What happened to this forum?

Have been wondering what happened to this place lately? Its gone down hill rapidly (as far as Im concerned)
with all the bickering and nonsense. I just had to vent.

This IS NOT a support forum anymore. (My opinion only)
I can get more support from my bra!
Its been great disappointment to me.

Wish all you good people well and SVR!

[Deb_c430]

I know how you feel my friend,    I think ego has taken the place of support sometimes.

But there is support going on, there is the support of friends, look at us?  We are there for each other every day,   I am laughing at your bra comment!  Mine all make me itch.lol

There are also some good things going on, the cbs thing i think rocks!  

The people who cause friction are ALWAYS the same ones,  wether on this forum or the other ones.  Again their egos out weigh their compassion and their ability to bring comfort.  

Don't you bail on me! I won't let you! Ignore the ones whomake you feel alone.  You got me, you got a lot of folks who care deeply about you!

Love you Charm,

[rita863]

hey i am kinda new to the forum but i need you guys for support,  no one understands this except those on TX or those who have done it!

stay.

[GSDgirl]

I hope you didn't think that me, MikeNY & Trinity were bickering., at least I don't think we were.

About the bra thingy, I don't wear one.....I say that when the guys all start wearing jock straps I will start wearing the bra, Deb is right, they itch.  Hope ya feel better & just remember you are not alone in this.

GSD

[Deb_c430]

No I doubt it was you guys,  There are a lot of old timers who stir a lot of drama.

People who are kicked hardest when they are most frightened.

Charm is on a hard road, with txing and  other things.  She is one of the kindest most ethical people I know.

One of the things we always talk about is the support this forum should give, kindness and compassion.   Sometimes unfortunately heppers spend so much time isolated it turns into a very self centered , lonely adventure,    Charm is  not one of those.

Send her good thoughts and prayers.

[charm27]

I know if it werent for this forum the past months ai dont know where  I would be. You have all been supportive for me latelt. Just that to see people bickering on a health forum REALLY turn my stomach.

I cant accept it not here.
I just cant .
Im sure alot of this is the meds talking. I just find this very discouraging .
( Im very aware people bicker, not everyone has the same point of view blah, blah, blah.)
Personally I just cant tolerate it on tx.
Its too sad for me right now.
Deb your the bomb! Youve been a great friend to me  and always were there to make me laugh!
Being on tx magnifies everything so much more than it really is Im aware of that.
Just cant handle downright arguing on a health forum where we all are suppose to be fighting for the same thing.

[paulalynn1965]

I have not been signing on alot lately so I really don't know what is going on. But I wanted to let you know that I enjoy your comments and reading what you have to say. My thoughts and prayers are with you in what ever it is that is going on.

[FlGuy]

I know that Nick's condition is paramount in your mind. But, watch your BP. You seem a little taut right now.  I read the other forum notes before deletions.  Take care of you too!

[Deb_c430]

Ethel, maybe the meds and your right also, bad seeds.  

Your da Bomb!  I suppose I will have to make a story,  Ethel and Lucy?  shameezle shamozzle?    I will think on it,  the not spicy stinko swamp girls?  hmm  

you can step away my dearest friend, but  you are so loved here, none of us will let you go!  Not totally, you have already touched our lives to much!

[Trish77]

Charm, when things are bad, it's hard to see the good.  Just start focusing on the good, all the people who have supported each other through so much already and who will and do continue to do that.  You and me started into this journey of discovery round about the same time and you got started on your tx ahead of me.  We've been there for each other and many, MANY people have been there for US.  Don't you be giving up on everybody for the actions of a few, SuperCharmGirl.  I know you won't... I just figure I'd give you a l'il ole pep talk... and one big gentle hug from me.

You take some short careful breaths... cause you got that anemia thing going, you know... and just let that riba (and justfiable) rage subside.  You have to direct your energy where it's most worthy, sweetie.  And that's at getting yourself through this treatment.  That's the main event.  Hang in there.

Take care.

