Incontinentia Pigmenti Community
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This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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Doctor Help

The dermatologist that dx my daughter with IP has never seen it before and she is trying to refer us to another Ped. Dermatologist but her office is telling they cant find a doctor who is both a Peds. Dermatologist and that will take our insurance (FL Medicaid).  We have already been told she has total retinal detachment in her right eye and I would just love some answers about this DX.  Thank You so much.
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I cannot help with insurance, but perhaps if you try called Florida Medicaid they could name Pediatric Dermatologists and also VERY IMPORTANT Pediatric Ophthalmologists who are in your area.
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658757_tn?1397800478
ip affects the hair, eyes, brain, skin, and teeth. also because your daughter was dx with this you can apply for social security disability to help pay for things as well. i hope that helps a little.
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Avatar_n_tn
most genetics, neuro and opthomologists at the university hospitals will take state insurance....also check with NORD they have great info on all types of help available for these children
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