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12773 tn?1328913186

Just wanted to report how I am feeling now that I am done with treatment

For the last month or so I was having numbness on the top of my left foot.  Now that I stopped taking meds, my legs and feet are swelling, feeling like I am retaining water.   And the gout I suffered from years ago, seems to be inflamed on that same left foot.    I have also been constipated since Thanksgiving.  I am still drinking water, but I dunno.....     Other than that , a few headaches here and there.   Been religiously putting the Eucerin where the rash was, and the dryness from that is clearing up, but can see scaring on my backside where I had the rash and on my tummy area.    Skin seems to be rehydrating some.  Doesn't seem so dry.   I am trying to get some cleaning done around here today. but as ususal have to take breaks from it now and again.  Hopefully that too will pass soon.   I really need to get this place cleaned up.  hope everyone has a great weekend.
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12773 tn?1328913186
Susan I know what your saying about not knowing if one thing could be related to the HepC.. It makes sense now after all these years the things I have had issues with, and now find out could have been related to the HepC or even sx from tx 14 years ago.    Like my diabetes.. etc etc.   I just had a colonoscopy in Sept, so not sure why I was clogged, but got some corectol over weekend, and that took care of it.   but still need to find out about the swelling and such and water retention.  I have not taken anymore of the water pills.  

Charm ~ Yes hopefully all the sx will all pass soon.. Hope you feel better soon..  

Wyntre ~ Yes finally done..!!! I am so glad, and so sorry you have to do 72.. Hang in there and don't kill the bird..    LOL    Somedays I want to go get another dog.. other days... I cannot think about training another dog.. But I will wait..  I still like the Dog on my profile,, and she is still available..  but been looking at dobie rescues too.  They are really sweet dogs..

Child24angel ~ Hope you are doing well..  I am just doing one room at a time.   I cannot afford to hire anyone right now.. LOL   but nice not having all the copays too.. so will build up my revenue soon..   Not used to being so broke.  

Ladybug ~ How are you feeling these days ?    I do not post as much. but will keep following up with how I am feeling, and hopefully each day will get better.. Skin is already starting to look better.  I actually had to have my security badge redone at work.. I looked totally different.  I actually had color in the photo.. so that was nice.  But what was sad.. today they made the badge, and when I looked at the picture.  All I saw was my Mom.. she passed 5 years ago around christmas..  So feeling that holiday depression.   I showed it to MIke this evening.. and said who is this ?     He says your mom..   I only took that one water pill, and was so busy today, did not get a chance to call doctor to get and see her.. will just go to PCP and maybe I can talk her into a 3 month PCR, or even one now.  Do you think its ok to have one done 2 wks after tx ?  I hope you are doing well.. Keep in touch.

Lonestar823 ~  I can hardly wait till I feel well enough to do the same.   I always got up every saturday, and dusted and vacuumed and cleaned all the counters and the floors.  Then would clean the bathrooms.   For the last year.. forgetabout it..  I could barely stand to cook sometimes.. had to pull up a barstool to counter or stove.   Sometimes felt like I was gonna pass out just taking a shower.    But ready to clean this house top to bottom.   Its just can I still do it all in a day..?  not with all this clutter.. I gotta do some serious sorting thru junk mail I never thru away, mixed in with things I should keep.. what a mess I got ahead of me..  But will take some time and do it a room at a time for now.. maybe by the time I feel better it will be done.. LOL and then I can just enjoy life feeling normal again.

Nygirl7 ~ Hey deb how are you ?   Well I took some Corectol over the weekend, and feel much better now.. LOL    I will call doc this week if the swelling continues, you're probably right about its just my body taking in all that hydration , now that the meds are not taking it from me..  I only took one of the pills,  today my feet are swollen just a little.  still numbness on top of left foot though.   So may wait before calling doctor.  And won't take any more of the pills..   but definately do not want to blow up again.  I refuse to ever get that big again..
Helpful - 0
179856 tn?1333547362
I remember feeling so bloated and full of water after treatment too - I think we get so incredibly dehydrated that once we get more water into ourselves...it feels very odd. I would stop drinking so much water before messing around with diuretics...just cause you really do NEED to start getting the water back into your tissues again, you know?

