Aa
Time for a 'Happy news' Fla. lunch!
Hi all! Isobella PM'd me and suggested we do another Fl. lunch soon and with all the good news here in Fl. lately and with several others tx-ing and showing good results (on their way to SVR!:) we think it's time!
So here's Isobella's and my 'let's start another Fl. lunch' thread :)
We're thinking the Black Water Inn on the St. Johns River on Hwy. 40 about 35 ish miles west of I-95. (I-95 to 40 going East would run into Daytona.) Susan, Missy, Dana , Eric-(CONGRATS again:) anyone that live's too far or tx-ing and not up to long drives is welcome to PM me if you'd like to stay here for a day to rest, be an easier trip, etc. as I am only about 40 miles from there. There are also Motels on the river there, just not sure how nice they are??
We're thinking 2nd, 3rd week of July so it's enough time for all to schedule a day we're all available.
Sooooo, start the posting and planning. If we agree on there I’ll make the reservation and post the addy, etc.
P.S. ALL are welcome, even if you live in Alaska (Meki!!)
Maybe some can catch another cheap flight to Fl! :)
LL
So here's Isobella's and my 'let's start another Fl. lunch' thread :)
We're thinking the Black Water Inn on the St. Johns River on Hwy. 40 about 35 ish miles west of I-95. (I-95 to 40 going East would run into Daytona.) Susan, Missy, Dana , Eric-(CONGRATS again:) anyone that live's too far or tx-ing and not up to long drives is welcome to PM me if you'd like to stay here for a day to rest, be an easier trip, etc. as I am only about 40 miles from there. There are also Motels on the river there, just not sure how nice they are??
We're thinking 2nd, 3rd week of July so it's enough time for all to schedule a day we're all available.
Sooooo, start the posting and planning. If we agree on there I’ll make the reservation and post the addy, etc.
P.S. ALL are welcome, even if you live in Alaska (Meki!!)
Maybe some can catch another cheap flight to Fl! :)
LL
I don't have Hep C. I'm on this particular forum to learn what I can about HCV since I'm a TP nurse...as well as I want to be of support to my sis....the more I learn and experience, the more I feel I can help her.
I am suspected to have autoimmune hepatitis. All my inflammation markers/enzymes are elevated. I have Sjogren's Syndrome which is an autoimmune disease that slowly attacks the organs. At this time, I have liver and lung involvement. Basically it's my immune system attacking my body.
My doctor does not want me to treat with an immunosuppressant or anti-inflammatory, ie prednisone which is both, unless my numbers get a little higher ( in my eyes, when things get worse with more damage...). I have to have my blood redrawn every 6 months.
I had a liver bx done with my last surgery and it showed portal inflammation and increased portal fibrosis. It wasn't staged or graded...or no one is telling me.
So that's my story. Anyhoo...it was a pleasure meeting you....biker babe...if you and Izzy every get that chicken on the back of your bike, send me a pic!
Yep, gecko is awesome. Sittin at home waitin' for me to get another one...love em!
Ash
I am suspected to have autoimmune hepatitis. All my inflammation markers/enzymes are elevated. I have Sjogren's Syndrome which is an autoimmune disease that slowly attacks the organs. At this time, I have liver and lung involvement. Basically it's my immune system attacking my body.
My doctor does not want me to treat with an immunosuppressant or anti-inflammatory, ie prednisone which is both, unless my numbers get a little higher ( in my eyes, when things get worse with more damage...). I have to have my blood redrawn every 6 months.
I had a liver bx done with my last surgery and it showed portal inflammation and increased portal fibrosis. It wasn't staged or graded...or no one is telling me.
So that's my story. Anyhoo...it was a pleasure meeting you....biker babe...if you and Izzy every get that chicken on the back of your bike, send me a pic!
Yep, gecko is awesome. Sittin at home waitin' for me to get another one...love em!
Ash
I had a great time, and it was a pleasure meeting all of you that we missed on the last luncheon, and the ones I missed the first time. It would be nice to have it some place we can all hang out , without worrying about taking up space.. I felt like I was there all day.. LOL I hope that all who were there and drank the juice, felt some effect, calming and slept like babies on Saturday night. The benefits are wonderful . if you are interested in trying more let me know.
Well time to get ready for the week..
Well time to get ready for the week..
Where are you??? Please check in here lady! Just concerned as you did the drive, lunch on tx.
LL
LL
Eric...oops...I mean 48 weeks tx THIS time. With all that, you did very well thru it :)
Izzy... LOL! Ya' know ...that chicken looks great in your yard :) Still want it for Halloween , perhaps by the witch making the brew ;) And you realize I'm going to have to go get you that flamingo now! As I'm so close to the place and do ride out there a lot. How big is it? Can it sit on the back on my bike ? :)
"....ummmmm....." I was thinking more like..."how would I put this" , lol.
