HEPATITIS SOCIAL COMMUNITY
Talking about Hepatitis - To tel or not to tell?

Talking about Hepatitis - To tel or not to tell?

I wanted to write this post because I have not seen this issue come up. It may have been talked about before I just haven't seen it. I was diagnosed with Hep C back almost a year ago. I just started a clinical trial last week. The issue I want to talk about is whether or not you should tell your friends, acquaintances that you have Hepatitis. I find the issue a little difficult to talk about really. All my family members know I have Hep C.

This forum is an easy place to talk about Hepatitis because that's what's it's for and the people who participate are most often diagnosed with Hepatitis. We don't have anything to hide here. Most of us on this forum have one thing in common, which is what leads us to this forum. There's no discrimination here. But in the real world trying to explain to someone you have Hepatitis is like a whole different issue. They don't really understand what Hepatitis is or how it works. They have preconceived notions that it can be contagious threw physical contact. There are a whole host of issues that the general public does not understand about this virus.

I have a friend ( It's really a group of friends)of mine that I told I had Hepatitis. I typically see this friend 6 or 7 times a year but since I have told him I have Hepatitis I have not seen him one time. I'm usually invited to party's and other events and not one time in the last year have I been invited to any events. It's like once this group of friends found out I had Hepatitis they just want to stay clear of me. I get the feeling that they seem to think if I come around that somehow they can be infected by me. So I still talk with them over the phone and stuff. I just haven't seen them in person. I also am a member of a club and I have been able to participate in club meetings up to this point but now that I am being treated for Hep C. The drugs are having a significant impact on my health and therefore may not be able to participate in club meeting as I would normally do. How do I explain this to them? I'm afraid that if I tell them I have Hepatitis that I would be discriminated against by at least some members. I could get kick out of the club altogether. I feel like some people will just look down on me and not want anything to do with me anymore. I've thought about telling them I have cancer instead of Hep C. I think they would be more sympathetic to the situation but then I would be living a lie which is something I don't like. I'm going to have to tell them something and I just don't like the idea of telling them I have Hep C. So I find this whole situation a bit difficult. Should I tell or shouldn't I? I know I can't be alone in this situation. I just wanted some feedback about how some of you handle this situation. I think it's a good topic to talk about and I think I would find it interesting to see what other forum members have to say about this subject.
Peace!
Keith
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Avatar_m_tn
"I have not seen this issue come up" Rest assured, it has come up before! (g)...I really is a personal decision you'll have to make for yourself. For myself, I told no one except my immediate family..I was my choice...I will say, I have told one friend since I svr'd...read into that as you may..;^)  I'm sure you will get many varied responses, from sign carrying advocates to closet heppers...;^)....that said, it is my firm believe that one has to tell anyone who may be put in a position of infection..ie, other docs, dentists etc.-it is the right thing to do, regardless of any normal precautions they might take during there normal course of business
Pro
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476246_tn?1310999221
I'm very open about it and have only had positive feedback from people, no matter who I have told.

Marcia
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577132_tn?1314270126
First of all, if those friends have really stopped seeing you because you have Hepatitis then they're not really friends, are they?  

You have 2 options there, forget about them, or sit down and educate them.  People are quite misinformed and if we want that to change we have to do something about it.  Also, there are so many types of Hep (A, B, C, D) do they know which one you have or are they just guessing?  It depends if you want to go that deep with them, and if you don't then are they friends or just social acquaintances?

Secondly, telling people is indeed up to you and only you will know what feels comfortable.  At first I told only my close friends and my close work colleagues and my boss.  I felt I had to tell them as I knew I was going to experience some changes and I wanted those people around to be well informed. I keep them updated all the time.  

Up until recently, those were the only people that knew at work.  For some rash reason I decided to tell two others work and here is the amazing thing: neither of them had noticed any changes in me!!  I guessed that was cos I was keeping a low
profile but they hadn't even noticed that either!!  Most people are so self absorbed they don't really notice others!

