Diagnosed with Herpes Type 2 But How?

Hi,

I am a extremely sad and confused.  I just found out that I had Herpes Type 2.  And I am not exactly sure how or when I got it.  I contacted the last three guys I was seeing in the past 5 years and none of them have it.  Two of them actually got tested before we started sleeping together (and so did I) and the other one I just assumed because we were off and on for over ten years (I know I'm so stupid)  I contact this guy, and he said there is no way because he was just tested, the girl he was seeing had an abortion back in July and was tested and she didnt have anything either.  He said he would go again, but there is no way.

I contacted both my former boyfriends as well.  Asking them about their tests.  They both said they were tested for herpes and everything else under the sun. (One I slept with for over a year but he cheated on me. I made him get tested again I found out and his test came back negative.)  After him were these other two guys mentioned above

Anyway, I am not sure if I confused you guys.  I have so many thoughts in my head.  Anyway, when I got this test back and she said I had Herpes type 2 I was extremely shocked and could not believe it.  She said its possible that it could have been dormant all these years.  I have never had any symptoms and these three guys tested negative.  I am so confused.  (These are the only three guys I've slept with in 5 years)  

Should I go back even further and find my test results from 5 years ago? Is it possible I'm postive and they are all negative?  

Last time, I recently met this guy.  (well i knew since i was a teen, but started seeing each other) We started getting physical one night (about a week or 2 before I took this test)  I told him I wasn't ready, and he understood.  There was no penetration but there was skin to skin contact.  Is it possible then?  And why don't I have any symptoms?

I spoke to him about my results.  He is shocked and extremely upset but says we are going to get through this.  He seems understanding but was very upset last night and didn't want to speak.  He said he isn't upset with me, just the situation. I really care about him.  He seems to care about me.  I would never put anyone in a situation like this, ever!  I can no longer eat or sleep.  I just don't know what to think anymore

(My dr said the test came back positive and they had a inhibiton assay done to confirm it and its positve. Is there a possibility that it is a false positve?  )

Ashamed

[kdaily]

was this a blood test, what were your numbers?

Its most likely not from your recent partner as it was a low exposure to begin with and it also takes about 3 months to become positive after an exposure.

Herpes can go unnoticed for years, you could have had an outbreak and not even know it. The herpes outbreak is layed out as horrible and painful but that is not true for everyone, everyone is different.

[Ashamed81]

This was a blood test, HerpeSelect 2.5  She said it's pretty low and I should come back but she didn't seem to confident with even telling the numbers.  I started telling her stuff that I found on this site.

Could it be a false postive?

[gracefromHHP]

yes your hsv2 igg could be a false positive. you'll need additional confirmatory testing to confirm your status.

grace

[Ashamed81]

Thank you grace...What test should I take and how long should I wait?  And what are the chances it is a false negative?  

Thank you for you help. Im freaking out so much.  I cant even eat.

[Ashamed81]

Also she said there was a inhibition assay that said positive.  Please HELP....

[gracefromHHP]

there are some issues with the inhibition assay too which is why following up with a herpes Wb at some point is a good idea.  

when was the last time you had sex prior to your testing?

most folks are not getting tested for herpes. it's not a part of routine std testing. odds are that none of your former partners have actually been tested for it even if they think that they have been.  their status is not the issue though - at this point it's confirming yours.

while you are waiting, your new partner should get tested too to know his own status. you can't make educated decisions about what precautions to take until you know who has what.

grace

[Ashamed81]

I have contacted my doctor and her assistant (the one that gave me my results) said she will find out about the WB and I can come in on Monday.

Before the test, I had sex on July 11th.  And nothing since.  

Before that, if was back in March.  And the time before that was Aug of last year.....

My doctor's assistant seems pretty sure I did, until I brought up some of the information you spoke about on your forum.  That's when she said, "Yea, it is quite low..Ok come in for another test."  At first she was just like, I'm sorry.

[Ashamed81]

Also, what could cause it to be a positive when its really a negative?  Did I mention that the type 1 came back negative?and I got the gardisinal shot also ( I don't know if that has anything to do with it)

[gracefromHHP]

we don't know exactly why the false positves occur. false positives and false negatives are an issue with every single test for anything you ever get tested for. we have clearer parameters with herpes testing for when to recommend confirmatory testing.

[Ashamed81]

So if that's the case, do you know why my dr assistant didnt suggest a retest until i asked her the numbers?  

I also I just spoke with one of the guys. He said he got everything done on the list his dr gave him except hpv because they could only test women for that.  Can having th gardinal vaccine have any influence on the test?  (I know I asked before)

[gracefromHHP]

many providers aren't aware of the  false positive issues to know to suggest additional testing to their patients even though it's been published quite a bit in the literature now :(  it's why folks like me do the boards like this - to educate folks so they can educate their providers and get the additional testing they need done.

no, gardasil doesn't effective the blood tests.

[Ashamed81]

Hey, quick question. you are when was the last time i had sex propr to testing but did elaborate on my answer.  do you mind letting me know your thought on that.

Few questions
1) Is it possible to have it for years and not now and ever transmit it to any of my partners?

2) The guy that I mentioned above who said he has been tested for everything what someone that I was dating for little over a year.  We had unprotected sex.  If I have it won't he? (But hes test said negative)

3) what are the possibilites that there was an error (% wise)

I apologize if any of my questions are redundant.  I'm just extremely worried.

4) I know gardasil is for HPV, but if you have HPV could that cause have something to do with it? And can you get HPV if you got the gardasil shot? And if so, does HPV go away?

