Aa
i need help
hi, i really hope you have the time to answer me. i have been getting no answers from just about everyone. to start off, i am a 24 yr old female. i was diagnosed with endo when i was 20. i have had 4 laporoscopys and 2 laporotomys. i have also had my right ovary removed. i have been in such awful pain since all this began. i am told my chances of having children are limited....which is ok except i have to live in pain all the time. i have taken lupron for the last 7 months and this is my third try. it does work for me as far the exsessive bleeding and the ovarian cysts. my doctor is telling me that he is going to stay away from anymore surgery and anymore pain medication. i can completely understand his descison due to all the abusers, but....how fair is it that i suffer like this? anyhow, my family doctor intervened and thanks to her i can sleep better at night. BUT i do not want nor can i be on them forever so what can i do? he says the surgeries will hurt more than they will help...so what do i do?? i already tried a second and a third opinion and they really have less answers than he does. I'm so frustrated. i don't even work anymore die to this. i was in nursing and i want to go back to my life. oh yea.....and my 2nd opinion was the one who performed the 4th surgery. i would appreciate any help anyone can give me. thank you so much.
The adhesions would probably cause pain. Of course, they would have to be removed. I wish there was a way they could be dissolved without surgery??? -- From Post Above.
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I copied this from your post because I can specifically answer that for you. Yes. Yes there is a way and if someone has adhesions and this does not work for them, I would be surprised. Very surprised.
The only thing is that it is wise to check with your doc's office to make sure you are allowed to use a deep massage on that area. If they say this won't help....well, that is not specifically what you are asking. Just make sure you are allowed to do it. My opinion is that it won't hurt to try it as long as the doctor's office feels it won't hurt you to do it in the first place.
Essentially ~ and I will refer you to my old posts on adhesions, but briefly ~ You lie down on a smallish ball and focus lying on the pelvic bone and SLOWLY SLOWLY roll out to where the ovary used to be (I have no ovaries but this was the area where my horrible pain was for a year and a half...also more on the right side since two cysts and appendix were also removed during my hysterectomy) and then BACK to the pelvic Bone and then out to the where the other ovary would have been and then back to the pelvic bone again. ALL OF THIS should take time, like 10 PLus minutes....not rolling quickly....TEN minutes to complete the sequence of going once out to the ovary and then back and to the other again. Make sense? DEEEEP breathing periodically while doing this.
My concern though is you don't want to damage anything if you are still healing. Not sure exactly how long one has to wait to do this is they have just had surgery...Perhaps at least three months????. I did this technique about a year and a half after my surgery....I was told there was nothing that could be done for me short of having frequent Colonoscopies (oh joy) so that the adhesions could be SNAPPED open. They were colapsing my colon. YES..they can be very painful.
PLEASE take a look at my old posts on adhesions.
To do this find "Posts" on my profile and sift backwards. As of this writing, you may have to go back a ways...to December perhaps and there are many more prior to this as this info has been posted many times. Any title such as "Scar tissue," "Adhesions," "Pain after surgery," etc, will most likely have my info. Read through the thread because sometimes my good friend, Paula, posts the info for me and then later in the post I repost it with just a few variations or updates. But, if it is in my "Post" section, then my posts on adhesions will be there. I explain how I learned this and WHY it works. I also share the comments from the doctor who did the most recent lap for me and the shock he felt when he saw how "clean" it was inside me....no sign of anything adhesion-wise. I have been pain free (adhesion-wise) since 2002 now. Surgery for me (radical hysterectomy) was in 2000.
Good luck to all of you. I understand the frustration.
If anyone knows much about endometriosis and the connection it has to adhesions, please let us know. My understanding is that the two can be tied together. I know that they found endo in me (including Old Blackened Out endometriosis which they thought was cancer when they found it but biopsy showed otherwise), so I know it can be rather nasty. Isn't Endometriosis considered a type of adhesion? Not sure but I do think so.
Please let me know if you have trouble finding this information and good luck.
Mary
*********************************************************************************************
I copied this from your post because I can specifically answer that for you. Yes. Yes there is a way and if someone has adhesions and this does not work for them, I would be surprised. Very surprised.
The only thing is that it is wise to check with your doc's office to make sure you are allowed to use a deep massage on that area. If they say this won't help....well, that is not specifically what you are asking. Just make sure you are allowed to do it. My opinion is that it won't hurt to try it as long as the doctor's office feels it won't hurt you to do it in the first place.
Essentially ~ and I will refer you to my old posts on adhesions, but briefly ~ You lie down on a smallish ball and focus lying on the pelvic bone and SLOWLY SLOWLY roll out to where the ovary used to be (I have no ovaries but this was the area where my horrible pain was for a year and a half...also more on the right side since two cysts and appendix were also removed during my hysterectomy) and then BACK to the pelvic Bone and then out to the where the other ovary would have been and then back to the pelvic bone again. ALL OF THIS should take time, like 10 PLus minutes....not rolling quickly....TEN minutes to complete the sequence of going once out to the ovary and then back and to the other again. Make sense? DEEEEP breathing periodically while doing this.
My concern though is you don't want to damage anything if you are still healing. Not sure exactly how long one has to wait to do this is they have just had surgery...Perhaps at least three months????. I did this technique about a year and a half after my surgery....I was told there was nothing that could be done for me short of having frequent Colonoscopies (oh joy) so that the adhesions could be SNAPPED open. They were colapsing my colon. YES..they can be very painful.
PLEASE take a look at my old posts on adhesions.
To do this find "Posts" on my profile and sift backwards. As of this writing, you may have to go back a ways...to December perhaps and there are many more prior to this as this info has been posted many times. Any title such as "Scar tissue," "Adhesions," "Pain after surgery," etc, will most likely have my info. Read through the thread because sometimes my good friend, Paula, posts the info for me and then later in the post I repost it with just a few variations or updates. But, if it is in my "Post" section, then my posts on adhesions will be there. I explain how I learned this and WHY it works. I also share the comments from the doctor who did the most recent lap for me and the shock he felt when he saw how "clean" it was inside me....no sign of anything adhesion-wise. I have been pain free (adhesion-wise) since 2002 now. Surgery for me (radical hysterectomy) was in 2000.
Good luck to all of you. I understand the frustration.
If anyone knows much about endometriosis and the connection it has to adhesions, please let us know. My understanding is that the two can be tied together. I know that they found endo in me (including Old Blackened Out endometriosis which they thought was cancer when they found it but biopsy showed otherwise), so I know it can be rather nasty. Isn't Endometriosis considered a type of adhesion? Not sure but I do think so.
Please let me know if you have trouble finding this information and good luck.
Mary
Hello.... sorry to hear about your problems. I wish I had advice for you, but I am trying to find out about my pain as I recently had a hysterectomy. I had a couple laparoscopy's done in past and it seems the endometreosis comes back. I asked the surgeon if he noticed any endo. or adhesions, but he just said no. I know my body better than him and it makes me mad because he knew i had those problems and I was worried about it. I have a feeling that the endo or adhesions is causing the pains. Maybe my internal stitches are not healed being only 4 weeks, but it's the severe lower pelvic pains, and into my hip and lower back. I also posted my pain question recently as I am new member here. If they won't perform surgery on you again, not sure what else you can do. Is there a chance you have endo. again or pelvic adhesions. The adhesions would probably cause pain. Of course, they would have to be removed. I wish there was a way they could be dissolved without surgery??? That would be good for us. Take care of yourself.... I'm sorry I can't give you helpful advice, but you are not the only one going through this, you're not alone. Shannon (prairiefarmgirl)
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