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can-do-man couldn't this time

by can-do-man, Dec 10, 2007 12:31PM
Hello all, not around here much anymore so most people might not remember me. And most people who do try to forget me. :) Just found out that i relapsed. Disappointed sure, shocked no. As i'm sure not alone in the relapse class. knew the odds was very much against me. Time to figure out plan B now.

Hope the gals around here have been behaving. (not really)

For all the people who is in tx. or getting ready to start don't let this discourage you as alot of people beat this thing. And soon i think we all will.

Now back to misbehaving as i have more fun that way.

Can-do who can but couldn't this time but will.
Member Comments (70)

by Forseegood, Dec 10, 2007 12:34PM
To: Canny Man
aaaah shoot, our friend Ina had mentioned that she couldn't get a hold of you lately, and she was worried about this, just wishing you the best....and there will be a plan B that will work for you, like so many others...miss your humor around here too...be well Canny Man....

by jmjm530, Dec 10, 2007 12:47PM
To: CanDo
I don't know what to say. Hopefully the time on the tx drugs has bought your liver a little time. You probably need a rest now, but have you looked into any of the Vertex trials? It was really good to see your name on the board but not like this.

All the best,

-- Jim

by nygirl7, Dec 10, 2007 12:52PM
OH no..........I"m so sorry my friend I had wondered what happened to you since you didn't post or email me anymore.

I'm so sorry for this news - oh man that just sucks.  Have you been looking into one of the trials or doing an extended treatment at all?  It did work for Kalio and I and we were really lookin' like we wouldn't get SVR ever if you remember.......

Oh I'm so sorry.  You've always been one of my very favorite people on here and I am just so saddened.  I was sure you'd made it through just fine and were out there enjoying life and had no reason to post at all.

Plan B has worked for MANY of our friends in here as you've seen so don't you dare give up.  It was so great to see you had posted - but not like this.

I hope you hang around and chat with us again - we could always use your wonderful personality and attitude in here regardless of anything.

Debby

by mikesimon, Dec 10, 2007 01:23PM
To: Can do
I'm very sorry to learn about your news. I was so hoping that you'd beat the odds. Good luck, Mike

by can-do-man, Dec 10, 2007 01:43PM
To: child, jm, ny. forsee
Forsee, thanks and have you took the plunge yet? And how are the california girls doing? Seen the beach boys a few weeks back. Oh geez not the same as 30 years ago. :)

Jim, good to see your still around. Hope all is well, hope you gave up creame de what stuff, You had be worried. Any suggestions?

Angel, hope all is well and glad your not behaving, its to late in life to change us now. :) As for plan B don't know????????

NY girl, How in the heck have you been? I haven't been around to drive you any more crazy then what you are.:) As for extended tx. I did a total of 86 weeks so i guess i need to try something new.

Thanks people, i got alot of laughs here....... Now back to being bad.:) Want any ice-cream little girls?

Can-do

Can

by can-do-man, Dec 10, 2007 01:46PM
To: Mikesimon
Thanks mike, you been there and more. Hope all is still going good for ya.

by jmjm530, Dec 10, 2007 02:06PM
To: Can-do-
Cando: Jim, good to see your still around. Hope all is well, hope you gave up creame de what stuff, You had be worried. Any suggestions?
--------------------------------------------------------------------------
Any suggestions?

It depends on your skin texture and coloring. I actually did give up the "creame de what" but would glad to give you my overstock. Thought you would be the last to visit the otherside, but ya never know.

---------------
Or maybe you were asking for tx suggestions, wasn't sure. Let me know and I'll be glad to share whatever I know, but I did forget most of your treatment history and stats except that you were stage 4.

-- Jim

by frijole, Dec 10, 2007 02:16PM
To: can do
The dreaded post.  Darn it. Zach.  It was not supposed to happen.  I guess that means you will have to keep on popping in occasionally to see if anyone has come up with a new treatment.

Like Jim said, you have probably done a world of good for your liver.  I think you said you printed off the thread about all the vitamins and such recommened by HR that would help fibrois.  Are you going to take that to your happy hepo and get his take?  