Thanks again. You are very helpful and informative.  

PS - I told the guy I am seeing whats going on.  He was angry at first but is being very supportive, but he is very sad and confused.  Is there anything that I can tell him?  I really care about him tremendously. I would never want to put him (or anyone else) in harms way.  

[gracefromHHP]

we ask when you last had sex because if it was less than 3 months, you have to wait until then to test. you have to wait until 4 months post encounter for the herpes WB too.  

no gardasil doesn't help treat existing hpv infections.

[Ashamed81]

Yes I know gardasil doesnt help treat existing hpv infections.  My question was a little different.  

But thanks for your help.  If you have time to answer the other questions that would be great.  If not, I overall know I need to go in to take another test.  Just that my dr didn't seem so helpful.

[gracefromHHP]

sorry, I misread the gardasil question. it helps keep 4 types of the virus from infecting you when you have it.  

[Ashamed81]

Hi

I went in today and got more blood drawn.  I asked for the WB I believe.  She said she will see what she can do but if my insurance doesn't cover it, they lab may just do the same test over.  Is this reliable?  What if it gives the same result?  Is that confirmation or wil I need to take another test?

[Ashamed81]

hey grace...do you have an answer to my above question? or anyone out there?

[gracefromHHP]

wait and see what testing you had done but just repeating the same test you  had before probably isn't going to be of much help.

[Ashamed81]

Just wanted to thank you Grace (and Kdaily - thank you also) for taking the time to answer my questions.

I haven't gotten my results back but I have faith that I am healed.

[Ashamed81]

hi grace (and everyone)

ok so I just got my results back and it's still 2.56..(before it was 2.59)  They said my insurance wouldnt cover the WB so they did the ELISA.  The dr assistant  didnt seem to know much and said maybe I should see a specialist.  

What do you think I should do now?

[Ashamed81]

If you can please help??????

[gracefromHHP]

the Wb is the test you need to confirm your status.  You can petition your insurance to cover it for you or you can just pay for it out of pocket.  

[Ashamed81]

So the results from the second test doesnt confirm it?  What are the changes of it coming back the same and it not being positive?

[Still_Worried_]

No, you need to confirm your status with another type of test such as a Biokit or Western Blot.  You are still a low positive so there is still a chance you do not have it.  Biokits will have your result back in 20 minutes and Western Blots take over 2 weeks, typically.  

[Ashamed81]

Thank you Still-worried.  Where  can I get a biokits

[gracefromHHP]

you'd have to call around and see if anyone offers it or not.  otherwise contact the manufacturer to see if anyone near you receives it from them .

[Ashamed81]

like a planned parenthood or something???? I apologize for my ignorance, I honestly never had to deal with anything like this....or seek help outside my doctor

[Still_Worried_]

www.biokitusa.com has contact information available.   781-861-4064 is the # listed on the site.  Perhaps they can further direct you.  Sorry, I have not called them so I cannot be of more assistance.

[Ashamed81]

thank you so much for your help...I will contact them

[dumbone]

I truely hope you get the WB done, you sound like me, i tested low positive for hsv2 at 2.19, i am going in for a wb and need to get the results asap.  I have tested negative always, every year for 10 years, i am only with one man now, and have been for a year.  I hope and pray that my result will be negative, and i pray for you too.

[Ashamed81]

thank you dumbone......this is such a scary feeling. I've been praying non-stop.  If you know where to get the WB let me know. I'm in NY.  I pray for you too.  (by the way, do you have hsv 1?)

I'm looking at the biokit but its in Baltimore.  I'm going to call them tomorow.

[dumbone]

i dont know where to get the WB, i am so scared.  i too have been praying to a god that i dont think hears me, and i will pray for you too. Im in ky, i dont know where to go or what to do, but cry.... lol.... and that isnt helping me... lol  from what i have read here, anything under 3.5 is considered low...  we both need to get retested!  asap!  i am so depressed and upset i dont know what to do, i am completely obsessing over this, it was suppose to be a quick blood test to put my mind at ease and instead, i am in a tailspin... i will pray for you!!!

[dumbone]

oh and i am negative for hsv1

[dumbone]

lol and i havent eaten in 2 days either. lol  nor slept, i am going crazy   good luck girl...

[Ashamed81]

yes, I am negative for hsv 1 as well.  This is why it has been so scary for me.  I have NO idea what to do but Grace and other people on here have been extremely helpful.  This WB or Biokit seems to be the answer but now trying to figure out how to get it.  I have looked on the biotkit site someone provided and it was in baltimore.

Someone said Montifiore Hosptial, thats my next step.  But girl stay strong.  My God hears me and I  know He hears you.  I am definitely praying for you, and I am here for you if you need me.

I may seem ok right now but its because I know God is healing me and thats what you have to believe with all your being.  Stay stong girl.  And EAT lol....I didnt eat for awhile either, but we BOTH are going to get through this.

EAT and PRAY because He hears you (sorry to sound super spiritual and stuff) lol

[Still_Worried_]

Btw, there's Biokit locations all over the U.S... not ONLY in Baltimore.  You have to find the nearest one to you.

False positives occurs even with those who are negative for HSV I.  IgG doesn't pick up 1 out of 10 HSV I infections, so you could either be truly negative or it's failing to pick it up.

[Ashamed81]

Oh ok...thanks good to know.  I found someone by the name of Dr. Gilbert. I am not sure if you heard of him but I read hes pretty good in NY.  I guess I will call tomorrow to set up an appt.  This is so nerve-racking.  

