Aa
THIS SITE IS PRO-TX ONLY
IT IS CENSORED AND PROPMOTES POISON. NOW TELL ME I`M ANGRY BLAH BLAH BLAH
Trish.....I wouldn't say ANYONE going through treatment is PRO treatment......
Now that's a dam fact, lol. I surely wasn't 'pro' during! Quite anti, lol!
I am UND, about to get my 6mths. in August. I still will be of the mindset that it is up to each individual to treat or not. ANYONE in stage 3 I would lean towards tx and of course, stopping alcohol.
Anyhow....as Marcia said.....all please see Gatormans other thread, apology.
NOW HAVE A NICE DAY! I'M GOING TO PLAY WITH ISABELLA :)
Now that's a dam fact, lol. I surely wasn't 'pro' during! Quite anti, lol!
I am UND, about to get my 6mths. in August. I still will be of the mindset that it is up to each individual to treat or not. ANYONE in stage 3 I would lean towards tx and of course, stopping alcohol.
Anyhow....as Marcia said.....all please see Gatormans other thread, apology.
NOW HAVE A NICE DAY! I'M GOING TO PLAY WITH ISABELLA :)
(((((((((((((((((RON))))))))))))) You know what? The thing about being diagnosed with hep c is, for most, it strips away pretenses...And makes one realize that neither they, or anyone else is perfect...You're not expected to be perfect either...EVERYBODY has their own "baggage", whether it's guilt from something they did, dealing with a chronic disease or illness, or whatever. It's not the imperfections you have that are important, it's how you deal with them and live your life...Does your life give you joy? Does the way you live your life give joy to others? -that's what I see as important...(My 2 cent's worth...) ~Melinda
I wish I could delete this, but I`m glad I did it cause look at all the good people who proved me wrong. Please forgive me, it won`t happen again {I hope} Ron Wms -Orlando
I think we should give gatorman a chance now, he has apologized on a new post... so let's let this post die
Marcia
Marcia
Just wanted to let you all know that gatorman has apologized on a new post.
Marcia
Marcia
I wouldn't say ANYONE going through treatment is PRO treatment. It just happens to be the reality that it's the only thing we have that has a shot at eradicating the virus. Other things can keep it under control, slow it down, counteract the impact on the liver... but when you're talking ERADICATION of the virus...well, we're left with interferon and ribavirin and whatever new drugs we hope will be available to us soon. Treatment is not something anyone goes into lightly unless they haven't been adequately informed by their medical team. It's brutal.
Maybe....you don't like the reality. That doesn't change it. Denial won't make you well again, unfortunately.
Trish
Maybe....you don't like the reality. That doesn't change it. Denial won't make you well again, unfortunately.
Trish
I did tx because I already had cirrhosis. I wouldn't suggest it to anyone whose liver is doing well without.
I think interferon is poison. We hope the poison kills the sneaky little HCV and doesn't hurt us too badly.
BTW: I relapsed and won't do tx again. I'm looking for alternative ways to stay as healthy as possible.
I think interferon is poison. We hope the poison kills the sneaky little HCV and doesn't hurt us too badly.
BTW: I relapsed and won't do tx again. I'm looking for alternative ways to stay as healthy as possible.
This "site" doesn't take a position (how absurd, its an internet forum, nothing more!) but lots of people who post here are pro-treatment. That's because we want to be cured. If you don't want to treat with peg and riba, thats your decision and nobody here will pressure you. Good luck whatever you decide.
NOW STOP ALL THAT YELLING!!!
jd
NOW STOP ALL THAT YELLING!!!
jd
Gator, it seems you feel you've been attacked for wanting to do alternative treatments rather than conventional...I don't believe this is so...Everyone here knows they have a choice to treat, using conventional meds, or not to treat...I gave alternative meds a try for 6 months before settling for conventional.
After reading extensively, and speaking to a bajillion heppers who were going through treatment, who treatment had worked for, those who had relapsed, or those who it hadn't worked for at all, or even those who had liver failure or cancer and were dying, I decided I didn't want to give hep C a chance to do any more damage than it already had done..If possible, I wanted to increase the chance of having a good quality of life at the end of mine, rather suffering endlessly my last days...
