touching them, with my eyes closed, I breathed slow and deep and the trees took the tension out of my body. I'd never done this before. So, I started touching trees often, discovering that the older larger trees were better at doing this wonderful thing.
Touch the tree~ breathe in pulling the energy of the earth up through the bottom of you feet, through your body and as you breath out let it radiate up out into the universe through your head.
Just like the tree, breathe in from the roots and out through the limbs into the sky.
Try it, you've got nothing to lose.
And, if you haven't had any body work, I strongly recommend it.
She was right.
I began meditating, doing some yoga and painting.
Being in nature was very important for me. I'd go to the garden to paint but for some reason, I found myself drawn towards the old large trees. Touching them, with my eyes closed, I breathed slow and deep and the trees took the tension out of my body. I'd never done this before. So, I started touching trees often, discovering that the older larger trees were better at doing this wonderful thing.
Touch the tree~ breathe in pulling the energy of the earth up through the bottom of you feet, through your body and as you breath out let it radiate up out into the universe through your head.
Just like the tree, breathe in from the roots and out through the limbs into the sky.
Try it, you've got nothing to lose.
And, if you haven't had any body work, I strongly recommend it.
Day to day, I never know exactly how much anxiety, or whatever the heck you call this, is gonna grab me! Remember being Ready for a challenge, or a thrill or some excitement ? Remember falling in love with silly things? Remember taking pride in organization and doing those random acts of kindness, and being involved in the community? I don't know where that person went! I think I might have to force myself in to situations I do want to do. I thought that I would just start to come out of this brain fog and wake up on the good side eventually. Does anybody have any kick start methods to help recover the brain faster? Has anybody found that by doing ___________ it really helped them get their Mojo back? Please anybody, if you have found some thing that has helped you get you back to your old sweet self, please share!
Maybe I should just post that last question?
Love you all,
~Carolyn
Maybe I should just post that last question?
Love you all,
~Carolyn
Hi I forgot to ask, have you had your thyroid checked?
Mine has gone up and down since finishing tx. That may be why I am feeling off, I just remembered :)
Mine has gone up and down since finishing tx. That may be why I am feeling off, I just remembered :)
Thank you so very much for sharing your good news with everyone and sharing your experience as well.
While there are many sx that are gone or getting better, I have some type of anxiety...or perhaps I feel more vulnerable and contemplative than I once did. I guess that it could be a lose of confidence which will return with my hair.
I wish the same for you and anyone else who is going through the same
While there are many sx that are gone or getting better, I have some type of anxiety...or perhaps I feel more vulnerable and contemplative than I once did. I guess that it could be a lose of confidence which will return with my hair.
I wish the same for you and anyone else who is going through the same
Thanks everyone for the congrats! On another note, I would like to respond back to Workingdog, he was asking about if all my sides went away...well...I would like to start with the positive? Im very excited to say that my hair is growing back,"YAY! " My rashes went away and the tastes and smells have returned back to normal. I am different though, at least for now. I would love to say I'm just awesome, but I am still exhausted, I try to go for nice long walk in the evening and it still takes everything I have to do a short walk. What concerns me the most is that my old happy go lucky attitude, the tolerant patient person I once was...has turned into a person that doesn't put up with any type of stupidity from others. I have had a shift in my brain it seems. I feel like I've been re-wired with someone else that views everything very seriously that questions everyone and their intentions. I find that most people now are full of poop, except for you guys of course! I continually misplace or loose very important things in my house. It's like I'm under a great deal of stress, but I'm not. I can't remember things. Like shows ive seen before are brand new to me now. Old timers has definitely set in. I use to be an extravert with a strong labido. Now I'm an introvert with no sex drive. Oh, and If I watch anything that's SCAREY on the computer or TV, I still feel in my chest those triple therapy anxiety attacks trying to get me. Yea, I still have some repair to do. For now...as im sure im not alone on these matters, we can alI pray that we become our old sweet selves soon and that we will all get our most definitely needed mojo back. I will keep everyone posted every couple of months about my status, but my plan, as of now, is to do the SVR dance around the fire pit on Dec. 21st, 2012...if that's okay with everyone! BTW, everyone is invited to my house, so if ya feel like joining me in Oklahoma, come on!!!
God bless and peace to you all!
~Carolyn
God bless and peace to you all!
~Carolyn
That is wonderful news. I am so happy you made it and have attained SVR. Thanks for letting us know. (I remember your side effects ordeal ... not pretty.)
Congratulations on an amazing SVR! That is a story to tell and I hope the pharma companies followup on these realities and start diong something about treatment times with this kind of knowledge!
nice carolyn...those bad symptoms can = svr.....i was 19 weeks of awful symptoms and am svr.... 10 weeks is really something....i wonder....did all your sides go away?....billy
Congratulations! Thats incredible that you were cured after 10 weeks! I finished Triple Tx 6 1/2 weeks ago & reading all these posts about SVR is so inspiring! It really really helps those of us that are still waiting for their 6 month lab results.
God Bless
Rhonda
God Bless
Rhonda
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