post tx

Hello all, I am now 2 weeks post 72 weeks of tx and slowly feeling better everyday. I have noticed a persistant headache, which went away after 4 days, muscle cramps esp in legs, but overall feeling much better...brain fog is lifting slowly...haven't received bloodwork back yet but I am confident it will be okay...Just wanted to check in hope all is well with everyone! hugs :) shelly

[PSP-n-Me]

I am soooooooooooooo happy you are strating to feel a little bit better :) I am starting to feel worse - It's weird, felt better the first half of tx

Hugs Beth

[mustangshelly]

I know i had every sx believable in begining, then would get better only to crash again...tx is not an easy road...for anyone...I can tell you that after awhile when you tx for a long period of time that you will always have good and bad days..near the end I was having really bad days....The first couple of days post tx I actually shed tears..haven't done that in awhile, felt good but then I got a stye in my eye..lol...its gone now;) I am anxious to get all the meds out of my system!!!  I hope you feel better soon, just know that tx does stink but it gets better!!! Shelly

[tulips27]

Thats great news! I wish you the best! SVR!

[l-horn]

Good job !!  I'm right there with ya'. Feeling much better. Now 'digging out' from the clutter and dirt, even managed to play a little golf. Unfortunately, my gout was killing me after I stopped tx and the doc gave me endomethacin (sp) which cures the gout, but makes me sicker than the tx did but only for a couple of hours. I'm just about done with that anyway. I had my post tx PCR and I'm still undetectable. Next one is in October.

[Myown]

Shelley, so glad to hear you are finished tx and feeling better. That was a long haul you had!! Wish you the best Shelly!

I-horn
Howdy partner. Cool, so you're finished too huh? Groovy. So glad to hear that you are UND. I was away for a while so I don't know if you already opened a thread and let everyone know that you are UND. I hope you did. Jim sniffed my buried UND post out from the bottom of the pile and opened a thread -so watch out.
Congrats I-horn.

[debnevada]

Shelly:  You are the Goddess. Keep us posted!

I-Horn: Yeah, why don't you keep us posted!  You've been quiet the last few weeks. The big question is, what did you shoot? What is the timing on your last PCR? 3 month?

My Own: You are so sneaky the way you did the UND.

Deb

[Lady E]

I'm right with you too and happy that you, I-horn & others are bouncing back!  I'm about 3 wks post tx now and feeling better every day.  I started my new job on Monday and it's going great..Brian Fogg seems to be on his way out, and I don't feel the fatigue like before, and actually almost normal.  It feels great to be staying up past 8:00 now, but it helps that my new job starts at 10:00 at a local school of cosmetology instead of 7:00 at the paint store.  I am still having insomnia, but trying to fight the urge to take a sleeping pill when I can't sleep.
I got my post tx bloodwork done and everything seems to be slowly heading back to normal Yay!
Food tastes good again, but I'm trying to stick to the small portions that I ate during tx, so I can keep the weight off.  All in all life is good!
Have a great day.
Eileen

[cajunlady]

Our journey of tx was the most challenging thing to do in our lives.  Thank God it was over at some point.  I just don't know how some of the people here can do more than one tx.  I am in awe of these people.  

My sides started to leave pretty quickly for me and by two weeks there was  an extreme difference in me.  I actually did get my brain back; that I believe was one of the hardest things for me was not keep a thought pattern going.  I hated not remembering, so when it started to come back I was elated.

Good Luck to the post txer's and to those who are still on tx.  SVR to ALL !!!!!!!!!!!!

Have a Great Day.
Cajun

[wyntre9]

So glad you're feeling better.  

I'm gonna haveta REMEMEBER that IS the goal!  I'm at week 35 and it's just getting worse every month.  this week i didn't have even one good day and tomorrow is shot time again.

PSP - I noticed the first 6 months were a LOt easier than the past 3.  i just hope that's not an indication of how the remainin 9 months are gonna be.

wyntre

[PSP-n-Me]

I know what you mean about having one good day and then it's shot night again - I felt up to going out yesterday and then wham - last night did shot #30, back on my butt again...this is frustrating for sure...

Beth

[wyntre9]

Are you on the 48 week TX?

wyn

[l-horn]

You know the bizarre thing. I had this siamese that I had got as a kitten. He turned a year old when I started treatment.

Well after I finished treatment he got sick and died. Took him to the vet a cou0le of times but man, he just went downhill in nothing flat. He was really strange. His behavior was sooo odd the last week and I just didn't really realize how sick he was. I just though, hmmmm...cat sure is acting strange.  A week later he was dead. He weighed 4 lbs. He weighed 7 lbs just the week before when I took him to the vet. It's a long story...well not a long story. It all took place over about 10 days but a lot happened. He got attacked by some dogs...he got an abcess (abscess) that burst....he was SHOT with a pellet gun ( that the vet removed ) . It was a rough 10 days or so for the kitter kat and he just wasn't able to pull it out. Vet pumped him full of anti-biotics. I gave him anti-biotics. No workee...

