Hysterectomy Community
Any success stories after Hystorectemy?
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This patient support community is for discussions relating to hysterectomy, such as: abdominal hysterectomy, bilateral Salpingo-Oophorectomy, Laparoscopic Hysterectomy, LAVH, menopause, Oopherectomy, ovarian cysts, pelvic pain, radical hysterectomy, subtotal hysterectomy, supracervical or partial hysterectomy, uterine fibroids, and vaginal hysterectomy.

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Any success stories after Hystorectemy?

I have my surgery scheduled for December 2nd. Doctor will take out uterus and the fallopian tubes (keeping the rest including the ovaries). I have been reading all of these scary postings and I am getting little nervous about the procedure and the life after. It would really help to know that this is only a minority and that there are women out there that didn't regret having the surgery. I am soon to be 38 and I hope I can live one more decade without worrying about menopause and all the issues we women have to go through during this time of our lives.
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Avatar_f_tn
I had a full hysterectomy two years ago, will Feb will be 2 yrs. I went in at 7:30am and was home by 12pm. (44yrs)

That was the best thing I ever did....I have not had any issues. I was placed on the hormone patch the day after. I have not had any issues with menopausal symptoms. No hot flashed, moodiness, sensitive issues,no vaginal dryness, my sex life is great!

I surely do not regret it..I would have only missed a week of work, but due to a serious accident my son had I had to be off an extra week.

I have not gained any weight either, however, I do eat healthy MOST of the time.
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Avatar_f_tn
Sorry to hear you are scheduled for a hysterectomy. What is your diagnosis? Yes, the ovaries can fail after hysterectomy (40% chance). But there are inevitable physical, non-hormonal effects too since the uterus and its ligaments are essential for pelvic and skeletal integrity. That explains the figure changes that are a given and bladder and bowel problems that are common. And many women report sexual dysfunction.
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8012558_tn?1399312257
I have Essure (permanent birth control) implanted which my body is rejecting and I have had pelvic pains since I got them in 2008. There is many other side effects that affected my health and I tried everything else, but nothing is helping. The only safe way to remove Essure coils is with taking it out as a whole (uterus and the tubes).
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Avatar_f_tn
I had a full hysterectomy two years ago, will Feb will be 2 yrs. I went in at 7:30am and was home by 12pm. (44yrs)

That was the best thing I ever did....I have not had any issues. I was placed on the hormone patch the day after. I have not had any issues with menopausal symptoms. No hot flashed, moodiness, sensitive issues,no vaginal dryness, my sex life is great!

I surely do not regret it..I would have only missed a week of work, but due to a serious accident my son had I had to be off an extra week.

I have not gained any weight either, however, I do eat healthy MOST of the time.
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Oh and by the way I work with 6 other women who ALL have had a hysterectomy. They all agree it was the best thing they ever did.

Not one of them have any issues. Some have their ovaries, others do not. We all still work full time and have no problems with having had the hysterectomy ...
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8012558_tn?1399312257
Thank you Totie. I need to hear that so bad. I am just worried that I am making a right choice. My doctor thinks I need the surgery and I am tired of chronic pain.
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Avatar_f_tn
Why are you having it? I had to have mine due to so many issues. Complex cysts, cancer cells, and excessive bleeding.

After 3 yrs of dealing with the issues, my gyno finally said it is time and it would eliminate all the issues I was having..

It did. ...
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8012558_tn?1399312257
I have Essure (permanent birth control) implanted which my body is rejecting and I have had pelvic pains since I got them in 2008. There is many other side effects that affected my health and I tried everything else, but nothing is helping. The only safe way to remove Essure coils is with taking it out as a whole (uterus and the tubes).
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Avatar_f_tn
Please make sure you feel comfortable with your gyno/surgeon and ask ALL the questions that you need answered. There are NEVER any wrong, stupid, or enough questions that can be asked before a major surgery.