I have tried the vague I'm on medication mumble when people have asked why I don't want a drink or why I have a bandanna on and they immediately assume cancer and then start becoming very caring and concerned and then I feel like a fraud so I have ended up having to tell.

I have found the "blood disorder" approach the best, deliberately not naming the virus.  That usually satisfies folks without divulging too much of yourself...

Sometimes we think our response or situation is much more visible than it actually is, in reality some people may not even notice a thing so long as you keep a smile and good attitude.

On the days you can't manage that, you can have any number of ailments that are understandable to most but have no stigma attached: ie: migraine, gastroenteritis, flu, hay fever, anemia...  The list is endless!

All the best :)
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476246_tn?1310999221
Sorry, am not well at the moment and did not answer your question properly.

Just tell people you are on chemotherapy and thus going through a hard time. You do not need to tell them what the chemo is for. You can just say that you prefer not to talk about it, as you have had hurting responses from people.
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Avatar_m_tn
I never even read you post yet...but i will...KEEP YOUR MOUTH SHUT......PLEASE
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Avatar_m_tn
I just read your post....i see what you mean...if some people see you not feeling well and its caused by the tx drugs....you feel you have to tell them its the drugs and not nessesarly the hepc...?..is this a concern you have also?...well  sorry for sounding so blunt....i will admit i told my mom...and brother...that was it....and telling your co.workers is like putting an ad in the front page of the new york times newspaper....work gossip is the worse gossip on earth
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Avatar_f_tn
It is a personal choice.  I've told my immediate family and that is it.  My family is supportive, but I don't expect them to treat me any differently or make a big deal out it because I really never have myself.  My coworkers do not know and I have a very high profile job.  My physical appearance has changed and I'm not quite as industrious at work as I used to be, but the people I work with have enough respect for me that they just don't ask.  I would bother me terribly for people to ask me everyday at work how I was feeling or if there was a problem to automatically blame it on my treatment.  I'm very independent and don't want sympathy from people because they think that's how they are supposed to react.  My work hasn't suffered because of treatment, my overall health has, but not my work.  I have great neighbors and when we get together I'm the same person as I was before tx.  They don't suspect anything and I have always lived by the don't ask, don't tell policy.  If someone were to ask me outright, yes, I would explain but only once and then I would expect it to be dropped.  I don't have the time or willingness to explain and educate everyone who knows me about hepc.  People will tell you they totally understand, but most people don't and the stigma doesn't go away as a rule.
We are changing insurance companies the first of the year so I had to disclose I am treating for hepc.  I told the insurance broker who came to collect the applications at my work that I did not want any of the upper management knowing about my condition.  She said by law, she can't tell.  However, when we started discussing hepc, she said she knew first hand how people were treated by others, even within the insurance companies.
I told her I currently did not have the active virus and she said well then if people at work did know they shouldn't be concerned about catching it because I could no longer transmit it through sharing utensils or coffee cups.  This is an insurance agent who deals with all types of infectious disease and has for years.  I just shook my head and politely ended the conversation.  
That's how I've handled this so far and it's working quite well.  Whatever you are comfortable with is what will work for you.
Trinity
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439539_tn?1233469415
Remember this.Once you say words, you can't take them back.Once SVR will it matter?
Or tell everyone and educate as you go and maybe you could make people open their eyes and get to the Dr. to be tested.
This has to be your choice.Your the one living the life with the people you tell, or don't tell. Good luck with your decisions.
Tammy
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374652_tn?1311302831
I told my immediate family and far away friends,  I even think I may have been fired for the hep c diagnosis.  I really dont trust anyone who holds my livelihood in their hands.  Its sad, but true.  i have not started tx. yet, but I would tell them its chemotherapy.  I've had cancer and that was alot easier to tell people about, because they know thats not contagious, even though hep c is blood to blood, I just dont trust to many people with my welfare.  I am just very careful with my interactions.  and really how many times do you bleed into somebody elses broken skin?  
i wish i worked somewhere where people really cared about each other.  
its all up to you what you want to do, but remember you cant take it back. you know who you can trust.  
Good luck with it all.   M4now
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374652_tn?1311302831
"I told her I currently did not have the active virus and she said well then if people at work did know they shouldn't be concerned about catching it because I could no longer transmit it through sharing utensils or coffee cups.  This is an insurance agent who deals with all types of infectious disease and has for years.  I just shook my head and politely ended the conversation."