So, I finished treatment and I feel much better, but I lost my cat who slept at the foot of my bed every night during my tx. I feel like I lost a part of me.

Bummer

[wyntre9]

I know how you feel.

I still can't get used to not seeing Bonnie.  I picked up her ashes yesterday. . .

wyn

[geterdone]

Sorry to hear about your cat. I was wondering what happened to you.

jasper

[l-horn]

Yeah he was really sick. He was barely able to stand up. He got in the habit of sleeping in the bathtub and the strange thing was,  I would run water for him to drink and he'd sleep in the water yet he was unable to drink. If I had a bowl out for him he'd just hang his head over it but couldn't drink. It all started when he lost control of his bladder. I'd hold him and he'd just pee all over me.  I think he was poisoned. There is quite the politics in the hood over cats/dogs and he used to drink water out of the street gutter all the time. Who knows. But the last few days I'd pick him up and hold him and he'd pee all over me. Poor thing. Man I can't tell you what that frickin' cat meant to me. Very odd. I've had many cats that died. Run over...old age...lost...whatever...but this one hurt. He was just such a good friend to me during my treatment. I feel like I let him down. Oh well....in the end...just a cat and that's all of our fate. My consolation is I spoiled his asss rotten. That cat ate more tuna and broasted chicken than me in his short life....

[debnevada]

that's a good consolation, Horn. You made him a happy boy. Bless ya.

[Myown]

hey deb,,yeah I thought I got away with sneakin' it in, but Jim tagged me. I hope you are doing well.

I-horn...I'm so sorry to hear about your cat. Maybe you should get another one right away -not that it can replace that one but it helps to ease the pain a little. But ya know what ,,,maybe you should keep this next one in the house, I just don't trust people. I can believe that your cat may have been poisoned. I don't know how anyone can hurt an animal, but if they do I believe that is the type that can also hurt a child.

Hang in there I-horn. I know how hard it is when a pet passes on. It hurts so bad, but in time you'll feel better.

[PrettyPoisonNoMore]

Shelly, I am so glad that you are thru and feeling better.  MyOwn, I saw where Jim tagged  you the other day, CONGRATS!  

I Horn I am so sorry about your kitty.  I had to put one to sleep two weeks ago myself.  Mine had chronic renal failure that we treated with sub q fluids and lots of meds.  He was the sweetest kitty  ever,and it breaks my heart to think about him.

I did my one year post treatment PCR today.  I can' believe I have been done a year.  I will update when I get the results.  

[ladybug52]

Shelly, I'm so glad that you're getting a life back. You did it, pulled off a long hard tx for 72 weeks. You are svr I'm sure....congrats, and wishes for many happy days ahead....
I-horn--I'm so sorry about your cat, I know how hard it is to have a pet pull you along when you're not feeling well, and then you get better, and they don't. I had a little daschund that laid at my feet after surgery, for a couple of weeks. He would only get up when I did, and lay back down as soon as I got back into bed. He got killed right when I was getting well enough to go back to work. He always went to work with me and I didn't want to go without him. I still miss him....
Deb--how are you doing these days? Tell me all the good things happening in your life, and if there's nothing good, tell me all the cr@ppy parts!
Hugs to all,
Bug

[mustangshelly]

Things are looking up...got pcr done today along with everything else I told them to draw...
wyntre..it does get better..take things one day at a time..
I_horn ..so sorry bout the kitty..been through many animals and have a shelf of ashes...
to all I do wish SVR...I have 3 extra injections left and a bottle of copeg...If anyone needs them please let me know..
I will check back later....feeling good today so got to do things...
you can contact me ***@**** :) shelly

[debnevada]

Hi Girl!
Not too bad. I love B12...I've been giving myself injections per my doc and it makes a huge amount of difference; gives me a lot of "i feel pretty normal" time. Have costochondritis which is resolving quick with the Advil (and wonder drug B12). Am finishing the process of getting into Fuller Theological for some distance education classes so I can do some work on my M.Div while I am still treating. Ater today 27 more weeks.

On the cr@ppy side i am having trouble with the local lawyer for the hospital case on hep c. The NY lawyer has much experience with Hep C cases and has won many but the local guy is insecure. My surgeon and I talked yesterday (no more wound care, YAY) and he said these are notoriously difficult to win. Gave me some tips. by the way to get me there's this place that you can send messages to that sounds like it is burning letters...(think!! Think!) and since i used to live in california it is debfromca.....get me?

Deb

[Forseegood]

just wishing you to feel better and better, and every happiness, good for you youre done!