And please let yourself heal as your supposed to after the surgery.....
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Avatar_f_tn
Oh yes the Essure issues...hope you filed an adverse event with the FDA. Since your body is "rejecting" the coils, are you referring to an allergic reaction to the nickel? I know the coils can migrate but it seems they usually migrate to the lower abdomen, not to the uterus itself. Have you had an imaging test to see where the coils are? It would be a shame to lose your uterus and its non-reproductive functions if the coils are not in your uterus. And if they are elsewhere in your pelvis (aside from the tubes) you would be left with pain and be facing another surgery. If they are still in your tubes, removing the tubes should resolve the pain.

Hysterectomy and ovary removal are the most overused surgeries (along with c-section). 76% of hysterectomies do not meet ACOG criteria. Dr. Oz has said that 83% are unnecessary. Two of the main reasons the surgery is done unnecessarily (besides $$$) are not having a definitive diagnosis and not trying less invasive options first.

Unfortunately, this forum is not very active. There are some that have more activity that would give you a better idea of women's issues post-hysterectomy, especially years later. I am 8 years post-op.
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8012558_tn?1399312257
Old_before_my_time, did you regret having the surgery?
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Avatar_f_tn
Yes I regret it big time. The hormonal effects (rapid aging) have been devastating enough (lost most of my hair, sections turned gray, blurry vision, lost lots of skin collagen and muscle mass). But just as devastating have been the skeletal effects of the loss of my uterus which has destroyed my figure and the integrity of my spine and hips causing back, hip, and rib cage pain. And my bowels have been messed up ever since too (probably due to their re-positioning and possibly adhesions).  

The four sets of ligaments they sever to remove the uterus keep the spine, hips, and rib cage in their proper places. Gravity takes over after those ligaments are cut - the spine compresses, the rib cage falls, the hips widen. That is why women who have had hysterectomies do not have a waist and have a short, thick midsection. I recall one woman saying that her abdomen is now in her lap. You should be able to see this in women who are a number of years post-op especially if you knew them before surgery and they were not overweight.

Coworkers who had the surgery all have big bellies and tend to wear baggier clothes. I only knew one of them prior to surgery and noticed that her wardrobe changed not too long after surgery to baggier clothes. Her hair style and texture changed too. None of them said anything to me (good or bad) before I had my surgery; however, one did finally admit to me after my surgery that she felt nothing during sex and her pre-hyst sex life had been a "10." Another one posted an old picture of herself with very thick, dark hair. She lost most of her hair and it turned completely gray. I wish I had "listened" to my observations as well as my inner voice when my gynecologist said I needed a hysterectomy. My 20 year history with him caused me to dismiss that little voice in my head. Not long after my surgery, two more coworkers went "under the knife." Neither one needed the surgery. I have since discovered that a number of other ex-coworkers had unnecessary hysterectomies and regret it. There are plenty of women out there who have had them (1 in 3 by age 60 and 1 in 2 by age 72) but this does not mean it is a harmless surgery. A mere 2% are done for cancer. I have connected with many women who regret theirs, are not "themselves" and have developed more health problems. I had no need to hang out on health forums prior to my surgery but afterwards I needed support for thyroid, suicidal depression, anxiety, HRT, spinal issues including pain, sexual dysfunction, etc.

So peruse the resources available to understand female anatomy and the lifelong functions of the female organs, the overuse of hysterectomy as detailed in books by gynecologists who use organ-sparing procedures (e.g. A Gynecologist's Second Opinion, Hysterectomy Hoax), books by women who regret their hysterectomies, medical studies, hysterectomy forums with a lot of activity, etc. Seek out opinions from gynecologists who use organ-sparing procedures (although it can be difficult to determine who they are and some will "bait and switch"). If you decide to proceed, you do not want to live with regret. Best of luck in getting proper, constructive treatment!
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Not every one has the same outcome. For me and my co-workers no problems,,,''

Don't regret it...
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My co-workers had their hysterectomies an average of 20 yrs ago. I am the newbie....

