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Sleep disorders: narcolepsy and hypersomnias

by SherBear551, Apr 15, 2009 11:07AM
Think about adding medications, treatments and other issues relating to narcolepsy and hypersomnias to your sleep tracker. Insomnia and sleep apnea may be common sleep disorders, but not the only ones.
Member Comments (6)

by kmil1999, Apr 19, 2009 01:19PM
To: SherBear551
I agree with you.  I was suprised there wasn't more on narcolepsy.

by Med Help, May 15, 2009 12:05AM
Thanks for the suggestion. If you tell us what medications, treatments, and events you would like to track relating to narcolepsy, we'd be happy to add them for you.

Thanks,
MedHelp

by SherBear551, Jun 11, 2009 12:25PM
To: Med Help
The medications I have used are provigil and adderall (adderrall), and I don't take them every day, so tracking them would be helpful. (I currently take provigil.) Tracking the degree of sleepiness is also helpful, since I am sleepy almost every day and a yes/no doesn't do much. Others with narcolepsy might benefit from tracking sleep paralysis but fortunately I don't have that problem.
That being said, I really like all the trackers here. Lots of options, but many could use more flexibility (esp. instead of yes/no, more "degrees"). Many thanks!

by jelewrry, Jun 15, 2009 01:17PM
To: SheBear551
I couldn't agree with you more, but I have another bone to pick.  I'm disabled and on a very fixed income so I have to watch every penny.  I've taken most of the stimulant meds at one time or another.  The best one, by far, is Provigil.  I've had all of the symptoms at least once.  The one that upsets me the most is not being able to do anything and I have so many other problems to complicate matters.  Provigil costs about $500.00 per month.  I do not take it anymore because I can't aford it.  I fell in the donut hole in March.  It would be a good thing if the "Low Income medication help" groups would consider this. Thanks for listening.

by iris506, Jun 23, 2009 04:39AM
To: jelewrry
I would like to know how you track the degree of sleepiness?  That is what i am trying to find out how to show the severity of Narcolepsy?

by Med Help, Jun 26, 2009 08:05PM
To: SherBear551
Thanks for these suggestions. We'd be happy to add Provigil and Adderrall to the sleep tracker as treatments. We may also be able to add a Sleepiness Level to the tracker as well. We'll let you know when these features are available.

Thanks,
MedHelp
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