Taboo Question I want to know if ANYONE out there has Totally KILLED Hep C FOREVER

I want to know Has anybody really KILLED HepC (forever)??? Yes I know all about every treatment out there. I have had it for 30 years. But what gets me is NOBODY seems to want to talk about AFTER treatment. I mean mhy studies Have been that it ALWAYS in every single case has come back later sometimes a few years sometimes sooner. So why does everybody act like they are killing the Dragon when it obvesally can not be killed?

[Rockerforlife]

Shome me your studies and proof it comes back after 6 months SVR.

[charm27]

Ditto!!

Charm

[GSDgirl]

I am 2 years post treatment and there are others 6 & 7 years post tx that have had PCR's PROVING they have KILLED the dragon

[nygirl7]

Something that you do not have can no longer "come back".  You can get it again because you do not aquire immunity to hepC when you beat it but........there are many of us who yes have killed it.

The dragon dies brilliantly, adios dragon.

[romans828]

The doctors won't admit it, but yes, it does happen.  My husband is going on 2 years SVR!

[jdwithhcv]

Your "studies" are wrong.  Many of us have totally killed Hep C forever, myself among them.

[Diamond_Lil]

Yes, your studies are obvesally wrong and I would be very interested in reviewing them.

Diamond_Lil

[Diamond_Lil]

I'm sorry, the above post was intended for Dragon640.

See how easily it is to be wrong Dragon640?

Diamond_Lil

[Dragon640]

I really hope yall are right. I do know I have been with 2 girls that has had the treatment and it did come back. And even the docs will tell you that\ there is NO cure. Course I am in stage 4 so I cant even have treatment. But I have known about it sence 86 and maybe I am just bitter because I cant take the tretment...if that is the case then I am sorry. And I DO hope you are right. I really do.

[Diamond_Lil]

Dragon,

There are people with cirrhosis who have treated successfully with interferon and ribavirin and with the addition of the protease inhibitors scheduled to hit the market sometime next year the likelihood of achieving a sustained virological response will increase.

I was under the impression those who have decompensated cirrhosis were not candidates for treatment but another member of the forum, mikesimon, provided this summary which shows treatment is possible.  

I have failed antiviral treatment twice and I understand to a degree how you must feel.  Perhaps consulting with a hepatologist can give more insight into what avenues you can pursue.  It is my hope that one day you will have the opportunity to eradicate the virus.

Diamond_Lil


To: TX / Decompensated patients
Sustained Virological Responses Following Standard Anti-viral Therapy in Decompensated HCV-infected Cirrhotic Pat
Posted: 08/26/2009

See:  http://www.medscape.com/viewarticle/707282


"......In conclusion, the present investigation on decompensated cirrhotic patients has shown the feasibility of anti-viral
therapy with the same schedule that is currently recommended for compensated cirrhotics, with an overall SVR rate of 35.1% in the whole population, of 56.8% in the subgroup infected with genotypes 2 and 3, and of 16.0% in those infected with genotypes 1 and 4.

Treatment appears worth pursuing only in the setting of patients with good prognostic characteristics, such as low viral load and EVR and in those adhering to full dosages of either peg-interferon and ribavirin."

Mike  

[can-do-man]

I am also one of those stage 4 heppers, dx over 5 years ago with cirrhosis, like you i treated once and relapsed. Finished my second tx 4 months ago with one of the new PI's (Boceprevir trial) and i'm still und. My heppa has no problem calling it a cure.

I can sure relate to how you feel but try not to be bitter, doesn't do much but leave a bad taste in your mouth. Just refuse to give up fighting this, find a good hepatologist and let him/her know you plan on winning this battle. Both telaprevir and boceprevir are looking promising. Hang in there guy you can do it.

Wishing you the very best
cando

[Rockerforlife]

The really good news is....the BOC  phase II ,they leaned towards hard to treat cases and the rates of SVR were between 80% and 94%...so imagine what the BOC will do for the "normal" ones

[Rockerforlife]

i meant to say between 75% and 94%

[medicmommy]

Hello!
I have 2 friends who went through treatment in 1998 and are still SVR. One of them was 1a, and the other one never did have a type assigned (probably was 3a, but 3a hadn't been identified at that time.) I've known a few other who went through those early treatments and got liver cancer and have since passed -but the Hep C had been killed -a moot point, if the treatment kills you first...
I'm wondering if you are confusing "positive for hep C antibodies" is the same as active hep c?
Personally, I'd like to think mine is gone forever also. I'm now 2 years SVR and my liver enzyme have not bobbled once since finishing treatment...(ALT 15, AST 16)...MM

[newleaf09]

I treated with stage 4 cirrhosis on SOC plus boceprevir.  The protease inhibitors are working with stage 4's.  I'm still clear 9 month after treatment and since I had low viral load to begin with, I imagine my body did a pretty good job keeping the virus down for long years.  Although I will live my life cautiously (avoid liver toxins) and avoid anything (drugs) that could suppress my immune system, I feel that the virus is really dead and the ordeal is over.  Try to stay in good shape until the PI's are released within the next year.

[nygirl7]

I don't know when these two girls did treatment but even a few years ago the doctors didn't know nearly what they do now.  In the olden days they only treated with interferon - now we treat with peginterferon and ribavirin.  In the olden days they did not have the ultra sensitive testing that they do today - where they can see if you are truly undetectible at an early date or not and if you need to extend treatment or take extra meds.  In the olden days they did not have the new PIs which are working miracles. There are many more things now that they have that assist people in getting to SVR that they did not have only a few years ago in the olden days.

Of course, these two girls might never have truly been undetectible or they could have been reinfected.

SVR is durable and six months after treatment if you are still UND then you will always be.  Unless of course you are reinfected again.

[Dragon640]

Well I can asure you I am not reafecting anyone and they were not either. Do you really think a person that has had it for over 30 years is stupid enough for me are to be with anyone that is still using. But thank goodness yall are for the most part right. I did find this at the national liver foundation.  :) Way to late for me but not for lot of you. :)    

Hepatitis C is a disease of the liver that is caused by the hepatitis C virus, or HCV.

Between 15 to 40 percent of people who get hepatitis C are able to fight off the virus during the early, or acute, stage, usually within six months. Between 60 and 85 percent of patients cannot get rid of the virus and develop a long-term, or chronic, hepatitis C infection. People with chronic hepatitis C will have the disease all their lives unless they are successfully treated with antiviral medicines

[Rockerforlife]

In the olden days....LOL....we are not that old girl...the dinosaurs were pounding the earth back then