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Chronic Cold Sores in Mouth
Hi there,
In November 2008, my boyfriend kissed me when he had a visible coldsore on his lip. 24 hours later I had one come up on my lip, but with it came 3 blisters in my mouth (on my tongue & gums). From the day I caught these cold sores, I've hardly had a single day without them. They are rarely on the outside of my mouth though, but always on the inside. This is a typical pattern for me: DAY 1: one comes up in my mouth & last 10 days, but as it is going down on about day 7, another one is forming elsewhere in my mouth. They just overlap resulting in me having cold sores for 365 days a year.
I have had many blood tests, tried many treatments but the only thing that has half worked has been acyclovir tablets. The only days I haven't had ANY are days that I take 1,500 mg or more of acyclovir in a day. The tablets are around $100 a pack for a month's supply - I can't afford that.
I have stuck to the high lysine/low arginine diet, so I only eat high lysine foods. If i eat chocolate, drink wine, eat bread or grains : I will have a cold sore coming on in half an hour.
The only thing my blood tests have shown is that my TSH has been fluctuating between 4 and 5, so a tiny bit above normal, but not enough for the doctors to treat. I have 8 other symptoms of hypothyroidism, could that be why my body has a complete inability to fight cold sores? Will treatment for hypothyroidism suppress my cold sores at all? to be cold sore free for even a week seems like an impossibe wish at the moment.
My boyfriend and I can't kiss, I can't eat chocolate, I can't drink, I can't kiss my family & haven't been able to do any of these things for over a year now..I feel like I've been delivered a life sentence..can anyone help?
In November 2008, my boyfriend kissed me when he had a visible coldsore on his lip. 24 hours later I had one come up on my lip, but with it came 3 blisters in my mouth (on my tongue & gums). From the day I caught these cold sores, I've hardly had a single day without them. They are rarely on the outside of my mouth though, but always on the inside. This is a typical pattern for me: DAY 1: one comes up in my mouth & last 10 days, but as it is going down on about day 7, another one is forming elsewhere in my mouth. They just overlap resulting in me having cold sores for 365 days a year.
I have had many blood tests, tried many treatments but the only thing that has half worked has been acyclovir tablets. The only days I haven't had ANY are days that I take 1,500 mg or more of acyclovir in a day. The tablets are around $100 a pack for a month's supply - I can't afford that.
I have stuck to the high lysine/low arginine diet, so I only eat high lysine foods. If i eat chocolate, drink wine, eat bread or grains : I will have a cold sore coming on in half an hour.
The only thing my blood tests have shown is that my TSH has been fluctuating between 4 and 5, so a tiny bit above normal, but not enough for the doctors to treat. I have 8 other symptoms of hypothyroidism, could that be why my body has a complete inability to fight cold sores? Will treatment for hypothyroidism suppress my cold sores at all? to be cold sore free for even a week seems like an impossibe wish at the moment.
My boyfriend and I can't kiss, I can't eat chocolate, I can't drink, I can't kiss my family & haven't been able to do any of these things for over a year now..I feel like I've been delivered a life sentence..can anyone help?
I do have a question about what you have going on in your mouth since I have something going on with mine as well. Do yours hurt and do you show lots of them? I have two circular red circles at the tip of my tongue that do not hurt and pretty much have gone away after 3 days. Though, today I have noticed a red spot near the archway to the back of my throat....not sure what it is but its freaking me out.
At this point you need a further work up. they can do cultures when you have active symptoms if you get them done before you start any acyclovir or valtrex for the symptoms.
grace
grace
I haven't seen an ENT about it, but I know they aren't mouth ulcers or thrush because treatment for those conditions haven't worked. The only treatment that has worked has been valtrex, if I feel one coming on and I take an acyclovir tablet it will retreat. I have been tested for celiac, and I was negative. Is it possible that it is some other virus that only responds to acyclovir? I still get heaps on the outside of my mouth, but they are only small. The trigger to this whole problem started the day after I kissed someone with a cold sore. Before that I had no mouth issues whatsoever.
this isn't likely to be a herpes issue going on. Have you seen an ENT specialist at all?
Have you been worked up for a gluten allergy too?
grace
Have you been worked up for a gluten allergy too?
grace
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Herpes spreads by oral, vaginal and anal sex.
Herpes sores blister, then burst, scab and heal.
STIs are the most common cause of genital sores.
Millions of people are diagnosed with STDs in the U.S. each year.
STDs can't be transmitted by casual contact, like hugging or touching.
Syphilis is an STD that is transmitted by oral, genital and anal sex.