[Still_Worried_]

Did you find him through the Biokit number?  Is that going to be a long drive for you?   I'm praying for you!!  I really hope it unravels in your favor.

[Ashamed81]

I got his number from another thread I was reading.  He's in NY so its about a 20 mins drive.  Thank you so much , still_w, for praying for me. I truly appreciate it.  My appt is Monday.  How did yours turn out?

[dumbone]

hey girl, i went back to my doc too, who is awesome and my test was actually a 1.26, this made me feel a little more hopeful than i had been that it is a false positive, he seemed pretty convinced based off my previous tests, my history, no symptoms and only being with one person in the year.  Ive only had 4 partners in 24 years, so he is gonnna retest me monday as well.  i hope he is able to find the biokit or the wb, he is looking into it.  I am praying and praying my heart out and crying my eyes out.  I feel pretty confident after reading the many low positives that have really been negative on these posts, i hope i am negative.  much love to you all

[Ashamed81]

Keep Praying...you will be just fine. My pastor told me, "Control Your Thoughts"  Don't let negative thoughts enter your mind.  I know its hard to do.  believe, I am going through this will so I am not JUST telling you..

When I think about it, I KNOW its going to come back negative. When I think otherwise, my stomach drops and I feel like I can't breathe.  Look at this link grace posted a while ago.  It may help you...And remember control your thoughts!  And believe God is a Healer. He has the last word

I'm praying for you girl.....much love. If you ever need to talk please let me know. I'm here with you

http://biosearch.berkeley.edu/image.php?img=images%2Fopensearch%2Fartid%3D1276011%26blobname%3D1471-2334-5-84-1.jpg&pmid=16225691&fig=1

[dumbone]

Girl, i am in kentucky you are in New york!  I wish we were closer together!!  You are just like me, obsessing, trying to figure it all out, going over and over every sexual thing you have done in the last year, questioning, crying, loosing sleep, no appetite, and not symptoms at all!  Just the horrible call from the dr. that you never expected or even thought of would come.  Yours is a 2.56, mine is a 1.26, both are way below 3.5, there is deffinately hope for both of us.  I am trying to think positive thoughts and not dwell on it, it is not easy to do!!!  I feel awful now about myself, i use to look in the mirror and think i was ok, could be sexy now and then, and now, even when i think i look sexy, i feel like im dead, i am miserable, i wish you were closer so we could share a big bowl of ice cream!  lol  its so hard to talk to anyone about without worrying what they will think or say.  So i have only told my partner, and it just doesnt affect him that much it seems.  He is concerned, but not worried.  good luck girl, i am praying for you!!!  and me,, lol

[Ashamed81]

lol....you and this ice cream....we can have ice cream together on here...lol. I totally understand what you mean.  I felt it all. and every time I'm about to tell someone, I keep thinking that they are going to see me differently.  I have always been that "good girl" and here I am with possibly something.  But I am going to think positively.  I hate that feeling i get when I think about it and the what if.  
According to grace's post, you have a really good chance that it is negative. I keep praying that I can call my dr back and misheard what they told me.  I never in my wildest thought that this would come to.  I didn't even think about it.  It seem so unreal when she told me.  

The guy I'm talking to says he wants to work things out but hes been so distant lately.  We went from speaking every night to texting this past week.  So I totally understand what you are feeling.  I know he is nervous as well, but it just hurts a little.  I've lost 8lbs and have just started eating regular meals again.  Don't be like me.  please eat and take care of yourself.

I'm still praying for you. Even though you are in ky and i am in ny, we can still talk.  Grace posts are really helpful...I just wish I can have someone tell me right now, there's no need for a retest because you are good.  Waiting til Monday is killing me, and having Monday come is also killing...lol

[Ashamed81]

Hey grace,

Quick question: I have read several different things about recent exposure.  I know you can't tell when exactly you have been expose, but I have read that if I had it for years it would be more of a sure (higher reading).  Let say I did have it for years, even a year, is it possible to have such a low number????

Please answer..

[Ashamed81]

Hey Grace...just wanted to make sure you saw my preview message..If you can, please answer. Thank you

[dumbone]

I have been trying to figure that one out too.  I was negative in april and was with the same man im with now.  but now my number is 1.26 just barely over what is considered positive.  I havent had sex in over a month with him at this point, is it possible that after a year of being with the same man i could get this from him, just one day out of the blue?  and would the numbers increase the longer you have been exposed to it?  i am going insane with thinking and feel like i am walking in a nightmare.  i am trying to figure out and trying to believe that this is truely a false positive.  

[Ashamed81]

I did not sleep at all last night...Cried all night, just praying.

[dumbone]

i havent slept in a week, just cry daily, and pray, alone...

[Ashamed81]

Keep praying.. He hears you

[dumbone]

God bless you girl!  Whatever our outcome, i know that i have found a friend who is really there for me.  and i am here for you, no mater what!!  i pray for both of us.  I feel incoherant from lack of sleep and food, lol but i am hopeful....stay strong!!

[Ashamed81]

Grace,

I spoke to my dr today because I had to get my ultrasound done for my fibroids.  She is telling me that it's definitely a positive because the ELISA was positve and that confirmed it.  She said there is no need for the BioKit.  There's no room for a false postive.  She just gave me copies and this is what it reads

Igg Herpeselect 2.59
Elisa 2.36 Positive

Please help!!!!!!!!!!!!!!!!!!!!!!