Trish

[mike716]

I don't know who you are, but I love you. I love everyone who has hepatitis. Even trinity4 and GSDgirl who tease me for being a scaredy-cat New Yorker (just kidding).

People with hepatitis need love, and since the world doesn't seem to love us very much we've got to make up for it by loving each other. I love you all. You are my best friends. Without you I would be alone and couldn't face this thing. With your friendship and love I can face it and beat it.

Hang in there, Charm. We are with you.

Mike

[Lady Lauri]

Hi ya Ms. 'Has a clue'   :)

It has changed here a lot lately, also since the new format, but I am missing a lot of the 'oldies' myself. Many of them have moved on, getting back to 'life' and some need to just put ALL of Hep C behind them. each person needs to do what's best for them. I'll probably never leave, lol. Ohhhhhhh Nooooooooo!  :)

Please keep in mind that tx cause's people to do some weird things, emotional things, rage, lack of patience, etc. While some people are just plain mean or bitter, there is very few and way too many good people here to let whoever bother's you win in driving you away. Many personalities here, some are going to clash BUT it really needs to be handled with tact, respectfully. If some don't get along, stay away from each other. At a bar when they say "take it outside" ....we can have a saying..."take it to a PM" !

I live by do unto others and everything you do comes around to you, whether good or bad. There is a lot of good here, the bad won't make it here long, tho we have lost a few good ones due to this!!

Trust me, there's not a bra out there that can provide enough support for Hep C and tx :)

LL

[rita863]

mike716

that was a great post.

Charm "we need you here"

the newbies will be lost with out the guidance and advice from you.

PEAce to all of you.

its just the meds and bad days and the hep monster trying to defeat not only our physical  self but our spirit to fight IT!!!!!  NOT EACH OTHER.

LOVE THIS PLACE AND ALL OF YOU

[Lady Lauri]

That was a really nice post! Simply put, well said, very true.

The majority of us are here for each other, care, support, to get support.
That can't change, won't change.


LL

[Marcia2202]

Since I was diagnosed 2 months ago and joined this forum, I have had so much support and felt so much love from everyone I have met on this forum. You are all beautiful people.

Mike, your words are beautiful. It is true, love is what we need to get through all of this.

Charm, I am sending you lots of love all the way from across the ocean. Please stay with us, we need each other in these difficult times.

Marcia

[Andiamo1]

Many years ago, when I was a teen ager, life was very difficult and I felt very alone.  I liked to read and in one book I found this written by Thomas Wolfe:

. . . a stone, a leaf, an unfound door; of a stone, a leaf, a door.
And of all the forgotten faces.
This was written upon the death of his brother.  I don't agree with it very much but it resonated with my feeling of isolation and 50 years later while on treatment I knew the real meaning of finding a language to describe how I felt.  It is close to impossible to communicate with someone who has never taken these drugs.

With that in mind, this forum with all its imperfections does have many people that fully understand the emotional impact of the drugs - whether through direct experience or living with someone that is treating.

In any large group there will be some people that act out their anger and hatred.  Don't let them deprive you of the real asset of the forum: lots of people that will understand what you are going through.

I also don't believe in deleting their attacks.  I think we should keep them up in lights, so we all know who they are.

[gauf]

I was able to burn my bra after the weight loss. (grin)

[Isobella]

I am sorry to read your post.  It is sad when the place that we all need so much turns into a place where people can get discouraged.  You need to do what is best for you-but at the same time remember how many people love you here.  The positive people far outweigh the negative commenters.  

I think Mike said it so well.  I love all of us and you are all my best friends.  Those of you who have treated are the best mentors to those of us who are waiting to start.  We couldn't find this kind of support anywhere else on earth.  

You are one of the great good ones!  I wish you a happier day!  Burn the bra!  Scratch the itch!  But please come back!