Willy, Elaine...as my head swell's.....thank you, your both very special yourself's. And Willy, it was all a great experience, and to get both of our 'good news' on the same day was awesome. As the story isn't out there yet :)...I just have to note that Willy had mentioned a 50th birthday present to me (50 last March) and I'd said... a piece of his liver! .... As in, get the bx :) Got my present, albeit an odd one, lol.
And ...uhhhhh.....I have a big back yard!
Ashelybaker....hi again. So you ended up with the gecko! Glad you came, it was great to meet you also. You realize you'll have to explain that further now as I, and others probably, will be confused how it's 'in' the liver, yet your negative. We didn't get to cover that thru all of us talking.Hope your around here a bit also, I'm sure you could add some valuable info. here with working in the TP dept. Hope to see you at the next get together.
LL
Izzy... LOL! Ya' know ...that chicken looks great in your yard :) Still want it for Halloween , perhaps by the witch making the brew ;) And you realize I'm going to have to go get you that flamingo now! As I'm so close to the place and do ride out there a lot. How big is it? Can it sit on the back on my bike ? :)
"....ummmmm....." I was thinking more like..."how would I put this" , lol.
Willy, Elaine...as my head swell's.....thank you, your both very special yourself's. And Willy, it was all a great experience, and to get both of our 'good news' on the same day was awesome. As the story isn't out there yet :)...I just have to note that Willy had mentioned a 50th birthday present to me (50 last March) and I'd said... a piece of his liver! .... As in, get the bx :) Got my present, albeit an odd one, lol.
And ...uhhhhh.....I have a big back yard!
Ashelybaker....hi again. So you ended up with the gecko! Glad you came, it was great to meet you also. You realize you'll have to explain that further now as I, and others probably, will be confused how it's 'in' the liver, yet your negative. We didn't get to cover that thru all of us talking.Hope your around here a bit also, I'm sure you could add some valuable info. here with working in the TP dept. Hope to see you at the next get together.
LL
Hi everyone. It was so nice to have met everyone. I am so happy that you are who you are. I feel a bit more comfortable knowing that my sister will not have to go through treatment alone. I was very impressed with everyone and your experiences taught me a wealth of knowledge. I can in turn, use this in my job as a transplant nurse and definitely help me relate to my patients.
I will be talking about my new diagnosis of hepatitis on another forum since it's not viral, but for those of you that did know, I'm Izzy's sis and I too had a liver biopsy with my gallbladder removal last week. The results were mild portal inflammation with portal fibrosis. Has me concerned. I was tested for viral hep and everything was negative.
Anyway, again...it was nice meeting everyone...If anything, I got a geeko out of the deal and my sister got a metal chicken! ;-)
I will be talking about my new diagnosis of hepatitis on another forum since it's not viral, but for those of you that did know, I'm Izzy's sis and I too had a liver biopsy with my gallbladder removal last week. The results were mild portal inflammation with portal fibrosis. Has me concerned. I was tested for viral hep and everything was negative.
Anyway, again...it was nice meeting everyone...If anything, I got a geeko out of the deal and my sister got a metal chicken! ;-)
About a month ago I had the pleasure of meeting Lady Lauri......and she IS a dynamo and a great lady. I spent about a week in Florida while getting a biopsy and she put me up AND put up with me. While I was there I also met Florida Mouse (Missy) in person and her hubby Bill. I also met Susan 400 very briefly on the trip (more on that elsewhereand later). I've hung out for a few years on boards but it's remarkable to say......these were the first people that I've met that had HCV. There is a very unusual bond that exists between us all and these trips....visits....and outings are great fun and more; they are theraputic. : )
Before my trip I also had the good fortune of recently talking to Eric by phone and Miked. I would have loved to have made this trip and have met Eric personally. I'm just really charged up about his and Lauri's treatment successes. I know it may be a little premature but I already know the outcome. ; )
Anyway..... I know how much fun these an be. Just think of an a bigger or longer gathering. Who has a big back yard?
Glad you guys had a great time. Isn't it always too short?
best,
Willy
Before my trip I also had the good fortune of recently talking to Eric by phone and Miked. I would have loved to have made this trip and have met Eric personally. I'm just really charged up about his and Lauri's treatment successes. I know it may be a little premature but I already know the outcome. ; )
Anyway..... I know how much fun these an be. Just think of an a bigger or longer gathering. Who has a big back yard?
Glad you guys had a great time. Isn't it always too short?
best,
Willy
Uummm....means I had to take a few minutes to try to come up with just one word to describe you. Amazing seemed the best, late never entered my mind.