Since when could you ever get hep c from sharing utensils or coffee cups?  Unless it was a knife that cut you then the next person cut themselves with it.  .......
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Avatar_m_tn
I dont mean to sound rude or anything...but lets reverse the situation for a minute here...if you were "clean"...and someone told YOU they had a contagoius disease...would you invite them over for supper and play with  your kids...i bet you would not,,,be honest here...why would you?....i dont feel bad that people dont want o be around me...if i told them that is....its just human nature...so why put your self  in a akward situation by telling the all you" friends"

just my thoughts.
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408795_tn?1324939275
I wouldn't tell anyone besides family and very close friends.  Rock is right about workplace gossip, ppl are like little kids when it comes to gossiping.  I work in the health related field and I feel that's even worse, I had to give my boss an excuse already, so he already knows that I'm on tx, but I didn't tell him what for.  I told him that I was sick and I didn't want to talk about it, and more important than that I don't want anyone to know.  It's easy enough to figure out it's from the Dept. of Heptology and all he's gotta do is look up the doctor's name.  That's ok, I didn't have a choice as I was already being documented for missing too much work.  Be very careful, who you tell as someone already said, once you say those words, you can't take them back.  good luck
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Avatar_f_tn
That's what I'm talking about Mary.  She didn't have clue.  I think before ending the conversation I said that hepc is transmitted blood to blood but she didn't really know what she was talking about and I didn't have the temperment at that point to go into it.  
You can educate people but they will form their own opinions whether it's right or wrong.
Personally, I don't care what people think but I do like my privacy and my life is not an open book to all.  I share many aspects of my life on this forum, but people get it here because they live with it everyday.  I have never expected the same understanding from the public because they don't know.  I can educate them until the cows come home and they may look me straight in the eye with all the understanding they can muster up.  Doesn't mean they will look any more favorably on me for sharing my illness but it would probably give them somthing to talk about around the water cooler when I'm not around. LOL
Trin
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Avatar_f_tn
OOPS, didn't phrase the properly.  Not sharing my illness, heaven forbid, sharing the fact I have hepc.
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Avatar_f_tn
I just want to say that Trinity said it so well for the way I see it.

I've hardly told anyone except my immediate family, and even some of them I wish I hadn't. My boys just don't know what to make of it and treat me solicitously with kid gloves, which I hate.

It hasn't been hard for me to keep it to myself somehow (wk 27/48).  Even the odd professional (like my family doctor!) says such ignorant things about it that confirms to me the less said, the better. I do not want to be a spokesperson or educator during tx, which requires more energy than I have to expend.

My hepatologist told me a shocking story of ostracism among his hepatology nurses, who became leery around one of their colleagues who'd had a needle stick and contracted HCV. They wanted her to use disposable paper plates at work! That persuaded me to keep it under wraps. They should know, of all people and they either don't or are frightened despite the facts.

If I'm having a bad day, I lie straight-faced. I usually say my back is killing me and the painkillers are knocking me low. Since back pain is the most common complaint in the country, it seems to fly without anyone batting an eyelash. Sometimes I say I 'must have anemia'  because I'm dead tired.

I couldn't bring myself to say I'm on chemo, which precipitates a strain in the conversation and unknown consequences. Several people do highly endorse this 'chemo' sound bite, so you have to figure out what works for you.

Some people are comfy telling all and others are reserved, so it comes down to what kind of person you are.

