I'm bumping this up because somebody must have kept it it was awesome. It probably was posted over on the hcvc social side (if the social site was even around yet it's too hard to remember but it wasn't always there).
I'm sure I had printed it out at one point but it was so many years ago God knows where I put it.
PS Here is a nice one by Alijee that I found when I put the word "poem" in the search box. There are lots of them and I'm not sure which you are looking for.........but this one is nice and encouraging!
I WILL SEE THE DAY.
I will see the day when I will complete treatment.
I will see the day when I will take a glance at this horrible tx period and smile
I will see the day when no more injection, syringes and niddles I will have to buy.
I will see the day when I will get rid off these tablets, capsules, drips, test and docs
I will see the day when I will not have fever, pain, depression, nausea.
I will see the day when tests and check ups will be the things of past.
I will see the day when I willnt have to force myself to smile.
I will see the day when I will achieve SVR
I will see the day when I will sleep whole the nights.
I will see the day when tiredness, weakness, will be the things of past.
I will see the day when I will go to my office on foot or bicycle.
I will see the day when nobody will ask me “How is your health now”
I will see the day when I will be recognized hcv free person.
I will see the day when I will get my libido back
I will see the day when I will get my natural taste back.
I will see the day when I will get my appetite back
I will see the day when I will get my healthy life back
I will see the day when I will enjoy the songs and music.
I will see the day when I will climb up the stairs without taking even notice that I m climbing the stairs.
I will see the day when I will meet my friends daily, will gossip, laugh out loudly from the soul of my heart.
I will see the day when I will be able to walk and run miles and miles with out getting tired and out of breath.
I will see the day when I will enjoy fog, chill, cold of winter.
I will see the day when I will enjoy the pleasant evenings and night of summer.
I will see the day when I will breath in the air of spring.
I will see the day when I will enjoy even autumn.
Letter to People Without Hepatitis C
Note: This letter is one of the best found written for people without Hepatitis C. Please feel free to print this letter and give it to those that need to understand.
Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed.
In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me...
Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too.
Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome.
Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you.
Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity.
Also, Hepatitis may cause condary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive.
If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with hepaititis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor.
In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me.
Perhaps this is the poem. I take it to be talking about quitting when things are tough. It is not about HCV in particular but it could be about treating or any other difficult task. In any case, it is touching and beautiful.
Whose woods these are I think I know.
His house is in the village, though;
He will not see me stopping here
To watch his woods fill up with snow.
My little horse must think it queer
To stop without a farmhouse near
Between the woods and frozen lake
The darkest evening of the year.
He gives his harness bells a shake
To ask if there's some mistake.
The only other sound's the sweep
Of easy wind and downy flake.
The woods are lovely, dark and deep,
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep. - Robert Frost
thanks for all your replies.. some very touching stuff.... thought i was losing it....didn't realize the post had been moved over to this side ;0 finally found the text i had in mind after some serious digging..
my best to all
Stay far enough away that your noise doesn't affect me, or your perfumes or colognes don't overpower me... Or so that you don't hurt my aching bonesB
--- or steal the air that I feel that I can't get enough of. Stay far enough away so that I don't feel like growling at you for absolutely no reason, but for some reason seems to be the most important thing at that moment to me.
Don't talk to me... Because nothing you're going to say is going to make much sense to me in the first
place, and it makes me angry that for some strange reason I feel like I'm in a bubble and can't communicate properly back
to you and I'm frustrated.
Don't touch me because it hurts - because right now my skin
is on fire and it itches
Don't play loud music or turn up the tv to blaring - because I'm sensitive to sounds and lights.
If I'm in a dark room - leave the lights off. If I'm in a bright room - leave the lights on. Sudden changes in lighting or temperature take on a whole new meaning for me --- and it's usually painful or very uncomfortable.
If I seem like I can't hear you - or I take forever to answer your question - don't take it personally - I may not be able to push past the fog in my head
I hate that I can't talk back
to you - or carry on a full conversation. In my head
I'm feeling guilty as it is and frustrated that I can't... Because it seems like it should be there - right on the tip of my tongue, but I just can't seem to find it. And I don't know how to find it. I don't even know where it is. So please don't just stand there waiting for my answer, I can't give it to you.
Hold me when I ask for it - because I need it desperately right then.
Love me no matter how much I yell or scream - or just lie there looking sicker than a dog.
Cook for me - even though I tell you I can't eat it - maybe an hour later I'll be able to taste it - or maybe it will not make me throw up again or I won't be queasy for the next 24 hours and it might be alright.
Know that sometimes no matter what you do - because you're not me, going through these things, you just can't possibly understand it.
Understand that none of this is personal... Or maybe that it's more personal than anything I've ever done before.
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