[Still_Worried_]

Your doctor isn't up-to-date with HSV testing.

There is DEFINITELY a need for a Biokit or Western Blot for confirmation.  You are still a low positive on BOTH the Herpeselect & Elisa.  

[dumbone]

I am discouraged also, i went to my dr. today and though he still feels i am negative he didnt even know that there was a western blot for HSV, he thought thta was only for HIV testing.  When i asked about the biokit, he didnt know about that either and said that if it could give results in 20 minutes that its not a reliable test.  My insurance only covers the herpesselct, so he redid the blood work again and also tested for some test that he said was a viral dna detection blood test???? I have never even heard of this one, but he said that is what the lab said needed done.  I am so confused, i convinced my partner to go get tested tommorrow.  I need to find a place that does the biokit and western blot and go pay for it i guess.  you need to do the same.

[dumbone]

BTW have you noticed that not many people respond to us???  just kind of pass our posts over.... hmmmm, guess we ramble to much looking for the answers. lol

[petal130]

Actually, I've read this ongoing thread, and the other one that grace has been helping you on. As to why I haven't responded, here's why:

I have genital herpes. It is NO BIG DEAL! I never, ever think of it. It is a pesky skin condition, and when I have an outbreak, I treat it, it heals, and I continue to go about my life. It won't kill me, it won't do a darned blessed thing but cause a bit of discomfort now and again.

Now, something like my friend having a mastectomy and chemotherapy at age 42, well now there's something to cause no sleep, crying and praying. Not herpes. I will be BLESSED if this is the worst that happens to me health-wise!

And of course the kicker here is, you may not even have herpes. But if you do, I can't possibly agree with any thoughts of it being so dramatically awful.

[dumbone]

@ petal, i am really sorry if i or we have offended you with wanting to be free of this disease.  Maybe its our own mind, or the way we were raised, who knows, all i know is that i do not want this disease to add on to an already messed up life.  

I have watched my dad die of lung cancer, my grandmother from ovarian cance, my other grandmother from mouth and throat cancer, to where her face was eaten away, i have watched my best friend die of lukemia and i can tell you that none of these diseases, carry the stigma of herpes.  sorry but they dont.  i have sarcoidosis, a rare and incurrable disease and the last thing i need is a diagnossis of herpes..  and i am sorry to say that none  not any of these diseases i mention carry the stigma of herpes.  it is just a fact.

I am sorry that you have this, if i could stop it i would, i cannot.   I donot feel like some about the disease, but can see why they r so terrified of it.  

I have enough stuff wrong with me, without adding herpes to it.  so dio i wish us both negative???  yes of course i do.  i am sorry about that, but i do.

Do i wish noone ever had to be diagnosed with it again?? of course i do...  until then, try to remember how you felt at first and give us a break.  we are scared and alone.  completely alone.  try to understand.  thanks for what you do hear and god bless

[Still_Worried_]

I agree that herpes is not a huge deal compared to other things  It took a while for me to realize herpes isn't necessarily appropriate to become suicidal over.

However, people can treat cancer & rid themselves completely of it -- especially when caught early.  I have a large mass in my brain (tumor scare) & a cervical cancer scare & those TOGETHER paled in comparison to my HSV II scare.  I am a fighter & I know many people who have beat cancer successfully -- even in the later stages.  HSV is forever & cannot be fought & beaten.

It's not just the outbreaks and potential transmission to others we are all worried about.  It's the potential neurological pain, other complications, & links to other serious diseases.  These things may be somewhat rare, but who knows whether or not a person will suffer from complications or adverse reactions.  I wouldn't mind having a few outbreaks a year to treat -- if that's the WORST that happened.  

I apologize if I freaked out the above posters.  That was not my intention.  HSV is typically mild for most people.  And, like many other posters stated, you two probably don't even have it!!  I just had to illustrate WHY the idea of HSV is so devastating.  The good news is that I am optimistic about the multitudes of research that is being conducted at this time & know that one day we won't have to worry about any of this.  

[Still_Worried_]

I'm very sorry to hear of your family's struggle with cancer.  I submitted my post at the same time as you & I apologize if my post offended you due to my accounts of people I knew that had beat cancer.  

[Ashamed81]

Thank you Still.W for responding to my post earlier....I was just a little confused when she just kept saying to me, "No, the ELISA test is a confirmation test so if it comes back, postive then you have it. See, it says it's not a false postive."  

To dumbone, don't let anyone get you upset sweetie.  Everyone reacts differently to different situations and I'm sure when everyone is first told, it's something that they freak out over.  It may be "small" in comparsion to some other things, but it is still life changing and can lead to potential danger.

I am staying in prayer, and I appreciate everyone's support.  The guy that I was seeing,....well he has seemed to bail....lol figures

[Shattered48]

I am so sorry your new guy bailed. I know exactly how you feel.

Two weeks ago, I started talking to this really wonderful man with whom I seemed to have everything in common. He and I both stated that we felt like it was always meant to be and we were falling for each other. Last week we agreed to take STD tests to have that out of the way so when the time was right we could take our relationship to the next level. Today, I got my results back and I was positive for HSV2. I was dumbfounded. I haven't had any symptoms whatsoever and have gone over and over in my mind trying to figure out when, who...nothing makes sense. I was in two very long term relationships...totaling 20 years. My head is just spinning.

Anyway, after he'd had a couple of hours to process the information, my friend dumped me tonight. Said he didn't want to settle and he didn't want to deal with an STD. I understand, but it doesn't make it hurt any less and honestly, I'm still trying to get a handle on what I'm feeling. I don't know. I feel damaged/broken/diseased and that no one will ever want me again...which was confirmed earlier when he broke off our relationship.