At that point, the best odds of getting rid of it was doing conventional treatment...Nobody forced it on me. I told my liver Dr initially that I wanted to try other stuff before considering the SOC, and he was good with it...and said to let him know if I changed my mind...The SST helped some, but it couldn't get rid of the hep..
~Melinda
After reading extensively, and speaking to a bajillion heppers who were going through treatment, who treatment had worked for, those who had relapsed, or those who it hadn't worked for at all, or even those who had liver failure or cancer and were dying, I decided I didn't want to give hep C a chance to do any more damage than it already had done..If possible, I wanted to increase the chance of having a good quality of life at the end of mine, rather suffering endlessly my last days...
At that point, the best odds of getting rid of it was doing conventional treatment...Nobody forced it on me. I told my liver Dr initially that I wanted to try other stuff before considering the SOC, and he was good with it...and said to let him know if I changed my mind...The SST helped some, but it couldn't get rid of the hep..
~Melinda
When I start yelling at the people here who are desperately trying to extend their lives with the only known cure at the moment, who are sick and weak and disheartened from being infected with the virus to begin with and then go to the depths of hell to try and eradicate it - please PM me immediately - ask for my phone # and address and send the paramedics to take me for a psychiatric evaluation immediately - I have surely lost my mind and have serious anger issues to work through.
Trin
Trin
You don't like this forum but you continue to post here. Now admit it, we are irresistible to you. Aren't we? You really like us ya big lug, I can tell.
Yes, this site has a pro treatment bias because most here have, are or are considering treatment. Many who choose to "watch and wait" don't show up. I'll use myself as an example. I had Hep C for over 30 years before I started to treat. I showed up this forum for the first time a few days after I started treating. Not one day before.
That said, there is no censorship here in that regard that I'm aware of, and there are many voices free to express both a "watch and wait" strategy as well as alternative routes such as traditional chinese medicine a la Dr. Zhang or Dr. Misha Cohen, as already mentioned in this thread.
But your real problem as I see it, isn't whether this forum is pro or anti treatment -- but the fact that you have stage 3 liver disease and continue drinking heavily -- at least that was what I took from one of your previous posts.
If that is incorrect, please accept my apologies. But if that is correct, nothing will help you, probably not even the "poison" you reference (interferon and ribavirin).
Get out of denial and stop fooling yourself. Sober up and find a good liver specialist (hepatologist). Get another biopsy if your is over 2 years old.
If you're a beginning stage 3 maybe a liver healthy lifestyle and some supplements might buy you enough time to wait for the better drugs now in trial. Tha's not a recommendation to wait, just a thought given your take on the "poisons", and make no mistake, you're not that far off, although those poisons have saved many, many lives.
But if your fibrosis is progressing, you may barely have time to save your liver -- and possibly your life -- and then you owe it to yourself and family to treat with the best treatment available at the present time. And right now that would be Peg Interferon and ribavirin, unless perhaps you get into a a PI trial.
-- Jim
That said, there is no censorship here in that regard that I'm aware of, and there are many voices free to express both a "watch and wait" strategy as well as alternative routes such as traditional chinese medicine a la Dr. Zhang or Dr. Misha Cohen, as already mentioned in this thread.
But your real problem as I see it, isn't whether this forum is pro or anti treatment -- but the fact that you have stage 3 liver disease and continue drinking heavily -- at least that was what I took from one of your previous posts.
If that is incorrect, please accept my apologies. But if that is correct, nothing will help you, probably not even the "poison" you reference (interferon and ribavirin).
Get out of denial and stop fooling yourself. Sober up and find a good liver specialist (hepatologist). Get another biopsy if your is over 2 years old.
If you're a beginning stage 3 maybe a liver healthy lifestyle and some supplements might buy you enough time to wait for the better drugs now in trial. Tha's not a recommendation to wait, just a thought given your take on the "poisons", and make no mistake, you're not that far off, although those poisons have saved many, many lives.