I guess all you can do right now is heal from the treatment and take a breather.

frijole  

by FlGuy, Dec 10, 2007 02:21PM
To: CDM
Sorry to hear the news. I hope you can take a little more recovery time and come up with good advice and a good plan.  For me (and still don't have 3 month pcr yet) it was a matter of longer and stronger with the emphasis on stronger. Hope you have some breathing room to possibly include other ingredients with soc.  Take care cdm.

by can-do-man, Dec 10, 2007 02:25PM
To: jim
It depends on your skin texture and coloring. I actually did give up the "creame de what" but would glad to give you my overstock. Thought you would be the last to visit the otherside, but ya never know.
------------------------------------------------------------------------

Thanks but no thanks on the cream de what stuff, Still on my side of the tracks andd have no plans on going to the other side. If i do i have left orders for people to just shoot me.:) Like they wouldn't like to anyway.

Geno type 1b, stage 4... Slow responder, didn't clear until around week 24 had a 3 and a half log drop at week 12. Extended from 72 weeks to 86. Had a script for 12 weeks more at week 72 plus a extra two weeks that was given to me at week 48 in case my insurance gave me trouble.

Waited for 14 weeks post tx. to have my PCR done. Found out today my viral load was 470,000 was unde from week 24 though the end of tx.

by jmjm530, Dec 10, 2007 02:25PM
To: Cando
Speaking of vitamins/supplements and such, an interesting recent thread on HCV friendly botanicals. And, as you may know, good ole' Coffee has shown to potentially have protective properties with the liver.
http://www.medhelp.org/posts/show/373346

by jmjm530, Dec 10, 2007 02:53PM
To: Can-Do
The relapse isn't surprising given your slow response combined with stage 4. I'm assuming this was the first time you treated?

Suggestions other than "Creme de What":

(1) I always believe in getting as much info as possible before moving on. In your case that might be another biopsy and/or Fibroscan to see what's going on inside.  I'd suggest both if feasible. Fibroscan mostly in trial here in the U.S. but you can check with the following center:
http://clinicaltrials.gov/ct2/show/NCT00125762?term=fibroscan&rank=1
Also, Dr. Eugene Schiff in Florida has a private scan and "HR" also has scanned folks here. A post or private mail to "Forseegood" should put you in touch.

(2) More brainpower also helps. Not familiar with who you were treated with. GI? Hepatologist? Ice Cream maker? Never know.

But it really doesn't matter who, I'd still get another opinion -- or two or three -- depending on logistics, resources and energy. The more brains you get working for you the better. At this point, think of each of these doctors as consults, not doctors, and collect as much info and ideas as you can. Of course, bring along your entire medical history, organized up a bit, along with all blood and procedure reports and the original biopsy slide set, not just the biopsy report. What part of the country are you in btw?
--------------
Anyway, that would be how I personally would start to approach things. First, find out where you're at now in terms of histology and speak to as many experienced clinicians as feasible looking for ideas. I would limit my list to hepatologists. Here's a short list of some very good ones and a day or two spent traveling might just be worth it.

Dr. Nezam Afdhal -- Beth Israel Hospital, Boston. (Has a Fibroscan)
http://tinyurl.com/nbavn

Dr. Ira Jacobsen, NY Hospital, NY (Will not take insurance, around $600 for consult but well worth it by all accounts. NYGirl saw him and gave a big thumbs up)
http://www.cornellphysicians.com/imjacobson/

Dr. Douglas Dieterich, Mount Sinai Hospital NY.
http://directory.mssm.edu/faculty/facultyInfo.php?id=21794&deptid=18

Dr. John Mchutchison, MD, Duke
http://www.dukemednews.org/experts/detail.php?id=356

(3) There are lots of new (and old) things to consider when treating again I could go into, with the new PI's (like Vertex/Telaprevir) leading the list. Other things worth mentioning are: Alinia, phlebotomy, double-dosing, pre-dosing ribavirin, etc, etc, -- but I really think that is putting the cart before the horse. The horse again being to collect information -- biopsy and/or Fibroscan -- and then get some good input from the brains in the field who will have the advantage of having your entire medical records in front of them.

(4) Take that job as "Pool Boy" you've been looking for. Find the right pool and nothing else will probably matter.

-- Jim

by jmjm530, Dec 10, 2007 02:57PM
Forgot a few for that consult list, and this list is by no means complete:

Dr. Eugene Schiff, Miami
http://www.med.miami.edu/med/faculty.asp?id=34887

Dr. Donald Jensen, Chicago
http://www.hcvadvocate.org/Medical_Writers_Circle/jensen.htm

by can-do-man, Dec 10, 2007 03:27PM
To: flguy, Jim
FLguy, been wondering how your second go with tx. went. Hope your post 3 months pcr is good news. Used to live in south FL (hollywood) so maybe a trip to see Doctor Schiff and a second opinion from him. Thanks and best of luck to you.

