Interstitial Cystitis Community
Interstitial Cystitis
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This patient support community is for discussions relating to Interstitial Cystitis / Painful Bladder Syndrome (PBS).

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Interstitial Cystitis

I had a cystetomy and I don't have a bladder now. I have had almost 22 years and still have phantom pain. What helps with that?
2 Comments Post a Comment
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1711789 tn?1361311607
Hi there!

I would suggest consulting your treating doctor, if you could be given pain killers that would help reduce the pain. The sensation is likely to reduce itself over time.
Hope this is helpful.

Take care!
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Avatar f tn
Sorry so late, just found this site.  Obviously you did not get your answer.  What was your bladder removed for?  Did they also remove your urethra, that could be the problem.  Sometimes left over tissue, if it was IC, will cause the pain.  I am not a doctor, but have become somewhat of an "expert"on IC if that was your problem.
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