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Perpetual Burning and Swelling...

by wwb, Sep 06, 2008 03:00PM
Thanks for the informative site.   It is the best I have seen.

My problem started in 1991 with an ulcer half way up my penis about the size of a quarter.  The ulcer was painless and healed quickly.  My doctor at the time diagnosed HSV-2.

After the ulcer healed, I started having a very obvious stinging and burning sensation around my groin.  Occasionally I would also notice very small (micro) blisters just under the head of my penis.  They are never red, barely visible and could otherwise go unnoticed.

From 1991 to ca 1998 I used acyclovir to treat my symptoms with little effect.  The stinging and burning persisted with only an occasional break of a week or two.  Finally, in 1995 the symptoms started to subside and I remained relatively symptom-free for 10 years.  I even had a blood test in 2002 to see if I had the disease (negative - and I don't remember which test).

In December 2007, the symptoms returned in force, persist to this day, and neither acyclovir nor valtrex seem to have any effect.  Having read your excellent site, I am planning to get the BioKit HSV-2 test next week.

Does this history sound like HSV-2?  Perhaps I have a HSV-2 along with another condition.   Any thoughts would be most appreciated.  And thanks again for the wonderful site.
Member Comments (4)

by gracefromHHP, Sep 06, 2008 04:12PM
Actually what you need is a dermatologist and full work up including lesion cultures and typing done. lesions the size of a quarter would be very unusual for herpes and I wouldn't be surprised if it isn't something else going on. You've had negative blood tests to boot and herpes antivirals don't do diddly for you - all signs that this isn't really herpes and your initial visual diagnosis was probably wrong.  

grace

by wwb, Sep 07, 2008 05:31PM
To: gracefromHHP
Thanks for your comments.  I will proceed with your recommendation and update my post with the results.

Best regards -

wwb

by wwb, Nov 09, 2009 06:59PM
To: gracefromHHP
Regarding my post of Sept. 06, 2008 at 3:00 PM:

I did not break any records for promptness, but I recently had my doctor order HSA Igg tests for both HSV1 and HSV2.  They just returned NEGATIVE.  My doctor and I are baffled.  We have setup a dermatologist appointment but there is no visible rash at this time to culture.  The stinging/burning in the groin persists 24/7/365 with some weeks much worse than others.  Valtrex seems to do no good.

In you experience, how common is a false negative with the Igg tests?

wwb

by gracefromHHP, Nov 10, 2009 02:57PM
Definitely not wining any awards for promptness....lol.


At this point I'd go for the dermatology appointment since typically it takes so long and you can establish a relationship there. Even though your work up will be limited without symptoms present, typically then when you do get a recurrence, you can call and they get you in faster since you are an established patient.

This really doesn't sound like herpes and multiple negative tests support that as wella s failure to respond to herpes antivirals. it's time to look for other causes.  The dermatologist might even want to do some basic allergy testing too.

grace
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