If I may make a sexist comment (you're a guy), many men typically share little about their personal problems publicly, my husband included. He's very old school, stiff upper lip. Sometimes I wonder if he'd tell anyone at work if I died!  I'm not that stoical but I do tend to have a similar outlook.

Rocker, I'm with you on this one, like the transit of Venus. :)
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Avatar_m_tn
Another thing to ponder...what do you gain by telling anyone....?....most people dont give a rats a,ss anyway....if you live or die...i know them are tough words....but its true.
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663420_tn?1248680985
Thanks to everyone who weighed in on this subject. I think it's an important subject to talk about and it's an ongoing problem we all face. It's sad to think that people can be so insensitive about a subject or illness that the people who have it cannot comfortably talk about it with openness and honesty. I have already seen with my own eyes the form of discrimination that comes from people who no very little about this virus and are simply over paranoid about it that they will alienate even close friends just to protect themselves when the simply fact of the matter is that those same people come in contact with other unknown infected people all the time, but because they don't know who they are it's okay. I guess you can't do anything about what you don't know.

My conclusions are you are better off not telling anyone who doesn't need to know. Unfortunately I find it difficult to bring awareness to the Hepatitis virus if you are not willing to talk about it. One good point I would like to make for all of us is that we have this forum to turn to when we have questions and I don't have to worry about being discriminated when doing so. So I thank you all for that!
Keith
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Avatar_m_tn
If you tell regular fok about the dangers of hep..they will do what they dio anyway..ya cant win....its like ryinhg to help peoople with cettian heal-th foods...ya cant beat a dead horse
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Avatar_m_tn
The people I work with and my friends learned more about pegylation, viral loads, and everything else related to tx than they cared to know. I understand not everyone is fortunate enough to be in that position, but those of us who are will make it that much easier for the next group of people who have to do tx.
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Avatar_m_tn
Beat on dude. Just don't push product. Use generic terms and don't get your panties in a bunch if someone wants to discuss something besides anecdotal evidence.
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Avatar_m_tn
you are on your own my friend...when it comes to tallking bout  health foods here...i rather have a root canal are 4 molar extractions....i was not pushing anything...and i dont ear womans panties.........at least i dont rember...i had some wild times in my life.........can you say....blue green algae.....is that geniric enuff....the horse is not moving still
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498948_tn?1253059441
...and i don't ear womans panties......

was that eat or wear?  

You must have had some wild times if you don't remember......
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Avatar_m_tn
Icould write a novel about just my last 25 years...it would fly of the shelves....if im gonna wear em...i may as well eat em too.....opps.....have i said too much?....ill stop now
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498948_tn?1253059441
The visual image of a big, biker-type of a guy wearing frilly, skimpy ladies panties is just too much!!!  LOL
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Avatar_m_tn
Iam not a biker ...i a newfie
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Avatar_m_tn
ise da bye that builds da boat and ise da bye that sails her
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498948_tn?1253059441
Why did I have the idea that you were a biker?
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374652_tn?1311302831
I did tell my spiritual friend who is a Tibetan Monk, and all he said was do not worry, just pray to Tara, do good things.  I love their outlook on life.  They view their whole life as an opportunity to burn bad Karma and create good Karma by helping make other happy, (by being kind) and they see it as bettering their reincarnated life for the benefit of others.
By the way this monk knows suffering, he was an orphaned refugee from Tibet when China invaded, he had TB when he immigrated from India, which turned into encephalitis, he almost died/ was saved by a nurse who was a friend, and when she died he attended her death helping to guide her to a beneficial rebirth.  
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524608_tn?1244421761
I learned of my diagnosis about about 2 years ago...I didn't have any idea what HCV was. I called my mom (she's a registered nurse) I told her and asked her not to say anything to anyone...not 5 minitues after I got off the phone with her my sister was blowing up my cell phone....I told my children and husband of course but swore them to secracy...after I learned more about it and how it is contracted I was even more confused...I have very few risk factors so I didn't say anything to anyone.

