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Help for Herpes or HIV long term symptoms
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Help for Herpes or HIV long term symptoms

Unprotected Oral (condom was broke for 10 minutes) from CSW on Nov 5, 2011.  Tested for HIV on Feb 6th (93 days /3 months after), result was non-reactive (negative).  Had initial jock itch issues per the doctor was on clotromiderm, used from Nov 2011 to Jan 30 2012.  Tested for all STI's, had a sore tested which was negative for herpes when had the jock itch but concerned it was the next day after I was open and virus may have been insufficient (if any) for a proper sample.  I waited 4 months and just went for a type specific HSV blood test.  I know this can only tell me if I have HSV1 or HSV2 and not when contracted. Results not due back until March 20th.

I have received other notes before, however looking for a followup as my symptoms have never gone away.

Concerned over HIV and Genital herpes.  Doctor feels neither, however I continue to have the following issues ongong.
Conditions have been ongoing since Nov 2011, now over 4 months.

1.Complete loss of smell (still can taste)  everything smells neutral ie wood smoke, gas, peanut butter, cologne all the same.  Have read that HIV causes nerve damage not sure when this occurs immediate or after years.  Could my 3 month test be not able to detect the infection.  Internet notes that some people do not test positive until after 6 months.
2.Groin burning (like a fire, inner thigh burning, sometimes top of thigh and under thigh tingling.  Inner thigh muscle pain.
3.Have read that HIV can make Herpes outbreaks longer and more severe.  While doctor has not been able to diagnose herpes, it appears that I have herpes given the pain is in the groin and inner thigh regions, genitals clear no marks. They actually never feel uncomfortable, it is main body (groin, abdomen, thigh) along with periodic other areas.
4. Feel warm and flushed sometimes, some nights when legs together when going to sleep feel like they are on fire when they touch together. Feel hot to touch, Took Temp and normal 97.7F.
5.Get numbness and tingling in feet, hands.  Get tingling in the skin of my back, arms, abdomen and love handles (not sure what acutal name is for lower sides of torso).  Clothes feel like they are prickling me sometime. Concerned HIV is causing this.
6.Have nights when feel tired and do not want to do anything as the pain gets to you eventually.
7. I get tingling into my abdomen. Primary concentration appears to be inner thighs, groin and abdomen with periodic times in legs, feet, hands, upper body.
8. Jock itch was severe per Doctor went down my leg.  I applied the cream for the period above in my groin both sides and down my inner thigh to knee.  Could the medication have caused long term pain.  I can possibly see it in the area applied but not over the rest of my body.

Would Herpes cause symptoms this long and skin pain?
Would HIV cause Herpes symptoms to last this long?
Would HIV have damaged my smell nerves and continues to cause the tingling issues throughout my body. Does HSV cause any of these nerve damage symptoms.
I tested at 3 months and it was negative.  Told was not necessary to retest, Should I retest at 6 months.
I am burning all the time, down to my mid thigh (worse up in groin), but never break out so why would herpes not break through the skin at some point?
I never had Genital herpes before, I have read that if you have an STI it is more likely you can contract HIV.  If the CSW was having a herpes outbreak in her mouth and passed me the herpes virus, does that mean the HIV virus passes with the herpes virus as well at the same time?

I find it hard to believe anxiety can cause these symptoms as I can just be doing something and the burning can get more intense or tingling start without even thinking about anything.  

Sorry for the long post but trying to figure things out.

Hopefully a medical professional can provide me some insight
Tags: HIV, Herpes
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7 Comments Post a Comment
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Avatar_m_tn
Is there any medical professional who can help me
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Avatar_m_tn
Do you have rash or blister or bumps? No test is 100% perfect...
Tingling can occur with herpes.plus Herpes can cause PHN even after the outbreak and lesion heal. You can feel nerve pain, tingling...etc for a few days, months or years after outbreak.... Eveyone is different.
Did you get a positive result for HSV by blood test or swab test?
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101028_tn?1348750963
why continue to think you have hiv despite negative testing?  all hiv related questions need to be asked on the hiv forum for more help with your hiv related concerns. I will tell you though with negative testing, they will only tell you that you don't have hiv and to seek out other causes of your symptoms.

follow up with your providers for your symptoms. they aren't likely to be std related at all.

grace
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Avatar_m_tn
Thanks grace

Sorry for combining herpes and hiv questions in same note  Was concerned there could be some relationship. Mainly concerned re herpes as had the negative hiv test.

comments appreciated.
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101028_tn?1348750963
as I said, this doesn't sound std related at all, that includes herpes. continue to follow up with your providers as needed to try to get to the bottom of it all.

best of luck!
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Avatar_m_tn
As you indicated I have continued to followup with my doctor.  I wanted to update were it has gone.

Follow up - received blood test results back and as my doctor figured it (he told me there would be a good chance it would be postive for HSV1) came back positive for HSV1 and negative for HSV2.  He figured it would be positive for HSV1 as he indicated many people have oral herpes which is generally HSV1. Honestly not sure if I have have had a cold sore, I may have but it has been so infreqent I can not for sure remember.

I continue to have nerve and burning pain on both sides of groin (in the inner thighs) (but does not appear to be in the scrotum or penis) and no sores on scrotum or penis.  Had an burning pain and felt like it was damp in the inner thigh folds by the scrotum again so saw doctor and basically made him take another swab to see if can can find any HSV virus but concerned may have not been a good enough sample.  He did not feel it would show anything and I expect the results back in 2 weeks.

He has seen me numerous times and feels my outward skin appearance does not appear to be herpes however is unable to provide me answers as to my long term burning and pain in the groin/thigh area which has not gone away completely since the incident in Nov 2011

As a side question on the above and my prior note above, I have lost my sense of smell and I have read that HSV can cause loss of smell or perpheral neuopathy problems.  Should I be concerned that while not sure I have genital herpes, I actually did contract them and it caused these nerve issues and continues to cause them.

I definately know little about herpes, sorry for my lack of knowledge

If I had HSV1 orally before, is there a chance that I could have also recevied HSV1 genitally also and now have it in both places?
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Avatar_m_tn
Grace another dumb question.  If it ever is confirmed I have genital herpes.  If my spouse also had genital herpes (I do not believe she has) we have been in a 24 year monogamas relationship (other than my stupid mistake).  If one or the other partner is in a breakout, does that mean do not have sex.  I figured since already infected it should not matter as given both already are infected what would the reason be to hold off while one partner is in outbreak.   Just trying to understand herpes.   Asking because looking for some knowledgable advice
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