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Hormone problems after total hysterectomy (still have ovaries)
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Hormone problems after total hysterectomy (still have ovaries)

I am a 29 year old mother of 3 and I had a total hysterectomy in Nov.  Since I had the surgery I have developed acne really bad!  I have tried everything from pro active to hair tied back and no makeup.  I called my obgyn and he said that because I still have my ovaries it most likely is due to something else.  I find this answer hard to believe because I seem to also be emotional all the time and even when I am cold I have rings of sweat under my arms!  I am happy that I do not have my period any more but it seems like I am going through puberty again.  I still get cramps but not as bad when it is my time of the month.  I asked my doctor if I could get my thyroid checked just in case.  I don't want to sound like a hypochondriac, but I am miserable!  Help!
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First of all let me clarify something for you, if you had a total hysterectomy, you do not still have your ovaries. So, with that being said, if you did indeed have a total then it sounds like you are in need of some hormone replacement. It sounds like you are having classic symptoms of going through menepause which is what you are suppose to do after a total hysterectomy. If your doctor isn't listening to you, then I urge you to find one who does. There is no reason for you to be this miserable.
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Avatar_f_tn
A total hysterectomy is the complete surgical removal of the cervix and the uterus, not always the ovaries...I know because I just had a total hysterectomy and I still have my ovaries. I also double checked on the internet as to the definition of a total hysterectomy.  I even joked with my doctor as to why they refer to the word total when some things are still left inside. Maybe after surgery your ovaries died...did they take or leave your fallopian tubes?  Sometimes if they remove them then your ovaries can "die" and your will experience hot flashes etc.
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Avatar_f_tn
You should check out HERS website.  As far as acne, I can tell you that my daughter was suffering from acne due to hormonal imbalance and she had clearlight treatments which completely cured her acne.  I imagine that this treatment has not been widely accepted because it really works and then the acne indurstry looses money, but I witnessed it and it worked.  However, if you can correct your hormonal imbalance, which is probably harder to do, then your acne will probably clear up.  It's hard to find a doctor interested in hormonal imbalance but that is most likely the cause so good luck.
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135864_tn?1221081629
Acne is more common in males than in females. It is especially common in males around puberty. Androgens (testosterone and others) are involved in acne. Sebum keeps our skin smooth and supple. Extra androgens stimulate excess sebum production; drying sebum blocks the gland outlet at the skin surface, causing retention of sebum. Vitamin A deficiency can aggravate acne and make it more difficult to heal. Vitamin A or beta-carotene and zinc aid the resolution of acne. When a woman in her late thirties or early forties develops acne increased androgen production is suspected. In almost all adult female patients with this condition, supplemental progesterone clears the skin. Dr John Lee's hypothesis is that ovarian follicle depletion leading to progesterone deficiency results in increased adrenal production of androgens. When progesterone is re-supplied, androgen production goes down and the skin clears. (The same hypothesis does not apply to men.) But in women, topical progesterone cream does wonders for acne.


found this on Humexlabs website.  Get your hormones levels checked with a saliva test and proceed form there.
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Avatar_n_tn
I too had a complete hysterectomy and have my ovaries.  A "Radical" hysterectomy with when they take everything.  Anyway.  I didn't have symptoms as bad as yours but I swore I was going through menopause and all doc's said no.  I still don't believe them.  You are having all the symptoms of menopause and I did as well.  I went on estrogen and it helped alot.  Not having a Uterus helps with the main problem of possible uterine cancer from ERT.  This is a choice you'll have to make for yourself but it definately helped me.
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Avatar_f_tn
There has always been confusion about total or complete or radical....bottom line you need to find out if you have ovaries or not for sure.  Maybe I am ignorant but I thought if you have your uterus taken you are thrown into early menopause!  With or without your ovaries.  I believe you still have hormone problems.  Go into the expert forum and ask the doctor. Maybe I am full of it and don't know it LOL.
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Avatar_f_tn
okokok nope.I am right....got this off Hystersisters site...