I found this forum earlier this year and started to become more at eased talking about it...

I have told my friends and a couple of neighbors who I have know for many years. I started to show signs of fatigue about 15 years ago and let my yard go a little...at that time one of my neighbors asked if I was ok as it wasn't like me to let it go one day...I didn't know what was wrong...I just couldn't get out in the heat and some days couldn;'t get off the sofa...I was just too tired...I came home from work one day and found a couple of them mowing and edging my lawn...I had to tell them when I finally found out what it was.

Since being on tx meds I have developed apathy and don't care who knows...I like this apathy thing...(sort of)...

Last time I went to the dentist they asked about any changes in health...I told them...the woman who had been cleaning my teeth for many years...took the info and didn't bat an eye...she was very well educated on the subject and didn't skip a beat that day...she made me feel just as comfortable there as always.

Almost everyone I know has been told now and I haven't lost a single personal relationship because of it...it's like a cleansing for me...I have been telling them for 20+ years that there is something wrong with me...been to DR after Dr and couldn't get a diagnosis....but now I know...and so do they. I'm moving on with my life....I am not HCV
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Avatar_m_tn
I ride a  boat....not a bike...LOL...i dont know...maybe because it says in my profile i like bikes....i dont even own a bike...wish i did tho....id love a big black and chrome low rider Harley...My boos just bought 2....and hes 60 years old...ill have one soon tho...before i leave this place
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Avatar_m_tn
I lied....i do own a cool mountian bike...its blaxk and silver color of course...ive had it for 20 years and it looks like i just got it....its a pretty hot bike....LOVE IT...love riding all over the city
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524608_tn?1244421761
What's a Newfie?...I googled it and see these big giant furry puppies...you, sir , are not a dog...
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498948_tn?1253059441
Newfies are folks from Newfoundland, Canada, typically of Irish descent.  They have a distinctive accent and usually a great sense of humour.  Think of Rick Mercer (MRSA) on TV.  He's a Newfie.
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Avatar_m_tn
I AM A VIKING.....NOT A BIKER...thats worse


http://www.wordplay.com/tourism/prehist.html
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476246_tn?1310999221
That makes two of us, I too am a Viking, besides being a whole lot of other things.
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Avatar_m_tn
http://www.wordplay.com/tourism/viking.html
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Avatar_m_tn
http://www.youtube.com/watch?v=HyYveSIuSlI
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Avatar_m_tn
http://www.youtube.com/watch?v=J7_b2wcDwv8
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476246_tn?1310999221
Very interesting stuff.

Lets get into mixing cultures.... Afro Celtic.... awesome stuff

http://www.youtube.com/watch?v=IeNU600stLA&feature=related


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498948_tn?1253059441
The mind boggles when you have an imagination such as mine...... just from today alone this is the image of you I have come up with....

bald blue head, blue eyes, and blue pee.
possibly wearing ladies undies, and sporting one of those Viking helmets with the horms

ROTHFLMAO
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Avatar_m_tn
http://www.youtube.com/watch?v=EI_8pJYkChY
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Avatar_m_tn
Are you making fun of me now?....im happy i made you laugh at least....:)
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476246_tn?1310999221
For one thing, we know you have green eyes... I haven't seen any recent photos, but who knows what happened since you started taking BOC.
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Avatar_m_tn
I do have blue xmas lights on my balcony to go with the BOC
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Avatar_m_tn
http://www.youtube.com/watch?v=8jNTz3q8e24
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524608_tn?1244421761
"bald blue head, blue eyes, and blue pee.
possibly wearing ladies undies, and sporting one of those Viking helmets with the horms"


Tks for the Visual!!!

ROTHFLMAO
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Avatar_m_tn
THIS IS VERY FUNNY.....ENJOY


http://www.youtube.com/watch?v=Y5Lo4T8V6G0
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498948_tn?1253059441
Now I'm pulling your leg...  Ya, you make me laugh....