Make sure you are taking some of the good fiber pills that they sell now with the exlax...just for good measure :)
Helpful - 0
Avatar universal
I still use the Eucerin, the Original Ointment one and it really does work, doesn't it?  I think you sound like you are recovering pretty well.  The numbness and sometimes pain in my legs lingered the longest but it goes.  Oh, and just wait 'til you're feeling so well you take your drains apart and discover where all your hair disappeared to!  I must confess I'm so OCD that after I finished the first round of tx I knew what I was in for before I did the second.  You talk about a maniac Dana.  I was frightening.  This house was practically cleaned with a tooth brush before I started.  Every nook and cranny was hoed out and bags and bags of clothing, shoes, household stuff was given away before I started the second round.  I cleaned my attic and my cellar!  For the entire year and a half I only had to concentrate on the basics, kitchen, bathrooms, and changing my sheets.  I know I scared my poor husband to death while I was doing it but he was most grateful that a year and a half later my house still looked like we had just moved in. ; ]  That's pretty bad, huh?  And I agree, be careful with the diuretics and hope you're feeling better and better each day.
Helpful - 0
146021 tn?1237204887
I know exactly how you feel about tackling the clean-up post tx and I didn't even tx that long. I sure accumulated a lot of mess, lost all sense of organization, and my organizational skills weren't to hot to begin with....combine my ADHD personality and riba and I really had a mess on hand post tx. My husband cleans, but I'm suppose to take care of mail and bills. You should have seen the stacks I moved from room to room!
But the best part is that you are DONE, like wyntre says.
Be careful with diuretics, I'm sure one water pill  won't hurt, but I think you need to find out why you're swelling.
Hope you feel better soon!
Hugs,
Bug
Helpful - 0
173975 tn?1216257775
As George Carlin says, Ya end up having to get more room to put your junk in so you can get more junk.  *LOL*

I'm doing the same thing, tossing, donating and thinking a lot about tossing and donating.  :)

Dperry, at least you're DONE!  I can't wait to say that and be UND to boot.  

Susan,

"I'm grateful for those periods of time when I can feel not so bad and I'm able to do some things."

That's how I feel, too.

wyn  
Helpful - 0
276730 tn?1327962946
I wish you well. Sounds like your on your way.
The best to you always.SVR!
Charm
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Avatar universal
I know what you mean about junk accumulating.  I went through my stuff and threw out some and sold some at yard sale and gave some to Salvation Army.  About 10 min. ago, I threw out a bunch of old spices from my spice cabinet.  It's weird how you end up with stuff.  

I also know what you mean about things not moving through the colon like they should.  I've been bothered with that alot during my adult life.  It basically got worse after having abdominal surgeries.  I had 3 different ones-female type-one of which was to get rid of adhesions.  Some of those adhesions where having my colon and bladder 'adhesioned' to the adhesions.  Anyway, that may be too much detail.  Sometimes I'm not sure whether I'm feeling bad from the colon thing, or if it's from the Hep C.  It's hard to say...    I'm grateful for those periods of time when I can feel not so bad and I'm able to do some things.   I hope you feel better soon.

Susan400
Helpful - 0
12773 tn?1328913186
Thats probably not a bad idea to hire someone , but there is so much junk everywhere.. I swear I do not know where it all comes from, and why it never seems to make it back to that place , that it did come from.   A couple of my friends said they would come help, just let them know.. but it never seems to work out.  So I just do one room at a time.     Today I tackled the soot that is all over the fireplace tile from last year, when we forgot to open the floom on the fireplace.     Will finish up putting out decorations this evening, and maybe put ornaments on the tree tomorrow while watching the football games.      I went to the store and got a couple of things, but was feeling so dizzy I had to leave.   I still look pale as can be.     I think I will go get a CBC next week, just to see if my levels are increasing or not..     And need to get in to see the doctor .. I found some water pills, so I took one of those today, and lets see if that helps.    I have not gained any weight yet, and seems I am not losing, so hopefully I can maintain this.  I am just scared that if I start retaining water again, I am going to blow up..  Just like I did after treatment 14 years ago.     But I am eating small portions, but I feel hungry even after I eat.  But I do not want to overeat, so I go to bed hungry.      

MyOwn,

I am sure that things will start returning to normal, slowly but surely.   Hair is coming in, and doesn't seem to be falling out anymore.    Mostly gray though.. so gonna have to color it I think..    I picked up some exlax while out, which was main reason for going, and hopefully with take care of my other problem.   LOL     Maybe need another colon cleanse, then a liver cleanse would help me get my body back to healthy..  Well going to go work on some other tasks in the family room.. alittle at a time..
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Avatar universal
Sorry to hear you're not feeling so great, but your body went through alot for a long time and it will probably take time until you feel like yourself.

You have a nice weekend too.
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Avatar universal
I hired someone to clean my home when I retired 33 weeks into 51 weeks of tx. It was a HUGE help and made me feel so much better. At age 65 and on tx I did not feel like cleaning it myself. Now I do it in stages. Of course, I feel much better now, 11 weeks post tx. Maybe a friend or relative can help you tackle it. I helped my son clean his condo before his wife and baby came home. It really went fast with 2 working on it at the same time and we motivated each other. The next weekend I helped him clean out his garage. Both times I took a car load of stuff away to the Salvation Army. I think  he had saved every book he bought during 9 years of college.      
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