Wishing you well-
:-)
Isobella

[R Glass]

Charm; keep in mind we are from all walks of life with different personalities. We are not going to always going “see eye to eye” on many issues. On top of this we are dealing with HCV, pre-tx, tx, post tx, waiting to find out if we are SVR, relapse, etc.
One day it can be like Comedy Central and the next day it can be like a Powder Keg waiting for a spark
The bickering comes and goes (I must admit, I have been involved in a couple of P1ssing contest myself). I have seen it a lot worse than this in here. We are like a family, we will bicker but we get over it.
For most of us, this forum is our main venue of support and the bickering can be heart wrenching at times but, with this mixture, it is inevitable. Hang in there, tomorrow it could be back to Comedy Central. R. Glass

[derbykid]

I don't understand why this forum deletes the posts that causes a riff, BUT leaves these threads that are started after the fact.

When certain post are deleted i would think it would be to end the problem. So why let people start threads to bring it back out??? Its my opinion it just adds fuel to the fire.

If people just ignore it then it might go away... ( maybe i should heed my own advice here )
Best of luck to all of us fighting HCV, Heres to better days ahead for all of us.

[comeagain]

Dont let anybody get to you this hard.
Because in fact they cant, everyboby is gonna be judge individually. So I say it again its not you who gonna answer for anybody elses shortcomings,wickedness or whatever, its simply just not your table!!!

Provided and unless its not me that you disturbed of, and wanna strangel with your bra!

Ps you and deb_c430 had this thread about which famous person you wanna see, in that danceshow.
That inspired me to (I´m planing to) open a new thread about which american actors you like the best,and vice versa.
My nr one actor outstanding, in a class bye him self,  without any doubt whatsoever is Leornado di Capio.
On the other hand another actor i can´t even stand the sight of, is Richard Gere.
I think even 4c would like to join this disscusion.

lots of love to you !
ca

ps ps its ok even if R.G is your favorit.

And now I´m dropping a bomb i dont like Meryl Streep either.
But she is not half as irritating as Julia Roberts, you see this is an endless subjekt.

Some actors are quite good but you see them far to often, like Saumel L Jackson forinstance, Leornadio would never participate in that many productions hes far to selective for that, and thats  whats distinguish  a super talent from jus a very talentent person. You see i can go on forevever.

[sallyo]

I'm not a newbie but I am a frequent reader.  I seldom post but I can feel your need for support.  Its here.  You just have to weed out the ones who are not sincere.  Stick around and you wi;ll fiqure it out.  Stay strong

[kimmypoo2]

hey guys i need any assistance i can get  im a newbie......we look to the ones who has been were we are to guide us through the rough times...and cheer wit us doing the good...

[Lady Lauri]

Awwww mannnnn, ya had me until......."another actor I can´t even stand the sight of, is Richard Gere" ! Now we're gonna have a p*ssing match! :)

J/K......but I've had a crush on him since I went from 'boys have cooties' to 'I don't care if boys had cooties', lol. Even thru his gerbal gossip/rumours! (that was Rod Stewart, you know.lol)

I'm an old broad, while Matthew McConaughy is hot....too young for me, I have to stick with the over 40's crush's :)

Julia Roberts does nothing for me either :)

Ahhhh, humour, good for everything!

LL

[comeagain]

Why do some actressis wanna look like fishes, did that come after that film a fish like Wanda, lipimplant stinks, why dont they do like John Cleese a chinimplant instead.

btw a hot chick in my age,( a bit older maybe, but she will stay a puma till shes 100) exellent actor to, is Glenn Close.

Maybe she has done the Cleese thing, much sexier then those  Angelina Joli, Dolly Parton, Julia Robert fish ladys anyway. LOL

ca

[fretboard]

I hope you are feeling better, I know you're going through tx and I know that can be rough.  I don't know how rough b/c I haven't started yet, but I hope you're wrong about the forum going down hill.  Maybe it's just a bad week for people.  Best wishes, zero to minimum sx's and don't collect $200 dollars, go straight to SVR.  I can burn my wife's bra, but please don't make me as she looks better with it on.  LOL  Hope she don't read this.    God Bless

[geterdone]

People change and priorities too as the many platforms of the stations we go through, it is for this very reason there is an ebb that is taking place here at the moment, a void if you will for many have disembarked to explore their new found cities that had been lost before and that’s all I’m going to say about that. Be Well!

jasper

[Deb_c430]

From Charm,  another victim of this malice,    she is ok with me sharing this,   this forum has lost two good friends.