Jim... Lost that "Pool Boy" job, i was a day late and "something" short... Oh yeah a dollar short i think.:) Seeing a Hepatologist thats head of the liver department here in Indiana at I U medical center.

If your into cornfields Indiana is a exciting place to be. Cornfields come in handy for the side of the road stops sometimes. Corncobs can be a little rough though.

I agree a second maybe a third consult is needed..... As i told FLguy i used to live around where Doctor Schiff is so maybe his opinion and maybe a fibroscan wouldn't be a bad ideal.

I can't see going the same route tx wise without some changes;

can do.....Still pushing his ice-cream

by willing, Dec 10, 2007 03:54PM
To: can-do
I'm verry sorry to hear the news. It's already crowded here on  the relapse bench, but hey, we'll scoot over and make room. I'm going to chime in on the bx/fibroscan song for two reasons. First is that particularly with 86 weeks of tx there may be good news there and it'll take some of the sting out of that vl test. Second is that monitoring and reducing fibrosis seems more on point than eliminating the virus. If that long a tx didn't do it, it looks like anything short of taxidermist-like dosages of ifn/riba isn't worth pursuing so the options would seem to be  maintenance with/without anti-fibrotics pending the arrival of new options.  Take good care - it's not much comfort, but you've got plenty of company.

by wyntre9, Dec 10, 2007 03:59PM
To: can do
I'm so sorry to hear of your relapse.

best of luck in the next round.

wyntre

by goldyn, Dec 10, 2007 04:35PM
To: cando
Doggonit cando im sorry to hear this, but i bet your liver got some good healing on it...im trying to remember some kinda creme you almost used or did use that was your wifes and we all got a kick out of that...hope your feelin good and eatin good again....good to hear from you....

by can-do-man, Dec 10, 2007 05:21PM
To: will, wyntre
Willing, glad to see your name again and thanks for the seat on the bench. You allways seemed to have much knowleged on hep-c. Great respect for you and the way you handled things. Thanks and hoping the best for you. Now move your butt over.

wyntre9, Thanks and was wondering how things were going for you?

by anise, Dec 10, 2007 05:35PM
To: can-do
I don't come on much these days, waaay too busy with, ahem, a new martial arts regime.  

I feel awful that the tx didn't work for you!  After so many months and back it comes, major disappointment.  Something will come around to help you get rid of the virus.  At least that is what I have been hearing.  My next door neighbor is a research virus doctor at the UW, I will ask him if he has heard of anything developing on the HCV front.  He is an incredibly bright guy.  Thanks for coming online to let us know.

by can-do-man, Dec 10, 2007 05:38PM
To: goldyn
LOL, oh my does that bring back memories. The creme was metro-gel, and they have different kinds. The one i used was for your skin and the other one is for, well "womens infections" so when my wife called our family doctor to order me some somehow he thought it was for her and called in the wrong one.

I should have known better but like allways didn't think and used it anyway. My hepo and his office staff had a good time with that for a long time.

Hope all is well with you and thanks for the laugh as i thought everyone had forgotten that.

can-do tried but the cream didn't work. :)

by can-do-man, Dec 10, 2007 05:41PM
To: anise
Thanks, you back to breaking bricks with your hands again?

Note to all..... Be nice to anise....   OUCH

by jmjm530, Dec 10, 2007 06:27PM
To: Willing
I agree that at least one eye should be on monitoring/dealing with fibrosis -- but the new Halt-C data is very discouraging in terms of Peg "mainteance" if that is what you were referring to.

-- Jim

by FloridaMouse, Dec 10, 2007 08:29PM
To: can-do
From one relapser to another.... I'm so sorry.  

