I have just been diagnosed with IC a few weeks ago from the second urologist at Kaiser South Bay after the first told me I should not be feeling pain from chronic kidney stones. I am going to have a camera inserted in my bladder to confirm the IC but I have been suffering from constant feeling of having to go to the bathroom even after I go and never seem to empty my bladder. It has been progressive from the first time I had a catheder inserted in my bladder when I had my first hospitaslization from Kidney stones in 2001 and has been progressivelly getting worse ever since. Now I am in constant pain and my doctor prescribed Imipramine 25mg. It has done nothing for my syptoms. He also gave me a scribe for norco which has helped immensly for the pain but I seem to need about 4-5 pills a day and my urologist will not refill my script saying my condition could not be causing me so much pain and is reffering me back to my GP. I am now having a flare up and have only 7 pills left. I do not know what to do. My life has been severly impacted byu this condition and the only thing that helps me have some semblance of a normal life has been the Norco but I think I need a stronger medication and my doctor will not even prescribe a refill. I do not know how I am going to survive without it when I run out of the norco. I hate taking pain medicine but I hate the pain even more. I need some help as to how I can approach my doctor who says Imipramine is the only medication that works for IC. Is he right? What else is out there and how can I get treatment for this debilitating chronic pain. I have a 3 year old daughter and I want to be there with her and I find it is hard to do normal things like go to the park, shopping etc. I need help!!
I just wanted to add that with the frequent urgency I feel I also have extreme pain and it radiates to my sides and lower back. Also sex is painful. I have been hospitalized for passing kidney stones twice and have ten stones in the left kidney and two in the right. The doctors tell me I should not be experiencing pain from them until they pass. It always feels like I am passing.
hate to hear all this i deff can realte to what ur feeling i have both "ic" and endometrious there called the evil twins i was diag with endo at 20 but dr said had it for very long time befor i got checked and "ic" diag when i was 27 i just knew there was more then endo due to the pain was something you can't describe so got small surgrey done with camrea like ur getting and they found it and sent me to a specilast for it aswell i was getting pain med for yrs even turned a couple down because i didn't want them but then seemed like nothing helped the pain at all anymore didn't matter what or how many it was just to server thats with endo with my :ic" again meds but doesn't help so they want to put in a stem plant device inside me to shock the bladder when i have a flare but i chickend out the first time i was schuled for it but i think im going to though soon becuase with "ic" pain meds don't really help if it does its only for a short time. maybe the dr wants to comfirm that you have it first they can asume but then find differnt i really hope you dont beacuse "ic" is serious and it does limit your life gosh do i know.and pain is horrible that dr knows that i dont know what you could really say prob shouls wait and see what they find then dr will prob give you something 4 pain since they know 4 sure then again who knows theres so many people abusing meds it's hard for the people to get it when they really need it.i do feel your pain with this your symptoms are the same with "ic" i would deff tell the dr they have to do something for your pain cause thats crazy you have to sit there in pain with ur daughter or i'd just go to a differnt dr a specalist or whatever someone wil help you find a way to control the pain way would that dr give you something then say nomore thats nuts unless wants to see what they find i hope this helps deff see what dr says or go some where else if you think you need to and ask about stem plant
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