Incontinentia Pigmenti Community
Parent and Support Group
About This Community:

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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Parent and Support Group

My name is Khadijah an I'm 28yrs old with a 6-yr old daughter who was diagnosed with incontinentia pigmemti at 2 months old. I am looking for parents and/or support groups who's willing to talk and share information on this diagnoses.
1666434 tn?1325265950
Just wanted to follow up to see how your daughter is doing.  Look forward to your updates.
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