Also, my internist is such a cold detatched creep! She defintely doesn't have a nice likeable personality to be a doctor and her 2 medical assistants are not nice infact one of them is really nasty to me for no known reason! When I first met her 2 years ago I told her I was sorry when she said she has a retarted daughter and she said you don't have be sorry.
The nurse practitioner in my internist's office is a nasty a****le too! It's so disgusting, some people really shouldn't become doctors, nurses or medical assistants they should become prision wardens instead!
And it makes me *so* angry that with all of the emotional distress I'm going through with both cancer scares, I have to be made to feel worse and put up with their rotten cr*p!
Also I had spoken in May with university of Maryland radiologist Dr.Jade Wong-You-Cheong and when I told her that my endo at Unniversity of Penn hospital kept insisting that a taller than wide shape of thyroid nodules is suspicious, she said she thinks it still holds true. And she mentioned that there was a recent study about it in the online journal Radiology.
I asked her was it from Korea because I found a recent study about this too on an online radiology journal and she yes and she said it was by a Dr .Moon. So after I spoke with her I looked it up again on google and sure enough it was the same study I had found and was by a Dr. Moon!
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On June 24th I had an FNA of 3 very small thyroid nodules that were found by accident In the Fall of 2006 when I was 41 and a half, because I have a very slow metabolism and my thyroid blood tests have always been normal and I gained weight for the first time at age 34 and had to go on a diet for the first time in my life. So I asked my internist for a prescription for a thyroid ultrasound.
The sizes of my nodules are one on the right lobe, 0.5 x 0.7x 0.7 cm on the left lobe,1.3 x 1.3 x 4.5 cm and on my isthmus a 0.3 x 0.6 x 0.7 cm, biopsied by a very good endocrinologist with a good reputation, Dr.Anthony Jennings and the first pathologist at Quest Diagnostics described them as unremarkable follicular cells with colloid and are diagnosed as colloid nodules. She didn't even mention I had any Hurthle cells. I have normal TSH and all other thyroid blood tests. Dr.Jennings also biopsied my largest 1 cm predominately solid nodule twice that day because first fluid came out.
I also asked my endo to please send my report and slides from Quest Diagnostics to a top thyroid pathologist that Dr.Mandel uses Dr.Zubair Baloch at University of Penn for a second opinion.
Dr.Baloch says in his report of my nodules, that in his opinion based on cytomorphology he will favor a diagnosis of hyperplastic/adenomatoid nodule for both specimens. He says interestingly the specimen from the right thyroid nodule shows oncocytic cells and few lymphocytes percolating among the follicuar groups suggesting an element of chronic lymphocytic thryoiditis. He says he does recommend clinical follow up and repeat FNA if there is an increase in the size of any of these nodules.
He says in summary then, my diagnoses are :1. Thyroid, right lobe nodule (size not indicated) FNA:Hyperplastic/adenomatoid nodule with oncocytic change. Focal chronic lymphocytic thryoiditis. 2. Thyroid left lobe (size not indicated) FNA: Hyperplastic/adenomatoid nodule.
Dr.Baloch called me and he said when I told him my concerns about the Hurthle cells ,he said I don't have a lot of them ( my endo said only when there is sheets of them can they be cancer) ,and that he could have Hurthle cells , children could have Hurthle cells in their thyroids and that it's not abnormal only when there is a large amount. But because my nodules are so small, isn't possible that the needle missed more of the Hurthle cells ( and other cancer cells!) present?
Also how accuarate are thyroid FNA's especially when my other 2 nodules are pretty small? My endo used ultrasound guided FNA though. Also I had asked Dr.Jennings when he looked at my ultrasound report if any of my nodules are taller than wide because the other endo at University of Penn Hospital Dr.Kolin Hoff kept insisting this feature as suspicious for thyroid cancer is outdated, and Dr.Jennings pointed to 1 of my nodules on his computer screen and said this one is slightly taller than wide does this count as suspicious then?
And none of my 3 nodules has a halo around them ,and one of my small nodules is on my isthmus and is hypoechoic and my largest nodule is predominately solid and isoechoic the other two are mixed but more cystic than solid.
I have the excellent report by the AACE, Task Force On Thyroid Nodules and they mention that nodules that are taller than wider, hypoechoic and have an absent halo are ultrasound features that are commonly found with thyroid cancer and I have these features and this still concerns me. My former endo at The University of Pennsylvania Hospital sent me a letter telling me my nodules were read as officially non-suspicious.
Two radiologists from the university of Maryland,Dr. Fauzia Vandermeer, and Jade Wong-You-Cheong wrote in an excellent article called,Thyroid Nodules:When To Biopsy? in Applied Radiology Journal online March 2007, that although with 80% of thyroid cancers the halo is absent ,it may also be absent in more than 50% of benign nodules. So I was wondering since I have some of these ultrasound features can a benign biopsy result of all 3 of my really small nodules, be truly accurate anyway? I don't have any calification and not a lot of blood flow. And I know that as The American Cancer Society writes in their report on thyroid cancer,most benign and cancerous nodules look the same on ultrasound and they said thats why you can't tell by ultrasound alone if they are benign or cancer. And I also know that the benign and cancerous nodules can have features of each other.