Mouse
P.S.  I'm starting my second round of tx tomorrow.

by beamishboy, Dec 10, 2007 08:44PM
To: can-do/willing
can-do-man...good to see yr handle but bada55 news ...ya did all the time,trx and poison anyone could do...sorry to hear that the poolboy job didn't work out for you..but i'll bet the ice cream brings out the best in them indiana corn-fed gals...nevr mind about the cobs,use them stalks for cover
willing-   a taxidermist-like dosing-HAW.....i think we all got stuffed on the sh!t
anise-you can come up north and split wood any oldtime

by PrettyPoisonNoMore, Dec 10, 2007 09:20PM
To: Can Do Man
Oh honey, I am so sorry the beast is back.  I have you in my thoughts and prayers...

by cajunldy, Dec 10, 2007 09:41PM
To: Can Do Man / Mam
I have really missed seeing you post.  Wonder where you got off to.  I am so so sorry that you did not beat it this time.  You will, don't give up. Have you ever heard from Strator.  I pop in and out of here, hope to start seeing you post more often.  I really miss your humor. There were some good really good funny days back then on this forum.
Oh! Heck, when you beat this thing out (and you will) I am still game for the Cadillac trip to Vegas Strip with the gang.  And yes I still look forward to being the hood ornament.  WOOO WHOOO

Again, I am sorry it did not work for you this time.  

Lady in a Cage
Swinging High

by can-do-man, Dec 10, 2007 11:22PM
To: beam,pretty,lady,mouse
beamer, corn fed gals are great this time of year, little ice-cream never hurts neither.

prettypoisonNOMORE, still have the monte, hope your looking out your window.

lady in a cage, good to hear from you, still dancing in the cage i see. I got a few dollars left.:) as for (pops) strator don't know if he comes here anymore. After i peed in the pool he gave me the boot. No xmas,birthday nothing nada thing. Like i said he liked you girls better then us boys. As long as your still game for the vegas trip me shall never give up. Wishing you the best.

Mouse, Thanks and the best to you on your 2nd try, I think you will beat it this time. Stay well

by GoofyDad, Dec 11, 2007 12:06AM
Cando - Damn buddy, that just hurts. You sure did give it your all - and I know is was a rough ride.... There is a lot more promise out there now than there was two years ago. Keep an eye on the new treatments -- that you were able to reach UND is a powerful thing. A little more oooomph from a new compound could be just the ticket.

Take good care, my friend. And stay away from the foo-foo creme, and carry those ice cream tubs out away from the 'delivery unit'.

PS How are the G-kiddies?  

by can-do-man, Dec 11, 2007 01:28AM
To: Goof
Good to hear from you and glad to see your still here. knowing your here and keeping your eye out on the women, making sure their behaving makes me feel better. Its a tough job but i know your up for it.

The grand kids are just great thanks. I'm still getting in trouble for teaching them all the good things that the schools don't.

Been any good roids threads lately? Geez i sure miss them..... Not the roids as i can sit better but the threads. Keep up the good work guy.

can-do keeping the tubs away from the 'delivery unit'

PS Remember the weather or whether? I still get confused easy

by Eisbein, Dec 11, 2007 08:05AM
To: can do
My computer has been on the fritz for the past 2 month. I can receive e-mails, but can't send any.
Some weeks ago I asked forseegood to write to you in my behalf, maybe you did not see it.
You know plan B, we have talked about it, but right now you need a good rest, not too long though.
Give me a buzz when you feel up to discuss plan B.
You were a responder, albeit late. With some adjustments SVR is still in the cards.
In the next few month I'll get a new PC, this thing here is 10 years old and needs to go. So at some point I will be able to get in touch with you unless you call me before.

So sorry it did not work this time.
Ina

by nygirl7, Dec 11, 2007 08:48AM
Zach was it really 86 weeks holy cow I think that is like the RECORD.

I'm still so sorry for your bad luck but I have to admit.........it's just so great to see you back in our little community it makes me happy.
See how many people really missed you like crazy by reading this thread???????

Don't you dare leave us again.   You've actually even gotten our old pal Eisbein out of retirement and posting!!!!!   :)

by Tallahassee, Dec 11, 2007 02:41PM
To: can-do-man
I'm so-so-...sorry that it didn't work this time.

But like Ina said, you are a responder(!), so I wouldn't consider switching to Infergen for plan B (in case if you were considering).
If you check our archives, medhelp had many discussions regarding use of Alinia together with SOC.

And of course, good consult in Miami will be very helpful.

All the best ... and I know (we all know) -- you CAN DO IT!

by PrettyPoisonNoMore, Dec 12, 2007 06:36PM
To: Can Can Man!
I thought I saw the Monte riding around the block the other day.  It was 80 freaking degrees here today, great for looking at the pool boys, but bad for the Christmas spirit!  Hang in there, I am going to keep checking back on you!

by susan400, Dec 12, 2007 07:15PM
To: Can-do-man
I'm so sorry to hear this news.  Here's hoping that you find that right answer - Susan!

by can-do-man, Dec 12, 2007 09:55PM
To: ALL
INA, wonder where you been, see now you have puter problems. KEEP them there dancing shoes out.