I CANT GO BACK ANYMORE.....I DO THANK THEM ALL IT WAS VERY TOUCHING....I TRULY SHED A TEAR
BUT I CANT READ PEOPLE GETTING CURSED AND TRASHED ON A HEALTH FORUM WHEN A 26 YEAR OLD KID IS GOING IN FOR A TP. I WONT BE PART OF THE EVIL, EVEN THOUGH 70% OF THE PEOPLE ARE GREAT.
ITS MY PERSONALITY...I JUST CANT IT FREAKS ME OUT TO MUCH.

IF YOU WANT YOU CAN THANK THEM, IF YOU DONT ITS OK TOO.
ONE HEART FEELS ANOTHER IF YOUHAVE A HEART, THEY KNOW I MEANT WELL AND WISH THEM ALL GOOD THINGS.

I JUST FEEL MORE THAN THE AVERGAE PERSON DOES AND IT HITS ME AND HURTS ME HARD.
I FEEL OTHERS PAIN.
PLEASE UNDERSTAND.HOWEVER WHEN YOU BELONG TO A HEALTH FORUM WE SHOULD NOT KNOW THE WORD 'HATE"
WE SHOULD KNOW THE WORDS, HEALING, SUPPORT AND LOVE, AND KINDESS.  NOT THE BOT THATS GOING IN FOR A LIFE SAVING TP IS A FAT PIG!!  IM AWARE THESE PEOPLE DONT HAVE A CONSCIOUS OR A SOUL, IM NOT A STUPID PERSON I SHOULD IGNORE IT. I CANT.

EVERYONE IS RIGHT A FEW PEOPLE CANT RUIN A FORUM WE SHOULD IGNORE. I JUST CANT ITS NOT IN ME
I MUST STAY AWAY FROM THE EVIL. I AM STUBBORN YES..BUTS ITS WHAT I BELIEVE IN.

HOW DARE CHILDS SON A WONDERFUL HUMAN BEING GOING THRU A MAJOR LIFE CRISIS GET KNOCKED LIKE THIS. THESE PEOPLE SHOULD BE HUNG AS FAR AS IM CONCERNED.
SORRY FOR BEING SO DRAMATIC, I HAVE NO TOLERANCE FOR EVIL, STUPIDITY, AND I AM SICKENED AS TO WHAT IVE READ.

I AM JUST MUCH MUCH MORE SENSITIVE THAN OTHERS I IMAGINE.
AND LIKE I SAID AGAIN I DONT KNOW WHERE I WOULD BE IF IT WERENT FOR THE SUPPORT I RECEIVED ON THE FORUM.

JUST CANT BE A PART OF IT ANYMORE...THE SOUND OF THE HATRED MAKES ME PHYSICALLY ILL.
I COME HERE FOR PEACE, AND HEALING, LIKE EVERYONE ELSE, I CANNOT HELP THE WAY THIS HAS AFFECTED ME.
NO MORE.
LOVA YA DEB
YOUR A HUMAN BEING IN EVERY SENSE OF THE WORD
THANK YOU FOR UNDERSTANDING WHO I AM AND WHAT IBELIEVE IN.

I came today with every intention of also leaving, quietly, seeing this happen to elaine now, i will stay and fight for her.

[nygirl7]

Charm,

There are many different personalities on this forum.  Some nice, some not so nice, some just plain old evil. that's what happens when you have a public forum.

Every once in a while this forum goes through this.  It is hardly the first and certainly not the last.

But, if every time something like this happened all the good and decent people quit...there'd be nobody left except the bozos.  They certainly don't take the time to help offer new people advice or support all they really choose to do is talk about themselves ad nauseum. They are only worried about their own.

We can't let that happen.  You saw real unity and friendship in here today with people coming together to help Elaine.  Hold onto THAT in your heart and just ignore the bs as best you can.