Now, after reading your posts, I see that maybe there is hope that it could have been a false positive. I plan on calling my doctor's office tomorrow and asking what test was done and what the numbers were and going from there. Those things never occured to me...I was so stunned to hear the world "positive".

I know and understand that some people think it's no big deal. I wish I felt that way. I wish my "friend" had cared enough about me to stand by me. But I live in the real world and have to deal with the facts.

I hope your tests turn out to be false positives. You are in my prayers.

[Ashamed81]

Good Morning Shattered

So many of us have the same story, and I am so greatly that my story has touched you to go get your numbers and hopefully retested.  I had NO idea about getting retested until I stumbled upon this website, and the great ppl on here helped me figure some things out.  I, myself, didn't even know how low postives, and retesting and problems with the testing. I just thought it was cut and dry.

I went through a lot through this past month.  I have learned tremendously.  At least your friend was very upfront with you.  Mine, is still acting strange and we don't even talk anymore.  We went from talking very night, to texting, to now not speaking to each other for days. And then when I do speak to him, he just like what's up, like it's my fault we haven't spoken.  He said all the words, he wanted to work things out.  He said he wanted me and still slept with me after.  But now, he has just distanced himself completely, and it hurts tremendously.

I was in a car accident when this all unfolded. (and just like you, i went to get tested because we wanted to take the relationship to the next level) he was here for me, but now doesn't even ask how I'm feeling. (which I am still out of work because) It is what it is.  A LEARNING LESSION

God will send you the right one. Remember, God is a Healing God, and He has the last word on everyone. I thank you for your prayers, and I am praying for you also.  Please get your numbers and post them so the ppl on here can help you.  I am still learning but I am more than welling to help and pass on information that I have learned.

GRACE where are you! LOL

[Ashamed81]

Update!

Well, my friend says he still wants to work this out, but this is very difficult for him. Let's see what happens after I get my results

[dumbone]

dear ashamed, how are you?l  My partner finally went and got tested today, i know what you mean about wierd.  We havent so much as hugged since all of this.  Every now and then he tries to touch me but things are soo strange now.  but he did go get tested, i do have to give it to him for that, i really wanted so bad to hug hiim for it, but things have been so strange, i couldnt.  its sad, lonely, and confussing.

I am waiting for my test results to the same darn test, but found a place 3 hrs from me that does the biokit.  i am going to go!!  I also talked to the WB university  I am going to get that too, just gotta find a lab to do it.  I am scared of the results, all of them.  what if they are bad???  lol  all i do is cry, and people at work are saying to me, good god you look horrible. thanks, i havent slept or eaten in a week!!!  lol still no symptoms, no anything.  i just need answers and  a hug!! right now i have neither!  So because you sound like me honey, i am sending you a huge hug!  You are not alone, good god, im so sick that our doctors do not know about these tests!!  praying for both of us!!!

[Ashamed81]

hey hon,  thanks for the hug.  Unfortunately I am positive, but I still pray for you.  Very sad!!!

[Still_Worried_]

You cannot say that you're truly positive until you seek out confirmatory testing!!  

[Ashamed81]

I did....I am

[johnsmith217]

Prior to your testing did you have any symptoms?

[Ashamed81]

None at all.....but i got the biokit done that said i was

[johnsmith217]

The Biokit you had down. How soon did the results come back?

[johnsmith217]

* done

[Ashamed81]

20 minutes

[Ashamed81]

Now what,,,,,,,,,,,,,

[gracefromHHP]

I don't follow posts once they turn into folks supporting each other. I just have too much to do to wade through all the extra posts.

did you ever get a WB or are you still assuming you are hsv2+ based on the low positive igg from your other blood test?

[Still_Worried_]

You had a Biokit done & it came back positive?  =(  I apologize -- I didn't see that anywhere on your post before I wrote that.

I'm so so so so sorry.  *HUGS*   If you ever need to talk, let me know.  I spend half of my day on here & on http://www.herpes-coldsores.com/messageforum/.  That's also a good place for support.  Thousands of people on there going through the same thing.

How is it going with your friend/partner?

[dumbone]

aww, im sooo sooo sorry!!!  I am going to get my biokit done on friday, i am so scared!!  And now hearing your results, i am more terrified!  I really thought you were good.  I would still get the WB done!  Just to rule out everything else and be absolutely sure!  

I am so sorry, i wish i could give you a hug!  How is your friend with the results?  If you need to talk, im here for you!!!  BIG HUG!!

[Ashamed81]

To Grace,

well i had the Biokit done and that came back positive so i didnt know what to do.  Please let me know.

the dr said i would be throwing away my money but if i want the next testing is 12/29.

Please help

[Ashamed81]

Dumbone and Still,

thanks for the hugs..I had to go to work right after so my students were asking whats wrong. one of my students just took over cuz i couldnt do anything. i could barely  talk...i dont know know anymore.

my friend said he still wants to work things out but this is really difficult for him. so he's really standoffish but still ask how my day is going and talks about everything else but the obvious and doesnt want to see me.

[Ashamed81]

Grace I totally understand.  but this is crazy.  none of my ex's ever had a symtom, all test negative (so they say) I am sad but still trust God...Just lost.  Please help

[dumbone]

sweetie, im so sorry!!  I think i would still get the WB.  At least you have someone going through this with you, and even though he is standoffish, he is still there.  Thats more than some of us can say.  I know you will be ok, but i am worried about you, i think for your own peace of mind, you should get the WB.  Who really cares if its a waste of money or time, if it helps you ease your mind than its worth it.