[ladybug52]

burning letters.........???? I have my thinking cap on but nothing is coming to mind. Give me another clue, please? Sounds like...turning better, churning setters, learning setters......I give:):) Or is the clue the sound of burning letters? Onomatopoeia? Whoosh! Crackle! Sizzle! I'm really in over my head here.....
Give me the 5 yr old clue package, as if a kindergardener was going to have to figure it out!
Hugs,
Bug
or you can reach me at the acronym for SouthwestBellCo+globaldotnet. Jbozhall is another name I use for mail...get it?

[debnevada]

no, i don't get it!  It's saturday post shot 21!

burning letters is hotmail honey

[meki]

I-horn - sheesh - you have me in tears. I'm so very sorry for your loss. That cat was made for you - to get you through tx.

How special. How very very special. I'm soooo sorry.

Shelly - no worries - life does get better. It's like on TX - sides still interchange weekly or daily - but they lessen. I'll have 5 great days - then one knock me on my butt day... It used to be 7 knock me on my butt days --- so life is really good.

Hang in there kiddo - the best of your life is yet to come!

Meki

[triggertime]

I too am about 2 weeks post tx. 10 days post anyways. You're right about feeling a bit better everyday. I also had a throbbing headache with a stiff neck for a few days. It finally went away.
Brainfog still drops in for a visit everyday........
best wishes for SVR
triggertime
"I may not be any good, but I'm slow"

[l-horn]

Yeah that's what I think too. He was meant to be and when it was over he was lke, 'Mission Accomplished, I'm out !! ' Just threw out his food and stuff today. I really miss that little bugger.

Funny thing is I really didn't like that cat when I first got him. He was really aloof and not very friendly then one day he just decided, 'Ahh this guy is all right' and came out of his shell.  I hadn't had a cat in about 10 years and didn't really plan on getting him, but he turned into one of the best animals I'd ever had.

The wierd thing about him is he wasn't a fighter. You could try to make him mad and he'd just lick you. I used to tell him, 'you're gonna need to do better than that out in the hood'. And he had all these 'cat buddies' in the neighborhood. Sometimes I'd go out on the back patio and there would be 3 or 4 other cats out there with him, all of 'em laying around doing nothing. And I didn't feed them, they just came around. Neighbors cats and stuff. Sometimes I would go out and call him and he wouldn't come and I'd just yell TUNA and he come running down the street full bore. Sometimes with his buddies following in line. But I don't think he had good survival instincts. He was just too friendly. There's lots of animals in the neighborhood and since it's in the county there are no leash laws so lots of big dogs running around. He just was a calm gentle critter. My parents siamese, on the other hand, who was raised in the country and is a fairly large cat,  if he's not in the mood and you try to pet him or pick him up, you get a stump back. When my dad plays with him he wears leather welder gloves although the cat has figured out to attack high on the arm, where he can get to 'the meat'. But I should have turned this cat into an inside cat but my aversion to litter boxes prevents that. This is the only reason I don't get dogs. Although you'd never realize it, I'm really not a poop person. I'm not cleaning up after anyone other than me that isn't an offspring . Well enough about the cat. I'm getting used to not having him around but I still miss him. Not like me at all. I think this treatment messed me up and made me empathetic or sumthin...that or I'm getting old.  lol

[debnevada]

oh gawd, not "empathetic"!!!!

and honey?  We're ALL getting old and somewhat soft.

deb

[meki]

It's called maudlin... Not quite sad - not quite depressed --- but maudlin.... (sp?)

You write really well Jasper - and that's totally funny - had a cat similar to your dad's... loved the "meat" and goes for it.

I still am so sorry for your loss. I'm such a crybaby when it comes to Hallmark commercials and anything to do with critters.

Just a mild note --- they make these litter boxes... They kind of rake the sand - and they put it in a container and seal the lid... And you just toss the container and put a new one in...

Glitches every once in awhile - but for the most part worked like a charm for me.

So if you ever happen to find a stray that looks like a keeper --- or one who's gonna keep you... LOL! remember those electric boxes.

Or you could do what a friend of mine does... Puts down a cardboard box - puts sand in it --- (they live on a beach - methinks dirt would work too) throws it away when it's time --- and puts a new one out when it's time. Never sifts nor touches ppppppppoooooo..

LOL!

Hugs Jasper
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Shell - how ya hangin in there?

[geterdone]

Here, have a feather? Winkie, Winkie

jasper

[ponyshel]

lately I feel like my emotions are all over the place...

[meki]

Get used to it poney... If you're on TX --- it can really bounce you up and down - but mostly down --- so journal your moods and if you see yourself bouncing too hard in a bad direction go get someone to tell. Also check on Antidepressants or short acting stuff (lorazepam, etc.).

If you're not on TX and HCV then that too can mess with your emotions. The liver filters everything... So it can have a lot to do with chemicals in your system and neurotransmitters...

Super hugs ponyshel --- Know you ain't in this alone - we've all experienced melancholy and sadness --- -or riba rage --- or just the blahsies.

Here's a cheer for you --- and go rent some kick butt stupid comedies - -- those always help. LOL!

Meki