I am a 45 year old woman, I was diagnosed with Hep.C geno.type 1 October2008. I started Interferrion/Riboverion on Jan.16,2009. Ialmost compleeted it except for 2 weeks of the full48.Due to getting to sick from it and winding up in the hosp. During treatment I began to get horrible leg pains I couldnt sleep, or not shake my legs all day all night. The pain was bad.I have been off treatment since Dec10,2009 and am still experianceing Horrible and even worse leg pains, my question is are there anymore people out there dealing with this problem? And if so dose it get better anytime soon? Are there any ways to make it better? other than medication? wich I have and dosnt seem to help Thankyou kmc64
I got horrible leg pain that I associated with Epogen/Procrit which is used to boost red blood cell count. I have heard some people say that Neupogen caused them leg pain but I never took Neupogen.
My pain stopped shortly after I discontinued Epogen.
Dec. 10, 2009? In the grand scheme of having your body's systems turned completely inside out by interferon, that's not very long off of the drugs. A LOT of weird, transient things pop up in the first 12 or so weeks following end of treatment (EOT) and sometimes even later. The jumpy legs was restless leg syndrome and is a good illustration that indicated nerve damage that you did not really have. Your sleep should still be a little messed up, aching joints, skin disorders, a long list of 'what the heck' stuff that the doctors and drug labels can't explain.
The trick is to try to decide if the problems are related to your long time on interferon or if there is a genuine reason to believe that there is something actually wrong. It's usually a little of both. See a doctor if you think it's real, talk to your treatment doctor about some assistance managing something that may just be temporary. Don't count on things straightening out completely until at least 6 mos. post-TX; give it a full year to be sure. Sorry that things don't immediately straighten out. The rest of us have not done any better.
I've been off treatment for 9 years, treated three different times total of 25 months of treatment/hell...last time with PEG/INT/Ribo which cured me but lots of side effects every since including sever leg pains...what has helped me most is stretching every day. I went to a vain specialist and circulation is fine. I have an identical twin brother who as no such symptoms. Of course stay hydrated. Leg pain is very consuming, for sure messes with your sleep and emotions. You have to make time to stretch and make sure your eating well. Best wishes for sure!
I had leg pain during treatment and afterwards. After tx it seemed to be a withdrawel from the meds. In about 2 months it started to get better.
Give it a little time...if it doesn't get better then go to the DR. It could be autoimmune or nerve pain.
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