TALLAHSSEE, Thanks for the info. Going to be checking out all my options, Like the little engine that could. I think i can, I think i can:)

PRETTY, Right back at ya, As i'm going to be checking back on you to:)

NYGIRL, Thanks but no record here as Ina and Lvdbygod served over 2 years before being let out for good behavior. Your still a sweety...BTW you still have them things in your nightstand? :)

SUSAN400, Thanks. After all the tx.s and other things you been through i feel lucky... Wishing you the very very best.

by zazza, Dec 13, 2007 03:35AM
To: can-do-man
Sorry to hear this. The news about your relapse has traveled across the big waters. This is truly an international disease. Hoping for SVR for you in the future, Zazza

by Eisbein, Dec 13, 2007 06:52AM
To: can do
How can I forget you. I wrote a letter, faxed it to forseegood, and asked her to e-mail it to you.
You took your PCR on my birthday, and I wanted you to know that I would be thinking about you.
But like I said, you probably didn't see it.
I am planning this spring to fly to HR and have a fibroscan. If you like, we could meet there and have one together. I am sure Dr. K would be thrilled, and HR can give you his 5 cent too, I mean in regards to re tx. Foresee can come along for fun, that is if she is not on tx. This way six ears and eyes will listen to his recommendations.

This will be a sad X-mas for me too.
My dear husband died this past saturday.
I was there when he took his last breath....my voice was the last one he heard, and my touch was the last one he felt. He never saw the inside of a nursing home, he stayed right here as he had wished, in the comfort of his home and me taking care of him.

I hope you see this post can do, because I have been neglecting you during the 6 month and I apologize for that.
I felt I had beaten you to a pulp already trying to shove 2 years down your throat, and felt it was time to lay low before you gave me "das boot".
Btw, you can not count the weeks you tapered off meds. Once you reduced your dosage, your tx has officially ended.
If you lost my number, forsee can e-mail it to you.

Ina

by Eisbein, Dec 13, 2007 06:56AM
To: Tallahassee
Hello there, am I going to hear from you? Forsee e-mailed you my number and e-mail, did you get it?
Thought I could tolerate onions and garlic....not so, they are a big no no.
And so it goes in the land of the post tx allergy prone.

Ina

by nygirl7, Dec 13, 2007 08:31AM
To: ****INA EISBEIN*****
Oh my God Ina I am so sorry - oh Lord there are NO words to express and I do understand (mine passed away in August)...we were not close in the manner that you sound like you were at all and now I have tears that are just rolling down my face - the last voice he heard...oh my God... you truly are an amazing woman, you really are.

Ina I know there is nothing that any of us can do but please if there is ANYTHING please let me know.  It's so hard to have so little words to express such big feelings but I am sure you know what I mean.

Debby

by Forseegood, Dec 13, 2007 12:37PM
To: Ina
I emailed Canny Man, don't want to get in trouble with you!!!! lol....

by Tallahassee, Dec 13, 2007 03:31PM
To: Ina
Dear Ina,

Plase accept my deepest and sincere condolences ...
I just left you a message and sent you e-mail.  Sorry, that didn't do it earlier ... but I was thinking about you and your husband.

I'll try to call you later.
I'm very - very sory ... please continue to be strong, as always.

by Tallahassee, Dec 13, 2007 03:32PM
To: 4C
Forsee,

I sent you a belated e-mail also.

Thank you for your help!

by honey11, Dec 13, 2007 04:58PM
Cando!  You crazy guy lol   I'm so very sorry to read this as I think about you often and was so sure you would be home free!    You are such a sweetheart,,,,,just doesn't seem fair at times!  One thing for sure is you should have a liver that is like brand spanking new!  I'm sure the meds healed alot!  Well,,,you know we all love and miss you so you definitely have the support here at medhelp!  Keep us posted on your future plans Candy Man!!

Ina,,,Bless your heart!  You have definitely had your plate full the past couple of years and to read this about your husband.....I'm so very sorry!!   I was glad to read that your husband was able to stay at house with you and not go to nursing home!!  Take care Ina!

by Lady Lauri, Dec 13, 2007 06:48PM
To: cando, Ina
  Seen can do on here when I first came to the site, haven't seen Eisbein. (here the past 7 mths.)

Just wanted to send my condolences to you on the loss of your husband. To be there with him, as hard as that had to be, at home is very special. I wish you strength and healing in the days ahead.
So sorry.