They are all fine. They are the ones who gave me advice on the do's and don't of the surgery.
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8012558_tn?1399312257
I woke up this morning with the shooting pains in my pelvic area and the hip. That gave me more reassurance that I have to do something with these coils inside of me. The safest way to remove Essure coils is to take uterus and the tubes together so there is no any chance of leaving fragments behind which can cause the same pain. There is so many women that try to have only tubes removed, but they had to go for more surgeries after that. I do trust my doctor, but I would lie if I say that I am not scared of the life after hysterectomy. I am scared of gaining weight and not being able to loose it. I am scared of going into early menopause, not having sex drive, etc.
But I cannot live with the pain I am feeling right now, it hurts when I am seating, when I am standing I feel like someone is stabbing me down, the sex now is not all that enjoyable because of the pain.....
Feeling scared, scared, scared,    :-(
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Yes, I really feel for you because you are "between a rock and a hard place." I have read some of the Essure stories on Erin Brockovich's site as well as elsewhere. It sounds like the coils cannot always be located on imaging. It makes me angry that very few women are told the facts before gynecologic surgeries such as tubals, ablations, hysterectomies, oophorectomies. And each of these surgeries too often becomes a "stepping stone" for another one that causes more problems and makes more money for the doctors and hospitals. Since my experience, I am skeptical of all things medical but I need more medical care than I ever did prior to the hysterectomy.

You may want to research HRT and discuss it with your doctor before undergoing surgery. Some women wait until afterwards and then find that their doctor will not prescribe it or is not very helpful when the one they do prescribe is not effective. My gynecologist's office (the one who did my surgery and had been my gyn for 20 years) hung up on me when I called desperate for help because the HRT he prescribed was useless. It took another year to get the help I needed.
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8012558_tn?1399312257
Thank you old_before_my_time!

I will definitely ask him during my appointment prior to the surgery.
He was recommended to me from the other women that had essure issues. I met with him once, but I did  research a lot about this doctor and talked to the women that saw him. Women from other states are coming to see him and he is also teaching other doctors how to perform this type of the surgery. He told me that he will cut my uterus and the tubes and make sure the coils are all there. He said that he will make sure there is no any fragments left before he is done operating.
It's hard to trust the doctors after having experience with the ones that did this to me and never warned me of anything, but I have no other choice. I hope he is going to be willing to listen after my surgery too if I need help.
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Avatar_f_tn
So if he is going to cut your uterus looking for the coils, why is he going to remove your uterus regardless? The uterus and ligaments are the pelvis' anatomical and skeletal anchor as well as having other non-reproductive functions. The loss of my uterus has caused a number of issues the worst being chronic back, hip, and rib cage pain from those skeletal changes.

Can he not do a hysteroscopy (viewing of the inside of the uterus) in his office beforehand to see if the coils are there?
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8012558_tn?1399312257
The Essure is placed into Fallopian Tubes, however, the end tip is in the uterus and trying to remove coils from the tubes only and pulling them out can leave PET fibers in the uterus. Many women try to only have tubes removed with the coils and they had to go for the second surgery. Even one small fiber left can continue to cause the pain and inflammation. I am going to have X-ray done before surgery to make sure we know where the coils are located. There is many horror stories and they can end up floating in the pelvic and abdomen area.    
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Avatar_f_tn
Oh, I understand now...did not realize the ends went into the uterus. So sad to hear all the horror stories. I wish you the best of luck. Keep us posted.
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8012558_tn?1399312257
Thank you old_before_my_time. I will update the post after my surgery.

I wish I had more positive comments about the life after hysterectomy. :(  
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Avatar_f_tn
Hello, I'm recovering from my total hysterectomy five weeks now. I had the patch since the first day, and have had to try different dosages. I am going through mood swings, such as crying, and wanting to be alone. This wasn't be before the surgery.
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