Hysterectomy Community
Hysterectomy or not?? I just want to feel better....
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This patient support community is for discussions relating to hysterectomy, such as: abdominal hysterectomy, bilateral Salpingo-Oophorectomy, Laparoscopic Hysterectomy, LAVH, menopause, Oopherectomy, ovarian cysts, pelvic pain, radical hysterectomy, subtotal hysterectomy, supracervical or partial hysterectomy, uterine fibroids, and vaginal hysterectomy.

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Hysterectomy or not?? I just want to feel better....

Dont know what to do.  I have had several ruptured cysts on left ovary, two laproscopic surgeries to clean up the ruptured cysts and one surgery to remove a band of scar tissue off the ovary and pelvic wall...LEEP and Conization of the cervix and now over the last 6 months, my cycles are painful, extremly heavy bleeding (get up three times a night to change clothes) and large clots.  I am considering a hysterectomy due to the blood loss every month (fatigue all the time!) but I am scared of the hormonal issues I will face afterwards!!  I am 41 and a newlywed.  Will a hysterectomy completly ruin my sex drive or my abilities to enjoy intercourse?  
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599170_tn?1300977493
Hi there, my you sure have a lot going on, first congrats on the new marriage, and you have valid concerns about effects on sex life, Im sure your current issues effect it anyways, its hard to have a normal intimate life when bleeding so much and being in agony.

Im concerned about the amount of bleeding it sounds like your almost hemmoraging at times. Anemia would be a concern.

There are a few thoughts that come to me. First has your Dr mentioned maybe just having the ovary removed?  Once you have a rupture and scar tissue, the scar tissue can return, even if Dr does best to "clean" it up the best they can usually do is hope for a 75% reduction as every time they go in they are opening you up creating more incisions thus more scars and possibilities of addhesions.

There are alternatives to hysterectomy, especially with your age, your perimenopausal, if you could go on birth control pills it may reduce bleeding  and regulate cycle, there is a medication that induces a chemical menopause it works. The problem is it can have the side effect of causing rather sever depression. Of course one could always discontinue it if this happened. The med is an injection called Leupron ask your Dr about both things I mentioned and any other alternatives to hysterectomy. I always advise a hyster to be the last choice.

You will have hormonal issues to face with in 5-10 years anyways, menopause doesnt ruin sex life, many women (most) need extra lube as vaginal dryness is very common. Its still very possible to orgasam.

If you do have a hysterectomy, there are hormones called bio-identical, they are the best choice. It helps keep bone density good and maintain heart health ( contrary to older non bio hrt) You need to inform Dr of any history of breast cancer in your family before going on any hormones.

I have been cl here for 2 plus years and I can honestly say that all women can still enjoy sex post hyster. I will probably get responces to this to say the oppisite,many say it completley ruins sex life not so. It changes it. One cant have the uterine contractions that happen with strong orgasms, but clitoral and G spot orgasms are still gonna happen. Its something that takes getting used to. One must be fully recovered from the surgery both physically and emotionally, I believe that emotions play high into women who cant enjoy sex after. A hysterectomy is a very serious surgery a difficult recovery 6 weeks atleast.

If you do find that you will need a hyster get back with me so we can talk about the DaVinci Robotic method....its the best type of hysterectomy option. supreme technology.

Do see your doc soon ok? ask for a cbc and a red blood count to see if you are anemic
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Avatar_f_tn
I have an appointment in a couple of weeks.  New doctor.. uggg.  I have been in my community for a year now and after some recommendations I finally chose a gyno.  

4 years ago I was supposed to have the left ovary removed during another cyst removal.  That is when they discovered the scar tissue.  Unfortunatly, the hospital had me sign only a release for the laproscopy and not any other kind of surgery.  The surgeon said he could not remove the ovary laproscopically so it was cleaned up as well as they could and left there.

I have discussed uturine abalation (spelling?) and that is not an option either.  I have some scar tissue in my utuerus from an imbedded IUD that had to be removed surgically a number of years ago.  