Can do......so sorry for you too. What a rough road that 86 weeks had to be.  Feel so bad for you that go thru so many weeks :{
  Your liver must be better now to hold out for plan B. Good luck to you, like you said, you'll beat it.

                                                                       LL

by ladybug52, Dec 13, 2007 08:10PM
To: can-do-man
You were already an icon before I started tx. Everyone loved you for your sense of humor and spirit....nothing has changed...you're still a can-do-guy. Good luck...
Bug

by sfbaygirl, Dec 14, 2007 02:35AM
To: My Can Do Man!
Of course I am not behaving!!  OMG I am so sorry to hear of your relapse, it is really depressing.  I too relapsed and am trying to go on with life. No way, no how am I going back on tx. I am heading off to grad school in January, if I can. Still having sx from tx.  You most likely did your liver good with the tx and helped yourself doing so, hopefully you don't have lasting sx. What stage are you, I forgot?  We still need to have that pool party, but it is darn cold here now.  Wishing the best for you and your family. I miss you sweet funny thing and hope to see you around again.

Love,
Linda

by Eisbein, Dec 14, 2007 08:49AM
To: nygirl, honey, child 24,Lady L, all
nygirl
Yes, my voice was truly the last one he heard. Hospice had told me that hearing would be the last sense to go. I thought he might had slipped into a coma during the last couple of days, but not so.
I would hover right over his face, call his name and asked him to try to open his eyes. He tried and tried, but all he could do was lift his eyebrows.
At one point he still managed to squeeze my hand ever so lightly, letting me know that he had "not left".
Sometime during the day I asked him to blink with closed eyes, and he did. I had studied his motionless face for hours and never observerd any movement of his eyes, except when I asked him to.
All the things I should have said during his lifetime I cramped into his last few days. I told him over and over again that I loved him, words that I had said far to infrequently during the last 25 years.

I had month and month of preparation, but when he finally left I was not prepared at all. When he took his last breath I went into shock......I couldn't believe it, he was gone, gone from my sight, gone forever, gone to a place were my words could not reach anymore.
The finality of it is tearing me apart.
I am looking for signs of his spirit still being around, I asign meaning to things that may indicate his presence, and I talk to him just as I did when he was still around.

Hospice left me a little book, the last page reads:

I am standing upon the seashore. A ship at my side spreads her white sails to the morning breeze and starts for the blue ocean.
She is an object of beauty and strength. I stand and watch her until at length she hangs like a speck of white cloud just where the sea and sky come to mingle with each other.

Then someone at my side says: "There, she is gone!"

"Gone where?"

Gone from my sight. That is all. She is just as large in mast and hull and spar as she was when she left my side and she is just as able to bear her load of living freight to her destined port.

Her diminished size is in me, not in her.
And just at the moment when someone at my side says:" There, she is gone!" ther are other eyes watching her coming, and other voices ready to take up the glad shout:" Here she comes!"

And that is dying.
Henry Van Dyke

Thank you to all that posted,
Ina

by Eisbein, Dec 14, 2007 09:00AM
To: Tallahassee, foresee
I got your e-mail and phone message.
So very nice to hear from you.
If you can talk endlessly about your situation, I can listen endlessly.
And remember, there are ways and there are ways.
If the kosher way does not work, maybe the well lets say "unkosher" way will get results.

Can't always do everything by the book, sometimes rules need to be broken.

I will fax foresee a letter about how to reach me a little easier, and she will e-mail it to you.

Stay well and hope to hear from you soon.
Ina

4see, you can never get on my wrong side...at least I don't think so :)

by cuteus, Dec 14, 2007 06:08PM
To: Zach, Ina
Zacky, may I call you that? never mind, already did.  How do the news suck? let me count the ways... Shoot! It truly sucks big time!  that the "thing" is still inside you.  I had heard it through the grapevine and had to come to yell at the wind, that it is just not FAIR!  Take a long rest, a much needed one and recoup.  Your liver had a big rest with those 86 wks, that is for sure.  My friend Sybil (Betty) is on tx for the 4th time, but she never did complete any of the other tx, because she did not reach undetect.  She was dx with cirrhosis.  At the last bx, there was histological improvement.  I am sure you have benefited also.  Keep us posted of what the next steps will be.  Love ya

Ina, I realized I did not say my condolences on the phone. Silly me.  You are so right, there is no way to prepare for the death of a loved one. it is still shocking and traumatic.  I am happy that you share so much and made every last moment count.  I am sad that you are going to feel the loneliness and sadness for sometime.  Take a vacation to the east coast and spend sometime back in the big apple, when you feel better.  take good care and we will talk soon. Love ya too.

by jmjm530, Dec 14, 2007 06:17PM
To: Cuteus
Holy Sh*tkabob, was just wondering the other day what ever happend to you.