We just adore you and you know it.  It will be SUCH a bad thing if nobody else gets to share in your wonderfulness.

Now...come back.  I REFUSE to let you go.

Your Friend Who's Not Done Being Friends With You Yet and Needs to Get To Know You Better,
Debby

[Mary4now]

You know theres really no where to go.....I can tell lots of peeps here really like you, and lots more are gonna need your help (me for instance when I ever treat) so stay and please dont worry, its just the world doing its thing.   We do need you.... M XXXX OOOO
there's more nice ones here than not....

[Trish77]

Elaine, you are NOT responsible for this.  If people I considered to be friends treated me the way you and Nick have been treated, I would have reacted far worse...as I am simply not as good a person as you.  :)  You've been betrayed despicably and your reaction was  incredibly understandable AND forgiven, even though I don't think you require that.  You have our complete understanding and support.

Charm....I refuse to believe you are gone.  I just refuse.  I won't accept that.  However, I do understand emotional pain and needing to take care of one's self for awhile.  I want you to take care of yourself while all this blows over.  And then come back to us again.  Like .. sheesh, darlin...I have 36 weeks of tx to go through yet and I NEED you!!  :)  

You are one of the best and brightest about this place for me .. and I'll look forward to seeing you back again when you have had some peace and rest.  

Love and gentle hugs to both of you ... angel Elaine and Charmgirl.

Trish

[IAmTheWalrus]

I hate to quote W, but If you quit now, the terroists win.

[alagirl]

Elaine, I think I just feel a deep bond with you because our sons are so close in age and we are both so close with our sons.  It chills my very blood (which is usually pretty damn cold anyway given how little of it there typically is - lol) to think of what you are going through with Nick happening with Dylan.  I would be out of my mind.  Ok, I'm out of my mind a lot.  But you know, more than usual.  And, if anyone attacked my child, I think I would be fairly vitriolic in my response.  I didn't see what happened, but I just know that Nick was attacked and since I don't know exactly what you said I don't know if I would have handled it exactly the same or not, but I do know I would have blown a fuse.  And.  Since I didn't see the attack, I'm at odds to know what type of attack it was, which also troubles me, and I am going to investigate that further as well.  And we can talk about that later.

Charm, we love you here.  I hope you sleep on this a couple of days.  In the end, these forums are not going to be perfect because we are all human, but you have to look at what was done in true mean spiritedness and what was a reaction to that, and in my view people who are truly hateful and mean-spiritedness may not belong in support forums as they detract from the type of healing and support that need to occur in these venues.  So I think the forums may need to sometimes be streamlined to bar some of these elements to make things more supportive for everyone.  Again, these are things I am trying to go back and look at since I didn't see everything.  But ultimately, the goal of these forums IS to provide the greatest amount of support and information and knowledge for the greatest number of people possible.  And I think that the vast majority of people coming here honestly want to be a part of that process.  And sometimes, you have a very few malignant personalities who, for whatever reason, enjoy stirring up kind of a toxic brew in which they can involve others.  As I said, I think these personalities are very few and far between, but I also feel that if they are consistently disruptive and injurious to others, that medhelp may sometimes have to look at letting them go their own way.  

But Charm, you are a consistent positive addition to these forums, and so is Elaine.  We need both of you here, so I do hope you find your way back.  Because we can't shelter you from ever seeing anything bad here.  But hopefully the support will outweigh the bad stuff.  I appreciate your support so much, and I am there for you whenever you need me.

Sydney

[Wassup]

So, I have this voodoo doll it's quite generic, cause I don't know who the recipient of my wrath is, but it's commin'!!!!!!
Whomever upset this mild mannered loving caring individual we know as Charm, SHAME ON YOU. ( Why even bother to post here on a support forum, if you can only find venemous words to speak??)

PLEASE, Charm, reconsider giving this forum up to your trash bin.  I, too can't imagine this place without your loving words, humor and more support than grannys corset, (full of 'stays' underwires, and 'bones') and enough white silk to sheet up a three masted schooner.