You have been through a lot in the past week or so. Your body has been through major surgery. Your body is tired and you are fatigued. You have pain medications in you and your hormones (whether ovaries were removed or not) are surging up and down.
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Avatar_f_tn
You see, I have already gone thru menopause, and so when I was going for hysterectomy I asked doctor would I have any noticeable change without ovaries, and he said no cause I went thru menopause already....I still kept them though because I have osteoporosis and need the little drip that is left haha...but you young girls are different, you will have hormone change.and if your doctor is not addressing those things I would find a new one.  Good luck.
Madge
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Avatar_n_tn
i am 47 years old , i had a hysterectomy 5 years ago still have ovaries  and have been  miserable ever since .these are my symptoms.
no sleep, night sweats hot flashes brain fog, weight gain upper abdominal bloating constantly, constipation, no sex drive at all
i am always depressed. have tried hrt but more weight gain.  i have tried everything under the sun nothing works just want to give up,  please if anyone can help me, or has gone through the same please let me know what helped you..
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Avatar_f_tn
Rosie:
I had a complete hysto. back in 84 (they took everything, including ovaries).  I was on the vivelle patch (estrogen only) for all those years.  I started to fall apart about 3 years ago.  Really crashed last winter with anxiety, panic attacks, no libido, on and off depression etc....   I finally found a Dr. that knew all about hormone imbalances and she works with bioidentical hormone replacement.  It's been 36 days now and I'm feeling so much better.  I'm not 100% yet but I'm getting so much better.
After all the tests (well, not all are back yet) have been done,  I was estrogen dominant and hormones were WAY OUT of balance.  She is now trying to balance everything.
Don't give up but find a doc or NP that deals with hormones and imbalances and uses bioidentical hormone replacement.
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Avatar_n_tn
i noticed your wrote this article on this forum a couple of years ago, but i need some help.....just 4 weeks ago i had my uterus removed, and my face is a mess, especially my chin....i hardly got a pimple ever, maybe before i started my period here and there, but now i have like 7 acne pimples on my chin, and above my lip and its driving me nuts, there sore and yucky..............i went to the doc today and he gave me stuff that they usally give teenagers for acne problems but since today is the first day i used it i don't know if its going to work or not..................i have an appt with my OBGYN in a couple of weeks so I will defiently mention it to him as well if that medicine doesn't work......i am worried cause I would rather have had 2 periods a month than my face looking like a pizza.................just wondered how did you make out with your acne problem? was it hormonal? stress? or what and did it go away????
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Avatar_f_tn
I know that your post was 2 years ago but I wondered if you ever got any answers for the issues you were experiencing? I also had a TOTAL Hysterectomy leaving only my ovaries over 3 years ago and I have had similar issues as well as additional issues. My main concern was my sweating, constant headaches, fatigue, sudden weight gain and loss of energy. Please let me know if you ever received any answers to your concerns or better than that, any relief to them. I have scheduled an appointment to see my OBGYN this week and hope to resolve all of mine.
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Avatar_f_tn
i had my uterus and tubes removed 2 months ago d/t a very large fibroid . i felt great for about a week. no pain!!! then everything went south. I have constant tingling in my upper and lower extremities. severe anxiety, panic attacks.  i would give anything to have hot flahes or crying jags. theses  are common symptoms thatone relates to menopause. i never heard anyone c/o tingling.  please if someone has heard of this please respond. i feel alone in this journey.
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Avatar_f_tn
I had a total abdominal hysterectomy in July 2010. The total abdominal hysterectomy consists of the uterus and cervix being removed only. Your ovaries and tubes remain in place. If you opt to have your ovaries removed then in is considered a total abdominal hysterectomy with unilateral or bilateral salpingoophorectomy. The reason I know is my doctor put that description on my surgical consent form because I was facing having my ovaries removed as well due to a large cyst.
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Avatar_n_tn
Actually, a total hysterectomy means your uterus and cervix was removed.  Having your ovaries removed is called an Oophorectomy.  They can be done at the same time but a hysterectomy has nothing to do with your ovaries.  Do your research before you try to clarify something for someone else.  I had a total hysterectomy.  I did not have an oophorectomy-I still have my ovaries.
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Avatar_f_tn
