Long, long time and still a question... Is this herpes?

[LongTimeUNK]

I started having genital herpes symptoms when I was 12 after the event of being molested by older kids... I am now 27. When I was younger a doctor took a look at my lesion and told me I was worrying for nothing. This was around the time I was 16 years old. As time went on I lived a normal life. I started having sex at 18, but in the back of my mind I felt something was a miss. This is because occasionally I would get pimples in the genital area. It was never anything extreme. They would itch sometimes but always sting if they were open or really inflamed. Maybe one or two at a time, and it would happen maybe every 6 or 7 months. Usually in conjunction with a yeast infection, extreme stress or being sick (which is rare for me).

Anyway I got married at the age of 19, my husband started getting pimples on his thighs and buttocks. He told me he didn't have that problem until he met me :(  For me this was enough to know my doctor was wrong and there was something wrong with me. My husband and I have been together for 8 years and I have never gotten pregnant and we stopped using condoms 7 years ago. Second sign something may be wrong. I've had persistent bartholins and ovarian cyst and several times I've been told I have scarring inside of me. But the biggest thing is that doctors always find that I have a elevated white blood cell count. So many indicators that something is wrong.

Now don't get me wrong I haven't sat around idle on this matter. After arguing down my doctor I made them test me for everything I could think of. I was extremely persistent on Blood Testing for Herpes. My doctors told me there was no reason for this test, even though I told her about the symptoms I've had since I was 12. I didn't care if it was a non-specific test. I just wanted to know if the Herpes virus anything (1or 2 or antibodies) were in my body. I mean look at what happened to my husband because of me. To my shock and disbelief everything came back negative. My asinine doctor highlited and underlined the negative result for Herpes on report. But I'm convinced it's a false negative, because I still have symptoms and so does my husband. Not only that but I ran into a old best friend that was my boyfriend for a short time in High School. Over dinner he disclosed he thinks he contracted herpes back then and that I should get tested. If he did contract it, I gave it to him too because I was told not to worry by doctors that refused to take me seriously.

So, with all my history on the table. I need to know if I'm just tripping out? How accurate is a Blood test for Herpes for someone who has had the virus for years. I'm not sure which test my doctor gave me, I just know it was a blood test to detect HVS. Do all blood test pick up Virus 1 and 2 antibodies? I'm not even going to deal with my doctor on this one, I'm just gonna try and find a random testing facility. She really treated me like I was crazy last time and rubbing the negative result in my face was uncalled for. I know it's something wrong and to my knowledge there's not many diagnosis that resemble herpes like this... I mean for 15 years!!!  What test should I ask for specifically? Something is wrong down there, my husband and I am divorcing now . I don't want to find myself infecting someone else due to not really knowing the truth or torturing myself because I'm afraid to infect someone with this mystery disease. My husband would never get tested and because my tests were negative. If I have it he needs to know that and so do I.

[gracefromHHP]

I still stand by whatI've said.  this isn't very likely to be genital herpes going on. think you and you partner have something else and a thorough work up by a dermatologist for you both isin order.

grace

[LongTimeUNK]

BTW the test done was a IGG test...

[gracefromHHP]

Only a small percentage of folks will have genital herpes and not test + on the blood test. It's far more likely it's something else going on.

grace

[LongTimeUNK]

I got tested for HSV 1 and 2 right along with a whole bunch of other things and everything was negative. So now, I'm even more confused than before. My doctor's nurse told me to try and come in when I have symptoms, but after two negative test more than 2 years apart he thinks it safe to say I don't have it. I don't know. Has anyone heard of anything like this before, everything about what's been going on with me points to herpes but tests say otherwise. I feel like I'm crazy because for years (more than seven years) I told myself that herpes is what it was and honestly it's affected me really bad mentally. I think I need counseling now, because I don't know how to feel or what to think.

[gracefromHHP]

Are you in the US?


A non-type specific test that was completely negative is a sign that this really isn't herpes going on.  I encourage you and your hubby both to follow up on this all with a dermatologist to figure out what is going on.  Have you been tested for yeast and bacterial infections genitally too over the years? Did you also follow up on other std testing?  Also sometimes mrsa infections are missed when they are in the genital area - the dermatologist can help with that part.

Even if you do really have genital herpes, it won't affect your fertility. Have you been to a reproductive endocrinologist yet for a full work up?

grace

[tracypatzold]

wow. I would think after 10 to 15 years of having this the blood test would turn up positive for either type 1 or 2. Thats really strange. It sounds like herpes to me. And plus u spread it to your husband & a previous bf. I think your doctor is a quack. I would say do another retest. Do a herpes select. You should be able to retake this test whenever. Cause you dont have a time frame sense you have had it for like 10 years. Please let us know in the forum if you retested and if u come up positive or not thanks.

[daisy315]

You seem convinced you have Herpes so I would have one last stab at being tested again only this time go to a STD/GUM Clinic and ask for a Type Specific Herpes test to be done ...... if this also returns a negative result then you really need to see your Doctor again and ask to be referred to a Dermatologist or skin Specialist of some sort to get to the bottom of this,otherwise it will be an ongoing dilema forevermore.
You've had this condition for way too long now so someone has to help you find out what is causing it....

Daisy