Incontinentia Pigmenti Community
Anyone who has IP boy?
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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Anyone who has IP boy?

I need to find anyone who has or knows someone dealing with a boy with Incontinentia Pigmenti. My boy has just be diognosed and i am scared for what is ahead of my family.
1666434 tn?1325265950
Wanted to follow up to see how you are doing and how the little one is doing.  Please give us updates when you get a chance.  We are certainly here for support.
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