incontinentia pigmenti scotland

anybody in uk with ip

[seattlemom2plus]

I don't know anyone in the area that has incontinentia pigmenti but I do hope that someone else here will add to the post.  When were you first diagnosed?

[NathalyLorraine]

Hi keirasmum. My 2 year old has IP

[kierasmum]

hello  lorraine where are you from  xx

[kierasmum]

hi seattlemom you will be like wow tht didnt tke long to get a reply lol my daugter is nearly 6 she was dignosed at 3 weeks of age it took them a while becoz they never seen it befor she was born with all the blisters and she had biopsy after biopsy then they seen a little couple of bubbles on my legs nd realised i had it to x