And honey, we are all lost!!  I cant talk to anyone about this except my current partner, my divorce was final on monday and here i am in a very bad place, i cant eat, sleep, think, i dont want to.  I want to know but im scared to know......Im sooo sooo sad!!

[Ashamed81]

I'm just sad....no feeling. just here, living w no feeling, no crying

[Ashamed81]

To Grace,

well i had the Biokit done and that came back positive so i didnt know what to do.  Please let me know.

the dr said i would be throwing away my money but if i want the next testing is 12/29.

Please help

[gracefromHHP]

definitely still get the WB but wait until 4 months after the last time you had sex to get it.

[Ashamed81]

Thank you so much Grace.  So you really think that there is a possibility that I don't have it? Please let me know

I will definitely wait the four months...

[dumbone]

hey girl, i called the clinic i am going to get the biokit with, and had questions, of course. lol  so he read straight from the pamplet that comes in the testing kit for the clinic, it said it was 94% accurate with positives, and there were things that could make it test positive even if it wasnt.  HPV was listed on what he read to me.  according to your earlier posts you had a pap come back with questionable cells, which could or could not be hpv.  I really want you to get the western blot.  

I am scared as hell, and am taking cheap shots from other posts about my partner being married. lol  i am literally being beaten up, but im scared and alone, and i know what you mean about without feeling.  cry honey, cry, scream, and call this number... 1-800-713-5198, that is the lab number to order your western blot.  or call 206-720-340 that is the number to the research dept of univ of washington,  they will talk to you and discuss with you false positives and they are really great!!  Please keep us posted

[Ashamed81]

thank you dumbone

grace, is this true? is this why you said to take the wb in 4 months.

thanks again dumbone. i really appreciate you sharing this with me.

[Ashamed81]

hey grace

were you able to read dumbone's post about the biokit producing false positives because of hpv? is this accurate?

and you still think i should get the wb even though the herpeselect, elisa, and biokit came came back low positives?

please let me know

[Ashamed81]

hey grace.

sorry to keep asking i know your busy but i just wanted to know your thoughts on my biokit results and if you heard about hpv posibly effecting the results.

i am definitely waiting the four months, do you suggest not being active during this time. i dont mind but my friend is curious.


please

[Ashamed81]

Can anyone answer this question?

Can HPV cause accuracy on a biokit test?

Can someone please answer

[dumbone]

when i called the clinic i had the biokit done at i was asking questions about the igg test, and false posititve, but he misunderstood me and started reading the literature out of the testing kit, and he said it was long.. lol  thats when he found a small section and told me about the possiblity of hpv altering the test, there were a few other things listed, but i cant remember what they were.  He also said it was written that a faint or very light positive should be read as a negative.  

Its so confusing though!  And so terrible that drs dont know about this stuff.  Where i am living, there were only 3 clinics anywhere near me that even offered the kit.  One in mephis, one in indianapolis and one in toledo.  I dont understand why more drs dont offer thsi test.

My question is i know the WB trumps the results of the igg, but does the biokit?  On the phone the guy told me it was 94% accurate at the clinic a lady told me it was 99% accurate.  I know it has been 'compared' to the WB, when i called the University of washington, the research dept even told me that.  She in fact told me if my biokit came back neg she wouldnt advise gettting the WB. I think i am still going to get it though.  and now waiting for my partners test to come back is driving me insane.  is there no end??  

Wish you luck and i will pray for you

[Ashamed81]

Thank you for your words and sharing.

I've been looking up that information since you told me but I can't find anything.  I've been trying to ask Grace because maybe that is why she said to comfirm it with the WB.  I just wanted to clarity because I am starting to go crazy.

I have gotten into argument with two of my ex's to the point that one of their mom's got involved because I want to see the results and I no longer want to take their words for it. I;m getting angry at my new friend because I feel he isn't being supportive even though he says he wants to be there. I am so lost and Praying soooooooo hard.

GRACE GRACE, if you are out there, please let me know your thoughts......I just give up

[dumbone]

No, you cannot give up!!! at this point those ex's are not going to be level with you, all you can do is take their word for it  which sucks.  Im sorry, but you cant give up!!!

Call the Univeristy of washington and they will tell you how to get the WB, i posted the # earlier.  

Stay strong!!

[Ashamed81]

Grace and Dumbone

Noone is really answering my questions but I did ask my dr about my results from my pap smear and she said that it came back normal. And I guess there is a new rule out saying that they can't test for hpv in women under 30 unless the pap smear comes back abnormal.  

I guess I am happy my pap came back normal (I don't even know if that means I have or I don't have hpv) but just continue praying

[dumbone]

did you ever get your wB?  dont feel bad, noone is answering me either. lol  my biokit came back negative, and a repeat herpeselct came back a 1.82.  partner tested negative, ex tested negative,  how then do my numbers keep coming up like this?  I dont understand, but im gonna get the WB too, i am going crazy!! If they are both negative, how could i be anything but negative?  i was just tested neg in april

[Ashamed81]

Girl I dont even know anymore.  I want to cry but no more tears with shed.  gonna continue to just pray since I don't know where else to turn...