Dynamo would have been another word.
I LOVE my chicken. He is sitting right here by the fireplace. Today I find him a nice home in the yard. When we drove back by that place I saw a flamingo....I am so going back to get it!!!
Dynamo would have been another word.
I LOVE my chicken. He is sitting right here by the fireplace. Today I find him a nice home in the yard. When we drove back by that place I saw a flamingo....I am so going back to get it!!!
Sorry you couldn't make it :( All understood and of course understood about being on tx and not feeling up to it.
They'll be more, and I'll be on time :)
The secret is to tell me it's a 12:00 and it's really at 1:00, lol
They'll be more, and I'll be on time :)
The secret is to tell me it's a 12:00 and it's really at 1:00, lol
Flgator..Hey! Where's your made it home safe post!?
Isobella...your chicken was beautiful ...okay I'm lying but it is cool :)
Reminds me of the Charlie Brown tree,lol.
And what's "ummm" mean? :)
LL
Isobella...your chicken was beautiful ...okay I'm lying but it is cool :)
Reminds me of the Charlie Brown tree,lol.
And what's "ummm" mean? :)
LL
Other than someone being late and holding up lunch (yes, that would be me!) ....it was great and I could chat with you all for hours, tho Flgator & I pulled out at 5:00, making me late yet again for my next stop :)
We really need to do a weekend thing sometime. The Fl. campout was perfect, tho I was only there a few hours, I could see spending a couple days together. Too short of a time to chat and we have so much in the hep area's to talk about, than we could get into other things (economy?!), old days, new days :) Plus there would be rest for those driving a ways or on tx.
All were great company. And Eric....I can't get over how great you look for a man that just did 72 weeks tx!!
It was a pleasure meeting you all :)
LL....which my the way....has also stood for 'late Lauri' thru the years :)
We really need to do a weekend thing sometime. The Fl. campout was perfect, tho I was only there a few hours, I could see spending a couple days together. Too short of a time to chat and we have so much in the hep area's to talk about, than we could get into other things (economy?!), old days, new days :) Plus there would be rest for those driving a ways or on tx.
All were great company. And Eric....I can't get over how great you look for a man that just did 72 weeks tx!!
It was a pleasure meeting you all :)
LL....which my the way....has also stood for 'late Lauri' thru the years :)
The picture outside is Eric of course , Izzy, Deanna ( My friend,) behind me, Fl Gator (lisa, standing on the bench behind us all) , Izzys sister, and LL .
Great story, a great lunch with good company. A whole variety of ppl on the forum, wish I could have been there. It must have been a kick to put a face to a name and personality to boot. God Bless you all
It was a great time. A long drive for me - 2.5 hours, but well worth it. Life is fun these days. Probably a short lived phenomenon based on my life experience :).
I do hope we can do it again and meet more people.
Eric
I do hope we can do it again and meet more people.
Eric
I so just got done sending you a PM. When you are in FL, we have to have another get together.
Then we have to plan the big get together in central US-we figured Texas would be good....any thoughts?????
Then we have to plan the big get together in central US-we figured Texas would be good....any thoughts?????
I saw the pics it looks like you guys had a grea time, wish i could have made this trip...I will def be there the next time!!! ok now tell me who is who in the pics.... Except Eric I recongized him!!!
i hope you all ate enough for me, since i have no appetite!!!
i hope you all ate enough for me, since i have no appetite!!!
jd: I was wondering what happened to you. I am so sorry to hear about your Mom- went thru that with my grandma-not fun.
Susan/Mikkimoe: Y'all are understandably having a low point. I can only hope that it makes you feel better to know that many care about you and worry/think about/pray for you daily. Besides, the food was kinda not all that great!!!
Today was a turning point for me. I have so much renewed hope Seriously, everyone there was at a different point. To see the journey from beginning (clueless, me) to a tx newbie-FL_Gator doing well-such an inspiration, and top that off with Dana's sweetness, LL-ummm---amazing and Andiamo-soft spoken, class, awesome-not to mention all his tx's leading to his current run towards SVR.
All I can say is that we are all fortunate to have a place like this. To meet people like I met today. I can't wait to do it again! Hopefully I can recruit my sister next time too-she had a good time meeting everyone as well.
I seriously love my "funky chicken" I got from that place off of I-40 we found when we thought we were lost! Will have to post a pic.
Izzy
Susan/Mikkimoe: Y'all are understandably having a low point. I can only hope that it makes you feel better to know that many care about you and worry/think about/pray for you daily. Besides, the food was kinda not all that great!!!
