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Avatar universal

Muscle twitching and Pain, please help!

I've always been healthy male in early 30s.
One night I decided to meet with a man on the internet. I only licked his penis and may have swallowed precum. He did not ejaculate.

Two days later, I get tingling in my hands and feet for the first time then develop a fever with swollen glands. Two weeks after I developed muscle twitching all over my body including face, eyes and head. The tingling in my feet make it difficult to walk. For months my head starts feeling heavy, blurry and dizzy. I start developing muscle pain and pain to internal organs.

I've had EIGHT full STD/HIV screening, all came negative, last test was 7th month after incident. Been doctors for other checks for thyroid, lyme disease and vitamin deficiency, all negative.

Currently after 8 months, I'm still getting twitching muscle all over my body. My testicle is swollen (this has been checked by two different doctors, tested for lumps, not scanned), my right knee is very painful at the joints. Feet often get numb. Get random muscle pain. My head still feels dizzy and heavy.

Please help, I'm really at a loss what's causing this. I definitely know it's been caused by some viral infection from the incident but after 8 months I'm still suffering. Please help me!
12 Responses
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1415174 tn?1453243103
COMMUNITY LEADER
Glad a lot of your symptoms are going away. Hope you get better.
keep me posted.
mkh9
Helpful - 0
Avatar universal
Thanks for the response, I've gone back to see another doctor, again been told it's anxiety and it's a coincidence it happened after the incident. Got prescribed a beta blocker called Propranolol. I will press hard for a ct scan our mri if this doesn't work on my next appointment.

The fever and night sweats happened in the beginning and stopped after a few weeks. My glands stopped being swollen same time.

I live in the UK, never been out the country. There was no kissing. The testicle feel swollen, sometimes a feel nothing, comes and goes, it's painful sometimes but not very deep pain.

Really appreciate all the help.
Helpful - 0
1415174 tn?1453243103
COMMUNITY LEADER
I don't think it is anxiety. I don't think you got an STD but maybe something else from the contact or something neurological. Would you see a neurologist to see what they say? Do you still have a fever? Any cough or night sweats? Maybe you should think about a CT scan or MRI of the head since your symptoms are related to the head mostly. I'm not sure why the testicle is swollen. I don't know if it can be infected or if it is a cyst. Certainly, the contact you had was really minimal in transmitting a STD. Did you kiss this person or anything else like that? What country do you live in and have you been out of the country? Also an ultrasound of that testicle might be a good idea. Is it very swollen or just a little? Does it hurt? Are your lymph nodes still swollen?
mkh9
Helpful - 0
Avatar universal
The STD tests ive done tested for Gonorrhea. All negative.

I did go doctors again, a different doctor this time. He thought bacterial infection on knees was crazy and thought its all anxiety of catching a disease.

Got prescribed Amitriptyline to take at night time. This only made me sleepy and dry mouth. It had no change to the muscle twitches, knee pain and swollen testicles. Knee pain has gone down a little.

The worst part is im still feeling dizzy in the morning, head feels heavy and vision blurred. This is going on for 8 months now.

I really dont know what to do, really appreciate all the help im getting here.
Helpful - 0
1415174 tn?1453243103
COMMUNITY LEADER
The thing that a friend says that has Lyme that doctors blow you off if you don't have a lyme rash or never did. But 30-40% never get a rash. At first the CDC here said that lymes patients always get rash and have to be in certain areas and now they are retracting that. So, at least you got tested. Although, my lyme friend is negative or boarderline and she is positive with the westernblot by CDC standareds. So, I don't know. I know the EIA test can sometimes be falsely negative.  There is a lab that does PCR and the western blot but getting a doctor in the UK to send your lab work there when it has been negative would be impossible. Unless they don't see the other results. But, maybe it is something else.

GC is short for Gonorrhea. You don't always get symptoms from it especially from oral or anal sex. I don't know if it is possible that it spread to other parts of the body in your case. At this point you probably wouldn't have it orally. But your still try to test for it if you haven't yet. They probably won't think you have it in the joints since it is rare to get it that way. And, maybe that is true. But I am just bringing it up as a rare possibility too.

mkh9
Helpful - 0
Avatar universal
I tested for all possible tests, they even tested for others they thought was unnecessary. Tested for hiv, syphilis, chlamydia, hepatitis... Not sure if I missed more. All were blood and urine. I didn't get any information about blood count/cells, just text and calls saying all negative.

I had to force my doctor to test for lyme disease because all my symptoms matched lyme, he said it's very rare to get in the UK. I've got no tick bites.

Sorry but what's GC?

I'm going to go back doctors again but worried they going to brush me of and say it's anxiety again.
Helpful - 0
1415174 tn?1453243103
COMMUNITY LEADER
Did they also test you for the co-infections of lyme such as bartonella, babesia, anaplasia, and Ehrlichia? You do have symptoms like some of these. Just trying to figure it out.
mkh9
Helpful - 0
1415174 tn?1453243103
COMMUNITY LEADER
Well, you would be surprised on how many people have another problem here when they are sure it can from some incident they had. It seems strange though that you were tested for the STD's that it would come from that and they would miss it. Unless there was something they didn't test for. What STD's did they test you for specifically? GC usually if missed can go to the joints. But it may be another bacteria or another cause. But it does sound like an infection with the fever, joint pain etc. Have you had a complete blood count done? If so were the white blood cells high?
mkh9
Helpful - 0
Avatar universal
Thanks for finding solutions, really appreciate it.

Ive had fevers, mainly at the start after the incident, i remember for the first three months, i felt very tied even if i got sleep. The worst part was my head feeling very heavy, never felt like this before.

My testicles is still swollen from time to time, this started 4 months after incident, never had this issue before, two month after my testicles were swollen, the joints in my knees started aching. This cant be a coincidence.
Helpful - 0
1415174 tn?1453243103
COMMUNITY LEADER
Well since you have bad joint pain maybe it is reactive arthritis. It is caused by a bacteria that gets into the joints. You can check for arthritis and also they can aspirated the joint but that is painful. They check the joint fluid for bacteria. If they are in the joint they kind of hide out there.  It can be caused by GC getting into the joints if they didn't catch it to start with or another bacteria that travels from the initial site and then gets into the joints. I wonder also if you potassium is off and that would cause the muscle twitching. Have you had any fevers?
mkh9
Helpful - 0
Avatar universal
It must be related as I NEVER had these symptoms before.
It must be some sort of bacterial infection as 4 days after the incident ive had the worst fever with night sweats then all these symptoms starting to develop.

The joint pain on my knees is very painful.

Ive done many calming techniques but the pains come back randomly anytime of the day. Muscle twitching is the worst.
Helpful - 0
1 Comments
A lot of people associate their symptoms that come on after an encounter with someone as coming from that incident and it turns out to be something that happens to be something else.

But, one thing you can check is syphilis. Even if you had this test it can be falsely negative about 20% of the time. So you can get a fluorescent antibody test called FTA-ab to back it up if you had the RPR test or VDRL test. It usually wouldn't show those types of symptoms right after an encounter though. It would take years really.
Also, if gonorrhea got into the blood stream and got into the joints it is possible that you could get reactive arthritis. That is more in the joints and caused pain there.

But muscle twitching isn't a symptom of any particular disease.

Have you been tested for diabetes as well?

those are some things I can think of at this point.

Have you seen an infectious disease doctor?

mkh9
1415174 tn?1453243103
COMMUNITY LEADER
Your symptoms actually sound neurological not like any STD's. It may be a coincidence that it happened right after the incident with this man. You may want to see a neurologist.

mkh9
Helpful - 0
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