I am about to turn 23, I was diagnosed with endometriosis a few months ago. I had a lap about 2 months ago where I had to have endometriosis, an ovarian cyst and my left fallopian tube removed (from damage).
It's only been 2 months and all of my symptoms and pain are back, possibly even worse. I want opinions on what my best option is.
My case is a bit strange though. I have been very sick for the past 3 years. In the last 3 years I have been diagnosed with osteoporosis, hyperparathyroidism, hypercalcemia, severe nausea, severe migraines and occasional tachycardia. After a lot of research these past two months I have found out that severe endometriosis can cause all of these problems if left undetected over time. I have gone through many genetic tests and tests for every other possible condition my doctors thought was causing all of this. They have found nothing in 3 years till this.
The best I have felt in the last 3 years was for first month after I had the endo in me removed. For that month I was able to eat, I gained healthy weight back, I didn't have a single migraine and was able to start working again (my fatigue was also gone) I want to feel that way again, for good. But after two months it all went back to before.
I know there is no cure and mine seems to come back very easily and quickly after being removed. Should I just consider having a full hysterectomy since most things I have read said it will be my best choice to have them not come back? I understand that means I will never have kids and will go through early menopause, but if it means not being sick and able to hold a job for the first time in 3 years I think it may be worth it.
I would really love some feed back or any ideas for other options.
Oh also, I have been on multiple birth controls and they have not helped, and since I already have osteoporosis I am not able to willing take the shots available. So medicines don't seem to work with my conditions.
Some of the symptoms you have mentioned are not commonly associated with endometriosis. I would also be interested to know why a 23 yo has osteoporosis. When laparoscopic surgery is performed in a patient with a history of pelvic pain post-operative placebo effect is rather common lasting up to one to two months after surgery. I recommend that you be evaluated by an internal medicine doctor and/or endocrinologist to address some of your concerns. Hysterectomy alone is not curative on endometriosis.
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