And I seem to be ultra sensitive to drugs.  Have tried numerus birth control pills and most of them have nasty effects of me from rashes, to headaches, to terrible weight gains!!  I was put in a medical menaupause, fto see if it would help with endometriosis around the ovary (and I dont remember the name of the drug)  that lasted 6 months before I couldnt take the mood swings the drug caused. (That and I REALLY hate chemicals going into my body)  Had my tubes tied 12 years ago (LOL during another cyst removal) so fertility isnt an issue with me at all.

I have had my blood tested and I do run quite anemic.  And the dietary changes (vitamin c, iron, B complex, calcium) as well as more red meat does not seem to help much with my iron levels.  And I am in perimenaupause.  Hormone levels are a changing!

I know a hysterectomy is a major step, but I am running out of alternatives and patience!  I hate hurting most of the time, and the periods are getting worse each month to the point I cannot leave the house for fear of embarrassment.  

I do have one blessing though!!!  I am REGULAR as CLOCKWORK!!!!  Every 27 to 28 days so I can plan accordingly!!!  LOL

Thanks so much for your reply.....  I have just been reading way too much on the internet about how it would be the end of my sex life.  I already have the issue of dryness due to the dropping hormones anyway so that part wont be any different!  LOL

Have a great day!

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599170_tn?1300977493
Word of mouth in my opinion and from personal experience is the very best way to find any Dr,

Forget all about even trying the Leupron injections if your prown to mood swings from meds,,,,my gyn said he's had women come in begging for help after ill effects from Leupron the only thing that can be done until it comes out of system is to take a benzo type drug, ativan, valuim, xanax etc,,,

Your Dr should have offerd you injection of anemia med until your levels become more normal.


When I finally got my hyster after years of er trips tons of painmeds I was relieved, and sure don't miss the periods.

When you know date of your surgery pm me I can give you tons of pre and post op advice that Drs don't often mention,

hugs
C
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Avatar_f_tn
Thanks so much!  I have an apppointment on Wednesdag to see a gyno that was recommended to me.  First woman gyno I have ever seen.  Hoping she is sympethetic.  The clinic is affiliated with a teaching hospital and they have all the latest technology, (including robitics) so whatever happens, they are very up to date!

Will let you know what is discussed, and thank you so much for listening and replying!!
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Avatar_f_tn
Well, went to the gyno today.  I really like her.. takes the time to answer questions, not rushed, and very very caring!

Anyway.... my uterus is larger than normal, but good mobility.  Left ovary is fixed, she could't manipulate it at all and could feel a lump when palpatating my abdomen.  She thinks it is another band of scar tissue.

She does not want to do birth control due to the predisposal to headaches, progesterone treatment is out, (IUD caused heavy bleeding and that is about the same thing).  

She could do ablation, so that is an option if there isnt anything to prevent it.

She did a uterine biopsy (owie and now have spotting) and an ultra-sound tommorrw.

For sure, left ovary will be dealt with to release the pressure and pain.

And the doctors opinion is that I am on the road to a hysteroctomy, but unless the ulta sound shows a complication with the right ovary, they can leave that so that I dont have the hormone issues afterwards.

Will have all the results of blood tests, biopsy and ultrasound at my next appointment in two weeks.

Thank you so much for listening!!!!!

Connie
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599170_tn?1300977493
Hi,

Well I hope you try an albation before a hyster,,,hysterectomy should be the very last choice. Uterus larger than normal...well there is a scale for all body parts etc...some one has to be at the high end or just past normal,,,my babies where always in the 98th percent for height n weight,,,do you see what Im saying..you may just have a big uterus which could be your norm,.

Keeping the good ovary for hormones is a choice many women make in theory it should take on the work of two,,,much like when a kidney is removed and the remaing does work of two...meaning you should ovulate every month instead of every other from remaing ovary and yes produce enough hormones.

C
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st. louis, MO