I HAVE HAD ENDOMETRIOSIS SINCE I WAS 14 YEARS OLD. (I AM 38 NOW0 I HAVE HAD SO MANY SURGERYS THAT THE SCAR TISSUE FUSED ALL MY REPRODUCTIVE ORGANS TO OTHER PARTS OF MY BODY, WHICH MADE IT VERY PAINFUL TO MOVE OR TWIST A CERTAIN WAY. I HAD A FULL BLOWN HYSTERECTOMY AT AGE 37. THEY REMOVED 12LBS OF SCAR TISSUE AND CYSTS. I AM MUCH MORE COMFORTABLE---NO PAIN AND I DROPPED WEIGHT. MY ONLY COMPLAINT IS THAT I GET CANT SLEEP,THE HOT FLASHES ARE HORRIBLE, AND MY SEX DRIVE IS GONE. THAT ***** BECAUSE MY HUBBY IS GORGEOUS.
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Avatar_f_tn
Your story sounds a lot like mine. I had a total hysterectomy at the age of 36 am now 42.  The first couple of years I lost weight, became in great shape, had lots of energy, no more PMS and a renewed sex life with my spouse.  My hormones had finally evened out from years of bleeding and horrible painful periods. I do however have night sweats and still have trouble sleeping through the night, thats why I am here. I am now having hormonal problems, straing facial hairs, achne (acne), a lot of weight gain, depression and exhaustion and my breast feel like they are going to burst they are so painful. I feel as though I am going through puberty again but I know I wont grow inches to counter this weight..
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Avatar_f_tn
I had my hysterectomy just 7 weeks ago, they only removed the uterus, I haven't had any real problems other than being unable to sleep properly, restless legs at night, sore breasts and still a bit of a dragging feeling. My main concern is the acne I've developed, especially on my chin and back, although today I have noticed more acne developing around the sides of my face and I do actually look like a hormonal teenager. I will be going to get it checked out as I wouldn't have thought just having the uterus removed would cause it, but it is a big disruption to the body and it has to adjust.
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Avatar_f_tn
hey I had a complete hysterectomy march 13 I am 45 yrs old It wasn't something I wanted to do but I had breast cancer at 43 and it was the fast growing  The said the best thing I could do was to get my ovaries out.I can't take any hormane meds so I'm just gonna have to just wait and see what happens and deal with it. I'm having alot of lower back pain now and my belly still feels bloated but other then that I feel ok for now .Has anyone esle been through the same thing and can tell me maybe what maybe next or are there any things that can help since I can't take hormane meds thanks Sherry
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Avatar_f_tn
I too have had a total hysterectomy a year ago and kept my ovaries. I had acne and now it's gone for the most part my ovaries fluctuate as if I had gotten pregnant, started menopause, puberty, then again normal, like clockwork. My depression comes, my weight has increased, not sure the answer for you yet as too when this will subside, one day I have normal lubrication, next it's too much, then it's dry and cycles around again. I was told it will stabilize but not there yet. So hope this at least helps you feel not alone
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Avatar_m_tn
I had a total hysterectomy including ovary removal in 2008, for uterine cancer. I had a very successful quick surgery recovery, but found myself on the verge of depression. Sloan Kettering having done a great job of getting me thus far, took no responsibility or offered no follow-up for the furtherance of my well-being. Finally one day I met someone who recommended an ENDOCHRINOLOGIST. This is what we need for follow up, and preferably one who understands what's current in bioidentical replacement.  Armour Thyroid, and  bioidentical testosterone cream and Estradiol gel were prescribed and I am happy going on 5 years now. I have my levels checked now and again.
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Avatar_f_tn
I am 27 yrs old and had a hysyerectomy 7 months ago but still have ovaries and with the past month im verry iritable, emotional, i have night sweats, i gained 15lbs since my sutgery ans just feel lousy!! What is going on with me???
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Avatar_m_tn
Hi, I found your post of over 5 years old and the same year about that I had my partial abdominal supracervical hysterectomy, left ovaries and tubes and due massive scar tissue from Emergency C-Section and massive bleeding brought on due to bad fibroids and a bad D&C my Hemoglobin was only 4 at ER ADMITTANCE so after 4 transfusions and several hours on the OR table with additional tranfusions, Dr. Said she was unable to remove cervix due to high risk of massive blood loss and closed me doing only partial because she said to cut away extensive cervical scar tissue would have been at least 4 more hours and too risky.  Bottom line, I am miserable ever since. No sex drive and unable to achieve orgasm (I had a VERY HIGH sex drive Pre-hyster and Super orgasmic, constant cramps in front and back like I am going to start my period, vaginal/urination smell foul,  complete cranky bitatch, sad, depressed, suicidal feeling.  Horrible fatigue and exhaustion. Awful weight gain.  My Dr. Says everything is OK???? No way!!!!  This is why I dragged it out years and almost bled to death rather than feel this way. Please help. Mimi
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Avatar_f_tn
Wow gooselove! I'm sorry you went thru all of that.