PS - why did you go back for another herpeselect if the biokit came back negative.  Mine was SLIGHTLY lower but I dont think the numbers mean anything.  I guess.  I have no idea

[Ashamed81]

is it possible that i could start a new thread? i still have additonal questions that i need answered...

please help

[Ashamed81]

i was just thinking after reading other post....could i have gotten it from skin to skin contact. two weeks prior to my testing, the guy im seeing were getting hot and heavy. he did not insert but there was a lot of genital t genital contact. i stopped bc i wanted us to get tested first.

could have gotten it from then? just want to know if there is any possibilities. what r the chances?

[Mistakeguy789]

Keep all your questions in one post.  The thing you should remember here is that we have answered the question.  Skin to Skin contact is how the virus is spread. What people miss is that the virus has to be massaged in with heat and friction so it is not just a "touched you" and you have HSV...  

You got a biokit result and I haven't heard of the HPV causing a problem with it.  But doesn't mean I don't know.  You need to stop and relax. You are causing yourself to stress too much on something that is possibly a false positive.  Get the WB to find out what is going on.  

[Ashamed81]

Thank you Mistakeguy for answering me.  I feel so all alone, and I don't know what to think anymore.  I am going to get retested, but trying to get some money together.

The guy that I was seeing said he has an appt next week.  

I camt home for thanksgiving and my dad said I am getting skinny.  I think it's from the stress, so I will try not to worry so much, but sometimes I feel like all my oxygen is being taken away.. Everytime I speak to a guy that I know, they keep saying I wish I has a good girl like you.  And I feel like throwing up...literally!  

[dumbone]

hey girl!  I actually got the 2nd blood work done the week prior to the biokit.  which was negative.  I dont know what the stupid numbers mean!  Im confused and scared too!  I know what you mean about wanting to throw up!!  my new partner is convinced its a false positive and really wants to have sex again, but the thought of it scares me to death, and makes me want to puke!  I am scared to touch myself let alone let someone else touch me!  I know i shouldnt be like that, but i just feel like until i know for sure, i will never feel whole again.  I really dont believe i have this, both my partner and my ex are neg, i was neg in april and oct of last year, there have been no other partners,  not even any contact, so i dont really understand how the numbers come up like that!  

I am trying to realize that since my new partner is neg, there is no way i could have gotten it from him.   And that would mean this cannot be a new infection.   but in april i was negative

I just dont know what to do!  Im confused,  im gonna redo the biokit next month and as soon as i get the money, i will get the WB.  Maybe then i will feel better.  i just dont know though!

I hope you find the answers you need.!!

[gracefromHHP]

did your partner's test results come back yet?

you might never figure out who and when from all of this. Most folks are programmed to say yes they get tested. most don't get tested. the ones who do usually assume they get the "whole shebang" and they really only get tested for 2-3 std's.   The who and when parts of the questions aren't remotely important - what is important is getting accurate answers for yourself and knowing your current partner's status.   I assume your current partner got their test results back and are negative for 1&2?  I assume they got proper testing done too?

if the stress of all of this is getting to be too much, seek out help from your provider or a clergy member if you are religious or a professional counselor/therapist.  When it's keeping you from eating, sleeping etc then it's time to find a way to better handle things while waiting for more results.  

At this point honestly not much I can add. for some folks it's not all black and white with their testing unfortunately.  

[Ashamed81]

The guy that I'm seeing has an appt this week.  So I am waiting to hear back from him.

I understand ppl are programmed and think they have been tested for herpes but may not have.And I know that at this point I need to focus on me. ....But part of me keeps going back to the possibilities.

Let's say my ex's weren't tested and thought they were.  Is it possibille that we are all have it and none of us have symptoms.  What are the odds of that?  Ok I am really trying to relax but waiting three more months to get retested is killing me slowly. I am going to speak to someone at my church.  

I will definitely keep you posted.  And I may go get tested again in Dec or you think my results are just coming to come back the same?

[dumbone]

hey girl!  I totally feel you on the stress level!  And i too have lost over 12 pounds in just over a week.  (needed to, but not like this).  I obsess over this all day and it is taking my entire focas from everything else. Im trying to relax, but just cant.  I do believe i am negative as the biokit says, but why then do the numbers come up the waay that they do.  I also know what you mean about who and when.  

I have went over this in my head a million times.  I was married 18 years, both me and my ex were tested repeatedly and always negative, my current partner just got tested and is negative.  I was negative in april, slept with my ex in june one time.  he claims he got tested last month and was negative, and 22 weeks after that encounter i tested negative witht the biokit.  So i am sure i didnt get it from him, and not from my current partner.  So that makes me prety sure i dont have it.  I just dont understand the low positive though.  It scares me so much!  

At this point, i think the blood igg test will be a waste for both of us,, i think it will just keep coming up the same way, low positive.  I am gooing to do the biokit next month again, just to try to give myself more hope and then do the WB when i get the money.  

Keep you head up!  How has your new partner been acting since the biokit?  

[Ashamed81]

He won't speak about it....So I've decided to give him some space.  He going to get tested this week.

[dumbone]

Aw, im sorry to hear that!  When he gets tested maybe things will make more sense.  Does he still talk to you at all?  Does he understand how hard this is on you!!!  I will pray for you sweetie!

[Ashamed81]

He talks to me...but hes just very distant.  I think he is just waiting to get his test results.  I stopped by to pick up my things and he was all over me, but I didn't want to have anything to do with it until his test results come back and mine.  He said then he needs some time because he knows if he sees me hes going to want to have sex, and I'm just not with it at all anymore, ---with anyone.  I explained how hard this is for me and I need someone there and he said he understood but hes still standoffish.  He said the way he deals with it all is going to kickboxing....So i'm just here. Don't know what to think. But I am resting completely and totally on God.  Thanks for your prayers.  I'll def. keep you posted.