If you leave I'll cry.  This would not be a pretty picture!!! My nose and eyes swell up when I cry.  and if I'm REALLY sad, the whailing is almost unbearable. I make dogs howl, when I cry.  Once I start, I have a real hard time stopping. I'm tellin ya it gets pretty ugly.  My Mom just couldn't take it.  So, will ya stay? PRETTY PLEASE WITH A BOWL FULL O" CHERRIES ON TOP???????????

I love you as much as one straight gal can love another straight gal, with no common genetic codes.  That is a whole big bunch.  Hugging you til you fart, Ant B

[susan400]

I confess, I've had my moments...   But, I have had an awful lot of support to offer as well.  Sometimes, I need to explain that it's very hard for me to 'feel' supportive, but I've stepped up to the plate and done it nonetheless.  I mean really, don't you think that it's very difficult for me to read post after post after post of people who are SVR and I have not been able to obtain that after 9 treatments?   It makes me grouchy and irritable at times and I am very sorry if I've offended anybody by anything that I've said.  I still want people to reach their SVR's and it still bothers me when I notice something that I see that might effect their ability to reach SVR, since I've had to go through not getting there so many times.   Sometimes, I've just kept my mouth shut, like I should do and let them make their own mistakes and other times it just gets to be too hard to do that and I stick my foot in my mouth and say things like, "why are you doing that???",  etc., etc.   Anyhow, I've said my piece.   Also, one needs to realize that when you are on treatment (most especially with Riba), you are going to be, at times, over sensitive and misunderstand the intent behind someone's post, that all needs to be thought over when things start to get Harry-Carry.   Like, "hey so and so is on treatment and they are just Riba-raging".....      Anyhow.....

Susan

[meki]

Jiminy Crickets...

WHAT THE HECK DID I MISS?

OK - that's it...

EVERYONE --- I order you:


**To be nice to each other
**To ignore blatant UGLY Posters (See... you can't "see" them - but you can tell from their writing... that no matter what they look like on the outside, there's some folks that just break mirrors when they look in them... So don't let them feed on you... that's what they like)
**Save your breath for the good folks... (Uglies/Nasties/Trolls/SH*TSTIRRERS --- they don't deserve your breath - the good folks need you)
**Don't take anything personally - unless you WANT to take it personally.
**Learn thy good neighbors on the forum.
**Remember to pass the popcorn when a fight ensues --- but don't enflame it --- just comment that you're watching - but don't give it fuel.
**Remember that this is a hard TX and disease and life--- now combine hard TX with crazy-arsed people who troll boards looking for flamewars or hurting people... It's not a good recipe.

So Charm - get over your bad self and get back on this board.

I need some music stuff --- and you're a beautiful person.

Love you all --- even the Trolls - cause someone has to love everyone... Even the ugly ones.

Meki

[FullOfHope77]

i came here about a year ago and the 'wars' were flaming big time but it passed and then about 6 months later it came again... I was always encouraged by some and for that I stuck around it will flame up again and again as that is the way it goes here. For all of it though its been worth it, as i have gotten a lot of encouragement and help. I'm 3 weeks out of TX and now on the hope/worry path of SVR.... it's always something, ya know?

[l-horn]

" Have been wondering what happened to this place lately? Its gone down hill rapidly (as far as Im concerned with all the bickering and nonsense.."

lol !!

Well THAT'S never happened before !!

It's probably because I don't come here much anymore. I was widely known as the peacekeeper. hehehe...

[mj6000]

I guess this is an ebb and flow process...

[Diane12855]

Looks like you're right on this point. Good! That means we can get it back to the "Good" side of things.

[nygirl7]

LOL you are assuming it flowed back from the ebb?  

[merryBe]

ditto lol

every year folks think it goes downhill...

the only thing one can say to that is....woops I can't say it, it'll get censored  ; )

[Isobella]

Awww...I miss Charm.  

Charm, if you see this....I'm wishing you well!!!!!!

(((((HUGS)))))

Isobella