Hope this finds you well and in case you don't show up for another year or two.

Happy Holidays and New Year,

-- Jim

by jmjm530, Dec 14, 2007 06:19PM
To: Ina
Just read your threads. I am so very sorry.

May your beloved husband rest in peace.

-- Jim

by Forseegood, Dec 14, 2007 06:41PM
To: Ina
beautifully written...glad your old pal came to see you too...you're in my thoughts, whatever you think, you'll always be a tower of strength to me...

by PrettyPoisonNoMore, Dec 14, 2007 10:05PM
To: Ina
I am so sorry.  Thank you for sharing that beautiful poem.

by cuteus, Dec 15, 2007 06:59PM
Jm, hi and happy holidays to you too!  it is comforting to see so many familiar names among so many new ones, and some familiar ones have changed a bit, I see.  i am glad my password of 4 years was still in the MH system and worked!  How are is the old issue with the skin nowadays, and the GERD? Hope it is better, much better.

to all who know me:
I kind of faded at the time the changes in MH happened and got busy with college searching, and the advent of 7 new  society finches babies, that decided to enter the world during the last holiday season.  Once I got "detoxed" from the board after a couple of weeks, I did not want to get hooked again, and there is always someone here to help the new ones out, so...it got easier to stay away than to come back.  Kind of felt guilty for forgetting about hep c and what others might be going thru, though.
My brother was dx recently, but has not called me for help, so I guess he is handling it ok.  
Just got my 3 yr post tx qualitative PCR, but did not get my copies yet. I have only gotten one and a half cold in those three yrs.  Not sure why, I got sick last yr after not having colds or flu for so long, but I figured that whatever positive changes the tx brought to my immune system finally wore off.  This yr, I am back to not getting sick.  Weird.  Wish someone would check post tx immune positive  changes that might be at work with some of us.
Honey, Angie, Nygirl, willing, and all those old friends, hello and Happy Holidays.  
Nygirl, is that the old girl, the one with the two genos?  What was the outcome of tx? sorry I missed it.  Update me with any others I might have missed, how is Mr Beagle? Florida man? and others?
Maybe I will try and read once a wk or so.  I am by myself, now that dtr is in college.  
How is Vicky, Sally? A lot to catch up to. I know.  what ever happened to some of the controversial characters here? line Njrsl and spacecoast?

Well, whoever has time can answer, if they want.  TY
Angie, i am so pleased that you were such a good friend to our Ina, when some of us were not. She is truly special!

by sfbaygirl, Dec 15, 2007 07:40PM
To: Cuteus
I posted to you above and am SO, SO glad to see you here.  I relapsed and have had a horrible year with post tx sx for life.  You are so smart and knowledgeable about this stuff, always were. I always loved your no holds barred opinions, popular or not. Gawd, am I happy to see you hear and as I have skipped months at a time posting, would love to see your posts again.  Yes, I am surprised at how many of us that still post and love it.  Thanks for checking in and hope to see you soon.  

by jmjm530, Dec 15, 2007 07:57PM
To: Cuteus
GERD 95% better -- pretty much a non-issue -- although I was dx with Barrett's, which makes it an issue at least with my Gastro, so we shall see on that one. Psoriasis resolved quickly after treatment but was replaced with rosacea post treatment, similar to Ina's problems. Took about a year off the drugs, but I have it under control now although probably never will never be able to handle too much sun but that isn't good for you anyway, so they say.

NYGirl is SVR, Mr. Beagle relapsed, FLGuy is UND 3 weeks post treatment on his second try and is now waiting for results from his post tx week 12 PCR. But given his 3 week result and the fact he was UND at week 2 of treatment, I see that test simply as a formality.

Speaking of colds, like yourself, my immune system seemed to be in overdrive and only got one mild cold UNTIL about a month ago and then had a real doozee. Not sure if that is good or bad but I'll take it as good news that my immune system is normalizing somewhat. Who knows.

Good luck with your year 3 PCR. My two year post PCR is coming up in March I think, but not sure I'll even bother unless my enzymes go awry.  

