? Systemic Muscle sx Herpes post steroids

Hx of possible herpetic meningitis in 1983, hospitalized for 1 wk.Hx AVM removal 2003, Strabismus surgery 2ndary to AVM surgery, Sudden hearing loss,(unknown reason) progressive 2002, Spinal stenosis, L4/5 fusion 2006. Developed left sided muscle weakness upper/lower s/p fusion, loss of all left leg reflexes. Also developed obstructive sleep apnea.Traumatic spinal tap and CT mylogram done. Developed lace type rash post, ? contrast reaction. 3 days later developed global muscle aching and flu like sx. (2006). Muscle biopsy neg, all routine tests neg via rheumatology,neurology. questionable EMG findings. High dose steroids without effect. Some relief with hydrocodone. Steroid injection 1 wk ago has reignited all sx to maximum.  Could this be muscle sxs from herpes without lesions that steroids could have caused? I am being sent down to MA General, Boston as the next hope for an answer. Any thoughts? Thanks in advance.Cross posted to neuurology forum

[gracefromHHP]

What kind of follow up tesing did you have back in 83? did you ever get a type specific herpes igg blood test to confirm your hsv status and to get more answers?

Following up on this with specialists is the best idea. A recurrence of a hsv infection in the csf though wouldn't be causing all the symptoms you've described.  

grace