Chronic pain

[pncwils]

I had a hysterectomy 12 years ago and left ovary removed last year, right ovary was fine.  Six weeks ago developed severe pain like my insides were falling out and a poker had beenstuck inside me with low back pain and upper leg aches.

I visited my dr who said l had blood in urine but nothing to worry about and said apotential UTI and gave me antibiotics after suffering for three weeks, l am now getting much worse, on my last visit on Wednesday there was less blood in my urine, no temperature BP normal but had protein and she gave me more antiobiotics, augmentic for a further seven days and 400mg of an anti-inflammatory drug one three times a day.

she has arranged an urgent Gyna appt for Thursday this week but the pain is now severe, low back and pelvic area is chronic and legs are aching from the back to the tops and sides, could this all be part of a UTI, bad taste in the mouth, gone off food but no weight loss

As l only have one ovary why am l seeing a gynaecologist?  I am petrified, l also suffer from anklosing spondilitis - can anyone shed any light or anyone had anything similar please

I am in despair as l feel my legs and body will give way on me.

thank you

[pncwils]

Thought l would let you all know, l was rushed to hospital 17 August and discharged on sunday have had to arrange private care now, the UK med system is not too good just now!
I have had a ct scan and have a 4cm cyst need tumour blood marker tests, all this after last year when they removed left ovary - why in gods name did they not take the right one at the same time.   I also have sore bones - arms legs and hands - bones feel permanently inflammed.  I go to see consultant thurs for blood work a CEA Blood test as CA124 okay he wants to do tumour marker tests before referring me to gyna, anyone had the same?

thank you
c

[Cherie762]

Hi

I would advise you to see a neurologist to rule out sciatic nerve damage this causes leg and back pain as you describe,,,,its a simple eeg test similar to a ekg.


Sherrie is right it could be joint related but I still think you should rule out the above

You need to see a gyno because your good ovary could develop problems, you need advice on possible hormone replacement and it is possible although rare to get vaginal cancer and the only way to detect that in early stage is pap smear

If its calcium...easy fix...could be kidneys stones are often calcium. You should see a kidney specialist for the blood I dont like them telling you the bllod and protein is not a big deal...your body is telling you someting is wrong...listen to your instincts sounds like your on the right path


let me know how things go...I appologise for the late answer I just lost a very dear friend and have had a lot to deal with

pm me if you like

C

[pncwils]

Thank yous or your response, l am just home from the out of hours emergency in the UK and they have arranged a scan for tomorrow.  I have still a lot of blood and protein in my urine, very uncomfortable and had a pain killing injection although that has not taken the pain away, like apoker inside me.

Here in the uk no pap smears are done after a hysterectomy only manual pelvic exams and dr could not find anything.

today the out of hours thinks it is either renal, gyna or calcium!

will keep you posted

[sherrieP]

I'm so sorry to hear about the pain you are suffering. Although you have had a hysterectomy and one ovary removed, you still should continue to see a gynecologist for pelvic exams; they can check for further changes in the tissues of this area of your body.

The pain you are suffering from sounds like it is related to the ank spondilitis rather than to the hysterectomy, below are some basics in case you haven't received this info from your physician yet.

Ankylosing spondylitis is a long-term disease that causes inflammation of the joints between the spinal bones, and the joints between the spine and pelvis. It eventually causes the affected spinal bones to join together.Your doctor may prescribe nonsteroidal anti-inflammatory drugs (NSAIDs) to reduce inflammation and pain.

Corticosteroid therapy or medications to suppress the immune system may also be prescribed. Drugs called TNF-inhibitors (etanercept, adalimumab, infliximab), which block an inflammatory protein, have been shown to improve the symptoms of ankylosing spondylitis.

I'm going to refer your post to the Hysterectomy Forum, there is a wonderful CL there who will be able to tell you if there is something related to that surgery that could be causing these issues. (This forum is related to pelvic organ prolapse.)

Good luck, I hope you find some relief soon. If Cherie does not feel this is hysterectomy related, it would be a good idea to pursue a physician well versed in the anklosing spondilitis; if your primary physician does not know how to address it, perhaps he/she could recommend a specialist in your area. I truly hope you get some relief soon!
Sher