I had my hysterectomy almost 10 years ago, kept ovaries. I have been having constant, daily headaches and migraines ever since! In addition to brain fog, anxiety, mood swings, no libido, and insomnia. I recently put 2 & 2 together and realized all of this started when I had the surgery. I just didn't realize it was all connected, so I would go to the doctor for the most unbearable symptom and not the rest of them because they were tolerable. Anyway, I do have a family history of breast cancer, so I can't go the HRT route. I began taking Estroven. I've only been on it a few days, but I'm already feeling a lot better. I also ordered another all natural herb that look like they have promise. Anyone having hormonal imbalance should look into Peruvian Maca.

You are your best advocate. You know your own body better than anyone else! I had to become proactive and diagnose myself. If I left it up to my incompetent doctors I would still be suffering in silence and on antidepressants. That is their cure all for every ailment now.  I am 39 which is why I have been dismissed so easily for a hormonal/premenopausal condition, but I had a hysterectomy so it's not really that far of a stretch!

Good luck and good health!
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Avatar_f_tn
Hi, I am 48 years old and had a total and complete hysterectomy due to 2 primary cancers 9 years ago..ovarian and uterine.  They removed everything including my ovaries.  I went 7 months without any kind of hormone. I WAS MISERABLE.  All the same symptoms that every other woman is describing.  No sleep, fatigue, depression, anger, headaches, no sex drive etc.  I eventually went on 2 pumps per day of Estrogel (topical estrogen..the same one breast cancer survivors are given here in Canada) ...voila no more night sweats or flashes all day long.. (no wonder menopausal women don't sleep!).  I will only do transdermal bioidentical hormones.  Nothing by mouth so my liver and digestive tract do not have to try so hard to detoxify afterwards.  I have a testosterone cream compounded for me and had to figure out how much to take as the recommendation was too much for me..my body hates the male androgens.  I take this 6 days per week and no more weepy depression or severe exhaustion. Too much though and I will grow hair on my face and get angrier. Unfortunately, they do not make testosterone strictly for women so one must get the kind they use for men compounded.  Each woman is different and will require different amounts depending on her bodies reaction to it.  Finally I have a small amount of  estriol cream (the better estrogen) made up and it is inserted 2 times per week at night.  It's such a small amount that it really isn't that messy or inconvenient.  This keeps all of the internal tissues healthy and moist because without estrogen a woman will dry out and infections will set in.  I know because after 7 months, I was at that stage.  The only thing that I still struggle with is sexual desire.  I have no problem with orgasms but "wanting" it is another thing. (tho it could be my rocky relationship too cause my plumbing works perfectly!).  Anyway, hope this helps someone somewhat.

On a final note, I wish someone would come up with testosterone just for a woman's body!   And ladies, you need to be aware of the kind of estrogens your body is being replaced with...be as safe and healthy as possible and do some research on your own as well.

All the best...S
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Avatar_f_tn
I agree with the previous poster, Susan. Why is there no commercial testosterone product for women in the U.S. and Canada especially with the high rates of hysterectomy? Women lose around 50% of their testosterone after ovary removal or post-hysterectomy ovarian failure. I understand they have the Intrinsia testosterone patch in the UK. They had started a clinical trial of it here in the U.S. but abandoned it part-way through, if I recall correctly :(

Susan - I am sorry you had cancer but glad to hear you are doing well. I know a lot of doctors will not prescribe HRT after gynecologic cancer which is a shame since it can make for a life not worth living.  

I am curious if you have had any hair loss since your surgery. I lost most of my hair within months post-op and it has not grown back in. It has been 8 years so it is probably too late now. I often wonder if testosterone would have prevented the massive hair loss as long as I did not overdose on it. Oddly, my arms are hairier and I have facial "peach fuzz."
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Avatar_m_tn
I had a total hysterectomy in 2000, don't take any form of hormones because of the risk of cancer and heart problems, that run in my family. they took uterus, ovaries and my tubes, and my cervix, to answer your  question yes I have the tingling still and the anxiety and panic attacks hot flashes, and its been 14 yrs since I have had the surgery. my attacks were really bad a year after my surgery , they seemed to get some better that I could deal with them, but about 2yrs ago the anxiety and the panic attacks have been getting worse I find my self not being able to cope with things that I could have before. I wish they was something I could take to help me with the anxiety attacks they have gotten really bad to the point I feel scared  all the time,cant sleep at night, it scares me to even think about having to get out and drive any where ! its miserable !
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Avatar_m_tn
I had a total hysterectomy in 2000, they took every thing , my uterus, my ovaries and my tubes , cervix, I started having bad anxiety a little after the surgery, I dont want o take hormones because of cancer and heart disease that runs in my family I know its been 13 yrs after my hysterectomy, but the anxiety and the irritable , cant sleep  in the last 2 yrs has gotten worse I need to go see my doctor but have no ins, but I giving in from the advise from my family and thank God I have a very understanding husband and family ,and I am totally against anti-depressants and don't want to take the hormones either, but I do need something for the anxiety , the irritability and the agitation . so does any one know what the dr might prescribe for me ? im 55 yrs old !
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