Aa
please help desperate!!!
I had a total hysterectomy in 1997 for endometriosis and had no more problems until October 30th 2006 when i was taken to hospital with agonizing pain in the lower right abdomen near the groin. I was told it was wind and discharged and over the last 2 years doctors have said pain is probably adhesions and i should learn to live with it. However, the pain is getting worse and more frequent and i also have lower back pain on the right side with numbness and tingling down my leg. Sometimes i have no feeling in my thigh. I had sciatica some years ago and it has never really gone away and i never found what caused it. In the year leading up to developing the abdominal pain i lost 5 stone and dropped to 6 stone 10 and i wondered if that triggered it. I have put a lot of weight back on but it has not helped it. I am 37 and feel just like giving up and ending it. I just want someone to tell me what is wrong with me and not tell me to live with it or get a hobby.
Thank you so much for your help i am going to have a look at your surgical adhesions relief. I am not on hrt and had the hysterectomy when i was 26. My hrt was stopped 3 years after the op.
Hi, I just looked at your profile... May I ask how old you are?
I wondered if we have/had similar issues. When you read the info on Adhesions (above post) you will see that I suffered for many months from a slipped disc. My pain was all referred to my front... Finally a doctor ordered a nerve damage test which showed that it was amazing I was even WALKING! due to nerve damage. This prompted the order of an MRI which showed the Ruptured disc. I am on the mend now, thankfully. Two rounds of Physical Therapy helped. But, what also helped, I am convinced, was changing the dosing of hormones I take.. very low estrogen (from my research and also... this is my opinion) made things worse for me. Joint pain, back pain, muscle pain... all can be affected by low levels of estrogen (I had everything taken out in 2000). I have felt pretty well over the past few months since I made a few changes.
I can give you the name of the book that has been of recent help... "Screaming to be Heard" by Elizabeth Vliet, M.D.
Mary
I wondered if we have/had similar issues. When you read the info on Adhesions (above post) you will see that I suffered for many months from a slipped disc. My pain was all referred to my front... Finally a doctor ordered a nerve damage test which showed that it was amazing I was even WALKING! due to nerve damage. This prompted the order of an MRI which showed the Ruptured disc. I am on the mend now, thankfully. Two rounds of Physical Therapy helped. But, what also helped, I am convinced, was changing the dosing of hormones I take.. very low estrogen (from my research and also... this is my opinion) made things worse for me. Joint pain, back pain, muscle pain... all can be affected by low levels of estrogen (I had everything taken out in 2000). I have felt pretty well over the past few months since I made a few changes.
I can give you the name of the book that has been of recent help... "Screaming to be Heard" by Elizabeth Vliet, M.D.
Mary
Hi, Sorry to hear you are feelings so poorly. And, it sounds as if you have been treated in a dismissive manner. I would rather have a doctor tell me he was uncertain of something and that we would try to figure it out together than to be told to "get over it" or "deal with it."
Have you been on any hormone replacement? If so, do you know if it is a synthetic or a bioidentical? I am assuming you are not feeling well enough to be active and you just want your life back...
The one area I might be able to offer you some hope is regarding the Adhesions. I will see who I need to speak to to see if we can get the "Health Pages" here on this forum. I posted a lengthy thread on the health pages on the Ovarian Cancer site and the Ovarian Cyst site (actually a friend of mine is the forum director on the cyst site and I think I should give her credit for putting the information over there)... but, I have heard SO MANY complaints from women who've had hysterectomies and have had horrid pain from surgical adhesions and they don't know where to turn and the doctors are saying the same thing (mine did... said there was nothing they could do for me).
I have been pain free from adhesions for years now and I have to thank my Excercise Instructor... I posted all of the details on the Health pages... If you have trouble finding the info PLEASE PLEASE let me know and I will just copy and paste it here....
Go to one of the other forums (patient to patient cyst or ovarian cancer) and look at the top right where it says, "Discussion," then under that it says "Member" (I think...not sure of the order) and then you will see Health pages. My info is near the bottom and it says, "Relief from Surgical Adhesions."
PLEASE let me know you saw this... I think we all feel your pain, if I may say so...
I have not visited your profile yet and some more info might be there, but do you live in the States?
Take care... keep in touch.
Mary
Have you been on any hormone replacement? If so, do you know if it is a synthetic or a bioidentical? I am assuming you are not feeling well enough to be active and you just want your life back...
The one area I might be able to offer you some hope is regarding the Adhesions. I will see who I need to speak to to see if we can get the "Health Pages" here on this forum. I posted a lengthy thread on the health pages on the Ovarian Cancer site and the Ovarian Cyst site (actually a friend of mine is the forum director on the cyst site and I think I should give her credit for putting the information over there)... but, I have heard SO MANY complaints from women who've had hysterectomies and have had horrid pain from surgical adhesions and they don't know where to turn and the doctors are saying the same thing (mine did... said there was nothing they could do for me).
I have been pain free from adhesions for years now and I have to thank my Excercise Instructor... I posted all of the details on the Health pages... If you have trouble finding the info PLEASE PLEASE let me know and I will just copy and paste it here....
Go to one of the other forums (patient to patient cyst or ovarian cancer) and look at the top right where it says, "Discussion," then under that it says "Member" (I think...not sure of the order) and then you will see Health pages. My info is near the bottom and it says, "Relief from Surgical Adhesions."
PLEASE let me know you saw this... I think we all feel your pain, if I may say so...
I have not visited your profile yet and some more info might be there, but do you live in the States?
Take care... keep in touch.
Mary
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