Today was a turning point for me. I have so much renewed hope Seriously, everyone there was at a different point. To see the journey from beginning (clueless, me) to a tx newbie-FL_Gator doing well-such an inspiration, and top that off with Dana's sweetness, LL-ummm---amazing and Andiamo-soft spoken, class, awesome-not to mention all his tx's leading to his current run towards SVR.
All I can say is that we are all fortunate to have a place like this. To meet people like I met today. I can't wait to do it again! Hopefully I can recruit my sister next time too-she had a good time meeting everyone as well.
I seriously love my "funky chicken" I got from that place off of I-40 we found when we thought we were lost! Will have to post a pic.
Izzy
Ok I posted some pictures on my pictures I wish there was a way to post them here, but you can see them on my site, and we have 2 other cameras, with shots outside to be posted soon.. I know they all made it home sooner than I did. I had the longest drive this time.. LOL It rained a bit ( alot ) on the way up there, but it was nice and peaceful setting.. Don't know why I didn't take a picture out the window where we were sitting right on on the river.
It was fun, will definately have to do it again and again. Hopefully some more can join us next time. I brought my friend Deanna, who is standing to my right shoulder in the picture outside, she took the pictures inside.
It was fun, will definately have to do it again and again. Hopefully some more can join us next time. I brought my friend Deanna, who is standing to my right shoulder in the picture outside, she took the pictures inside.
Yea - we'll just have our own little pitty party....Boy the crab legs ready made my eyes light up - I'd probably die if I tried to eat that now - but that was my favorite (Alaskian)
And chardoney of courses.
!0 times - wow....your amazing. This may have only been my 1st time down HCV hell but I have been fighting an even bigger beast for 14 years on top of that one (RA) - so yea I can definately identify. But gotta admit....this is the lowest of lows right now.
I'm just so thankful that I really lived my life to the absolute fullest when i did. Saw just about the whole world from Climbing Mt. Fuji in Japan to Skiing the Materhorn, and raising my own arab in Africa. So I have absolutely no regrets...except missing this lunch ;-)
Please post PIcs!!!!
And chardoney of courses.
!0 times - wow....your amazing. This may have only been my 1st time down HCV hell but I have been fighting an even bigger beast for 14 years on top of that one (RA) - so yea I can definately identify. But gotta admit....this is the lowest of lows right now.
I'm just so thankful that I really lived my life to the absolute fullest when i did. Saw just about the whole world from Climbing Mt. Fuji in Japan to Skiing the Materhorn, and raising my own arab in Africa. So I have absolutely no regrets...except missing this lunch ;-)
Please post PIcs!!!!
I'll go for a nice plate of crab legs and then some chocolate mousse.
I raise my glass of root beer to SVR for us both!
jd
I raise my glass of root beer to SVR for us both!
jd
O.K., in another time and year of my life, prior to Hep C...., my order would be a serving of Steak and Surf with Lobster and Filet Mignon with a glass of wine and some kind of disgustingly fatting CHOCOLATE desert!! I can't eat and drink that way anymore, but if I could, oh would that taste so good!
Cheers with my glass of water or iced tea!
Susan400
Cheers with my glass of water or iced tea!
Susan400
You and I can have a "virtual lunch" - I can't make it either. Planned to be in Florida this week but then Mom fell the other day and broke her hip so I really have to stick around Connecticut for her surgery, rehab and whatnot.
What shall we put on the menu? Something tasty - I'm sick of all this hospital coffee shop food. Its so sad - I've lost my will to eat ice cream!
Next time I'm coming to lunch. Have a great time and post a photo or two!
jd
What shall we put on the menu? Something tasty - I'm sick of all this hospital coffee shop food. Its so sad - I've lost my will to eat ice cream!
Next time I'm coming to lunch. Have a great time and post a photo or two!
jd
Sorry everyone, but I'm not going to make it to the luncheon today. Treatment has me too tired to make that drive. Right now, I'm only trying to do the absolute "have-to's" on just about everything. So, forgive me for having to miss this one. Besides, this is a celebration lunch and I unfortunately don't feel up to celebrating anything at the moment because I'm just too blah. I'm not depressed really because I have no thoughts of self harm or anything of that nature at all. I really don't do well with anti-D's anyway, so. I try to accomplish at least one thing of worth each day and that's about all I can handle. Please remember, those of you who have been wiped out by 1 treatment and are still trying to recover, this is my 10th treatment and I've never cleared and I'm still trying to fight this battle. So, multiply your side and post treatment effects by x 10 and maybe you can understand why I am unable to make it there today.
I hope you all have a great time and take some pictures to post!
Susan400
I hope you all have a great time and take some pictures to post!
Susan400
Have an Answer?
You are reading content posted in the Hepatitis Social Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
