ehlers-danlos syndrome

anybody been diagnosed with this connective tissue disorder? i was recently diagnosed w type 3. having alot of trobles.

[Bethanyatg]

Hello there,
I also jhave EDS type 3 or also known now as being the hypermobile form. I am 41 and legally disabled because of the pain and problems that I have. There are several good EDS sites that you can go to for help. Two of them are yahoo groups which anyone can join for free. The first one is ***@****   CEDA is The Canadian Ehlers Danlos Association. It is run by a nurse in Canada that has EDS and she has done a wonderful job of posting new information on its site. I have come to know Jill personally and she has helped hundreds of people. The second group on Yahoo is EDSers.  ***@****   The group is a smaller group of people but if you type a problem you will get someone that has been or is going through the same thing you are rather quickly.
EDS is not as rare as was once believed to be.  Now about 1 in 5000 people have this disorder compared to when I was diagnosed (in the 70's) it was about 1 in 20,000 people. My older sister and my daughter both have EDS. My parents have been gone for many years and I will never know which one of them had EDS and passed it onto me. Had I known it would get this bad I don' t think that I ever would have chose to have any kids. Many of us are not able to carry an unborn child long enough to have a baby. I for one had two miscarriages early on.
I am sorry that you were diagnosed with EDS but please know that you are not alone. You can contact me ANYTIME by email.  ***@****

Take care and good luck.