Its that Newfie sense of humour, it always cracks me up.  I don't think I've ever met a Newfie without a great sense of humour, its like its in the blood almost.
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Avatar_m_tn
I hope you ladies are having a good time at my expense...enjoy it while you can...cause your day is gonna come....."you know im ONLY serious"
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498948_tn?1253059441
Sorry, Rocker.  No offense intended.  It was just some silliness to pass the time on a cold, windy Sunday afternoon.
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577132_tn?1314270126
You brighten my weekends with your sense of humour and wild statements.  You could have your own TV show!  Don't ever go changing!

Epi :)
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476246_tn?1310999221
You KNOW we love you!
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Avatar_m_tn
I think you pick the people you want to tell, wisely.  You have enough on your plate without feeling conscientious about what (people say) or how people might react.  There's some good support groups out there too. Stay strong.

Art
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Avatar_f_tn
Agrees, with Art I know sometimes you just want to shout it out,   because it feels, like you are walking around with this dark secret.  But honestly sometimes you just don't know how people will react.  

What ever you decide best of luck.

Deb
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Avatar_m_tn
i am not upset kit kat.....i have happy feet all day long....
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Avatar_m_tn
I do make some wild statements...sometimes i offend but not meaning too...you have to do that ...and take a chance on not getting someone coming after you with a gun....there is a fine line between hunour and insult...the trick is to play it right...without gettn a slap
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Avatar_m_tn
No tv show as of yet but i do sing kareoke songs....LOL...and i do pretty damn good if i di say so myself...ill found thss awesome software on google for turning you puter into a karokee machine....and its very simple to use...ill do a song right now...and send it off to ever wants a copy...you supply your own ear plugs
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Avatar_m_tn
http://www.gosing.com/
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476246_tn?1310999221
You sure know how to have fun and use your puter to the fullest!
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Avatar_m_tn
I know my around the machine...."welcome to the machine"....Pink Floyd...love that song
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Avatar_m_tn
I would not tell anyone except your spouse.  Society still has not been educated on this disease and if you tell you will find yourself losing friends, family, jobs and even doctors / dentists !!! good luck
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Avatar_m_tn
If you want to keep a secret.....DO NOT TELL NOT ONE SINGLE PERSON ON THE PLANET....all it takes is one....and it may even be your own mother and a spouse....the only way to be sure no one knows is to tell NO ONE...and i mean no-one
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356052_tn?1260208704
I just told my immediate family of my HCV. If anyone asked why I didn't have my usual pep was due to the chemo drugs I was taking, and leave it at that. If I was pressed I said that it was a blood disorder and I had to take chemo drugs. I wouldn't got into it any more than that. Let them think what they wanted. At that time I really didn't care, of course this was during TX (I'm a Non-responder, never had a 2 log drop in 12 wks.). If people tried to push me I would completely change the subject, and would not let the conversation go back to my "disease".
You have to make your own choice of who to tell..

Good Luck
Lynn (tahoeunicorn)
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356052_tn?1260208704
By the way Karaoke is FUN... It's funny sometimes to watch the drunks people get to the stage to sing... can be really funny to watch..LOL

Lynn
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663420_tn?1248680985
I think I totally screwed up and I have already told to many people. I don't think I realized what I was up against. Not having any experience at this and just trying to be honest with people I inadvertently said things to people thinking that they are my friends only to find out I was alienated after I told them. That totally *****. I guess you can really find out who your friends are when you tell then you have Hep C. I think I'm learning the hard way, which is very typical for me.
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Avatar_f_tn
You didn't screw up - you innocently did what seemed right and it's only through experience that you learned otherwise.

I just don't agree with the view that if your friends don't understand, they're not your real friends. Life's too short to be that fussy and friends are hard to find. I wouldn't give up on them. The misunderstanding could be mutual and you yourself may have acted strangely and defensively when discussing it. I know I did when I  talked to my kids. They were confused and I was confused and the whole thing was awkward. My younger son still skirts the issue and that's a typical reaction, not the exception.  He's still my son and I love him so much.