But if your fibrosis is progressing, you may barely have time to save your liver -- and possibly your life -- and then you owe it to yourself and family to treat with the best treatment available at the present time. And right now that would be Peg Interferon and ribavirin, unless perhaps you get into a a PI trial.
-- Jim
http://www.medhelp.org/health_pages/Hepatitis/HepResearcher-doctor-on-various-topics/show/38?cid=65
I've seen people who claimed that they had been helped with Chinese herbs. Unfortunately.... the person with high LFT's experienced them while on those herbs. I just can't say.... but if you DO procede monitor your labs.
Willy
I've seen people who claimed that they had been helped with Chinese herbs. Unfortunately.... the person with high LFT's experienced them while on those herbs. I just can't say.... but if you DO procede monitor your labs.
Willy
The majority of people who have joined this forum have been, are going through or will do the conventional treatment. That's why the site seems to be pro tx. So that's what we discuss here on this forum, tx. Nobody is forcing you to have to take our advise. We cannot give advice on something we know nothing about. Or something we do not believe in. So please don't resent us, because we are not into MMS and Colloidal Silver.
There might be other sites and support groups which do.
The problem is that there currently is UNFORTUNATELY is no other CURE for this illness than the conventional treatment. And most of us on this forum are here because we WANT the CURE.
If you do not want to treat with conventional meds to get cured, but want to treat with herbal medicine that is fine. Many do it, while they wait for something better to come along.
There is Dr. Zhang in NYC who has a good herbal protocol, which is supposed to help a lot. He is a doctor in TCM and Western Medicine and specialized in viral illnesses like HCV, HIV, lime disease, etc. And he knows what he is doing. He is very respected in his field both in the US, China and Japan.
His site is dr-zhang.com.
Good luck researching.
Marcia
There might be other sites and support groups which do.
The problem is that there currently is UNFORTUNATELY is no other CURE for this illness than the conventional treatment. And most of us on this forum are here because we WANT the CURE.
If you do not want to treat with conventional meds to get cured, but want to treat with herbal medicine that is fine. Many do it, while they wait for something better to come along.
There is Dr. Zhang in NYC who has a good herbal protocol, which is supposed to help a lot. He is a doctor in TCM and Western Medicine and specialized in viral illnesses like HCV, HIV, lime disease, etc. And he knows what he is doing. He is very respected in his field both in the US, China and Japan.
His site is dr-zhang.com.
Good luck researching.
Marcia
Hey......I'm sorry you feel bad about this site. I don't share the viewpoint, however.
I am in favor of diet and lifestyle modifications. I believe that they can add years to our lives (whether one has HCV or not). I believe that some supplements can help us but that there is still a lot to be learned and proven there. To that extent...... I don't have a silver bullet that can help you with supplements. There are some that Hepatitis Researcher recommended that you can find here. You are welcome to try them out; currently some members are doing that. IF you do so I would recommend keeping an eye on your LFT's and other bloodwork. I am aware of at least one case where instead of helping the herbs actually elevated the LFT's into the 500 range and that they dropped again when the person got off the supplements.
Yes...... there are members who may "promote" TX..... chemotherapy..... treatment here. The reason is.......it is the only thing that has been shown to be effective at treating and curing people with HCV. The problem is....that IF you are a stage 3 you are running short of time to get cured. Treating people with stage 4 liver disease from HCV usually involves worse side effects, a longer treatment and a lower success rate. You have to ask yourself..... are these people trying to share their viewpoint with you to harm you or HELP you? My opinion is that they are trying to dissuade you from doing alternatives because they are afraid you'll merely progress and lose your chance to treat while you are a stage 3.
Everyone is free to do as they please; to treat or not treat as they wish.
Yes.......this board does censor people if they cross lines; you can't call people names, be rude to people etc..... but it is just common sense courtesies. You have to ask yourself...... how would you like it if you were on treatment......so you can save your life....and somebody came on the board and STARTED SHOUTING IN ALL CAPITALS and proclaiming that the treatment you were on was "poison"? IF a person were to do such a thing......and show that lack of tact..... well then perhaps that would be or should be deleted.