[Ashamed81]

Hey,  my friend got tested yesterday but I am no longer seeing him.  I don't think he has my best interest at heart so I am just waiting to hear back from him

[dumbone]

hey girl, just got back from out of town.  how are you?  im sorry about your new guy.  How are you holding up?  did you ever get the wb?

[Ashamed81]

Hey, where did you go?  No, I haven't been able to get the WB yet...But everything is a symptom now.  Every itch, scratch,.....sigh everything.  He says he misses me but we havent seen each other in quite some time.  He doesnt talk about it but he went and got tested last week.  Im gonna ask him for his results  tomorrow

[Ashamed81]

I am sooooo tired of all this.......I feel like Im getting weaker and weaker

[dumbone]

i know girl, i had to go out of town on buisness.  wasnt any fun, all i thought about was getting retested.  this is totally consuming me and i know what you mean about feeling weaker and weaker.  I just dont feel like doing anything anymore.  I just want to know.  and yet when the biokit came back negative, i was sooo happy, but then my mind keeps saying what if that test was wrong.  what if it just didnt pick it up, so i am still stressed out.  I have some hope now, but im so confused.  

I just want this to be over with.  and im worried it never will be.  I dont cry as much now, i think im running out of tears, but i am so worried and upset.

My guy is negative, and he is satisfied with the biokit result that i am negative.  but i still cant bring myself to have sex with him.  Im just too scared and not into it right now.  I feel tainted.  He is always all over me, but its been 2 months since we had sex.  I miss that, but i just cant do it right now.  Im terrified of myself.  and i know what you mean about feeling everything as a symptom!!!  my mirror is still by the toilet!!  I hate this

[Ashamed81]

Hey,

He got his results and hes negative.  

[Ashamed81]

Four guys all negative.  They even had their current partners checked.  Im still the only one. I'm just sad.  Waiting another month to get retested like GRACE said

[Ashamed81]

UPDATE: PLEASE HELP....

Sorry my post are so long, but I hope someone can help

The guy that I am currently seeing finally got his results back.  He is negative. He wants me to take valtrex so we can become sexual active again but I don't want to pump my body full of stuff if I dont need it. (Side Note: We've been having unprotected sex)

The other 3 guys that I have been seeing in the last 5 years all tested negative as well.  Two had the girls that they are talking to get tested as well and they are negative too.

Reminder: My test results from 10/7 - 11/19 (yes, I got tested almost every week because i don't know what to think --> 1st 2.59. 2nd 2.56, 3rd, 2.39, and light pink biokit)  No symptoms, outbreaks, nothing.......But now I'm in the mirror everyday looking for something.  

PLEASE HELP

I am trying to save up for WB.  PLEASE HELP

[dumbone]

what i was told when i took the biokit is if it comes back a faint pink dot. it is called negative.  get the WB and rid your mind of this forever.  I totally feel for you sweetie, i have 2 negative biokits under my belt, 2 months after the low positives, cant afford the WB till after the new year, constantly in the mirror and worrying all the time.  I dont know what to believe.  If all your exs are negative, how can you be positive??  Please get the WB, Please!!  You still have no symptoms or anything to lead you to believ you are positive.  I know we both get some attitude here, and get looked over, but i read your posts everyday and i am not going to stop.  Your new partner is negative, all your old partners, and their new ones are negative..... Get the confirmation you need and in the meantime, keep your head up!!

[Ashamed81]

Thanks dumbone.  I really do appreciate it. I'm not sure if ppl aren't responding because my posts are now in the 100s and ppl feel now.  I was thinking about starting a new one, but nervous because they said not to......

Now Ive been told if it is light pink, it should have been treated as a negative.  I remember sitting there and when he came in, I was looking at it (before he explained) saying to myself, "Oh goodness, its so light...is that good or bad?" Then praying and looking at the top diagram, trying to pray that it would go away if that says i'm negative or get darker if that says negative.  Then he said those dreadful words, "Yes, your postive." and explained if I wasn't there wouldn't be any color here.  I heard in the tears as long as I could.

My thing is:  Did he say that based on my other results?  My sister said I should have even said anything about my other results and just said I wanted to get tested.  Then my second question is: Can all my ex's be lying? Or should I go back ten years?  There were two other ppl that I don't even speak to anymore. I'm lost

GRACE, if you are out there please READ this post and my previous post.

[Ashamed81]

I have an appointment Jan 13th.  Please wish me luck

[HardKnocks]

Keep us posted!  I think we have been here about the same time.  I also have concerns about HPV and if it alters the test results.  I am also trying to learn more about BV and herpes.  
Finally 1 week ago contacted my ex (last with him in June) and told him I had some health issues since last time we were together and needed more testing done. Told him before I had more tests done I needed to know his status.  Odd enough- -he never once asked what I had, if I was ok, what he needed to do.  He wasn't angry- didn't blame or accuse, ask is I had been with anyone else or say I had it before.  He was very very quiet.  When I asked if he was still there and ok he told me he needed some time to think about how to handle the situation and we would talk the next day.  Haven't heard from him-- thinking I have my answer.  He did say he didn't ever in a million years think he would be having this conversation- especially with me.  

[Ashamed81]

Sounds so familiar Hard.....How can he find out his status if he doesnt even know whats wrong with your health? hmmmm

Are you going to get retested?