Try googling hpv and oral cancer. One of the best sites is "inspire". It was bleeped out when I tried posting it above. Also, being diagnosed with hpv, which is quite common, is not a sufficient condition for accquiring oral cancer. There must be some triggering phenomenon like stress; the only possible cause "experts" seem able to cite.
I am somewhat disappointed that Dr. Handsfield is so dismissive about the likeliness of becoming infected with oral HPV. I really hope that I don't have oral HPV because you are right, surgery can be very traumatic to one's voice and respiratory system. If you can can you post the links to some of the forums you are talking about?
There is a very useful site: ***********, that discusses oral HPV issues including head and neck cancers.
There are many forums, discussions. I suggest you read some of these. The consequences of oral surgery are traumatic. So, consider the alternatives, please.
The fact that no one has replied worries me, I am about to see an ENT Friday. I am almost in the same boat, I was diagnosed with genital HPV and now I noticed a soft lump near the area where my tongue meets the entrance of my throat. I am worried because I had one ENT visit where the lumps where dismissed as swollen taste buds. I know that there is scarce information about oral HPV. I just know that from online research of symptoms and pictures I seem to align with all the literature for possible infection. I am very uninformed as you probably are. I am about to see an ENT again for a second opinion Friday. This doctor went to Yale and interned at John Hopkins. I hope that his experience and graduation date of 1999 will mean that he has knowledge on this infection. I will say this to you, I am worried as you probably are. So here are my VERY uninformed answers to you based on my own opinion. (I am no doctor)
1. To get HPV in your oral cavity ,from what I have learned, implies that there had to be contact with an infected person. This means that you either came into contact with someone's genital area or oral cavity that was infected. I have read conflicting information that is very incomplete on the subject of auto-inoculation. Some text suggest if you are infected you can somehow pass it to another area of your body. The areas of your body most affected are genital areas followed by oral cavities.
2. The transmission of the virus happens at a rate of 75% probability at each encounter with an infected area. Once again I found confusing information about this subject. Some places say that once the lesion is gone and healed that it is considered cured. I will say this, I have had lesions in areas where I find it nearly impossible to have had sexual contact so I don't know what this means about direct contact transmission. This is what troubles me about auto inoculation. My advice to you and your partner is that because the information conflicts so much, to assume it will be transmitted and discuss what the consequences are. I too have a significant other. we are not married and have only dated a year. I was diagnosed at the third month of being with her. I have read myself sick on this matter, and I have discussed the things I know with her. I know how hard this is because I lived it, but believe me when I say that having someone to listen to you and be there is the biggest satisfaction you can have during this ordeal. At the moment I am about to be a year into my diagnosis so any personal experience is limited to that time range. I hear that remission occurs at a year to a year an a half in most people.
3. I am not certain about oral HPV, because information is VERY hard to come across which is my foundation for the fear of being misdiagnosed. I will say that ,in my experience with genital HPV, I have had 4 recurrences. I am not sure what the rate of recurrence is in people with oral HPV. I will say that I have read that it is pretty rare to get HPV in oral cavities, but that may also be because ENT's or associated healthcare professionals are not currently educated on the subject matter and diagnosis.
Please keep adding to this post with your personal experience because information like this will help the next confused soul with this problem. I wish you the best of luck and I hope everything goes well.