I think your friends are most likely still your friends but don't know how to deal with it. I'd take the bull by the horns and invite them over to your place for brunch and cards or whatever you do together.

It's more important to be practical than keep our nose out of joint when it comes to friends. Try it. Friendship is a factor in succeeding in many aspects of life, including tx.
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233616_tn?1312790796
it takes time and patients to educate the fear out of people.

I tell every health and dental worker...they have the right to protect themselves.

I told close fam and friends, and took the time to explain so they'd understand.

those who you haven't got time to do this with don't/

People in here have lost jobs because some paranoid refused to work with them..

it's better to just say I have liver disease, and am on chemotherapy for it. If they assume that's cancer, I don't correct them, I just say the liver is a hard organ to treat.
there's no point in having every swingin' **** knowing your business because A it isn't their business and B. they descriminate when there is no need to.

Now, if you club was say a basketball club, then yes you should tell, because a bleed or getting scratched by another could effect them.

But as far as telling everyone....many folks are just bloody ignorant when it comes to medical stuff..I''ve been with my hubby 10 years and he doesn't have it, and my son for 30 and he doesn't have it....so sharing kisses, bathrooms and more is not how this is transmitted...but getting people to see that is s real task and discrimination suc,ks. It's not so bad if you are contageous but when you aren't it hurts to be left out in the cold.

mb
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314554_tn?1337457719
It is a good thing a lot of us are in America because

I lived in Newfoundland, Canada for seven years.
no one
from Canada would ever boast about being a Newfie

http://www.newfiejokes.net/
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179856_tn?1333550962
Be careful who you tell.  At work it's not necessary to let the general public know. Once they do chances are a good portion of them will look at you differently.

Unfortunately this disease has a HUGE stigma attached to it.  It just can't be helped and often people look at us like we just got out of the gutter from having sex and the syringe is still hanging on your arm.  Seriuosly.  You would be shocked how many ill informed people will be sure they can 'catch' it from you.

I found just saying i was on chemo for a blood disorder worked the best (although I did tell my direct reports at work my boss at the time although sworn to secrecy went straight down to HR and reported me. THen I saw all sort of 'confidential' documents that I was not supposed to see saying "is she contagious?" "can we catch this?" "how did she get this" (of course I copied them all and kept them as Hippa laws DO protect us from this type of behavior!!!!!!!!!!!!).

People are NOSEY and they will say "Oh what kind of cancer do you have???" like they have some right to know.  I just said "I don't like to talk about it but thanks for worrying". Half the time the person would then go "but what do you HAVE!!!!!!!!!!!!!!!!" and I'd just walk away.

AT least this way you are covered when you aren't doing well. It covers the nauseau, lethargy and even the anemia.

I agree - once those words are out you just can't take them back in so be careful who you do decide to tell.

Good luck.
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314554_tn?1337457719
Mosts reiterate my position.

I do not volunteer and I am rarely asked about my medical history.
Several of my colleagues, immediate family and a few friends are aware of my background.

I do not lie about HCV or my alcoholism (10 years sober) even though rarely asked.
-->Been there, done that, got the hair shirt.

I confirm what others have mentioned: It is amazing that even some of the most well-read and educated people can have misconceptions and stereotypes related to HCV.

I kind of had a few inaccurate understandings when I first found out I had HCV.
I was not brought up to treat people differently for superficial reasons and I have done the same for my sons.

*****I am impressed most of the members of this forum have the patience and diplomacy to educate people about the true nature of HCV. I have noticed this when a newbie who probably does not have HCV posts an honest albeit sometimes overly paranoid question that could be construed as offensive if the poster asking it were not so sincere.
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374652_tn?1311302831
Personally I think every health care provider should protect themselves and treat everyone as if they are a high risk, cuz I'm sure there are lots of folks out there who dont know they have anything contagious yet.
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