This forum is an un-mediated, patient-to-patient forum for questions and support regarding herpes issues such as: Herpes symptoms and treatments, causes, diagnosis, and herpes in men, tests, telling your spouse or partner.
Can anyone tell me who has been diagnosed with or has great knowledege of gential (genital) HSV-1 how many outbreaks they have had since their initial outbreak and about how long they lasted. I know this varies in people so I'm just trying to get a general idea. I've had 6-7 in the last 3 months lasting from 14 days to 24 hours. Thanks for any info you are willing to give.
When it comes to hsv1 genitally - about half of folks will never have another ob. Of those who do the average is 1 additional ob the first year and then 1 ob every other years. Only a small percentage of folks get ob's more often. If you are one who thinks you are getting ob's frequently after being diagnosed with hsv1 genitally - I encourage you to keep going back to your doctor to try to figure out what is going on. Something that lasts 2 weeks very well might be herpes - something that lasts 24 hours isn't. Just because you have hsv1 genitally - doesn't mean that it's the cause of all your genital issues from now on. From your other post you've also been having issues with yeast infections too correct?
Slacker101: I had a HerpeSelect blood test HSV-1 = .91 and HSV-2 negative. Ex was tested and positive for HSV-1 and gets cold sores. I tested at 1.5 back in early 2000's for HSV-1, no OB's just doing a test for it to make sure. I knew the risk with cold sores and we only had oral maybe 6 times and never during one of his outbreaks. His ex was tested also and was HSV-1 positive also no genital outbreaks on either of them. Plenty of time had elaspsed for testing.
I had 1 culture and it was negative and just got cultured again today for herpes (within 48 hours of the outbreak). Dr. (OB) is still saying it looks like herpes. I had her also culture for whatever else it could be which was more of a bacterial thing. She said it could be some sort of weird bacteria, but said it acts like herpes becuase it reoccurs. From what I understand to be true and from your last post Grace, this is an unusual amount of outbreaks for HSV-1 genitally. Also, I am generally a very healthy person except when I'm on the pill. I seldom even get a cold. I actually thought this OB was gone but now it's at 2 days so scratch the 24 hour comment. I anticipate it will be gone tomorrow.
Yes, I have had other problems back and forth between yeast and bacterial infections which have subsided quite a bit. They started with great redness, burning and itching for about 3 months (while I was on the pill which isn't that unusual for me) At the end of 3 months something VERY different developed. As of right now everything seems to be in perfect order except for the one tiny little broken blister which itches and burns a bit.
I should know the results on Friday from the herpes culture and the following week info from the other culture. If they both come back negative, she says we will just test again. I don't understand how 70% of the cultures can be wrong. If a test can't even detect it how the heck is it spreading so quickly among people? Never know, I could become famous...in medical text books that is.
Regular viral cultures are wrong 70% of the time because of many reasons. the longer you wait to get cultured when it's a reccurence especially -the less active virus there is to even collect for the culture. Also a regular viral culture relies on actually growing the virus out in the lab which is often easier said than done. PCR for herpes detection has become the prefered method of testing lesions with but unfortunately most clinics don't use it :(
if your lesion culture that you got done today is also negative for herpes - it's time to start moving past the idea that this has to be herpes. did your doctor also test you for yeast and bacterial infections again today at your visit?
GracefromHHP: My. dr did a culture and the bacterial culture to be sent out of the office to a lab. She usually does one for yeast and bacterial in the office but she did not do an in office culture this time since things felt a lot better than they had in months. She's looking for some weird bacterial thing but is not optomistic about it. I had to ask her to do it. I don't understand what part of "can we look outside the box" as to what this might be that she didn't understand. No pun intended.
It's frustrating that so many practioners aren't willing to think outside the box :( There is so much that can go on in our genital areas. Darn shame she didn't examine your secretions under the microscope in the office too - would've gotten you quicker answers than waiting for the outside lab to do their thing ( whatever it is that she ordered them to do ).
Also something to keep in mind is vaginal dryness isn't just an issue in post menapausal women - it can happen to all of us. It can increase your risk for infection as well as cause a lot of irritation/pain. Same thing as pantyhose, pantyshields, tight clothes etc can all contribute to issues for us. Even detergents, soaps and fabric softeners as well as toilet paper can be issues. Sometimes it just sucks to be female :(
My results came back negative on both cultures for HSV & any type of weird bacterial just as Slacker had suspected. Apparently I couldn't make anything grow in the dish at the lab...ha My Dr. said maybe your leison was just too small and may have been why it was negative. They are not very big anymore like they were the first 2 times. Now my Dr. is just not sure. She suggested that I retest again. Grace you suggested just moving on if it is negative this time. I'm not one to dwell on things but find it hard to think what it will be like when I meet my next significant other and tell him that I have something that hasn't been identified yet. Anyway, I know the lab did not do the PCR test, but my Dr. is going to check on the other labs they use and see if anyone does it. Tell me what you know about the PCR test. Do you suggest I do that or let it go?
Your blood tests are negative for herpes ( or at least positive before this all happened so it's not like this is likely to be a newly acquired hsv1 genital infection ). Your cultures are negative for herpes. It's really time to start thinking of things other than herpes. Perhaps if your regular gyn isn't able to figure this out then a dermatologist and /or a vulvodynia specialist can work together to get to the bottom of things for you.
I have a couple of questions. As much as I want to let this be, 26 days later the same thing again. It keeps me from forgetting about it. I have been to the Dr within 48 hours of my outbreaks but each time the blisters had already popped. They seem to happen and then pop right away. Is it too late to get tested once the blisters pop? Also, the last several episodes seem to be in the exact same spot. Is that normal?
You can have the supplies at home to do home pcr swabbing but it's doubtful that these are herpes with all your negative tests.
Perhaps if your regular gyn isn't able to figure this out you can consult a dermatologist and see if they can work together to figure out what is going on. I actually had terrific luck with doing that myself in the past but I"m sure it depends on the dermatologist you see.
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