Good to see your life is moving on as well as it appears.

-- Jim

by Eisbein, Dec 15, 2007 09:02PM
To: cuteus
can do is not reading. I can't send e-mails, 4see mailed him, but he is not familiar with her addresse, so he may have thrown it out.
I do that all the time....don't recognize the sender, and out it goes.
Maybe you can get through to him and tell him to read at his post.

It feels so good to see so many familiar names in one thread. I do miss the old board, it felt a little more like family. Sounds crazy, but...

Child 24, pretty poison, Jim, 4c.....thank you all for sending your condolences.

The first week has been very hectic, lots of phonecalls, people coming and going, family, all on the east coast needed notifying, etc.
But little by little there are less calls, less inquiries, and a silence is blanketing the house. A silence I am not used to, but am learning to accept.
This will be a quiet X-mas and New Year. I will spend it alone and reflect on the past 25 years.

Like 4c told me, live a day at a time, if you have to an hour at a time, look no further, just think of getting through the day ahead.....and that's what I am doing.

Ina

by sfbaygirl, Dec 15, 2007 09:43PM
To: Eisbein
I haven't read of your loss, but sounds like it was someone extremely close.  So sorry to hear this, I will go back and read the threads.  You have always been kind and given me great advise and support.  I agree with 4c and will hang around during xmas and new years, hopefully.  Please let me know if there is anything I can do for you.  

Hugss and Love,
Linda

by honey11, Dec 16, 2007 09:17AM
To: Cutey
Hey there,,,What a nice surprise!!  It does get harder as years go on to check in at medhelp and I try to check in at least once a week while on computer just to see how newbies are faring and always looking for old tx friends!  I haven't talked to Vick in awhile but know she has been quite busy with the baby and her girls.  She would love to hear from you I'm sure.  I remember when my last one(the baby) went to college,,,that was the hardest!  Glad to hear you are doing good!  Same here,,,,only had cold/flu maybe once or twice in 3 years.  Take Care and try to keep in touch!
Honey/Sally

by can-do-man, Dec 16, 2007 03:44PM
To: Cutey, Ina
Cutey, Oh by so glad to see your name again. Gosh its been so long, hope everything has been treating you good. Just got home and was so glad to see your name, thanks for thinking of me.

Ina, so sorry to hear the news. Your husband was a very lucky guy to have you as i know you took great care of him. Will be getting ahold of you soon.

Can man heading to the can

by can-do-man, Dec 16, 2007 04:00PM
To: SF, honey, bug
Honey, Thanks HONEY. Glad to hear from ya, hope my HONEY been ok. I just love your nick:)

SFBAY, so hows my other california gal been? I know your not behaving:)
Hope all has been well for you

BUG LADY, Hope all has been well for you and thanks for thinking of me.

ANGEL, Put them durn pans away, but keep being bad:)

Can-do thinks all the BEST girls in the world come to med-help

by sfbaygirl, Dec 16, 2007 07:30PM
To: Can DO
Those of us that have relapsed have to go on and CAN DO again, perhaps with other things and with Hep C another day.  I remember you and your hunting dogs...I hope you are enjoying life off tx and we will see each other another day on tx, perhaps, maybe not.  

You always cheered me up and I had a rough road, so did you!  Keep us posted and great seeing you.  

Hugs (Don't get no ideas!)
Linda

by Cindy10, Dec 17, 2007 09:05AM
To: Can Do Man
I am so sorry to hear this news, and yes I remember you. How could we forget, your kind of unforgetable ;-). You have a great attitude and I just know you'll beat this thing sooner or later.
Always keep the faith!!!!

by chellski, Dec 17, 2007 09:48AM
To: candy,cutey,ina
zach - you really brought out alot of the old timers to wish you well, this is truly a nostalgic thread for me...and i do wish you well...you're in good company, friole, scruffy, all waiting for something new around the corner...

cutey - omg - have only been trying to get in touch with you for over a year...glad to see you here again, and i really hope you are well, i have missed you..

ina - my deepest sympathy to you.  i lost my husband 4yrs ago, and just know that i will be thinking of you....

chelley

by mikesimon, Dec 17, 2007 12:11PM
To: Ina
I just now read this thread. I am so sorry. I don't think we're ever prepared for the finality of death. And, I don't think any good soul ever believes they said enough of the sweet things. You loved him and he loved you and you both always knew. That transcends words. Be well, Mike
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