Hey....it comes off as pretty rude and insensitive to others. You might consider what you type before hitting the "post button". I assure you..... there are many sick people here that are sicker and more scared than you. They deserve a calm and safe place to get help. IF you chill out and just start reading....and not reacting or provoking I think you will find help.
best,
Willy
PS......I have not treated......I just passed up the Vertex trial due to low staging damage (1/6). I DO believe that it will be approved soon.....possibly in 2010. The drug seems to cure nearly everyone that treats with it when used with SOC. Other therapies coming will raise the SVR rate even higher. That doesn't mean however that all people can wait for it or that approval will be soon or is guarenteed.
I am in favor of diet and lifestyle modifications. I believe that they can add years to our lives (whether one has HCV or not). I believe that some supplements can help us but that there is still a lot to be learned and proven there. To that extent...... I don't have a silver bullet that can help you with supplements. There are some that Hepatitis Researcher recommended that you can find here. You are welcome to try them out; currently some members are doing that. IF you do so I would recommend keeping an eye on your LFT's and other bloodwork. I am aware of at least one case where instead of helping the herbs actually elevated the LFT's into the 500 range and that they dropped again when the person got off the supplements.
Yes...... there are members who may "promote" TX..... chemotherapy..... treatment here. The reason is.......it is the only thing that has been shown to be effective at treating and curing people with HCV. The problem is....that IF you are a stage 3 you are running short of time to get cured. Treating people with stage 4 liver disease from HCV usually involves worse side effects, a longer treatment and a lower success rate. You have to ask yourself..... are these people trying to share their viewpoint with you to harm you or HELP you? My opinion is that they are trying to dissuade you from doing alternatives because they are afraid you'll merely progress and lose your chance to treat while you are a stage 3.
Everyone is free to do as they please; to treat or not treat as they wish.
Yes.......this board does censor people if they cross lines; you can't call people names, be rude to people etc..... but it is just common sense courtesies. You have to ask yourself...... how would you like it if you were on treatment......so you can save your life....and somebody came on the board and STARTED SHOUTING IN ALL CAPITALS and proclaiming that the treatment you were on was "poison"? IF a person were to do such a thing......and show that lack of tact..... well then perhaps that would be or should be deleted.
Hey....it comes off as pretty rude and insensitive to others. You might consider what you type before hitting the "post button". I assure you..... there are many sick people here that are sicker and more scared than you. They deserve a calm and safe place to get help. IF you chill out and just start reading....and not reacting or provoking I think you will find help.
best,
Willy
PS......I have not treated......I just passed up the Vertex trial due to low staging damage (1/6). I DO believe that it will be approved soon.....possibly in 2010. The drug seems to cure nearly everyone that treats with it when used with SOC. Other therapies coming will raise the SVR rate even higher. That doesn't mean however that all people can wait for it or that approval will be soon or is guarenteed.
you're angry
you're frightened
and you're in a chronically altered state of consciousness due to alcohol poisoning
you're frightened
and you're in a chronically altered state of consciousness due to alcohol poisoning
you're angry BLAH BLAH BLAH!!
Seriously though.....
Most here are on tx. We don't promote it, we give support and comfort to those about to
start or are on tx, and for the nrevewracking times post tx. Until a naturel cure comes along, this is all we got, our pretty poison to cure us. Unless of course, you clear on your own. We all believe it's important to stay healthy, eat right, and keep a positive outlook. BUT as for a cure, again, it's all we have today and we never lose hope that something better will come along tomorrow. It's our choice to tx, it's your choice and others not to.
Later Gator...
Seriously though.....
Most here are on tx. We don't promote it, we give support and comfort to those about to
start or are on tx, and for the nrevewracking times post tx. Until a naturel cure comes along, this is all we got, our pretty poison to cure us. Unless of course, you clear on your own. We all believe it's important to stay healthy, eat right, and keep a positive outlook. BUT as for a cure, again, it's all we have today and we never lose hope that something better will come along tomorrow. It's our choice to tx, it's your choice and others not to.
Later Gator...
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