Incontinentia Pigmenti Community
Anyone who has IP boy?
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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Anyone who has IP boy?

I need to find anyone who has or knows someone dealing with a boy with Incontinentia Pigmenti. My boy has just be diognosed and i am scared for what is ahead of my family.
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Wanted to follow up to see how you are doing and how the little one is doing.  Please give us updates when you get a chance.  We are certainly here for support.
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