When is it time to throw in the towel.

[pirate4]

Been through tx twice first time relapsed 2nd time don't think I responded at all.  First time  I was told there was nothing more to be done should have listened but no.  I had to go get a new Dr. who got me on another  Tx.  with interferon and double the riba.  Knocked me on my butt.  I picked myself up and have been  feeling great the past year but it feels like I'm  falling down.  Tired all the time, having trouble  working, sleeping,  feel rotten.  My husband has been great but he's tired also,  Somehow I lost the respect of some of my adult children.  I didn't reach out to my  grandchildren while  I was on tx .   So the question is how does a person live with all the baggage that goes with having hepatitis c.

[Livelife777]

You can't win the war unless you put up a fight!

[Ekkiemom]

Never give up, life after the virus will always be better than what we are feeling now......
Peace & Strength to all
Deb

[interfurgent]

god the thought of giving up is more painful, then doing tx , over and over.  treatment just about wipe my mind out it got so bad. that the doctor stop it but , in my cazy thinking. I was not stopping until I died are was heeled. I had 30 bottle of interfugen, giving my self a shot every night. setting every night crying at how sick I was. I have taken some time off from dealing with hep-c, to regroup and see how everyone is handing the med's. My plate count is down 36,000, v load is 78 million and feel depresssssion a little lot . But to stop we die. Never stop trying even if you are feeling that you can't take it, there is all always someone sicker, and needs more than me. that will help. Hey, at least we have a cure.

[heart_in_the_keyes]

NEVER,,,,keep fighting...was a non-responder to soooo many drug protocols...none worked....went on sovaldi/riba for 24 weeks and did nothing but sleep and let the drug do what it should.  Read my profile for more info....but never, never give up.  

If you call my cell phone it plays the song "knock, knocking on heaven's door" and my hepatologist told me I needed to change that song because it just was not true anymore.  

Fight.  

[patra_]

Lynn, thanks!  I live that quote.  I have copied and pasted it my my quote section along with the author's name and yours, so I can remember.

Pirate:  That says it all.  Excep, have we discussed the up-coming Daklinza from Bristol-Myers, Squibb?  That, used with Sovaldi (for 12 weeks) for Gt3s, and other hard to treat heppers: prior failed tx, null responders, cirrhotics in all Gts, seems to be a winning combo.  Also, AbbVie will be coming out with it's own combo pill in Jan, I think, so please hang in there and 'don't throw in the towel'.  Just because we Hepc 3s are hard to treat, we just have to be stubborn in tx areas, too!  : - ).

Pat

[Livelife777]

You must never throw in the towel.   Understand your frustration with relapsing but with these new Txs your day is bound to happen. One of
our members on this board has treated 11Xs and still fighting the fight.
Attaining SVR is so worth the effort.  
Keep the towel in the ring!
.....Kim

[pirate4]

How very true.  Thanks for posting Lynn

[flyinlynn]

Hi

Actually it is a quote I am familiar with that I shared.

"Worry never robs tomorrow of its sorrow, it only saps today of its joy."

Giving credit where the credit is due the author was Leo Buscaglia

Best to you Pat and Pirate4

Lynn

[patra_]

Worry does no good --- but it is easy to say that and hard not to worry.  When I get like that, I come on here and read the blessed successes, and try to reach out with help or good words to those who also need a lift.  Works well, I always feel better.

One of the ladies on here has a saying about worry not helping tomorrow, only hurting today --wish I had a memory! : -). May she will see this and post it again.  I found it really putting thing into prespective!

Good Luck.  Pat

[pirate4]

Thanks Pat   I've been watching the Daclatasvir also the Gs5816 has had good results.   I've had a bit of a pity party.  I worry way to much along with not feeling well brings out the worst in me. Seems to be a pattern with me.  Thanks for the positive.  

[patra_]

Hi and 'hang in there'.  Daclatasvir (Daklinza), by itself (not the one that was made into a combo with asunesprevir) is in FDA hands as we speak, and that was tested on Gt3s like us.  Should be out by the first of the year and that, combined with Gilead's sovaldi is a real virus stopper!

I also agree with don'tworry and OH, above.

Keep on keeping on and, soon, another dragon will have been slain!  Pat

[orphanedhawk]

How much you decide to tell family is a personal decision but I think it's only fair to them, and you, to tell them you are going through a difficult medical treatment which can have weird side effects while doing treatment.

As for the baggage of having hep C, well it's really all a matter of perspective. We all have baggage of some kind or the other.

What you really need to do, in my opinion, is find out what condition your liver is in. Then do all you can to live a liver healthy life while watching without obsessing over new better treatments,

[pirate4]

Thanks for the reply.  I'm so sorry Just going through a rough patch feel so alone sometimes and I know that's not the case . I know now that I should not involve family members in my health.  I use to be good at dealing with this .. I've never taken AD's but have been thinking that might help won't know until I try.  
I'm a geno 3 so there is no tx for me right now,  Soon maybe.