Incontinentia Pigmenti Community
Parent and Support Group
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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Parent and Support Group

My name is Khadijah an I'm 28yrs old with a 6-yr old daughter who was diagnosed with incontinentia pigmemti at 2 months old. I am looking for parents and/or support groups who's willing to talk and share information on this diagnoses.
1666434_tn?1325265950
Just wanted to follow up to see how your daughter is doing.  Look forward to your updates.
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