My father who is 75 recently found out he has four small thyroid nodules some on each lobe and he had X-Ray therapy to treat acne as a teenager. He had a biopsy on just one of his small nodules in January and it came back a benign colloid nodule. One of my father's sister's daughter's at age 41 nine years ago had a thyroid nodule found by accident on an MRI she had because of head aches she was getting from a diet pill she was taking to lose weight after her second daughter was born. She had no thyroid conditions and her nodule was cold on a scan, she had an inconclusive biopsy and then half her thyroid removed and it was benign!
I know that benign thyroid nodules can run in families but so can papillary thyroid cancer sometimes, so if my father's biopsy of his nodule is inaccurate or if it was accurate but his other nodules he didn't have biopsied are cancer, it would increase my chances and likelihood of having it too. And do you know if it's true that starting at age 45 thyroid cancer isn't as treatable? I'll be 44 in April and I'm concerned since most thyroid cancers grow so slowly that I'll be older than 45 by the time I'm diagnosed.
I have spoken with 5 thyroid cancer survivors, and had emails back from about 5 and I communicated with survivors on thyroid health boards and many of them were older than me when they were diagnosed and are OK now but everyone is different and thats what worries me. I didn't want to wait until I was 45 or 50 to have a biopsy and my nodules if they are cancer could stay this same size for the next 5 or 8 years and then I would be stage 2 !
Thank you. I made an appointment on February 2 with a oncology GYN at The Fox Chase Cancer Center. She agreed to see me after I had my other gyno's office fax my recent results of my biopsy and transvaginal ultrasound.
I had asked 4 gyn's and my internist since my mother died and my recent gyn if endometrial cancer is genetic and if I have to worry about it. And they all said it usually isn't that breast cancer usually is. My mother didn't have any close female relatives with it either. She didn't have a sister but her father's 2 sisters didn't get it, her mother's sister's 2 daughters are still living in their early 80's and my mother's mother, my maternal grandmother lived to be 91 and her mother lived to be 90. My grandmother's youngest sister died of breast cancer in her 40's and her oldest sister died at 82 of bladder cancer.
But on the web site of the hospital where my mother died it says that women with a close female relative, a mother, daughter or sister, with endometrial cancer are twicwe as likely to get it.
And The Women's Cancer Network and The American College Of Obstetricians and Gynecologists also says it's an increased risk. The National Cancer Institute doesn't have any information about a genetic link.
I have other risk factors for endometrial cancer too though. When I was 34 my metabolism slowed down a lot and I gained weight and to go on a diet for the first time. I'm still about 10 pounds overweight and I could be 15 pounds thinner. I don't even eat that much, I only eat 2 low fat low calorie meals a day and I only drink diet drinks. I don't get enough exercise though. But I take long walks sometimes.
I have also have never been pregnant or on birth control pills.
How is it going?. I am glad you are getting lots of resposes, I had to saw many doctors until I decided with who I was having what, some friend in this forum once said to me doctors should make you feel better outside and inside, and that to me is very true, look up for someone who can give you all the good in all aspects you need.
Hope you are doing fine and enjoying the holidays.
Thank you for your response too. Please read what I said in response to Cherie762.
Thanks for your response but I'm terrified of having any surgery! This gynecologist was really nice when I first met him and he's one of the few doctors that uses the TrueTest biopsy which is a newer not that painful and more accurate biopsy!
And I just left my other gynecologist who I saw for over 5 years because she was a total insensitive creep after I was really scared when she called and told me that endometrial cells were found on my Pap test and I told her my mother died at age 49 from endometrial cancer.
I had told this new gynecologist about how insensitive she was abpout this and he said I hear you like he really understood and then he wasn't so nice on the phone in September when my biopsy came back benign which 99% accurate and I had some questions about it and also I asked him if birth control pills which he thought would help stop my spotting in between my period , can cause my bust to get even bigger and they already are to big. And he wasn't too nice and understanding now either!
Gosh I wish these doctors would listen! You would think seeing your mother died from that type of cancer that they would keep a closer eye on you! You should really get a different doctor if that is possible.
theres only one certain way and thats to remove the fibroids and biopsy them with your moms history it would be a good idea, I think you should get a second opinion your gyno sounds like a jerk I hate doctors like that.
Thank you you for your response. But as I said in my orginal post above, they couldn't tell that my mother didn't just have fibroids and it wasn't until she had a D & C almost a month later that her endometrial cancer tumor which had as they described extensively replaced most of her uterine lining and that was stage 4 in her lungs was found!
Well probably someone around the forum can give you a better idea about your situation, I just wanted to share with you what my radiologist said when he did the ultrasound on me, I asked how do you know is a "good" tumor (fiborid) and not a "bad" one..he said that fibroids keep them self pretty well defined on the edges, like the shape keeps its borders like if they were just drawn, instead he said "bad" ones seems to be grabbing tissues, or like melting/mixing with the surroundings...I do not want to confuse you more but thats what stay at my mind about this how to know question.
I have a large one and to me is hard to believe it is just there for the "fun-sake" of it....
Good health to you!.,